Positive for Huntington's Disease

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Huntington's Disease Society of America

Huntington's Disease Society of America

3 жыл бұрын

During #HuntingtonsDisease Awareness Month, Yousef Gamal El-Din speaks about the devastating illness in detail for the first time. It’s the untold story of the pain, the struggle and the green shoots of hope.
Yousef’s mother was diagnosed with the disease in 2007. Over the years, HD took its toll on the entire family. And now Yousef is at a 50% risk of inheriting Huntington’s disease and seeing the same fate as his mother.
Help give thousands of families around the world a brighter future by sharing this video!
For more info about Huntington's disease & the #HDSAFamily please visit hdsa.org/ & #LetsTalkAboutHD
Produced by www.hekayaproductions.com
Follow Yousef’s Journey
Instagram: / youseftv
www.yousefgamaleldin.com

Пікірлер: 78
@lynnemiller3633
@lynnemiller3633 23 күн бұрын
I promise you this - I will press on for prioritized consideration that leads to a Huntingtons disease cure. This cure disease needs to be taken down. Thank you for sharing how beautiful and important your mother was. IN HER MEMORY AND HER SISTERS NAME TOO - we need to find a cure TODAY.
@chantalsscaleisafibber
@chantalsscaleisafibber 7 ай бұрын
I nursed an absolutely lovely lady who sadly passed away from Huntington's Chorea in1984.It's a horrendous disease and she left both her parents,her husband and her two children.
@jamieforler9967
@jamieforler9967 Жыл бұрын
I'm 43 years old with HD CAG 43. My dad and his moms whole family has been lost to it. Thanks for sharing your story
@sharanvirdi90
@sharanvirdi90 Жыл бұрын
@Peggy Phyna did it really work? Was your mom free from HD?
@yesterdayitrained
@yesterdayitrained 7 ай бұрын
I’m sorry. I wish you well.
@katydid1600
@katydid1600 6 ай бұрын
I'm sorry, Jamie. How are you doing?
@bangaranrufio
@bangaranrufio 2 ай бұрын
Im of a HD Family and in risk too. Thank tou. Gracias. Your words healed me
@elizabethconroy7665
@elizabethconroy7665 3 жыл бұрын
Thank you for sharing Your Mother was a beautiful Lady May Her Soul Rest In Peace
@amythompson5616
@amythompson5616 Жыл бұрын
I cared for a woman with Huntingtons for six years, she sadly passed yesterday but she was my blessing in life and my best friend.
@fionnualamckernan2427
@fionnualamckernan2427 2 жыл бұрын
You are inspirational. Your mum raised a fine man. She must have been a wonderful person.
@qleonard963
@qleonard963 2 жыл бұрын
Thank you for being sympathetic to what us HD families are going through.
@ahmedbaba4488
@ahmedbaba4488 2 жыл бұрын
I will never forget the day I came across Dr igho channel on KZbin , I will always keep it memorable, thank you doctor for helping me cure my Huntington's disease with your super herbs completely, and putting a smile on my face, you made me feel more alive like never before, Thank you Dr Igho
@margaretanne7762
@margaretanne7762 3 жыл бұрын
You are extremely brave and gracious.as a nurse I have cared for patients with HD and I know what a treacherous disease it is .I pray that God will give your family the strength to deal with whatever difficulties you have to face.❤️
@benjaminperez1149
@benjaminperez1149 2 жыл бұрын
You sons and your dear father sacrificed for your mother. It is a bittersweet story yet, needs to be told. God bless you all.
@Qstudioz1
@Qstudioz1 2 жыл бұрын
We all need to tell our story, no one can see it from what we go through so we have to spread awareness
@mohsinaliization
@mohsinaliization 2 жыл бұрын
Brother May Allah the Almighty bless you with health and save us all from this disease.
@florenciabragamenendez5037
@florenciabragamenendez5037 2 жыл бұрын
Thank you so much for your words and for your love.
@lindaguy8720
@lindaguy8720 Жыл бұрын
I am from a family with huntingtons. I have researched everything I can find on it. After taking care of my brother I know that making a decision to end one life should be an option . This is one of the most cruel diseases that could ever happen to anyone. I'm 73 thankfully I'm ok so far but I still have that chance but I may be to old to recognize the sytoms
