Mayim Bialik - Prader-Willi Syndrome Associaition (USA) PSA Video

We are proud to present this great video to our amazing Prader-Willi syndrome community of actress Mayim Bialik from the hit comedy show "The Big Bang Theory". Mayim Bialik is helping PWSA (USA) Save and Transform Lives and is working to help spread awareness about PWS! Please feel free to share this to your friends and family! It begins with a community. Lets Save and Transform Lives! Please enjoy this video and if you would like to support PWSA (USA) please go to pwsausa.org/ to donate today!

[@KingdomHeartsFan3211]

It's so cool that one can be both an actress and a doctor in neuroscience! Go, Mayim!

[@wmnoffaith1]

What is amazing is that a doctor of neuroscience would even want to deal with the Narcissistic drug scene which is Hollywood? I mean it's a great way to pay off all of that immense student loan debt, but with so much intelligence, I can't imagine why she would want to.

[@jeremyyates9983]

Right every actor or actress should have a part time Job because acting shouldn't pay enough to just act to get by

[@psmith5830]

She will always be my blossom

[@jonathansmith7206]

She should look more into it. Its not all about being hungry all the time

[@iminalert9289]

@@wmnoffaith1 PhD has nothing to do with intelligence but with hard work and consistency . If someone has it he/she can do it for sure . Not saying she isn't intelligent but just saying just because someone has a PhD doesn't mean he/she is intelligent . You can be average and have a PhD as you must have seen for sure .

[@robledesma15]

Man my respect for her just multiplied!!!!!

[@Frankie-O]

✊️

[@BoscoeFrance]

My sister will turn 40 this year. She has prader-willi. My parents are angels.My sister is cared for by them everyday. We are blessed to have each other. Thank you for this video. I really didn't think anyone knew about this..

[@ambervarney5031]

My neice has PWS too, she is only 5.

[@julianadamico4702]

Boscoe, what's going to happen to your sister after your parents die ?

[@BoscoeFrance]

@@julianadamico4702 my wife and I will help my sister. I have been moving into a bigger role a little each year. Doctors appointments and helping her get ready and things. If something happens to me or my wife then she would probably have to be cared for at a facility.

[@LivingFierceTV]

Our son Josh has PWS 1:51 too he’s 10. I just wrote a book about it called Living Fierce to bring hope to special needs families (especially PWS 💜)

[@LivingFierceTV]

@@ambervarney5031our 4th child Josh also has PWS and 10 years old now. I just wrote a book called Living Fierce about it to binge hope to special needs families. 💜

[@Wodensdsy]

I did my Masters Thesis on Prader Willi Syndrome. Researching this subject made me feel despair I never knew could exist. I had the privilege to meet 4 preteen and 2 adults with PWS and hear from their mouths the horrors they face every second of the day. Watching a mother have to tell her 11 year old daughter “no” to food when she truly feels that she’s starving was the first time I felt a heart ache that I could only describe as overwhelming empathy. I just wanted to take away that hunger and anxiety. This awful disorder/syndrome causes so much damage.

[@jonathansmith7206]

I don't feel like this everyday. Everyone with it are different. But it's more for a growth hormone deficiency. I have lived with it for 40 years and I live a normal life just like anyone else

[@meghanjones5070]

This was so informational. One thing that stuck out though was that she said “PWS is the leading cause of childhood obesity” which isn’t exactly true. It’s the leading GENETIC cause, but of the 1 in 5 children in America with obesity-only a small handful of them have PWS. The other causes are lifestyle, emotional, medication side effects...etc.

[@Ava_Orchid]

I have watched a few stories and documentaries that include information on PWS. I am amazed and disturbed at how misunderstood it is, especially judging from the comments of people who literally just watched an hour long special on the truths of PWS. I can not imagine the challenges that go along with PWS both having it and caring for someone who does.

[@tomnancylifesamazingdontmi5383]

avaorchid it is very difficult but we do it everyday my son is 14 with pws

[@michaelasuch1272]

Mayim I work with people with PWS so thank you for helping and informing the world about the people I love and work for daily.

