Positive for Huntington's Disease

  Рет қаралды 45,707

Huntington's Disease Society of America

Huntington's Disease Society of America

Күн бұрын

Пікірлер: 79
@chantalsscaleisafibber
@chantalsscaleisafibber Жыл бұрын
I nursed an absolutely lovely lady who sadly passed away from Huntington's Chorea in1984.It's a horrendous disease and she left both her parents,her husband and her two children.
@amythompson5616
@amythompson5616 2 жыл бұрын
I cared for a woman with Huntingtons for six years, she sadly passed yesterday but she was my blessing in life and my best friend.
@jamieforler9967
@jamieforler9967 2 жыл бұрын
I'm 43 years old with HD CAG 43. My dad and his moms whole family has been lost to it. Thanks for sharing your story
@sharanvirdi90
@sharanvirdi90 Жыл бұрын
@Peggy Phyna did it really work? Was your mom free from HD?
@yesterdayitrained
@yesterdayitrained Жыл бұрын
I’m sorry. I wish you well.
@katydid1600
@katydid1600 Жыл бұрын
I'm sorry, Jamie. How are you doing?
@fionnualamckernan2427
@fionnualamckernan2427 3 жыл бұрын
You are inspirational. Your mum raised a fine man. She must have been a wonderful person.
@qleonard963
@qleonard963 3 жыл бұрын
Thank you for being sympathetic to what us HD families are going through.
@ahmedbaba4488
@ahmedbaba4488 2 жыл бұрын
I will never forget the day I came across Dr igho channel on KZbin , I will always keep it memorable, thank you doctor for helping me cure my Huntington's disease with your super herbs completely, and putting a smile on my face, you made me feel more alive like never before, Thank you Dr Igho
@elizabethconroy7665
@elizabethconroy7665 3 жыл бұрын
Thank you for sharing Your Mother was a beautiful Lady May Her Soul Rest In Peace
@benjaminperez1149
@benjaminperez1149 3 жыл бұрын
You sons and your dear father sacrificed for your mother. It is a bittersweet story yet, needs to be told. God bless you all.
@Qstudioz1
@Qstudioz1 3 жыл бұрын
We all need to tell our story, no one can see it from what we go through so we have to spread awareness
@lindaguy8720
@lindaguy8720 2 жыл бұрын
I am from a family with huntingtons. I have researched everything I can find on it. After taking care of my brother I know that making a decision to end one life should be an option . This is one of the most cruel diseases that could ever happen to anyone. I'm 73 thankfully I'm ok so far but I still have that chance but I may be to old to recognize the sytoms
@Iobotomite
@Iobotomite Жыл бұрын
@Peggy Phyna youre a pos for writing a sob story and bringing hope to vulnerable people with your scammy ad.
@katydid1600
@katydid1600 Жыл бұрын
Praying you are spared.
@margaretanne7762
@margaretanne7762 3 жыл бұрын
You are extremely brave and gracious.as a nurse I have cared for patients with HD and I know what a treacherous disease it is .I pray that God will give your family the strength to deal with whatever difficulties you have to face.❤️
@florenciabragamenendez5037
@florenciabragamenendez5037 3 жыл бұрын
Thank you so much for your words and for your love.
@mohsinaliization
@mohsinaliization 3 жыл бұрын
Brother May Allah the Almighty bless you with health and save us all from this disease.
@jasnvrhees2361
@jasnvrhees2361 3 жыл бұрын
I lost my grandpa my uncle and my mom has it and I do everything for her I put my life on hold for her and its sadding to know other family's go through this i have all the respect and love and best wishes for yall
@desirula
@desirula 3 жыл бұрын
I know what you have gone through. Half on my mother’s siblings passed away from HD. We are from Venezuela where people say took origin when colonizers arrived to our shores. You’re a wonderful son!
@eifossnomis3176
@eifossnomis3176 3 жыл бұрын
Via vaccines?
@desirula
@desirula 3 жыл бұрын
@@eifossnomis3176 nope
@Qstudioz1
@Qstudioz1 3 жыл бұрын
@@eifossnomis3176 Via Huntingtins gene mutation
@lynnemiller3633
@lynnemiller3633 7 ай бұрын
I promise you this - I will press on for prioritized consideration that leads to a Huntingtons disease cure. This cure disease needs to be taken down. Thank you for sharing how beautiful and important your mother was. IN HER MEMORY AND HER SISTERS NAME TOO - we need to find a cure TODAY.
@aprill7239
@aprill7239 2 жыл бұрын
I have 5 family members with Huntingtons disease. It is devastating to see how it completely changes them mentally and physically. My Grandma is now in the final stages of Huntingtons. Her health has deteriorated so much. Thank you for this video.
@susanandfour2243
@susanandfour2243 2 жыл бұрын
What a beautiful young man you are. Yes, let’s.
@kymberlyann589
@kymberlyann589 3 жыл бұрын
My best friend has it she’s only 47 she’s now in an assisted living home. It breaks my heart she doesn’t deserve a life like this. I pray for a miracle.. I will be so lost without her. 😞
@katydid1600
@katydid1600 Жыл бұрын
@kymberlyann589 I'm so sorry for your best friend and of course for you. How is she doing?
@bangaranrufio
@bangaranrufio 9 ай бұрын
Im of a HD Family and in risk too. Thank tou. Gracias. Your words healed me
@ireneyoung8696
@ireneyoung8696 2 жыл бұрын
God bless them all.
@neialasookram8367
@neialasookram8367 3 жыл бұрын
