Peripheral Neuropathy - Vitamin B6

[@Team920_]

Mine is at a 7 and i have so many weird symptoms. Walking issues , heavy legs , numbing , cold feet , cold hands , mood disorders , serious brain fog , lightheadedness; depression , anxiety . Ive been cleared by a cardiologist and many other doctors . Neurologist diagnosed me with small fiber Neuropathy. These symptoms all started after being prescribed flouroquinolone antibiotics back in 2020

[@Team920_]

@@donalkinsella4380 I've found vitamin d in high doses helps but only for like the first 2 to 3 weeks and then symptoms seem to reappear. I haven't gained much ground myself but I am still on a never ending search . I do wanna mention tho that all of this started after taking a flouroquinolone antibiotic named Cipro .

[@taplubambhos2869]

So sad to hear. I got bad sibo and insomnia so i had some and i have anxiety tingling etc. I am now going to try and get it from food source. God bless u and may god heal u

[@cloudben3021]

How did you your neurologist diagnose small fiber neuropathy? I went to 4 different neurologists, but they said my symptoms are psychosomatic or said that it is highly unlikey that b6 toxicity causes sfpn. I am at a loss of what to do.

[@taplubambhos2869]

@@cloudben3021 i started having betaine hcl Pepsin and gentian bitter with meals and 1 tblspn of fine grated ginger right after waking and right after dinner. Its made a world of a difference

[@Team920_]

@@cloudben3021 my neurologist diagnosed through a test called a "TM Flow Test"

[@JOEY_TREN]

I'm just dealing with this now. I was drinking 2-4 monsters a day each %240 dv B6. No water and playing basketball for hours. The past few days I been drinking a gallon of water and playing basketball for hours my nerves seem to be recovering quickly. My sensory nerves seem almost healed but the autonomic nerves still need healing. This is scary stuff

[@NeuropathyDoctor]

Hopefully you have found continued healing because neuropathy shouldn't interfere with your life!

[@JOEY_TREN]

@@NeuropathyDoctor yeah about 90% healed. Thanks doc

[@brianpulley8652]

​@@JOEY_TREN I'm in the same boat you're in I've been dealing with idiopathic neuropathy in both feet for a few years now and just found out about B6 toxicity and I myself have been drinking monster energy drinks for years everyday and it's got to be the cause of it...I quit drinking that junk.

[@KoalaBeer.]

So water got rid of toxicity

[@JohnQPublic345]

yes. I'm also in the same situation. drank redbull for years. had all symptoms. Just realized these energy drinks have 300% rda b6, and sometimes vitamin A

[@bethskii]

There are 2 types of B6. My son got toxicity from taking pyridoxine HCL., but now we are using Pyridoxine 5 phosphate (P5P) which is supposed to have zero side effects even at very high doses.

[@NeuropathyDoctor]

Thanks for sharing. B6 can be problematic for sure. P5P is the active form of B6 and in most studies is absorbed well. As far as toxicity, I will have to do additional research.

[@adjudantifrice]

Hello, any hints on P5P being safe ? @@NeuropathyDoctor

[@JaydenLolagne]

Funny, I’m watching this video because I’ve been taking P5P

[@ASouthernLadyinAppalachia]

I was taking P5P & got neuropathy in my feet. Quit it, & it took 4 days to start going away. My Dad had it horribly. Get out in the sun to charge your mitochondria.

[@adjudantifrice]

@@ASouthernLadyinAppalachiaHi, can I ask what dosage and for how long did you take P5P and got neuropathy ? Also why did you take P5P please ?

[@123454142]

Hello Doctor, I only had 3 mg/day for about 16 days or so of a product called Centrum by GSK. Very strong and unbearable symptoms and high heart rate I couldn't stand or walk properly and I felt severe pain in different parts of my body especially around my heart. Also my anxiety was through the roof I couldn't sleep or eat and I was very sensitive to light, I thought I was going to die with every passing hour. It stopped after cessation of the intake and 8 weeks later I hope I'm on the road to recovery after the "coasting" period. I'm astonished at how low a dose and time period that led to this. I visited a neurosurgeon an he doesn't believe this could have happened. I saw similar cases of people with 10 mg/day or 20 mg/day for a couple of months.