[@marksmadhousemetaphysicalm2938]

There are other 🧬 genetic syndromes similar to PWS caused by errors on other genes. New discoveries are helping clinicians in neuropsychiatry identify children who benefit from discoveries made by Dr. Bialik and other neuroscientists. As a neuropsychiatric nurse practitioner, I mainly work with people with acquired brain injury, but discoveries made by neuroscientists like her shed much light on so many other conditions as well. PWS interests me due to the other symptoms associated with the disorder and its overlap with physical damage to the prefrontal cortex seen in acquired brain injuries and de novo genetic intellectual and behavioral disabilities. Hats of to incredible people like Dr. Bialik. Thanks for all you do not just from families but from all parts of the medical community as well.

[@melindassimpson7936]

I love her brains & humor. She's awesome

[@Frankie-O]

Mayim Bialik has the brains and beauty plus humor.

[@CaitlinBrooksMusic]

I appreciated your speech, Mayim. By the way, one of the ladies in my church choir just found out that her baby granddaughter has Prader Willi Syndrome. The baby initially had a blood clot and a poor appetite, but she might have an insatiable appetite at age two years. I have her, along with other PWS sufferers, in my thoughts and prayers.

[@mattamoroso251]

I have pws

[@fineyork9556]

I'm so thankful for your video! I just met a girl with PWS during my study for becoming a curative educational carer. The way you describe the syndrom is giving me so much understanding for this girl. For sure, the whole world should try to imagine how the person next to you feels like. Thanks, Dr. Bialik!

[@legalfictionnaturalfact3969]

Curative educational carer.. .that is some newspeak.

[@sarcm1957]

I lost my 6 year old son to PWS this month. I really miss him

[@maryclairehaug966]

My heart gose out to you mama your baby was taken to soon this deadly decies can be dreadful hes at peace and not fighting anymore.

[@gengemtv]

Hi, I'm so sorry for your loss. What was the reasoning, if I may ask. Was he obese for his age?

[@sarcm1957]

@@maryclairehaug966 Thank you

[@sarcm1957]

@@gengemtv He had respiratory distress leading to cardiac arrest.

[@maryclairehaug966]

@@sarcm1957 so said he´s got his wings the fight is done

[@elizabethroof9033]

Great Job, Mayim. Thanks for raising awareness about PWS.

[@davidmatthewman369]

Back in 1990 I worked and lived in Monroe Louisiana I volunteer to work with United Way and helped to set up PWS home for 6 suffers and there care set up and running and funding I loved the work and miss the Home Thank you Mayim Bialik for reminder

[@dolorescarmenl.1993]

My daugther has PWS. Now she is 30 years. Its so hard to live With this Syndrom.

[@Aalahjbi]

She's an amazing human. She's also a scientist. She wrote her thesis on Prader Willi Syndrome. My g baby has this.

[@Rsonnier86]

I have always loved her but this just made me love her more!! ❤❤

[@dyvodivchyna]

Such a sad disease... Especially for people like me, who suffer from binge eating disorder, PWS sounds like a total nightmare and in a way, we go through the similar feeling every single day trying to find a way out. Stay strong!

[@angelinacervantes7753]

hi my name is angelina. Mayim Bialik I'm a huge huge fan I watch the big bang theory every Thursday you are fun and hilarious I live new your and I suffer from prader willy syndrome im one of the high functioning ones. I'm very smart in 22 years old I live at home. when I saw that you support people with this syndrome I had to comment. I'm a huge fan and I would like to meet you and I would like you to sign my big bang theory board game.

[@lindagoodwin6166]

My beautiful niece has Prader-Willi syndrome...........couldn't love this woman more.

[@moirahurtable]

Thank you for doing this video, I am a big fan of Big Bang. Although this condition is worldwide not many people have heard of it or just think its an eating disorder and dont realise the other effects it has on these poor children as they grow. Thank you for brining awareness to people who may never have heard of this. I have a niece with PWS and I know how difficult times can be

[@patslouka915]

Thank you for your continuing support for people with this difficult disorder and for their families and careproviders. I know this maybe nitpicky but the medical community esp at the state of ca system pronounces this as "Pray der" Willi the "a" is long. I know, kinda' like tomaaatoe vs tomau toe....😅 In the medical field a long time and the way some words are pronounced is sometimes like nails on a chalkboard in an OCD way. I'll have to look this one up in the Tabers Medical dictionary. I have always enjoyed your acting, humor and intellect! Was thrilled that you hosted Jeopardy and loved watching it with you hosting!