@Iobotomite
@Iobotomite Жыл бұрын
@Peggy Phyna youre a pos for writing a sob story and bringing hope to vulnerable people with your scammy ad.
@katydid1600
@katydid1600 6 ай бұрын
Praying you are spared.
@jasnvrhees2361
@jasnvrhees2361 2 жыл бұрын
I lost my grandpa my uncle and my mom has it and I do everything for her I put my life on hold for her and its sadding to know other family's go through this i have all the respect and love and best wishes for yall
@susanandfour2243
@susanandfour2243 Жыл бұрын
What a beautiful young man you are. Yes, let’s.
@aprill7239
@aprill7239 Жыл бұрын
I have 5 family members with Huntingtons disease. It is devastating to see how it completely changes them mentally and physically. My Grandma is now in the final stages of Huntingtons. Her health has deteriorated so much. Thank you for this video.
@breathlessinbedvlogs
@breathlessinbedvlogs Жыл бұрын
My granny had this horrific disease. It eventually took her life. She was 62. My dad has it though he is not symptomatic yet, he just turned 54. It spared my aunt. I've known that myself and two siblings each have a 50% chance of inheriting this disease since I was 13 but it did not stop me from having children, in fact I became a young mom. My dad became a grampa. All I remember of my granny was the chorea and being uncomfortable around her. I have three young children and it is simply unfathomable to me to even consider what their risk is, though it is with me every moment of every day. This disease is ruthless. In an instant, everyone you love either had it, has it or might have it. I pray peace to everyone in the hd community that our time will come where there is a cure.
@desirula
@desirula 3 жыл бұрын
I know what you have gone through. Half on my mother’s siblings passed away from HD. We are from Venezuela where people say took origin when colonizers arrived to our shores. You’re a wonderful son!
@eifossnomis3176
@eifossnomis3176 2 жыл бұрын
Via vaccines?
@desirula
@desirula 2 жыл бұрын
@@eifossnomis3176 nope
@Qstudioz1
@Qstudioz1 2 жыл бұрын
@@eifossnomis3176 Via Huntingtins gene mutation
@fnafmilf
@fnafmilf 2 жыл бұрын
My best friend Hannah just recently got diagnosed and she’s only 16, this disease is ruthless
@marianapuljic3552
@marianapuljic3552 2 жыл бұрын
Juvenile HD is so sad. I hope we’re close to a cure or phasing it out as we bring awareness to it in modern times
@katydid1600
@katydid1600 9 ай бұрын
Oh my just sixteen. Jesus please send a cure.
@pippinsmom1421
@pippinsmom1421 7 ай бұрын
W😂😮
@Live-life-to-the-fullest
@Live-life-to-the-fullest 6 ай бұрын
How is your best friend? Does it progress faster when diagnosed younger?
@fnafmilf
@fnafmilf 6 ай бұрын
@@Live-life-to-the-fullest she's still alive but shes not remembering very well
@76DEEZNUTZ
@76DEEZNUTZ 2 жыл бұрын
I have it. Lost my mom to this shadow. It was crazy. I love my mom so much.
@katydid1600
@katydid1600 2 жыл бұрын
I'm sorry about your mother and you.
@Qstudioz1
@Qstudioz1 2 жыл бұрын
Your not alone.
@Qstudioz1
@Qstudioz1 2 жыл бұрын
Hang in there. We are a community, looking out for eachother. We are raising awareness and funds for research.
@ahmedbaba4488
@ahmedbaba4488 2 жыл бұрын
I will never forget the day I came across Dr igho channel on KZbin , I will always keep it memorable, thank you doctor for helping me cure my Huntington's disease with your super herbs completely, and putting a smile on my face, you made me feel more alive like never before, Thank you Dr Igho
@elena.t3251
@elena.t3251 Жыл бұрын
😓😓😓😓😓 Please God help all the people 🙏🏼🙏🏼🙏🏼
@happycook6737
@happycook6737 2 жыл бұрын
Your mother's story inspired me.
@ireneyoung8696
@ireneyoung8696 6 ай бұрын
It is a truly awful disease.May God bless and help all those who suffer.🙏🙏
@kymberlyann589
@kymberlyann589 2 жыл бұрын
My best friend has it she’s only 47 she’s now in an assisted living home. It breaks my heart she doesn’t deserve a life like this. I pray for a miracle.. I will be so lost without her. 😞