[@jerryjohnson9531]

My neurologist found out that I have high B6 after having numb feet and lower legs. I am also having some internal tremors. Is that possible with B6 toxicity also?

[@cherryl225]

question: is restless leg syndrome a form of peripheral neuropathy? i think i have b6 toxicity, 200 mg pyridoxine HCL every day for about 4 months as an analgesic for multiple pain areas that manifested all over my body last summer. I had no toxicity symptoms when i took it, and stopped before PN symptoms could appear, but when i stopped is when i started feeling restless leg syndrome-type feelings (WHY?), especially while resting and after physically stressful events like fasting and exercise. I dont have any peripheral neuropathy pain, just tolerable RLS symptoms. 100 mg reduced the pain somewhat, 200 mg ended the pain permanently. Pain was severe enough that i was losing ability (im mid 30's) and needed to use my arms to stand out of chairs. I thought b6's pain reducing effect was temporary and that i had to keep taking it. I hope waiting 6 months reverses RLS symptoms.

[@cherryl225]

​@@김희수-h5f thanks for asking. All pain and all restless limb syndrome is gone. What i did: i stopped taking toxic "B6 pyridoxine," and instead took 200 mg of non toxic "B6 P5P" form (with vitamin B12) for almost a year. Recently, i stopped taking P5P and have discovered no pain and no restless limb syndrome. Important to know: The pain was all joint, muscle and tendon related. I had bad pain in a torn leg muscle, in my wrist tendons, knuckles on both hands, lower spine, both of my IT bands, and more. For these, P5P's pain relieving effects are just as good as pyridoxine.

[@NeuropathyDoctor]

Sorry for missing this comment! Yes, I have often found RLS (Restless Leg Syndrome) as a form of peripheral neuropathy. kzbin.info4LTXWE7VBDU

[@armed_but_blind2768]

​@@cherryl225I'm going through something similar right now only just starting to get answers after years of vague symptoms that gradually progressed

[@BitZapple]

B1 is the more important one for the nerve issues i would get it as powder that or benfotiamine if it doesnt help

[@GG-tk8cq]

The RDA for a male around 50 is 1.7mg a day which is easily available from food. Why are they even putting this toxic substance in vitamins at amounts 100's times over the RDA ?

[@KoalaBeer.]

So how do we get it out system ? If high ….

[@beachgal2023]

By blood test just came back yesterday B6 @ 83.5. This is from taking Nature Made Multi 50+ (6mg), Garden of Life Probiotic(1.33mg), BodyArmorLyte (1.7mg), Bragg Nutritional Yeast(7.2mg). A WOMEN OVER THE AGE OF 50 SHOULD NOT BE TAKING MORE THAN 1.5MG DV. This was all recommended from my gastroenterologist due to a diagnosis of CELIAC. I NOW HAVE NEUROPATHY and only hope I can recover. I FEEL HORRIBLE AND CAN BARELY WALK. Today is 9-10-2024. I Will update

[@gabitsu-ftw3871]

How are you now?

[@thebabies3485]

Very helpful, just realized overdosing myself

[@annarosse2561]

Dr, what can cause too high level of B6 without suplementation? For 2 yeras i have a gait/balance with nusea issue. I visited all type of dr. Finally i myself diagnosed that it is neuropathy. I am waiting for confirmation and looking for the root cause.

[@NeuropathyDoctor]

B6 is a vitamin in foods, but usually isn't toxic in this form. There are also individuals that don't metabolize the vitamin correctly. Whatever the cause, B6 in high amounts in the blood can be toxic. It is very important that you find the cause...but often you will have to continue to take control of both your diagnosis and treatment. We are trying to make that easier through getting the information out there. If you would like additional FREE information we are doing a Challenge, The Neuropathy Secrets Masterclass this coming week: www.NeuropathySecrets.net/masterclass

[@AnnaMaria-zm8cv]

Its added to a lot of food, almost any breakfast cereal has added B6 to it, as well as dairy, vitamin waters , energydrinks, electrolytes and fruit juices. Best way is to track your intake, cronometer is very good and free for this and you will see that it is very easy to overdose B6 if you dont read labels. Its already in plenty in a healthy diet as well, there is no need to have it added to every commercial food, natural B6 hardly ever causes trouble as your body recognises it better and you pee it out if its not needed. Its the artificial ones that get stored in your nerve ends and cause havoc there over time. But for some its also the natural ones, majority of people have no issue with natural B6 ever.

