Post SCDS Surgery Q&A

[@JordanJunco]

0:13 - Introduction 2:03 - Were you nervous going into surgery? 3:03 - What were your first thoughts waking up after surgery? 4:24 - What did they do during surgery? 5:52 - How was the pain and other physical feelings after the surgery? 8:23 - How are your scars, and can we see your head? 9:00 - What were some of the hardest things to deal with while in the hospital? 10:38 - Were you surprised your hair was gone? 11:40 - What helped you during your hospital stay? 12:43 - Did your symptoms get any better or worse in the hospital? 15:05 - Why did they do a blood patch? 17:16 - What did you most look forward to in finally coming home? 18:23 - How have your days been at home and how are you working towards your recovery? 20:44 - What has been helpful during recovery? 22:21 - How are you adjusting to having no hair? 23:46 - What symptoms are you currently still dealing with? 26:00 - What are you most looking forward to in the future after recovery? 29:28 - Final thoughts

[@angelaleachman7236]

I’m waiting on my surgery for the Right side. Thank you for making this video

[@tarabrownfield5524]

I have bilateral scds...I have had 2 TM approach surgeries on right and I have hearing loss very loud tinnitus bvd..they didn't have me stay in hospital I left same day im 3 years in. I can't sleep on right side no independence can't have alot happen around me noise makes me lose equilibrium I don't drive or work or go on walks.. im losing this battle. I found your video. Thanks for sharing.

[@huntercoates7354]

May I ask who did your surgeries?

[@velet7362]

Sure, here is the translation: --- Hello John, I am Mustafa. I live in Germany. I have found out that I have the same illness as you. I have been suffering from this illness for three years. I wanted to ask how you are doing now and if you still have the same symptoms and problems as before the surgery. Are you feeling better now? I hope you are doing better. I am asking because I will also be having surgery soon. It was not easy to find a doctor who performs this surgery frequently. I would be very happy if you could write back to me. Thank you very much.

[@johnbillings5260]

I was going to say in a previous video that I hope you can get to a place where you find the morbid humor in hearing your eyes and it looks like you already made it! 👍

[@Sebut]

THX for sharing your experiences and thoughts! What an odyssey.. wow. I am still struggeling with symptoms after my fourth surgery from July. I'm waiting for my surgery 5 and 6 (in a row) in october. That is so complicated with this nasty scds. My though: canal plugging to switch off the dizziness and then a "thick" 3D printed prosthesis on top of the temporal bone to get rid of the f..g noizzzy autophony. This will be sooo helpful, I am pretty sure, but there is no experience (esp in germany) with this stuff. But I am glad that your autophony does not influencing vest.sys. anymore! Jordan, take care! brave girl :)

[@sugaplumalex]

how are you going now?! i only have dizziness and pulsatile tinnitus not sure whether surgery is worth it...

[@dannamorgan8698]

Hi Jordan I'm Danna with same thing vertigo.migraine fatatue. Mr neouoglist says no big deal but he don't feel dizzy all the time