Radical Prostetectomy Recovery 5 1/2 weeks post surgery

[@BillMoore-iy9gz]

I had mine November 28, 2023 and today is February 12, 2024. For me it is about how active I am, and I am a professional athletic coach. At 64, just had a birthday, I am at 2/3 pads a day, BUT, at night when I am sleeping, barely any urine is leaking out. I need to wear a level 4 pad doing normal day stuff ( Office, Walking around, blah, blah blah ) but at practice, and weight training ( yes I am back in the weight room ) I need to go with a level 5 pad over a level 4 pad and wear compression shorts over the underwear which the pads are in. This guy made a very good point in the video about this. You just need to get on with life and do what you do. It is a process from erections and sex to your blood test and a good PSA. For me, it is also about taking my body to a different place with goals in the weight room of benching 200 pounds 5 times, squatting 300 lbs. 5 times and deadlifting 400 lbs. 5 times. I may not reach all my goals but I am lifting and will continue for many years to come. I look at this prostate cancer as a wake up call and very fortunate it was caught early enough. My blood test came back at my PSA of .004 since mt surgery. It was pre-surgery 5.14. So to finish, take care of yourself guys and FUCK YOU CANCER. Your not going to beat me.

[@drummeruss]

Love the attitude, it’s important to stay positive, and you’re going to continue to heal over the next couple of years. Keep at the exercise, I believe it really helps the healing process all the best to you, blessings!

[@platka]

To anyone reading -Today is my 3rd day at home post surgery and I am really starting to feel human again. 2 good meals and a Real poop. Life is good today - can't wait to get the Cath removed on Friday - good luck to you all - Thanks for the videos. 62 in California

[@RH-xd3nx]

How ya doing ,give us an update pal..hope alls well

[@MrJt3451]

thank you

[@j.w.cou8125]

Getting ready for surgery , just checking things out .

[@firemach999]

How easy to go upstairs and come downstairs 2 days after surgery? My bedroom is upstairs, and my surgery is scheduled for next week.

[@bobstrickland4173]

Thanks so much for the videos and all the comments. I’m 66 years old and in day 4 post surgery. I hope you all have solid recoveries and stay cancer free.

[@No3Jacks]

So glad I stumbled on to this. 2 weeks and 1 day since my surgery. I should say I’m 78 years old. The age factor alone made the decision on how to deal with the diagnosis very difficult. The cancer was confined to the prostate so that’s a plus. The catheter was removed a week ago. I hated the catheter. That said I wish it was still there. I was prepared for incontinence but nothing like what I’m experiencing. The moment I rise from sitting the bladder empties completely. Standing or walking there’s a steady drip. At night I have to change out (depends + pad) 4 times. Zero control. The only place I’ve pee’d the past week is in my pants. Knowing others have experienced similar circumstances and gone on to recover completely or close to it gives me hope which I really needed. Bless you sir.

[@No3Jacks]

Update: it’s now 5 weeks since the surgery and 4 since the catheter was removed. My hopes for a similar recovery to yours dashed. Have eliminated 99% of all bladder irritants from my diet. Have completed 3 of 5 visits with physiotherapist. Exercising daily. Progress has been minimal. When I sense the urge to urinate I can make it to the bathroom 1 out of 5 times before total release. The 1 time I do reach the bathroom in time it’s with maybe 50-60% of the “payload “. The leaking is still constant except when sitting or laying down. When I get up from sitting or lying down, full release. Trying to stay positive but not an easy assignment.

[@joeomalley646]

My experience is closer to yours than Russ in the video. I am just passed five weeks in surgery and I still have significant incontinence. I am going through seven or eight thick pads per day. It is a big concern of mine as it was for you. I also developed a hernia a week ago and that is another issue.the Celis is having no effect on me so I feel your pain

[@phourtitude]

Thanks so much for your videos. I am 41 and got diagnosed with prostate cancer. I will likely have the surgery this summer, which was a very difficult decision to make but my diagnosis was more advanced than would be expected. They surmise I had a genetic predisposition. I am so afraid, but your videos and comments under have been encouraging. So thanks to you all.

[@rtbrain]

Have you had your surgery and if so how are your recovering? I just had mine on November 13th. Tomorrow marks 5 weeks for me.

[@haroldbrownlow3949]

I have just had the robotic prostatectomy at age 67. I am from Northern Ireland. My surgery has gone really well, wounds have healed well and no swelling. During the 13 day catheter period I had a UTI but this cleared up with antibiotics. The big issue like so many is dealing with the incontinence which isn't too bad when sitting but really significant when standing or walking. These videos have been so encouraging because of the length of time it can take to begin to be more continent. Just three days after catheter removal I just needed the encouragement. Although you read about this problem in all the hospital discharge notes the videos make it so much more personal and real. Blessings and thank you

[@drummeruss]

Thank you Harold, blessings to you too and prayers for a speedy and complete recovery!

