Polycythemia Vera: Signs and Symptoms

[@samaelmartinus3273]

16.9 hgb but docs say it's fine but I had all the symptoms . I hope they're not fooling with me smh. In and out the hospital weekly cause of episodes of sweaty, fatigue, tachycardia, hypertension, blurry vision. Through anxiety at me like they always do when they're too lazy to investigate. Ended up being pre diabetic and once I changed that all the episodes subsided big time. Hgb even went to 15.8 .hope I'm better. Still carry 81 aspirin just in case. Smh

[@reecebell5978]

I was diagnosed through routine blood tests from my GP. I am so thankful she picked it up and sent me to a specialist!

[@aphysique]

What are they doing for you?

[@usneod9329]

Yes what r they doing please ?

[@fannyalbi9040]

do u hungry for sugar? i do. especially early morning, especially tired

[@Pr0ph3cy-k5z]

What was in your blood test that alerted your doctor?

[@reecebell5978]

@@Pr0ph3cy-k5z she was continually checking liver functions. When they never gave a stable result she suspected I would test positive for the JAK2 blood mutation test which I did!

[@robertshrewsbury2891]

I had Polycythemia and had to get a phlebotomy about once a month, because my Hemoglobin was around 55 g/dl and my Doctor ordered it. Finally I wondered about people with Anemia that were short of red-blood-cells analogously like an opposite to Polycythemia! Then I looked up the foods that people with Anemia do not eat because they are iron blockers. Many of these foods are called Oxalate's and absorb Iron. So then I started eating these foods (with Oxalate s) abundantly and after a few weeks I had my Hemoglobin checked by my Doctor and my Hemoglobin was down to 16 g/dl and now over a year later my Hemoglobin is still 16 g/dl. That is a drop of 39 g/dl’s in a very short time and it held good. Sometimes just a simple procedures are workable. Of course I believe that my mental procedures, meditations & thoughts had something added to this procedure that was synergy related that made it more effective. Make it clear that I am not prescribing anything to anyone, but expressing my own thoughts and experience. However I would recommend that medical personnel investigate this. Cordially, Robert Shrewsbury

[@nyhashyahul6827]

Hi sir even for me.. Diagnosed as polycythemia.. Can u plz explain what nd all food need to be take for ma hb become low.. Iam so worried

[@joeybruni3944]

Hello Robert, What do you mean by you "had" Polycythemia? Is this something that you are not dealing with anymore?

[@robertshrewsbury9344]

@@joeybruni3944 Well my Hemoglobin was 54 gdl's two years ago and so I had to get blood drained out of me for my safety. Now my hemoglobin has been normal at 16 gdl's for two years, so no need to drop any more blood! I hope some good medical researchers will look at what I did and improve on it! Robert

[@stefstef434]

Please tell me . What food should I eat ?

[@omaroliblish]

@@stefstef434 I cannot tell you or anyone what foods to eat, however I can say that I ate a lot of Oxalates and one can get on the web and put in Oxalate foods and get a read out of what foods are Oxalates!

[@arvindthakurdesai6282]

Good morning Dr. I am from India and am suffering from PV for the last 10 years. I feel extremely fatigued particularly in the mornings. Can you please help me as to how lessen the fatigue to some extent? I will be grateful.

[@Fireguy65]

How have you been feeling?

[@pennynickel1dime]

i think i have this, but i dont know if i should be scared or not tho...

[@demidr15]

My brother passed away from AML and my cousin has polycythaemia vera. Are those two related? And do I have a bigger change of getting it as well??

[@donmulder8061]

What does he mean by high red blood cell counts? High RBCs, HgB and/or HCT as compared to reference ranges? Or higher end of normal?

[@Pr0ph3cy-k5z]

Right. When I hear high wbc or rbc, it pisses me off. WHICH blood cell is high. Not all mean the same thing. Neutrophils, lymphocytes, monocytes and so on. Those matter.

[@Pr0ph3cy-k5z]

My dr said i have a high wbc. I looked at my tests and I have high neutrophils, high monocytes, low lymphocytes, low eosinophils, low basophils, high hemoglobin, high MCV, low platelet. Hematocrit is in range as is everything else. Go figure. I'm not diagnosed yet.

[@francoisperez4046]

@@Pr0ph3cy-k5zhow high is Hemoglobin and hématocrit?

[@FlipMacz]

Wow...he is amazing. Really appreciate this.

[@TheProject-fw3qc]

I had secondary polycythemia due to Testosterone therapy, this resulted in systolic congestive heart failure.. I came off Testosterone and by hypocrite dropped from 59.9 down to 48.4 in the mid normal range... I take Arginine and want to take Beet root juice.. Sine beetroot is a "blood builder" would it aggravate this condition?

[@rizwaan2338]

R u cured?

[@aphysique]

You still there, project

[@ladymuck2]

Can you have jak2 mutations and be well? What about having the covid vaccines if you have jak 2 mutations?

[@cecilelouisedejano6104]

I have Jak2 Mutation. I am fully Vaccinated

[@Jonamortensen]

@@cecilelouisedejano6104 Me too :)

[@am30wish]

@@cecilelouisedejano6104 I have it too only recently ,how you are dealing with it ?😢

[@Channel-gn3sv]

What about covid vaccine if someone has polycythemia Vera?

[@entertainmeimboredplease4250]

Thats my concerns I hope someone answers this please.

[@lorraineday4141]

@@jeanreynolds1425 I'm sorry you had injuries from Moderma vaccine. I also had injuries from Phizer vaccine. Heart related, tachycardia, pots, etc. I hope your feeling better. It was a year last November for me since 2nd vaccine and I am better.

[@LindyFordNutritionWellness]

Thank you, Dr. Stein. I just had a patient get this diagnoses. I didn't know about the enlarged spleen. What recommendations do you have for food intake?

[@Mariekr49]

Lindy Ford Nutrition & Wellness u don’t know as A dr? Yikes

[@happybolden916]

@@Mariekr49 she can ask for extra advice

[@3Muchlove]

@@Mariekr49 have you thought that she may be a nutritionist and asking for specific information for her group of patients. Health care practitioners often get ongoing guidance from senior health professionals

[@marquitajackson3927]

That's my doctor he's great

[@frank34450]

I’m 39 and just confirmed I have PV what should I do or look out for?

[@ahmedfathi6076]

Are there cases diagnosed as pv within twenties ?

[@missywarden719]

I was diagnosed with PV with JAK2 mutation when I was 17.

[@BradSzalach]

Missy Warden how old are you now?

[@lisarowe6667]

I has

[@lisarowe6667]

Had

[@stella-vu8vh]

I have PV and was diagnosed at 16, i'm 22 now, absolutely miserable, and having lots of bone pain and problems

[@trishtaylor7308]

I was negative for Jan 2test

[@lisarowe6667]

I have never had symptoms or get sick...i have had this since I was young

[@zohankhan4407]

Now whats your age.

[@tresapr5898]

How many years have you had it? Do you take medication , what about yr diet.

[@antonyselvaraj5617]

Dr. How to reduce

[@rareform6747]

Doctors say no exercise stay low .. Bull Crap !

[@charlespierce5185]

Every cancer patient healed is a customer lost

[@justinaunogwu298]

Thank you so much Dr Dagba for curing me of polycythemia vera😭🙏🏼