PSPA - Keith's Story

A film about Keith, who was diagnosed with Progressive Supranuclear Palsy.
For more information and support, contact PSPA

[@philipswain4122]

My dad died of complications brought on by PSP. It was so hard watching a once strong, tough, mentally vibrant man deteriorate so rapidly. This was back in 2005. I still haven’t got over the shock snd the sheer helplessness me and my mum felt. My heart goes out to anyone who suffers from PSP and to their family

[@woodsman335]

I have a home care client with PSP. I am working on convincing his wife to get him out of the house and go do something fun. Finally we have decided on a date for that. In 2 weeks we will be taking him to a motorcycle museum here in Irondale, Alabama for a day trip, lunch and back home 😊. He is VERY excited

[@stixvix9]

Hi Keith, while watching your video I broke down in tears as I feel I can relate to your daughters, my dad died last year he had PSP and it's a vile horrible disease that nobody should go through, unfortunately my dad didn't get the chance to walk me down the aisle and he didn't get to hold his second granddaughter either, I hope you will carry on fighting this with all the courage you have, you and your family are truly wonderful

[@alanabean7090]

Dear Keith and family, Thankyou for sharing. Unfortunately my husband is travelling through a similar journey with PSP. We have a 10 year old daughter. Your film helps me and our daughter. Signed ASB, Perth - Western Australia

[@stoneworx09]

how is going now? i have it for 4yrs now, i see doctor ric stell

[@BentJay09]

This is a terrible disease. Today I lost my uncle, he had been dealing with PSP for almost eight years. He was diagnosed in 2011. My heart goes to everybody suffering from PSP and their families. Please stay strong. Lots of love from Venezuela.

[@CaptainThrash92]

Bless you Keith and your whole family. We are all thinking of you guys and support you all the way. Connor :-)

[@kaycorona1324]

What a lovely family you have Kieth...but u r pretty amazing too...no wonder they love you so much! Keep fighting and I hope that they find a cure for this. Lots of love and best wishes to you all

[@iona0113]

Keith & Family, so sorry and sad to see the video on your PSP. I wanted to share a small ray of hope with the experience of my BIL who was just diagnosed with PSP. For the past 2+ years he has been going for many test but was not diagnosed. We were all shocked to see his rapid decline and last Nov they thought it was Parkinsons & gave him the medication. After 2 mths on the meds there was no improvement at all. During my visit with him at Xmas, I gave him a natural product called 'Serrapeptase', within 2 weeks we could see some improvement in his speech and his ability to understand & follow our conversations. As conventional medicine gives no hope for this disease, it may be worth giving this a try. ( I originally used this myself when I had 75% scar tissue in my eye after an acute Gluacoma attack. When they did the operation on my eye they were so surprised that almost all my scar tissue was gone.)

[@cutecats31]

Oh Keith my heart goes out to you sheilagh and the girls hoping and praying that they find a cure you are a fighter and hopefully you can keep on fighting. You were a great boss to all of us in perth store and there are many people from the old days commenting on the video I shared on fb stay strong Keith love Sharon McDonald xx

[@alisonbutler1169]

I was so sad to hear about your news Keith. You were a great colleague to work with at Safeway/Morrisons and my thoughts are with you all. x

[@JoKooool]

My heart goes out to you all...

[@gillianswinscoe2052]

Keith it's been a lot of years since we were at school together. Picked your link up on Facebook and so very sorry to hear about your illness. Thoughts are with you and with your family. xx Gillian Swinscoe (Russell)

[@1865charlie]

My prayers are with you and your family Keith. I know from my own experience I was diagnosed with PSP 10 yrs ago. Last visit to neurologist said I've gone down alot since my last visit. I keep pushing my body trying not to give up, but now I sleep alot and can't get the energy to do alot of anything now. I still though refuse to give up the ship. When God is ready for me I'll be with him and be whole again. Thanks for sharing your video . Have a blessed day brother.

[@sammu]

Hang in there! Praying for you Charlie.

[@helenmcwilliam]

Thoughts are with you all. Please know that we are all sharing your story hopefully 1 day they will find a cure

[@davidford1639]

It's a truly horrible illness. My father died of it in 2010, after a few years of progressive deterioration. It's so little known and as the clip says when you mention it to people they've never heard of it. It took the doctors a while to diagnose it, and they didnt really know what it is. Good luck with your video.

[@issylwj6939]

My Granddad died of PSP after seven years of living with it, in Febuary2015 it was horrible

[@MyLife2020]

If anyone suffering from PSP please do alot of Gymnastics to stay as long as you can. Because the diseases Will take your muscale day by day

[@ashishagarwal521]

Hello, My mother in india was diagnosed PSP in 2021...She is just 67 and used to be fighter to the core. She had symptoms from 2000 but all misdiagnosed. Now she is in advance stages and currently in Hospital as she caught some infection...Her diseases has progressed so fast in last one year that nobody could ever imagine. Doctor who diagnosed also didn't inform us properly. Its so so so disheartening so see My Mumma like this....God Plz give some treatment soon. Can't let biggest treasure of life go away like this. I lost my father when I was 14... Plz suggest what can I do to her once she come out of hospital Ashish.

[@ashishagarwal521]

It so disheartening that even after decades, modern science is unable to find a cure.

[@stoneworx09]

i am 58 and have had this crap going on now for 4 yrs. i feel like jumping off a cliff sometimes and every day from now on is not much better. but im lucky that i have much support here in australia unlike many other countries, i hope your mum is getting some help..

[@harshitkaushik5526]

Dear ashish harshit this side my father is also suffering from this disease and it was diagnosed last week can u please help me how i help my father and how i slow this disease impact

[@bionicbranagh4001]

My nan has psp. shes in the hospital hardly being able to breath

[@kelvinmorris1991]

Is this disease Genetic?

[@SweetGypsyRose]

My mom jus got diagnosed its considered a rare brain disease it is not inherited similar to parkinsons once diagnosed ypu have 5-7 yrs to live & during those yrs you deteriorate horribly you loose your body functions its so sad to watch ypur loved ones go thru it ✌