What is polycythemia vera?

[@peperskip]

As a Naturopath,in NY and a non MD, this video explained this disorder so well, I now know what causes this disease. Thanks keep up the good work!

[@shorebaby8959]

Perhaps, a bad diet. That causes many cancers. Possibly living in a polluted environment.

[@king15234]

Thank you for this brief yet concise explanation. I am a 3rd year medical student. Going through the rigorous training involves a lot of memorization and at times can be forgotten. This is a key concept that many students struggle to understand. I will refer this video to any colleagues needing further understanding.

[@DianaLynn1961]

Thank you for posting this video and attempting to help us without medical knowledge to understand this disorder.

[@ChrisHeightsTV]

This video made the topic very clear to me! Thank you, sir!

[@analyntrajano3248]

Its jack2 positive cause of cancer

[@rosemarieducharme9788]

Thank you so much,I was dx 1yr ago and you explained things so well,my dr. Started me on Hydrea monthly labs,and has the attitude( oh well) you have 10 years and never stressed how this would change my life,extreme fatigue general body weakness, foggy memory at times, and after finding info on several sites, I don't feel like I'm going crazy( I've been a nurse for 52 years) still doing part time school nursing and private duty,But could not do his without a nap,and 10-12 hours of sleep daily...Thanks for listening ..

[@sandyb2391]

rosemarie ducharme how are you doing today

[@theforgottendinosaur]

I'm 25 years old,I was told I had this when I was 12..but that was it "oh,your daughter has Polycythemia Vera,you can take her home" we weren't told what it even was or given anything or told anything, over the years..the painful itchy years..I've read up on it words don't make sense to me,but being able to see you explain it really helped me to understand it more,scared me,but helped me haha so thank you

[@sandyb2391]

theforgotten dinasour how are you today 2022?

[@viplodge981]

you have been very brave to through that since only 12 yrs old. I worry about my child, are you able to contact me?

[@mitalisarkar7539]

This was very well explained and so interesting to learn!! Thank you!!

[@PhyLink]

Excellent video!! Thank you so much for sharing this!!

[@2k7shabana]

Your videos n explanations are very good and helped me alot, can you clarify my doubt about why there is increase in vit b12 binding capacity in pcv

[@gunayhaciyeva8202]

excellent,Thans u very and very much,for you videos :)

[@rlove3222]

This is not a fun thing to have and treatment is difficult as well. I was diagnosed in 2003, and left untreated until it could not be ignored anymore in 2014.

[@sandyb2391]

how are you today

[@ilovesam151]

gracias muy buena explicacion

[@kapilstaley7311]

GOOD ONE MYAN!!!!!!!!!!

[@Shiftzz]

Many thanks, that helped me a lot..

[@nellyhoffman6194]

THanks DOcotr :) you will own youtube

[@soniyachourey3175]

Sir pizzz give all videos in Hindi very interested videoes

[@TheLumi17]

Thanks, that was great!

[@Floodland-bn3ol]

Does the myeloid stem cell have the jak2 mutation switched on? Is this where the unregulated cell growth takes form? thanks

[@albertawilson284]

I AM 55 YEARS OLD I HAVE POLYCYTHEMIA VERA GOING THREE YEARS I WAS SO SCARE WHEN I FRIST FOUND OUT BUT I AM TAKING MY MEDCINES AND I AM DOING GREAT ONLY THINGS IS MY SKIN IS DARK I HOPE MY COLR COME BACK WILL IT I NEED TO NO☆☆☆☆☆☆

[@sandyb2391]

alberta wilson that is great to hear. it is 2020 now. just wondering how things are going for you now?

[@yasirabozaid7105]

really you do very good job thank you very much

[@indigoking6618]

Hi I have just found out I have it. This was a great presentation, but at the end of all the treatments, is still a little like Chemotherapy where the outcome in not that good ?

[@sandyb2391]

indigo king how are things today in 2020?

[@indigoking6618]

@@sandyb2391 Hi Sandy b, It's an interesting time, My thoughts are that the best way of managing P.V is to explore , and due to what I consider a bit of lack of studies on what can be done Vs what it is! So I use the key points of what it is to help make ideas of what might help, for example, when I try to explain P.V to someone quickly I just say "really thick slow blood" therefore I have a lot of water and a electric wobble board that I stand on to vibrate every capillary in my body to get nutrients around. But I have now a few systems in place, been to Hospital 3 times in 8 months, it seems that the IV drip brings me back as well. But I guess knowing my limitations has helped as well, Thank you for asking. There are a lot more things I do to help myself! I have been wanting to put a You Tube site up to pass my ideas to others. May I ask, why have you enquired please ? Indigo

[@sandyb2391]

@@indigoking6618 i have to go for the jak two test once its booked n find out if i have it. they want me to go every 2 weeks n take blood out which i did a couple of weeks ago once my blood pressure was through the roof. so wanted to find out more information and this doctor explains so good

[@indigoking6618]

@@sandyb2391 yes blood pressure??? Mine can be quite High, but when the Hematocrit or PCV ( plate cell volume) gets high I struggle to rehydrate then the blood pressure can drop dramatically, last time it went from 150/90 to 86/? and the veins started to collapse. So be careful, As far as I can work out, is that if the RBC is getting high the amount of water it can take in becomes low, so watch out for replacing fluids plus electrolytes when feeling warm or sweating or muscle weakness or numbness in fingers or feet. Feel free to contact me through this thread if you have Qs or insights you would like to discuss. Indigo

[@sandyb2391]

@@indigoking6618 thank you thank you i really appreciate it. the info is so important .. waiting for call to get the jak 2 test n waiting for schedule to get more blood taken out every 2 weeks. how many times did they do the blood on you? have a fabulous fantastic day n yes you should do a youtube channel. will help many who are going through this guaranteed

[@drabhib]

thanks it helped me alot!

[@dilrukshibandara1670]

Thanks

[@josealvarado663]

Tengo casi dos años que me diagnosticaron PV, el tratamiento que tengo solo es phlebotomy, y no sé mucho de esta enfermedad, podría alguien decirme algo sobre esto

[@nikhilanand3178]

@Jose Alvarado. How are you now!? Even i am diagnosed for 3 years now. Please reply

[@caterscarrots3407]

Puritis on bathing(so itchy skin due to water exposure) is also a sign of a water allergy(very rare but can happen). This can also cause a lot of redness. So how would you know if a patient whose skin gets itchy from water exposure has polycythemia vera or water allergy?

[@wanpijid]

Or mast cell activation syndrome? Exactly, I wanna know how to tell.

[@Dana-ml7sy]

What can mimic polycythemia? Raised red blood but nothing else of note.

[@BobInzaghi09]

Here's a masterpiece!

[@joyjohnson3296]

I was just diagnosed with this. Does it effect the bones? I have hip and tailbone pain.

[@sandyb2391]

joy johnson how are you today in 2020 did it help alot?