[@bethskii]

Please telll people here to take the right form of B6…peridoxine 5 phosphate (P5P) and not peridoxine hcl!!!!!!!!

[@NeuropathyDoctor]

@@bethskii yes. I will add that to my information (especially going forward)!

[@The_New_Abnormal_World_Order]

I've been getting nerve pains in my legs, arms and face for several years, like being stabbed with a needle just for a split second. It's not severe enough to hinder me in any way, just weird and annoying. I never knew what was causing it, I tried some B-12 injections but they didn't help. Well... I only just found out that a medication that I'm taking causes deficiency of folate and B-6, no one warned me about that or suggested supplements. I have been taking a B-complex but it wasn't good enough. I just started on methylfolate and B6 P5P. Hopefully it helps, or I don't know what the solution is! By the way, I mentioned it to a G.P, who suggested it was a symptom of mental illness! So I don't want to involve them, Drs often make you worse anyway, in my experience.

[@Av4nQuisH]

did the p5p work

[@The_New_Abnormal_World_Order]

I think it's better than it was@@Av4nQuisH

[@vincentvega3747]

It's been about 4 weeks since I stopped ALL supplementing. Feels like it's getting worse at least with the dizziness. The nerve pain is going away but the dizziness seems to be getting worse at times. Hope this goes away soon.

[@DonkeyLipsDA3rd]

Been there. I feel your pain. Avoid fortified foods is all I can tell you. My dizziness felt like I was on an elevator.

[@vincentvega3747]

@@DonkeyLipsDA3rd Man I appreciate ANY feed back. Do you avoid meat and how long did it take you to feel normal again? I stopped supplementing 5 weeks ago and it seems to be getting worse like the neurologist said..

[@DonkeyLipsDA3rd]

@@vincentvega3747 6th week you should start feeling better or it might take a little longer. Did you get anxiety and depressionm

[@vincentvega3747]

@@DonkeyLipsDA3rd I used to have MANY sleepless nights where I would just randomly wake up at 2-3am for NO reason and stay awake. I've had panic attacks. Not many. Those symptoms have subsided but the imbalance seems to be getting worse. How long where you toxic and are you 100% now?

[@DonkeyLipsDA3rd]

@@vincentvega3747 I had similar experience where I would get really deep dark depression between 2-3 pm not am.. Its almost like we are programmed like clocks. I talked to some other people that would feel weird around 2-3 pm or am window. It's so weird.

[@localrachel]

I think my B6 toxicity was a mixture of supplements, tripling my meat intake as believed my issue was lack of B12 so eating a hearty portion everynight, exercising in strong sunlight and removing plp from wherever it was stored in the body, consuming fortified foods

[@vincentvega3747]

How are you doing now?

[@localrachel]

@@vincentvega3747 Pretty much detoxed it now. Reduced down my light use, healed my gut, and daily baths. The increase in melatonin seems to have cleared it faster than most people.

[@localrachel]

Thanks for asking.

[@vincentvega3747]

@@localrachel No prob. How long would you say you had symptoms and how long did it take for you to be 100% after you reduced your intake? I stopped supplementing last week. I had nerve pain on my hands, tops of my feet, trouble sleeping and I even swear "seeing" lightning a couple miles away. It's crazy

[@vincentvega3747]

@@localrachel How is it going?

[@marywolfe6598]

I have idiopathic neuropathy and the THIRD neurologist did a blood test and it was four times the norm. I stopped the supplements and now the neuropathy never went away!

[@ElizabethC-sj5xv]

same!!

[@beautyandthebudget3642]

How long has it been and how much were you taking as over 100mg a day can take up to 3 years Chris Masterjohn PHD says

[@beautyandthebudget3642]

Red light/Infra red may help

[@sylviaruth5008]

It’s been a year and the pain in my feet is still unbearable most days.

