Parkinson's, DBS and Me - Episode 5: Levodopa Test

[@samarmstrong3042]

Not easy, thank you for sharing your story, I hope you get the DBS. It took me back to year 2000 when my daughter had it fitted. The youngest in the world and the only child in the UK to have it fitted at almost 7years. She quite literally paved the way for DBS. All the best.

[@joyaldren989]

Wow Sam, thanks for sharing this. That must have been so stressful.

[@parkinsonsuk]

Hi Sam, your daughter is a true pioneer. Wishing you and your daughter all the best, thanks for your post

[@ianprescott7378]

My own DBS journey starts in September🤞 at Salford Royal. I have full body tremor and it can go on for days at a time. The first time it happened I tried a double dose of Madopar. My tremor didn't stop I just didn't care anymore. You are brave for being so open about this, many can't be so. I shall be following your story with great interest. All the best, take care.

[@joyaldren989]

Good luck Ian x

[@markhughes4379]

It’s a pity about the tedious music repeated in each episode. However, love the videos Jo. They have given me hope and inspiration in bundles: I go for my DBS in September and your videos have been informative and very reassuring. Thank you very much, Mark.

[@brucethompson1964]

You are tougher than you think. Bless you for sharing your adventures

[@joyaldren989]

Thanks Bruce!

[@suziesuzie9455]

Watching this because my specialist is saying I have this, but to be honest I am not sure about that. I want to be certain because all my symptoms don’t match, just some do. I am asking Newcastle genetics first see what they think. I need more info, before taking meds.

[@kevinsmith6433]

I had a nerve induction test for one day after I felt better I'm getting a dat scan next week been waiting forever it's a bit like when you get to the front of a que there's another qué

[@PeterGoggz]

I am on the same journey ( wehave a mutual friend , bub) , i did good on the leva dopa test , and i have a pre operative appointment in august

[@parkinsonsuk]

Wishing you all the best on your DBS journey Peter

[@wonkeydonkeydonkeychannel8566]

Thank you for sharing x

[@marcanderson5612]

look into FUS PTT

[@annasutton8078]

Are they looking for natural Levadopa leval. Does lack of it mean that you are more suitable for DBS?

[@Letik3x]

Is there any disadvantages to Levodopa

[@davidbarrett8348]

May Hashem heal you.

[@Rocketronnie7]

I was bouncing off the walls when they gave me 300mg hahaha... I have just had mine done in Newcastle RVI by a lady called Miss NIcholsone fitted my dbs 4 weeksb ... Who done your leved h9mopa test? Mine was done by a lady called Una Brecany... But she had since left and Russell Mills has since took over he's a lovely bloke.

[@joyaldren989]

Hi there, same team as you. Thanks for the message!

[@ahmadmerhebi6802]

What is .meaning D BS

[@parkinsonsuk]

Hi Ahmad, DBS refers to Deep Brain Stimulation. It's a type of surgery used to treat Parkinson's, and if you're interested in learning more you can check out our DBS info page here: www.parkinsons.org.uk/information-and-support/deep-brain-stimulation Best wishes, Joy