Keep strong.....
@happycook6737
@happycook6737 3 жыл бұрын
Your mother's story inspired me.
@Imachowderhead
@Imachowderhead 3 жыл бұрын
Damn sorry for what you and she went through.
@ireneyoung8696
@ireneyoung8696 Жыл бұрын
It is a truly awful disease.May God bless and help all those who suffer.🙏🙏
@erikd3688
@erikd3688 3 жыл бұрын
Beautiful souls
@elena.t3251
@elena.t3251 2 жыл бұрын
😓😓😓😓😓 Please God help all the people 🙏🏼🙏🏼🙏🏼
@CC-vw1nd
@CC-vw1nd Жыл бұрын
I’m adopted and found that my paternal grandfather had Huntington’s, his parents were from Switzerland. Two of my birth aunts had the gene, one has passed away from HD, one had developed symptoms such as chorea.
@breathlessinbedvlogs
@breathlessinbedvlogs 2 жыл бұрын
My granny had this horrific disease. It eventually took her life. She was 62. My dad has it though he is not symptomatic yet, he just turned 54. It spared my aunt. I've known that myself and two siblings each have a 50% chance of inheriting this disease since I was 13 but it did not stop me from having children, in fact I became a young mom. My dad became a grampa. All I remember of my granny was the chorea and being uncomfortable around her. I have three young children and it is simply unfathomable to me to even consider what their risk is, though it is with me every moment of every day. This disease is ruthless. In an instant, everyone you love either had it, has it or might have it. I pray peace to everyone in the hd community that our time will come where there is a cure.
@ladylaois8184
@ladylaois8184 2 жыл бұрын
Beautiful analysis and very well done. Thanks 🙏 good for awareness
@joecoleman1148
@joecoleman1148 3 жыл бұрын
I have it too I lost my dad
@mrs.paulschmetz3912
@mrs.paulschmetz3912 3 жыл бұрын
The nursing home is beautiful 👍
@andrewforrester8386
@andrewforrester8386 Жыл бұрын
I'm from uk. It is genetic in my mom's side of the family. If my government can give military aid worth billions of pounds to countries that couldn't or wouldn't do the same for us, they can provide some money to research in finding more effective ways of treating huntington's disease.
@katydid1600
@katydid1600 Жыл бұрын
@andrewforrest Absolutely agree 100%
@bernster511
@bernster511 7 ай бұрын
I am with you, my husband was diagnosed recently. My anger at my politicians is beyond measure. They also spend billions giving military aid to foreign countries while the people here in the USA are suffering. We need money for research & possibles cures or even help with Brian Deceases, food security, homelessness, and so much more. It's insane to me where they spend our tax dollars. God Bless you and your family ♥
@andrewforrester8386
@andrewforrester8386 7 ай бұрын
@@bernster511 thanks for you reply. I am sorry to hear about your husbands diagnosis. I recently tested negative for it. I'm training to fight in a charity boxing match to raise money for the uk huntington's disease association
@xxcoconut133
@xxcoconut133 2 жыл бұрын
I have it I’m 29 and I’m so scared.
@katydid1600
@katydid1600 Жыл бұрын
@katelinsmith2791 I would be too. I'm scared for you. Wish there was something we could do for you.
@mariagreen8904
@mariagreen8904 Жыл бұрын
Has there been any treatments for this disease ?
@日本日本-v1u
@日本日本-v1u 3 жыл бұрын
❤️❤️❤️🌹
@elizabethmiller5216
@elizabethmiller5216 Жыл бұрын
I found a treatment as I have a young man who I visit because he has been like a brother to my sons since his mother was diagnosed with HD 30 years ago and now he is quite bad himself and in care. The trouble is that although I got a copy of a mouse's brain free almost except one black spot of the tangles of protein, they have taken it off the net. Does anyone want to try cat's claw a rain forest bark as it seemed to help but they just suggested it might help with Alzheimer's and of course the drug companies want to make it into a drug to justify the high charges. God always provides a solution in the flowers of the field as it says in the bible. The patient has rejected it perhaps because his mind is already affected according to the medical people and I can't force him to try it.
@izabellatonnhed3292
@izabellatonnhed3292 2 жыл бұрын
I am 33 am posetiv 😰
@panayiotiskasapis3270
@panayiotiskasapis3270 28 күн бұрын
i am 40 years i have 42 cag repeats , my mom is 63 and she is bad. whatever you try it ruins your life. God does not bless HD familys we are thrown beyond hell..........
@dorisfarbvogel798
@dorisfarbvogel798 Жыл бұрын
Did you make a test for yourself?
@Live-life-to-the-fullest
@Live-life-to-the-fullest Жыл бұрын
I wonder if he did a genetic test?
@ahmedbaba4488
@ahmedbaba4488 2 жыл бұрын
I will never forget the day I came across Dr igho channel on KZbin , I will always keep it memorable, thank you doctor for helping me cure my Huntington's disease with your super herbs completely, and putting a smile on my face, you made me feel more alive like never before, Thank you Dr igho
@Lemmingovec
@Lemmingovec Жыл бұрын
bot
@marieholmes6480
@marieholmes6480 3 жыл бұрын
#driyaremoses channel
@susankamaka745
@susankamaka745 Жыл бұрын
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