[@ashleyjenkins4182]

Mine is high and I take zero supplements or vitamins. I’m experiencing symptoms, and I have no idea why it’s elevated

[@aliciacaldera3175]

does vitamin B help the nerves heal faster,I’m trying to recover from guillean barre syndrome, myelin sheet has been damaged by immune system.

[@NeuropathyDoctor]

Yes. The vitamin Bs are often used as nutrients to help in the healing process of the nerves. To help you know if this is best for you, you need to get a deeper understanding of the damage causes and have a plan or roadmap for treatment. For this reason we are offering a FREE Challenge - The Neuropathy Secrets Masterclass this coming week (www.NeuropathySecrets.net/masterclass)

[@beautyandthebudget3642]

Thiamine

[@minaverheijden5616]

I also have b6 toxicity. Anxiety, tingling of the tongue and sometimes burning of the tongue and palate. Is this also a symptom of b6 toxicity?

[@Siegeclan34]

Hello how are you doing now? Have you healed?

[@nameofthegame9664]

The anxiety are probably due to a B1 deficiency. I would recommend a quite high dose of Benfothiamine 100-200mg three times a day. You can get a paradoxical response that actually worsens your symptoms but that’s a good thing. That means you are B1 deficient. Tingling and burning on the tongue can be both a B6 deficiency and a B6 toxicity. For me it went so far I developed a geographical tongue. It was constantly burning and felt tingly. For me it was B6 deficiency. If you’re going to supplement make sure you’re using B6 P5P which is the active form. If you use the inactive form commonly found in supplements it will actually compete with the active form in your body basically making your deficiency even worse increasing your symptoms.

[@MrApplewine]

Good advice, use food.

[@Magnetic1908]

What level is toxicity? My level is high. Thanks.

[@hawk28912]

Would b1 or b2 raise b6 to toxic levelscthx

[@peachyk7554]

I had issues with tingling burning and numbness from one week supplementing with a b complex that contained 25 mg of b6 so thankful I knew b6 toxicity could cause those symptoms and immedietly ceased use of the b complex and the tingling and burning stopped within a week

[@andrespalacios6356]

I have the same problem...

[@andrespalacios6356]

Did you do anything special to resolve apart from stopping taking vitb6?

[@peachyk7554]

@@andrespalacios6356 a lot of water, exercise, coconut water and modified my diet so that I didn't go over 100% of the daily value in b6. even now if I eat foods super high in b6 too many days In a row I start tingling.

[@peachyk7554]

@@andrespalacios6356 exercise and hydration are super super important for healing your body and nerves. I hope you recover quickly

[@yasinemir4876]

@@peachyk7554 hı! İ use vitamin B6 250 mg everyday for a one month.Now i have a numbness on mumy right foot and leg.İ stop to use this.How can i heal? İ'm gone lose my mind to stress

[@Noo795]

Thank you.

[@TheRagbags1]

I have severe neuropathy how long might it take ? I am on P5p

[@TheRagbags1]

No I take it occasionally I have Ehlers Danlos & Pots

[@BitZapple]

Take other B vitamins individually such as B1 or B3 The ones you know are fine Rather avoid B6 in supps in my opinion

[@CutiePie232]

Doctor please help me i did NCV test on both hands, one was fine before test but after the test it got way worse, they used 50 mili amps on me and it was so painful and my hand jumped alot.. Is there a chance ncv is harmful?

[@Team920_]

This test is not harmful at all

[@Monsterdrumma]

So 50 mil a day or less of b-6 with neuropathy? On line it is saying over 50 you should only get 1.7 mil a day, any clue what they are taking about or is that dead wrong. They say if you go over that it will damage your nerves more.

[@BitZapple]

50mg+ can start to be bad in my opinion no need to take B6 avoid it in supplements

[@bonnieallen2658]

So, taking a B Complex to cover all the B vits, taking Biotin for hair loss, B12 injections to combat Metformin and plant based eating may cause my neuropathy symptoms to worsen? Oh, let’s not forget I am taking Benfotiamine also, hoping to reduce neuropathy pain. Very co fused about how to help my body handle 29 urs of T2D.

