Perry Health Pulse Podcast: Ep. 21 Avoiding the End Stages of COPD

[@dalehair-4727]

I have copd don’t know what stage don’t want to know. I’ve seen men overcome it by exercising like --. So I started exercising just like they are doing. I’m seeing great results I use a form of bicycle machine👍. It has very large foot pedals and a very comfy seat with back support🦯I ride for2500 steps. Using pulmonary taught breaths . I kick it fairly hard. I’ve been doing it every other day for a month now. People try this if you are not doing very well and if capable of course. Get active with something that challenges your body and lungs

[@LeeC-dy3ty]

Fair play to you mate keep up the good work my wife has it and it's killing me watching her

[@shazben9822]

Good for you keep it up I’m severe emphysema according to Ct scan prob stage 3/4 ? I’m due breathing test so will know what stage I really need to excersize but also have osteoporosis with kyphosis and two fractures at the moment so I need expert advise on which excersize I’m going to try and do some very short walk as at the moment I can only just get around my small house feeling very breathless Baby steps and hopefully I can build myself up A big problem I have is humidity if that up I can’t even go in my garden or a car

[@gordonwong1515]

​ 9ƙ

[@barbarafaulder9087]

Motion is the lotion.

[@andreaschulewitz7343]

I have a lovely very energetic dog who sheds fur and dander - am desperate to get him rehomed. I am not mobile and have late stage emphysema. Do not know what to do.

[@arnoldvermeulen1550]

I have been fighting copd for 19 years and at this stage i have very severe copd with 29%lung function

[@jackieridley8465]

💐🙏

[@1morchang]

Sorry, this is the result of being jabbed.

[@susannordstrom5065]

This resonated with me, I lost my dog and being heart broken, I didn't exercise for a few months I went downhill quickly, I have another dog now and am finding it alot harder to walk, I regret giving up exercise for those few months, hope I can build up stamina again, copd is no fun

[@gailhall6283]

​@@1morchang Maybe for you. For me it was 55 years of smoking. I've quit completely but I've had it for along time before I got jabbed for covid. Don't be giving out false information to people.

[@laurenmaier8742]

I had been going to rehab for 1.5 years….i quit rehab for 6 months. It just feels good to rest and not do anything. I’ve never smoked. I’ve had asthma for maybe 10 years. 2 years ago they diagnosed me with COPD. I didn’t even know what that was. Now I’m Stage 3 severe. I’m starting rehab again Jan 3, 2024. Am I going to be able to live more than 5.8 years? Do I have any Hope? I’m 62. They did not find the COPD until 2 years ago. I think I had it a few years before that. I’m sorry; I’m just scared waking up to be stage 3 and I’m on oxygen.

[@BCSTS]

Giving hope ! Thank you for this video !

[@briandoherty1870]

I am 71...5 years ago i was diagnosed with severe COPD , it was then i started practising BUTEyko.. 4 years ago i stopped taking ALL medications....i rarely cough.. i rarely have phlem ...and i feel Great!

[@shazben9822]

What caused cot to progress like that suddenly

[@sekiro3074]

I'm laying next to my mom in the ICU right now. Stage 4 emphysema (COPD). -- My was told she had four years left to live.. A week later she gets sick, and was admitted to the ER. It wasn't even 24hrs before the forced onto a ventilator for a week. We have the tubes out and the ventilator.. It's really bad. Me and my sister are now sleeping with her until she passes or hopefully her chest clears up a bit, just enough to move around without being forced back onto the ventilator. My mom is very sedated and on fentynal. -- This disease has broken me.. And Canada doesn't have a few of the newer treatments out that can extend the life of someone with COPD. I've witnessed an absolute nightmare for going on 2 years. My mom is such a lovely human being, she didn't deserve such torture. Nobody does. ❤🙏🏻 Prayers for my mom and anyone else suffering from terrible illness.

[@josephinestabel9647]

Wish you all the best 🙏 ❤️

[@gaylecraft6479]

Prayers

[@juliea7033]

I’m also Canadian. Researching and finding myself overwhelmingly disappointed because all the groundbreaking treatments are far from occurring here in the North. My Dad is desperate. And he is scared. Being his caregiver, seeing my once strong, tall, and active Dad wither away in front of me for 3 years. We are nearing the end. I’m terrified now that my son just started kindergarten… we all know that with school comes colds and viruses. How am I supposed to be his mommy and also care daily for my dying dad? Life is cruel.