[@mariaazevedo3417]

Thank you Mayim for talking about this syndrome. I have a son that would eat everything in sight but he only has a touch of social awckwardness. With a child that would eat everything in sight and another one that was very picky, was very difficult to set opposite rules to the only two children I had at the time. What she wouldn't eat, he would be right there to eat it. People would just make fun of him because he would eat constantly. I asked my doctor about this problem and he did not provide me with any answers. He said he was just a growing boy. Had I known about this syndrome, I wouldn't blame myself for being a mother of two children with two different eating problems I wasn't able to fix. By accident, I came across this syndrome and everything fell into place. It was like a cloud had lifted off my shoulders. It was neither my fault or his. It was this terrible syndrome a person has to deal with every minute of the day. Thank you again, Mayim for talking about it in your show.🙂👍

[@Mr-Mr66]

Trust me, if your son had pws you would know before he began eating. Pws is not a eating disorder, it's a deletion on chromosome 15. Pws comes with far worse problems than over eating, my son has hormone deficiencies, hypertonia, scoliosis, speech problems, learning disability, the list goes on.

[@nerysghemor5781]

@@Mr-Mr66 Since most things come on a spectrum I would imagine that while most of the time it’s very obvious like you describe, there is the occasional person who doesn’t have as many accompanying conditions to the appetite. Basically I have no reason to distrust either of you. I’ve seen where it’s super obvious, as well as a profile of a case where the diagnosis didn’t come until well into the school years.

[@Mr-Mr66]

@@nerysghemor5781 I hate this disability being described as an "eating condition" But yea you're right, there is a spectrum

[@nerysghemor5781]

@@Mr-Mr66 I understand what you mean about not liking that terminology…sorry, I thought you were suggesting the OP was bullshitting their story.

[@WendyBWilde]

A compassionate and helpful explanation. Thank you.❣️

[@arnoldcaffas6320]

My niece Candice Caffas with PWS has gone missing in the Conneaut Lake Pennsylvania area. We could use help to raise awareness of her search and the issues of those who are affected by PWS.

[@Mr-Mr66]

Update please 🙏

[@patslouka915]

My heart goes out to you! I hope they find her soon, alive, well and unscathed. I worked with folks who have this disorder at a state facility. They are at extreme risk esp when they go missing. My prayers for her safe return and for emotional support to you and your family.

[@kristinmurphy9183]

You are one incredible lady ❤

[@chasitysolgard9013]

Thank you for doing this & educating about it!

[@patokelley]

Would the state of being in ketosis help decrease constant hunger pain/signal like it does with those on Keto diets? God bless everyone that helps this cause. ❤️

[@maryclairehaug966]

no the fullness siganal is blocked and our bodies make the times as much hunger hormones and no leption hormones no medicine or surgery can help at this point in time sadly

[@Noname24675]

My heart breaks for these kids. I know life isn't fair, but damn. Why kids.

[@Frankie-O]

💔

[@GVTarot]

My infant nephew was just diagnosed with this today. I just pray he doesn't have it as severe as what i've seen others have it.

[@mattamoroso251]

NIKKI withington my name is Matthew amoroso I pray that you guy get the treatment I was diagnosed sixteen and now 26

[@eboniz]

how is he doing now?

[@GVTarot]

@@eboniz he is doing ok thank you 👍 He doesn’t have it as severe as some 🙏

[@eboniz]

@@GVTarot glad to here it! wish you guys all the best.

[@Schekersculptors]

Oh my god so proud that you are a dr too

[@mollymorrison9540]

My sister has PWS, and my dad loves the Big Bang

[@natalieolsen3094]

which city R U in

[@edilalewis654]

Doctor and our favorite actress thank you so much we appreciate absolutely everything truly a gift given back to the Humanity

[@tiffanyhall4995]

Thank you for this video🙂

[@4rquivox]

She is the only person in hollywood I would like to meet in person. She is amazing.