[@1norgman]

Harold, I’m at 2-1/2 weeks post surgery and am leaking while standing, very little sitting or laying down. I’m using 4-5 pads a day depending on how much I stand. I’m curious if you became continent and how long did it take? Looking for some light at the end of the long tunnel🤓

[@haroldbrownlow3949]

@@1norgman hi Norgman. Yes the inconvenience is a bit of a challenge. You are doing very well if you are dry at night. Good sign. I am just about a year now and still need light pads. I was leaking 600 mls a day, now down to a few drops if I having a quiet day but maybe around 20/30 mls if I'm very active all day. There are many who are completely dry by about 6 months. It can take up to a year and many websites say improvement up to two years. Try to be patient, it will improve over time. I know it can be an emotional journey with ups and downs. Also you have to deal with the ED. You may wish to take low level Tadafafil eg 5 mg daily for 6 months. Also after 6 weeks of healing you could use a vacuum pump for rehabilitation. I wish you well during your recovery

[@1norgman]

Thank you Harold for your recovery progress update. I have been using the scale tracking method for the past week to track my leaking. I’m currently at about 180/6.3oz per day. Not horrible but I have a ways to go. This is a very frustrating and angering process to endure, good days and bad. I’m 63 and a very active guy, at least I was. Your message along with other men encourage me that better days lie ahead…my birthday is in July, which is 3 months from my surgery date. That is my target date to be down to 1 shield per day, thank you again!…David

[@tadsmith5746]

@@1norgman Hi Norgman...how as your healing progressed since 7 months ago? My progress seems to be paralleling yours and Russ's at this early stage. I'm a little over two weeks since surgery (December 15th). 64 and previously *very* active (avid cyclist). I find these personal videos and written accounts to be very helpful and encouraging. Intellectually I know it's still early days, but I find it hard to not feel down when going through this. Russ gives me great hope that there is light at the end of the tunnel. Hopefully you are also experiencing complete recovery.

[@salt7379]

Thanks for your video! I'm at the 5 week post op right now and I too feel great! I too can say to everyone is don't be afraid of this surgery! I went for a year with poking and prodding, MRI, biopsies and I can say it really messes with your head! By Month 10 I was going nuts and it was to the point that I said to my Doc, get it out of me! I couldn't sleep, missing work with all those appointments, bad moods... my Gleason score got to 7 and PSA was 8.5 and the doc said it has to come out..... everything you said post op is on the money... couple days of pain, catheter leaks, I slept on my recliner for a week while I had my catheter, no way of sleeping in my bed... at my 5 week post op I'm at 1 pad a day regular underwear... I'm 51 so everyone's gonna heal differently.... put your mind at ease! It's a rough surgery for the body but really not too bad when it comes to recovery. Good luck to all who has to go through this.

[@drummeruss]

Couldn't agree with you more, glad to hear you are healing well !!

[@MC-xv3eu]

Thanks!! I’m 52 and getting surgery next week! I am so ready to tackle this!! Thank you for the info!

[@salt7379]

@@MC-xv3eu you got this! Let us know how your doing

[@MC-xv3eu]

Sal T thanks buddy! Unfortunately it was rescheduled until next week because of Covid restrictions on hospital! Uuuughh!!!

[@tonymurphy9711]

Had mine done 😂 64 told I had prostate decided to get this fecker out had optios of radium but glad I did surgery F U cancer life is for living 🇮🇪😀

[@tyroneharp7935]

Thank you for sharing this important information, I'm due for this surgery Jan 20th. I'm 68. I praying to God for your continued healing, better health going forward!! God's blessings to you and family!!🙏🙏❤️❤️

[@drummeruss]

@@tyroneharp7935 I’m glad you found the videos, helpful, prayers for successful surgery, and complete healing, blessings!

[@billyharris3758]

Hi I am 58 and will be having surgery in about 6 weeks. Really glad You did these videos they are a great help, thanks again

[@drummeruss]

I’m glad to know they were helpful to you. All the best to you and prayers for 100% recovery!

[@mossbrg5]

Hoping everything goes well for you. I went through the same robotic procedure 7 weeks ago.

[@robertpowell5538]

Faced with 3+4 stage 2 so I'm reading and looking at much. I think the way you present yourself and explan the process is beyound helpful but heart felt for us poor souls. You are Top Shelf in my book and I thank you.

[@drummeruss]

Glad to know my journey has been helpful to you. All the best to you, Blessings!

[@davidakers9030]

Dave here....gleason went from 4 to 8 in a year. Had choice between cyber knife (radiation) or radical prostectomy. Reading your journey was a big factor in deciding to get this out of my body. Surgery (Divinci) june 2. I am overweght, 75 years old, very large prostate 110 grams (average size 30 grams). I am very active. Surgeon also fixed a 4 year old umbilical hernia while he was in there. He also sampled lymph and surrounding tissue. Pathology showed all cancer contained in prostate! Best decision I have ever made! 3 weeks out now and incontinent when walking but ok sitting or sleeping. I have watched your videos multiple times and i wanted you to know your courage in making them helped making my decision to take on this cancer in an aggressive manner. Thank you Russ and happiness and heath to you for all you have done for so many of us. Now looking forward to getting rid of my pads!