[@jeffkernen1554]

From what I've read, B12, Biotin, benfotiamime are all fine for helping neuropathy. But if you don't have a B6 deficiency as determined by a blood test, you may wanna be careful.with supplements containing more than 50mg. I was taking B6 (100mg plus 50mg in my multivitamin) for about three years. I now have neuropathy. The neurologist did a blood test and found that my level of B6 is very high. I am not a doctor, just someone who has read a lot since I got this crippling disease. I hope it helps you.

[@bettyli7817]

@@jeffkernen1554 p

[@user-FM1]

@@jeffkernen1554 how long now having the symptoms, any healing ?

[@jeffkernen1554]

@@user-FM1 I've had symptoms for nine months. Just in the last week, my symptoms have quieted down quite a bit finally. Just did a blood test a week ago and my B6 level is finally normal. I'm taking a regiment of vitamins I found online. So I'm not sure exactly what's working. I'm just glad something is. One of the vitamins is a stabilized R-Lipoic acid. It's around $100 a bottle on Amazon. Of your interested I'll get you the website of the guy online who suggests this vitamin regiment. He doesn't charge anything for it.

[@user-FM1]

@@jeffkernen1554 I have some quite days and everytime I think I am recovering, the symptoms come back . So I don't know if this will ever end.

[@AdamFlint-1]

P5P

[@val7287]

I am wandering if you are trying to purposely mislead people? Is it better to let the doctors at the Spine and Pain clinics invasively puncture our spine with prednisone spinal injections whose anti inflammatory rate of success is 20 to 30% at best (info given by the doctors themselves)? At the pain and spine clinic they left me in pain for 3/4 of the entire year without treating me with anything except over the counter NSAIDS. Do you all know what is neuropathic pain? It is pain which feels like its in the bones and its there 24/7. It never goes away not even for a second and in my case it was at best a minimum of 5 to 6 on pain scale. I was diagnosed with neuropathy and I was taking a small dosage of B vitamins (5, 10, 20 mg max) and ran out at one time. The result was so much pain that I had to be given morphine at ER. Then I started taking a B complex dietary supplement and guess what? The pain went away almost completely. So what do you think Dr Brian Gibson should we do nothing and let the incompetent personnel at Pain and Spine ruin our lives for the sake of being controlled and manipulated or just simply take a B vitamins supplement and be pain free?

[@NeuropathyDoctor]

I am so sorry you had the experiences you had. I don't like spinal injections as I don't believe they are treating the cause, just the inflammation. B Vitamins are a blessing for many individuals and when done correctly are an amazing option. My big recommendation is to treat the cause, so testing to determine the need for vitamins is my first step. But just like you, many individuals benefit greatly from vitamin treatments. I use them ALL the time! Thanks for adding your testimonial here for people.

[@bigred9428]

Okaaaay. I started taking b6 to help lower my BP -- nothing works -- and stave off headaches (this actually seems to help). I've been taking 200mg, with no neuropathy, but I found out today, I was taking inactive as opposed to active. However, everyone agrees in actual papers that 200 is fine, and possibly more while working with your doctor may be fine. Now you say 50mg may be too much. I don't just take anyone's word for anything. I look at actual studies. My health has sucked even before b6, but now I don't know what to do. (BP rising, rising...)

[@edimoelvis9904]

Hello big Red Magnesium is great for BP management.

[@AnnaMaria-zm8cv]

B6 overdose will cause higher bp. I hope you feel better now, but my high bloodpressure and no cause for it to be found brought me to B6 toxicity and together with all other symptoms and a perfect bloodscreening it couldnt be far from truth. I ditched all supplements and fortified foods and my bloodpressure is now mostly within range and my palpitations have gone down as well. As soon as I eat something with artificial B6 in it, it all comes back. I do not respond to natural B6 in food luckily. In my opinion added B6 and supplements containing B6 should be either banned or only be on prescription. Its scary stuff and the worst is yet to come since half the world eats fortified cereals and dairy daily and lurks on energy drinks like its tap water. I use cronometer now to monitor my vitamins and only supplement those that are too low on my weekly average. Feels much safer to me than to just take a random pill.

[@beautyandthebudget3642]

Read Dr Robert Lustig book Metabolical its got great info on blood pressure

[@debbie4062]

Thank you.