[@prettymessedup7644]

20 pounds in one weekend.....that is a serious disorder. Can you imagine how quickly they could eat to death without someone to supervise?? I've read a lot about this fascinating disorder. I hear they have started using Adderall as a treatment and it actually helps a lot to curb the hunger as well as reduce weight gain.

[@mattamoroso251]

I suffer from prader Willi sydrome thank you so much I love you I was sixteen if I can meet you please reply

[@erichirsch1790]

Mayim looking amazing as always and looking so pretty and gorgeous all the time 24-7!!!

[@jenlang-ree1322]

You mention " Prader Willi syndrome is the leading cause of childhood obesity". I don't understand "leading cause of childhood obesity" when it is only 1 in 15,000 births. Can you explain your statement?

[@sarahsonny325]

Jen Lang-Ree it's the leading genetic cause. I think that's what she meant to say

[@tenthdimension9836]

I think a more accurate statement would be "genetic factors are the number one cause of childhood obesity" I think she misspoke.

[@pinkmonkeybird2644]

@@tenthdimension9836 No, genetic disorders are not the number one cause of childhood obesity. PWS is, however, the leading genetic disorder than causes obesity. Poor diet and lack of exercise, which is totally within a parent’s control, cause most childhood obesity and that’s really disappointing.

[@natalieolsen3094]

@@tenthdimension9836 wrong sometime it isn't pass down can be a hiccup thru scientifically

[@anomalyp8584]

beautiful voice

[@chriswaine2936]

Do you have any information on the role of MSH and PWS? I ask because I suffered a TBI and now have hypopituitarism. I am currently trying to get testing for MSH deficiency. When I research MSH deficiency I find information about PWS. I have struggled hunger and digestive issues. Cheers!

[@KellyK387]

My oldest Son was is 15, 6 ft tall and inching towards 300 lbs. we had him checked lightly but they said he had no other symptoms. I wonder if there is another test for it. He will literally demolish my fridge eating, even on a stimulant Medication for his adhd

[@paolaloor6193]

Blossom

[@tonytlreeves]

My cousin's youngest daughter PWS.

[@VincentGonzalezVeg]

I dont have this but I'm always hungry, except for specific reasons, who else and experienced this?

[@chriswaine2936]

I heard that PWS exists on a spectrum. Do you have any additional information on the severity of the rare disease? Thanks in advance. Oh, and thank you for this information.

[@thefury4424]

I’m a single dad to a 12 year old girl with PWS. She was diagnosed very early (2 weeks old) and has had support and medication her whole life and I’m very proud to say she is a little champ! We have been to meetups with other PWS families and there is definitely a spectrum to the syndrome, with different traits more dominant in different children. My daughter has her eating very much under control, doesnt seem to have that desperate hunger that some have, but she does get upset if she doesn’t get food at her routine times and she does have a big appetite and love her food but her weight is still under control.

[@thehuntbegins05.57]

I have pws, and yes it works like that, I used to be hungry all the time 24/7 and the only time I'd get full would be Thanksgiving but by that point I would be puking practically half of it up. It's a bit better now I can get full more often, but sometimes it's still stubbornly not letting me feel full, although sometimes it's the flavor I crave not the act of filling my stomach. Mine also affects the reward system of my brain so anything delicious or fun is much better than it should be until it eventually wears off. I was also supposed to have a 3 year old mentality but I graduated high school in normal classes, although my iep made me have physical therapy once every two weeks.

[@thehuntbegins05.57]

​@thefury4424 Yeah as someone with pws it definitely does hurt not being able to eat when you're normally able to, but having a pretty unsecured life does help a bit getting used to it.

[@susieq8424]

Mayim is gorgeous! 😍

[@PeaceLoveFairytales]

love amy

[@natalieolsen3094]

Amy Shrewmuer thanks didn't know U knew

[@catcat8297]

My cousin has PWS and it’s really sad to see him like that...