[@spamraider6798]

Thanks for your kind prayers but let's hope some are answered for your mother!..Sounds like your strong & all there for your mother & I feel for you all as being a suffer myself it'll be me & my family sometime in the future,takecare of yourselves. Gary Stage 4 very severe copd from 🇬🇧

[@marydunning1722]

Prayers

[@kimberleydriesten]

my mom was one of the youngest person diagnose with copd here in dutch . she is now 51 and has gold 4 .. she has the hereditary my aunt and grandpa had it to

[@dc.pentrumesteri4893]

Me with COPD, pulmonary emphysema and pleural fibrosis at 43 years old

[@kimberleydriesten]

@@dc.pentrumesteri4893 my mom to , but she has one lung the other one is removed when she was diagnosed with cancer .. shes nou in the hospital for two weeks and they told us they cant treat her anymore .. wish you the best

[@gordonwong1515]

​@@kimberleydriesten0p0

[@edwardcurl3856]

I've been fighting COPD now for 12 yr and in gold stage 2..it is very hard to do alot of things

[@lyndamitton4496]

Is COPD hereditary?

[@lydiawhitting5406]

​@@lyndamitton4496 they say it can be hereditary .. asides environmental factors for many.

[@DeniseThomson-d1p]

What is the best treatment

[@ranjanamitra7814]

Thanks.

[@donnawashburn1638]

This is so hard for me to understand my father is 80 and suffering with copd I don’t understand when he go to the hospital not being able to get a breath after blood test and X-rays they always say his lungs are clear and his lungs are over extended they also tell him his general health for and 80 year old man are amazing!

[@donnawashburn1638]

I might add they always tell him his oxygen levels are great !

[@lbccarpediem]

​@@donnawashburn1638One thing I have learned about Doctors they know Grey's anatomy but, they don't know everyones anatomy. Each individual reacts differently to certain diseases. Sometimes you have to push the doctors to assure your loved one is comfortable.

[@shazben9822]

His oxygen levels might be very good even with copd Mine are around 95 96 and I’m severe emphysema and struggle to breath I could breath better before I had respiratory failure pneumonia and then got covid just after I recovered Oxygen before when I smoked 92/93 and would drop in the 80s Stopped smoking 6 months ago can’t breath and get breathless most of the time 😅oxygen very good I’m 63 and can only walk in my home slowly

[@gordonwong1515]

​@@shazben9822o9ijk.9😅9m

[@DeniseThomson-d1p]

@@donnawashburn1638 over inflation of lungs is emphazema.

[@TheMeagandixon]

When she said it’s not a easy way to die, that was hard for me to hear. My mama is dying of Copd. Her Fev 1 is 15 %.

[@jyotir_p9642]

i can only imagine, remain strong, how old is she, when was she diagnosed. My mother recently got diagnosed with fev53%. im worried about her.

[@lbccarpediem]

​@@dc.pentrumesteri4893Sounds to me like you have idiopathic pulmonary disease.

[@lbccarpediem]

​@@jyotir_p9642Not a pleasant exit with this disease. But, rest assured in the end they will keep your loved one extremely comfortable. Between morphine and Ativan they will not suffer. During this time talk to your loved one. They say the last sense to go is the hearing. Even though they aren't responsive they can hear you.

[@barbarafaulder9087]

It’s not that hard to die. If Ox levels are so slow a Benadryl would take me out. 😊

[@nicholsoucy]

Yes. My mom’s been on triology machine 7 years. She is suffering and doesn’t want to go in hospice. She can’t stand or anything. She’s fell and broken bones. So heartbreaking.

[@cherie2532]

I'm 35years of age got COPD in 2018 only got told last year and I'm suffering really bad

[@crypto_pinto2660]

You're not alone

[@dstarkspp]

Stay strong and never give up….

