POTS and Migraine Disease

[@rizzlerrickio]

This is so informative thank you for making this!

[@yorocco1]

Wow! How has no else commented on this! I have POTS and this is the most informative video I have seen on POTS and headaches!! Thank you!!

[@NationalHeadacheFoundation]

Glad it was helpful!

[@brandicampbell2001]

Up until a few days ago I thought they were two seperate things. My friend found this video and sent it to me.

[@efarzaneh]

There is a 2 years wait time in Canada to see a pot specialist.

[@JohnBedson]

This is excellent. Please like it to increase it's viewing on KZbin.

[@RotationAxle]

Excellent video...both my neurologist and neurotologist believe I may have both and I'm reading it's definitely possible to have both POTS and chronic migraine...they think that treating the POTS might help with the migraines. Grateful for the information!!

[@piggywiggyxX]

I got diagnosed with PoTS a few months ago. And I’ve had issues with migraines for a while. But coat hanger headaches? Wow, that would explain A LOT! why I have weird headaches when I stand up that get worse. I just looked up for some advice as to why I’ve been having such a bad migraine for days. And I have PoTS.... unfortunately the PoTS doc in this area is booked over a year out and not accepting anyone new so I’m winging it. Any online advice helps. I’m gonna have to look into thigh high compression socks. Even though I was told, regular ones would suffice. Compression socks are painful for me however, because I have small fiber neuropathy. I can’t wear them too long... :( Even though I feel like they do help with my blood flow.

[@merigrace4418]

I havr hEDS, mast cell aactivation syndrome and am also Autistic. I have been diagnosed with POTS at the same time as the Ehlers danlos syndrome. After time and more research I began requesting more checks for hyperadrenergic type. I have hyperalgesia and severe complex ptsd and medical ptsd. Very few of my doctors and specialists have ever heard of or dealt with any of these conditions. I have had known issues with adrenaline and adrenal fatigue and a hyperactive autonomic nervous system. In extent I am in a constant state of hypervigilance and have visible signs high amounts of adrenaline, from trembling severely, to high heart rate, high blood pressure (which both increase upon standing - actually high blood pressure is common with hyperadrenergic type), and then there are the other factors of PTSD triggers, sensory triggers, and hypermobility causing constant increased levels of adrenaline. Due my extreme pain sensitivity the norepinephrine test was not done, but all symptoms and medical hystory points sharply to hyperpots. Another indication is that hyperadrenergic pots usually has a slow onset that comes on over time and gets progressively worse and it is associated with having mast cell activation syndrome. Thus far I have had little to no help with my conditions. I also have endometriosis, PCOS, fibromyalgia and Myalgic encephalomyelitis, ADHD, and treatment resistant major depressive disorder. We have tried multiple treatments for the depression and anxiety etc. I have severely adverse, paradoxical, or no reactions to many medications. Almost all antidepressants, antianxiety, antipsychotics or similar drugs resulted in severe very bad reactions within minutes of taking them. Some doctors forced me to continue taking the medication for a prolonged time to see if the side effects or problematic responses would stop. The results were destructive and we were back at square one with more medical trauma. I also have severe sleep problems. The closest resembling description we have found to date is Non 24. My sleep time shifts daily. If I miss my 'sleep gap' I cannot sleep untill the next one 24ish hours later. Because of my extreme reactions and ptsd no sleep study can be done. I had a qeeg wich was nearly inconclusive as result of how stressed I was and it showed signs of severe trauma and near epileptic episodes. It was extremely painful to endure. I cannot handle MRI's or CT's. We tried it didn't go well. Also any needle causes superficial thrombophlebitis. I have a VERY hard time with doctors not taking me seriously. Not believing my symptoms are real. Or thinking these conditions are too rare and it can't be this or that, even with the ones I have official diagnoses for. I have constant migraines and headaches. And the POTS and fibromyalgia pain were triggered and got worse after severe abusive situations I had experienced and worsened severely after each attempted medical treatment. I now also have adhessions after 2 laparoscopic surgeries, one for a cholecystectomy and appendectomy, the other for removal of stage 2 endometriosis. I have issues with Anaemia and the possibility of it being pernicious. My pain gets worse over time. I'm extremely sensitive to sensory inputs. And also have savant syndrome. I have an odd question. Could laying down increase the amount of migraines and headaches due to postural blood pressure changes? This seems an odd question, but upon standing my blood pressure rises. I actually feel lightheaded and nauseated a lot when my blood pressure is around 120/80. I have known bile reflux issues. With the list of conditions and my lack of response to medication. (And increased urination due to hyperpots), plus damage to my bladder from surgery), how can I get these migraines under control? I am not in a country with very informed doctors... I had to take the info to them... I was only diagnosed as Savant at age 16, Autistic at age 29 and EDS etc at 32. I am struggling on my own trying to find answers. I cannot endure any more tests and medication trials. Is it possible the blood pressure in my head is increased upon laying down? Thus also adding to what worsens my migrains? Alongside the postural issue of oxygen deprivation to the brain, high ood pressure and heart rate spikes upon standing, high adrenaline levels and mast cell reactions, sensory overload or sensitivities, Hypermobility issues and very highly likely cervical instability causing cranial nerve pinching or pinching of the vagus nerve. I would very much appreciate any help or advice you might have. Thank you

[@merigrace4418]

Forgot to mention Propranolol which is often prescribed for POTS (beta blocker) is often a mast cell trigger. As is in my case as well. Compression stockings and Oral electrolytes are the biggest help for my POTS symptoms. Clonidine often lowers the blood pressure when it gets too high.

[@brandielee7971]

To get mine under control I need beta blockers, ivabradine, fludrocortisone, and a steroid. I'm also on meds for my small fiber neuropathy.

[@Annmarie123ize]

It’s so hard, I have ME and Fibromyalgia and I have been tested for pot at my Doctors. I’ve been told I have it but I have to have more tests. I cannot do some of the things for helping my self with pots. I am a severe ME and Fibromyalgia suffer, so I am housebound and bedridden most times. I have to use a power wheelchair or be driven. I still get worse trying any activity so I have to spend 22hrs in bed. I am also being tested for FND my walking coordination is bad and sounds and vibration make me dysfunction most times. All these symptoms cause me a lot of stress and Anxiety. My only hope and strength is God and my kids. Meds have a lot of side effects which makes me sick or increase symptoms so I have to be careful what I take.