[@XSHADOWTHELEGENDARYHEDGEHOGxX]

I love this woman

[@jonathanrollins2470]

So am i the only one that fixated on how many times pwsa-usa was said there in the last 30-45 seconds. Almost like it was meant as a tongue twister.

[@amandajones9917]

I loved Blossom.

[@Frankie-O]

🌸

[@dirundungrindu4574]

My son is death, he have prader willi syndrome before. Always fell hungry.

[@mynguyen4249]

My son is too.he has prayer willi syndrome 🙏 😢 but he live. He just 2 age.I so sorry about your son.I don't know why children's prayer willi.I cry 😢 everyday

[@sharehard]

I love you Amy! ❤❤❤

[@XSHADOWTHELEGENDARYHEDGEHOGxX]

Ur the best lady

[@jannikheidemann3805]

Ok, so this is the PSA. Where is the 2h long detailed explanation of the pathophysiology?

[@georgethomson6387]

Don't know about the future That's anybody's guess Ain't no good reason for getting all depressed Pick up your pad and pencil I'll give you a peice of my mind Cause in my opinination The sun is gonna surely shine stop all your fussing snap on a smile come out and walk in the sun for a while don't fight the feeling, you know you wanna have a good time cause imn my opinination the sun is gonna surely shine.

[@distantrambler]

Wonder woman so so talented

[@stevengerwin3014]

You know me I have pws

[@saraf9081]

Whats your opinion about the famous Terrare? Evidently hungry enough to eat baby. He died in 1798 of TB

[@Moller1955]

Please help me…i teach a 4 year old with PWS - how can I help him - he can’t walk very well, cant get off the floor, and gets tired very quickly.

[@jaykay1053]

Check out the link in the description. They will help you, I’m sure. Good luck.

[@1Cheytown]

Go to the foundation's website. Scoliosis is a major issue in PWS patients. I've got a loved one with it and he is in a brace because of his Scoliosis. There is also often severe mental delays too.

[@kashabrown2692]

hey blossom 🙋🙋🙋🙋

[@Frankie-O]

🙋‍♀️

[@allesasmart]

What test can I take to see if this is me?

[@tenthdimension9836]

I don't think she meant to say that Prader Willi Syndrome was the number one cause of childhood obesity. I think that she meant to say that genetic factors are the number one cause of childhood obesity.

[@amandasmith3504]

What a sad disorder, these poor kids/people. :(

[@CaveWomen88]

Such a cruel disorder. Must be hard to live with.

[@tudormiller8898]

I love her. Watching from London UK. What percentage of the population have PWS ? Aren’t we all a bit PWS like we are all a bit OCD ?

[@TinyTC]

It's a great question. And, no, we aren't all a "little bit PWS" in the sense of control. People with PWS will eat so much that they burst their stomachs. Or they will drink so much water they end up with water intoxication. There are many other symptoms, especially behavioral and developmentally, that make it incredibly difficult to deal with. Sure, inability to regulate one's urges is a universal human experience...but not nearly to this degree.

[@ronnastefan543]

No. PWS results from missing pieces on chromosome 15. People either have it or they don't. It is a natural human response to like food and think about it, but people with PWS can eat so much they can rupture their stomachs, and will eat non-food items as well, such as trash and other things.

[@eboniz]

you can’t be “a bit OCD”. you can have traits that can be common in people with OCD, but these are not what defines ocd. PWS is, as with OCD, a neurological disorder, except one is born with this and there aren’t cures or therapies that can virtually minimise all symptoms. being unable to control snacking is not the same as having insatiable hunger your entire life. to suggest such a thing is ignorant

[@Mr-Mr66]

@@eboniz extremely ignorant Great reply

[@natwel1544]

I felt like I was dying

[@staceytaylor8194]

I work in a home with 8 residents who have PWS. Its so hard for them but we get through it

[@alexischarest378]

What if I feel I have this, but only control myself because of another aspect of another disorder ? Where I do not want to be fat and have a fear of that as well. But I’m never ever full. Even right now I just ate a panzerotti and wedges an hour ago and I feel starving. I never feel “full” I feel bloated and stuffed for about 5-15 mins then I can eat a meal again and I don’t always feel like that, sometimes I don’t even feel full, I’ve just realized that the amount I have eaten is just sad. I can make a whole pan of scalloped potatoes and eat it.

