Porphyria Live: Full DVD

  Рет қаралды 11,491

PorphyriaFoundation

PorphyriaFoundation

Күн бұрын

Watch and listen to Porphyria patients share their stories and learn how they cope with the challenges of living with Porphyria.
You'll also meet some of the world's foremost Porphyria experts as they take you inside the laboratories that are working hard toward a cure.

Пікірлер
APFCB Masterclass: Porphyrias
41:40
APFCB Masterclass: Porphyrias
APFCB
Рет қаралды 794
Dr. Roy E. Smith Spotlight on Acute Porphyrias Presentation April 15, 2023
2:20:02
Dr. Roy E. Smith Spotlight on Acute Porphyrias Presentation April 15, 2023
PorphyriaFoundation
Рет қаралды 1,3 М.
BAYGUYSTAN | 1 СЕРИЯ | bayGUYS
36:55
BAYGUYSTAN | 1 СЕРИЯ | bayGUYS
bayGUYS
Рет қаралды 1,9 МЛН
人是不能做到吗？#火影忍者 #家人 #佐助
00:20
人是不能做到吗？#火影忍者 #家人 #佐助
火影忍者一家
Рет қаралды 20 МЛН
IL'HAN - Qalqam | Official Music Video
03:17
IL'HAN - Qalqam | Official Music Video
Ilhan Ihsanov
Рет қаралды 700 М.
ЧТО ЖЕ МЫ КУПИЛИ СОБАКЕ ВМЕСТО ТАБАЛАПОК😱#shorts
00:34
ЧТО ЖЕ МЫ КУПИЛИ СОБАКЕ ВМЕСТО ТАБАЛАПОК😱#shorts
INNA SERG
Рет қаралды 7 МЛН
Boost Your Bone Density with These 6 Life-Changing Tips
17:18
Boost Your Bone Density with These 6 Life-Changing Tips
Talking With Docs
Рет қаралды 698 М.
Making Rounds: Medical Education Documentary Film
1:03:18
Making Rounds: Medical Education Documentary Film
Mount Sinai Health System
Рет қаралды 6 МЛН
Acute Intermittent Porphyria - Disorders of Heme Synthesis - Biochemistry & Hematology
21:34
Acute Intermittent Porphyria - Disorders of Heme Synthesis - Biochemistry & Hematology
Medicosis Perfectionalis
Рет қаралды 21 М.
What Causes Functional Neurological Disorder (FND)?
27:40
What Causes Functional Neurological Disorder (FND)?
I CARE FOR YOUR BRAIN with DR. SULLIVAN
Рет қаралды 63 М.
Try, try, and try: my porphyria fight | Sue Burell | TEDxUniversityofEastAnglia
14:15
Try, try, and try: my porphyria fight | Sue Burell | TEDxUniversityofEastAnglia
TEDx Talks
Рет қаралды 13 М.
2023 EPP Patient Day - Porphyria Expert Dr. Karl Saardi with Q&A Session
41:27
2023 EPP Patient Day - Porphyria Expert Dr. Karl Saardi with Q&A Session
PorphyriaFoundation
Рет қаралды 707
Exploration Health: Acute Intermittent Porphyria (AIP)
12:12
Exploration Health: Acute Intermittent Porphyria (AIP)
PorphyriaFoundation
Рет қаралды 19 М.
Porphyria
6:39
Porphyria
TownsendTeaching
Рет қаралды 27 М.
Question and Answer Session FAQs 2022
29:14
Question and Answer Session FAQs 2022
PorphyriaFoundation
Рет қаралды 293
Dr. John Manak AKA Dr. DNA Zoom Rare Disease Week 2024
1:43:27
Dr. John Manak AKA Dr. DNA Zoom Rare Disease Week 2024
PorphyriaFoundation
Рет қаралды 342
BAYGUYSTAN | 1 СЕРИЯ | bayGUYS
36:55
BAYGUYSTAN | 1 СЕРИЯ | bayGUYS
bayGUYS
Рет қаралды 1,9 МЛН