Professor Qasim Aziz on Chronic Intestinal Pseudo Obstruction - PORT Patient Day 2015

[@johnhugo9761]

Excellent!

[@TOLSEYM]

Superb analysis... if only more GP's knew about this.

[@LisaLouise1]

I saw Professor Aziz, had been suffering with awful bowel and stomach issues for years and seen an array of Doctors, Nurses, Nutritionists, other Gastroenterologists, hypnotists..you name it I’ve seen them. All stumped at what is wrong with me. Professor Aziz was no different, and all he suggested was to put me on antidepressants even though I said I couldn’t because I have tried them before and they made me like a zombie, I had a young child to look after as well. He said as I refused his suggestion he could do no more for me and took me off his books. His secretary at the time was rather rude also. I don’t think I will ever get better.

[@katyachizhova5264]

Hi Lisa! I have had a history of suffering from severe dismotility disorder for over 35 years. Try to contact Satish Rao - a dedicated, no joke motility guru in Augusta GA. I had extensive testing with him last spring and ended up having a surgery, that helped me a lot. Best of luck!

[@mike0133]

@@katyachizhova5264 hi, can you tell me what kind of surgery helped you?.

[@masovan7517]

Can you tell us the name of surgery?

[@patbowen3741]

It's sad that now it's 2020 and the largest information on this sight is from 2015. I am a curved of this disease. I lost all my intestine as of 2002. I love with only 3feet of small intestine and a ilistomy pouch. It's not a good life to live. I turned 70 last year and l feel like l am 90.

[@mike0133]

Hi Pat. Unluckily rare disease doesn't attract a lot of interest, especially economic interest. It's sad to say but medicine world is strongly based on money. Motility disorder are very very rare, and also very difficult to diagnose, poor recognized even by doctor, a lot of doctors doesn't even know them. I also suffer of gastroparesis and CIPO, luckily not so severe (for the moment) to make me unable to eat. The cure fort this kind of disease at the moment is unable to get and i think we won't get it for the last 100 years because it is a very complicated disease. I only hope more doctor being passionate about these disease and improve at least the life conditions of the people that are suffering of GI motility disorder. I hope that besides all, you are living without pain. P. S.: one of the solution is intestinal & multivisceral transplant, it is risky but some specialized hospital do it.