[@cyndyhalter318]

My son never feels full he says he feels weak if he doesn't eat like every 3hours

[@gardensofthegods]

Several things here first of all you need to make sure that you are not eating high fructose corn syrup because if you eat a little too much of it absolutely revs up the appetite and will make you want to eat and eat and eat . So if you're eating foods that have this then you're constantly getting high fructose corn syrup and so you're constantly hungry even if your gut feels like it's about to rip open because you've eaten that much food .

[@gardensofthegods]

High fructose corn syrup is not the same as regular corn syrup and the problem is HFCS cannot get absorbed in the gut so it shoots straight to the liver causing fatty liver which is no joke because that is actually considered to be early stage of liver damage

[@gardensofthegods]

Eating too many foods that have sugars in the such a starches can also increase hunger and that's why you need to balance it with some protein . After a while you'll start to notice if you cut down on certain starches like spaghetti or potatoes and increase your protein instead you sometimes will notice you stay satisfied longer .

[@gardensofthegods]

Believe it or not they claim our brain often is confused and not able to tell the difference between hunger and thirst so the times I felt on usually hungry when I knew I shouldn't be I made sure I drank a lot of extra fluids and waited a while and sometimes this really did make a difference

[@jenniferh7297]

“The leading cause of childhood obesity..” “1 in 15,000 births” these two statements are at odds. Look to the standard American diet/processed foods.

[@thehuntbegins05.57]

She just left off genetic on accident

[@angelblue7779]

How is PWS actually diagnosed ?

[@staleypharmaceuticals2071]

A chromosome test.

[@1Cheytown]

Via a Karyotype aka a chromosome panel

[@maryclairehaug966]

genetic testing

[@cyndyhalter318]

Usually at birth because of the low muscle tone( floppy)

[@natalieolsen3094]

I'm a fan U'RE hilarous I'd would love to meet U 476 Williams Street

[@pamt1229]

Scary

[@natalieolsen3094]

@@pamt1229 What do U mean

[@chatterati]

Is ozempic not the cure for this now?

[@christinaburton9297]

She stole the show in Beaches

[@EBJorge-ql1ii]

She moves funny

[@Phanonyoutube]

So most kids in the US has PWS

[@caelumwelty5030]

My son is massive

[@johnnymoondog]

"Associaition" ?

[@Cablecol]

PWS is caused by a partly missing chromosome 15 passed on by the father.

[@maryclairehaug966]

thats not true it comes from the mother and also you can get it if you have two coppies of the chromozone 15 ass well and you can get it if you have a tramatic brain injurey

[@artisticafflair408]

I have a poor relationship with food too. :(

[@cerridwyndonaldson8420]

With no disrespect, but your poor relationship with food is no where near what it is like to have Prader Willi Syndrome. It’s not a poor relationship with food for us. You have the ability to feel full, your body will stop you from eating before you eat too much. You have the ability to feel satisfied after a meal. You don’t have an uncontrollable drive for food. You can have more than 1,400 calories a day. You can think about other things other than food. We can’t do any of those things and we do have that uncontrollable drive. You should educate yourself, before assuming you know what having the syndrome is, re “a poor relationship with food.

[@escapeLDN]

@@cerridwyndonaldson8420 your face matches your comment so perfectly.

[@natalieolsen3094]

@@cerridwyndonaldson8420 h.e..y speak for URself I have Prauder - Willi syndrome

[@natalieolsen3094]

& I feel full

[@cerridwyndonaldson8420]

I am standing up for our community the original commenter does not have PWS and just has problems with eating healthy. She does not go through the stuff we do. I am saying that for us, including you, that it’s more than just a poor relationship. So she should educate herself before assuming what having PWS is like for us.