@katydid1600
@katydid1600 6 ай бұрын
@kymberlyann589 I'm so sorry for your best friend and of course for you. How is she doing?
@neialasookram8367
@neialasookram8367 3 жыл бұрын
Keep strong.....
@ireneyoung8696
@ireneyoung8696 2 жыл бұрын
God bless them all.
@Imachowderhead
@Imachowderhead 2 жыл бұрын
Damn sorry for what you and she went through.
@erikd3688
@erikd3688 3 жыл бұрын
Beautiful souls
@ladylaois8184
@ladylaois8184 2 жыл бұрын
Beautiful analysis and very well done. Thanks 🙏 good for awareness
@mrs.paulschmetz3912
@mrs.paulschmetz3912 2 жыл бұрын
The nursing home is beautiful 👍
@CC-vw1nd
@CC-vw1nd Жыл бұрын
I’m adopted and found that my paternal grandfather had Huntington’s, his parents were from Switzerland. Two of my birth aunts had the gene, one has passed away from HD, one had developed symptoms such as chorea.
@user-im3sq7vq3p
@user-im3sq7vq3p 2 жыл бұрын
❤️❤️❤️🌹
@joecoleman1148
@joecoleman1148 2 жыл бұрын
I have it too I lost my dad
@mariagreen8904
@mariagreen8904 Жыл бұрын
Has there been any treatments for this disease ?
@katelinsmith2791
@katelinsmith2791 Жыл бұрын
I have it I’m 29 and I’m so scared.
@katydid1600
@katydid1600 6 ай бұрын
@katelinsmith2791 I would be too. I'm scared for you. Wish there was something we could do for you.
@andrewforrester8386
@andrewforrester8386 7 ай бұрын
I'm from uk. It is genetic in my mom's side of the family. If my government can give military aid worth billions of pounds to countries that couldn't or wouldn't do the same for us, they can provide some money to research in finding more effective ways of treating huntington's disease.
@katydid1600
@katydid1600 6 ай бұрын
@andrewforrest Absolutely agree 100%
@bernster511
@bernster511 28 күн бұрын
I am with you, my husband was diagnosed recently. My anger at my politicians is beyond measure. They also spend billions giving military aid to foreign countries while the people here in the USA are suffering. We need money for research & possibles cures or even help with Brian Deceases, food security, homelessness, and so much more. It's insane to me where they spend our tax dollars. God Bless you and your family ♥
@andrewforrester8386
@andrewforrester8386 28 күн бұрын
@@bernster511 thanks for you reply. I am sorry to hear about your husbands diagnosis. I recently tested negative for it. I'm training to fight in a charity boxing match to raise money for the uk huntington's disease association
@dorisfarbvogel798
@dorisfarbvogel798 Жыл бұрын
Did you make a test for yourself?
@izabellatonnhed3292
@izabellatonnhed3292 2 жыл бұрын
I am 33 am posetiv 😰
@elizabethmiller5216
@elizabethmiller5216 Жыл бұрын
I found a treatment as I have a young man who I visit because he has been like a brother to my sons since his mother was diagnosed with HD 30 years ago and now he is quite bad himself and in care. The trouble is that although I got a copy of a mouse's brain free almost except one black spot of the tangles of protein, they have taken it off the net. Does anyone want to try cat's claw a rain forest bark as it seemed to help but they just suggested it might help with Alzheimer's and of course the drug companies want to make it into a drug to justify the high charges. God always provides a solution in the flowers of the field as it says in the bible. The patient has rejected it perhaps because his mind is already affected according to the medical people and I can't force him to try it.
@Live-life-to-the-fullest
@Live-life-to-the-fullest 6 ай бұрын
I wonder if he did a genetic test?
@marieholmes6480
@marieholmes6480 2 жыл бұрын
#driyaremoses channel
@ahmedbaba4488
@ahmedbaba4488 2 жыл бұрын
I will never forget the day I came across Dr igho channel on KZbin , I will always keep it memorable, thank you doctor for helping me cure my Huntington's disease with your super herbs completely, and putting a smile on my face, you made me feel more alive like never before, Thank you Dr igho
@Lemmingovec
@Lemmingovec 8 ай бұрын
bot
@susankamaka745
@susankamaka745 9 ай бұрын
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