[@elainemurley9509]

My husband has fought it for 20 years He's already been on a lung tube he's been on oxygen many years

[@elainemurley9509]

I get many ambulance bills

[@katyantis]

The dr said my son had end stage lung disease. He did not expand upon this so this has been very scary for me. My son totally glossed over the “end stage” part and didn’t even notice the Dr said it but I caught what was said. He got TB 10 years ago and now only has part of one lung left. The dr nor the nurse will tell me what they think his life span will be. So I just spend as much time as I can with him. He has been on oxygen 24/7 for 2 years now. Before that it was on as needed basis, but not used often. Then he got cat scratch fever and that did him in because he did not go to the dr, he though he could heal himself with colloidal silver. Now he has a hole in his side he has to pack everyday.

[@DeniseThomson-d1p]

I have been diagnosed with mild to moderate centriblar emphazema by CT scan . Dr hasn't sent me for pulmonary function test or to respiratory rehabilitation WHY ?

[@caseym5017]

Gee I learned a lot from this. NOT! Do they all read from the same script? There are many other causes besides smoking and second hand smoke. Worked a lot of jobs back in the days when nobody knew what a dust mask was.

[@alycewells1559]

Did you listen? They talked about working environments

[@crypto_pinto2660]

They mentioned those other jobs at the beginning of the podcast so don't comment unless you've heard the entire thing and absorbed it all properly

[@dc.pentrumesteri4893]

Hay que tener en cuenta a toda persona insatisfecha que esté sana y comente mal

[@spamraider6798]

What do you wanna know!?..Im not being smart but I'm at very severe stage 4 so if I can any Q's for you please just ask & you are right it's not all cigarettes & passive smoke!.

[@dc.pentrumesteri4893]

hello, what treatment are you taking, what saturation is it, if your chest hurts, back, elbows, what saturation do you have, etc. I am also sd 3.4 bpoc, pulmonary emphysema and pleural fibrosis, thank you

[@patriciakimworsley9315]

What about morphine for the end stage where someone is going through the dying process, surely it would help, if not just to trick the brain into thinking you can actually breathe!

[@anthonyrosa5006]

I think it would make things worse. The only possible relief would be to take enough morphine to lose consciousness. Until that point you would struggle to breathe.

[@Crymeariver227]

Morphine is used when in Hospice care. It alleviates the feeling of suffocation.

[@lbccarpediem]

Yes morphine and Ativan are administered to keep the patient comfortable. I am in severe Copd. Stage 3. Probably getting close to stage 4 very severe. Air hunger is real. I am not afraid of dying but, suffering from air hunger is my fear. My Pulmonary Dr. Assured me that he wouldn't let me suffer. No DNR, just comfort care. Have "the talk" with your Dr. and family. Let them know what your dying wishes are. Have a living will, advance directives declaring your wishes. When I have good days they are great it's like I don't even have Copd. When I have bad days not so great. The more information you know regarding Copd the more power you have in helping yourself throughout this journey. Not being able to function on a daily does lead to some depression. So arm yourself with knowledge and take it one day at a time.

[@DeniseThomson-d1p]

Not here in Canada unfortunately.

[@jimborambo958]

Did I hear the name was Jammed Pistol? Or is it my COPD?

[@blaneycrabbe3390]

I Have COPD. It didn't bother me at all. And then all of a sudden (two weeks ago) it got to where I can only stand one minute at a time. At which point, I lose control of certain body parts. My head, neck and upper body. It gets so bad, that I don't even think that I can ride in a friends car!! So I end calling the local EMT's. The last time, they sent me a bill(Fire Department) 355.00 Dollars. Maybe I should go to the hospital sooner next time. And I am certain that there will be a next time. I just want to make it to 64 years old. All the great drugs that I did, who could ask for anymore??? and I am certain the fire department) fire department

[@lambertovergara1169]

I am a COPD guy philippines, lamberto vergara

[@gustavoezquerra6739]

How are you

[@ChuckKarges]

Sever emphysema fv1 30 in a chair now about a yr zephyr valves can't have cv + but a glue study opening up they had a win back in Feb this year fix it so waiting but going to see what the va can help me with the 25 maybe a lung reduction or a thermal abatement holding out for glue don't think I'll be here next yr but trying to loose weight up 45 lbs in a yr maybe pills idk

[@debbiebrannon8874]

Praying for a healing for everyone try cannabis oil and thc for cancer and worm medicine for pigs or dogs to kill cancer amen

[@deloisrichardson2636]

People always talk about smoking,,,we know that,,,,what is co2,,,,i have copd ,,,i m loss weight,,,why