[@richardbarrett1733]

Rare but it’s the leading cause of childhood obesity that doesn’t make sense it’s very rare less than 20,000 cases a year not 1 out of 15,000 births

[@courtleewright]

What's up with that shoulder

[@sherryglass4214]

Would be good if the camera wasn't so close, as it would be nice to not be able to watch your eyes go back and forth as you read the teleprompter.

[@melissagregoire9278]

Just because you're unattractive doesn't mean I believe your feelings on the subject. I'd rather Google the info miss Education.

[@barywilliams3653]

One of the cruelest most awful diseases. Makes you question a lot of things.

[@natalieolsen3094]

Its not at all is disorder that's so rude to say barry

[@jaykay1053]

@@natalieolsen3094 I’m not sure he means to be rude but are you upset by the word ‘disease’ in the case of PWS? I prefer the term ‘disorder’ for the syndrome I have been diagnosed with, rather than ‘disease’. Disease feels more appropriate for something like cancer or Covid - something that grows. Is that the vibe you get too from the term, ‘disease’?

[@mc3403]

Medication to suppress the hunger?

[@jaykay1053]

It’s often rare disorders that ultimately hold the answers to what are now medical mysteries. In this case, PWS patients will likely be the ones to help scientists understand the mysteries behind the nature of hunger, lack of hunger, weight gain, and weight loss. Discovering targeted treatments (and a cure, I hope) will be a step along that path. In the meantime, compassion, cultural & educational support, medical attention & scientific research are called for: most important, of course...compassion from all of us.

[@paullemieux1346]

How is Prader-Willi the leading cause of childhood obesity...?

[@hieidi2905]

leading GENETIC cause, an important distinction

[@candlesbyalexandria]

Did you listen to her explain it?

[@sryherd766]

"The leading cause of obesity"? But it only affects 1 out of every 15K? Uh, those two don't jive.

[@garyindiana8075]

Leading cause of obesity? Yet only 1 in 15k? I don’t understand.

[@davidelliott9661]

Maybe you ought to understand hypnosis to see if there is an unconscious cure for this .

[@thehuntbegins05.57]

As someone with pws that wouldn't work most likely

[@vegandolls]

prader william syndrome is the leading cause of childhood obesity? Umm...that's not true.

[@ghengissmith8948]

Her nose though

[@Frankie-O]

Karl Malden

[@votewithbullets5027]

Cue the stories of folks who suffer from this. I expect 1200-1500% more stories in this comment section than all who have been diagnosed in the entire world. People love to adopt new ailments they just heard about. They think it makes them interesting

[@thischannel9392]

If people would know her from one show or the other, what is the point of her even saying it .lol.

[@1legend517]

Mayim Bialik has Prader willi syndrome.

[@k8lynmae]

Can they eat as many HEALTHY, natural real foods as they want that wont cause them any weigh gain ? with that said, I know that too much water can be fatal. I would also be interested to know how many of these kids and their parents were vaccinated. Even if a child is never vaccinated, if the mother was, then the mothers vaccines can transfer to the fetus. The vaccines never leave our bodies, brains and systems

[@JackeelG]

Vaccination has nothing to do with such genetic syndromes; no such speculation has been proved in any research. Also, it's not just the eating, but PWS has other unpleasant manifestations, such as weak muscle tone, intellectual and learning disabilities, compulsive self-harming behaviors, sterility, and most of all, diabetes. Finally, no: vaccines are not transferred to the fetus wtf are you even talking about

[@CTyndall91]

*fucking biggest eyeroll ever*

[@jaykay1053]

Katelyn I hope by now you have found some sound medical advice regarding vaccines. I encourage you to speak to your doctor, your pharmacist or your public health nurse for information about vaccines. If you truly do seek the truth and are not just looking around for places to plant seeds of doubt, I hope that you find out about how many millions of people have been spared premature death and needless suffering because of the work of epidemiologists all over the world. Peace and good health to you.

[@1Cheytown]

As someone with a loved one who has PWS I can flat out say NO they can't just eat "healthy" foods to avoid weight gain. It's not 100% about WHAT they eat...it's the quality as well.

[@Mr-Mr66]

Ppl with pws don't have a normal metabolism, they also have hypertonia. It's a cruel syndrome