[@drummeruss]

Sounds like your recovery so far is similar to mine. I’ve never looked back, best choice I ever made now, five years out l even forget I had surgery. So glad to know that my journey has helped you along your path. Blessings!

[@elizabethsedway3403]

My husband and I are so grateful for your videos. You are in our prayers.

[@paulbaziuk4455]

Awesome Video ! thank you for sharing. You are SO correct, the biggest challenge is all in our Head ! I had my PR done last week and my catheter removed (9) days later.

[@jalcors11]

Thanks for your videos! I’m almost two weeks RPT post op. The catheter came out on day 10. Right away I was able to sleep with a depends dry all night. I start to leak after a few hours which get worse as the day goes on.

[@colinharris8317]

Thank you so much for your honest Video's. I had my catheter removed today with a lot of leakage and so comforting to hear you had the same experience and overcame it in time. I saw you videos before I had my procedure 2 weeke ago so stocked up on Depend pants and pads - what a godsend they are today !! Thank you for taking the time to do these videos - you have helped me and my family a lot ! Very best wishes from the UK.

[@drummeruss]

Always glad to know the videos were helpful. All the best to you, just be patient, healing takes time. Blessings!

[@dockins]

Just found out yesterday I have to have a RP. I am scared and don’t want to do it but I am thankful for the information in these videos.

[@javar888]

Just diagnosed. 4+3 Gleason, psa 3.8 , no symptoms, . Have an appointment with my urologist in a couple days. Scared as hell. My father died of prostate cancer 25 years ago. He took radiation therapy that held him alive for about three years before it came back. Of course I am not looking at radiation therapy I would rather have this cancer out of my body. Thank you so much for sharing the details of your journey.

[@dannymartin484]

Thank you for your story. I am 3.5 weeks after surgery. Catheter was removed at 14 days. Was wearing a depends and a pad for 10 days after that. I changed the pad about 7-8 times a day. All of a sudden at 3 weeks no leakage. I am only wearing my underwear now. I feel lucky, will see how the ED part goes. I am 63.

[@robparadise6099]

Hi Danny, did you do any kegel exercises or did leakage stop on its own? Thanks

[@dannymartin484]

@@robparadise6099 At 8 months after surgery I still do Kegels every day. I still leak on a occasion but not very often. Also I worked My way up to 100 mg of Sildenafil for 3 months , had nothing, I am using injections, working ok after 3 jabs. Otherwise doing great. Thanks

[@BBFoster1906]

@@dannymartin484 Good afternoon! I'm 6 weeks post surgery. Any updates to report? Thanks

[@dannymartin484]

@@BBFoster1906 It has been a year and a half now. Everything is good for Me. I have no incontinence since about 3 months after surgery. I have been been doing kegel exercises this whole time. Have been using Trimex for the last year for ED.

[@BBFoster1906]

@@dannymartin484 Great news! Is there a direct messaging path to discuss further? Thanks

[@alexanderphd]

Your videos are raw reality. It’s what I and others need to hear. My surgery is pending and I’m scared. Your videos help gear me up for what I need to be prepared for, in ways the Mayo videos don’t cover. Thanks for this.

[@gregorysmith1021]

Sir, Good luck on your surgery. I am 3 weeks post surgery. I understand your slight fear and concern, You will be fine. May the universe provide you with a successful surgery and recovery.

[@rubberside3969]

Hey @Nmexplorer , I hear you! Today is my 2weeks from surgery time mark. The first few days are uncomfortable, but after watching this and other videos we all come out of it well! Those days until the catheter comes out are a drag, but they end and then the adventure begins anew! Just remember you’re not alone in this!

[@embryophytelove]

Again, thank you sir. Extremely grateful you took the time to do this.

[@peterottes6900]

Love your honesty.. I'm 65 and heading in that direction. Have to decide between surgery and radiation. This gives me hope.

[@garyturner3526]

Thanks again....I'm feeling less stress watching your video

[@willmansfield6532]

I've watched your video clips multiple times, and always find them very reassuring. Had my prostatectomy 3/21, and am scheduled to have my catheter out this Thursday - can't wait. Your experience post-catheter has helped set my expectations about incontinence. I'm just looking forward to being catheter-less, and being able to get outside. My catheter has been extremely uncomfortable, to the point that I can hardly dress myself, let alone get outside for a walk. Thank you for your candor!

[@drummeruss]

Hopefully you are a happy man now with that catheter out! Never bothered me much but for some it was the worst part of the surgery. Hope and pray for a full recovery for you, blessings!

[@ramonsanabria1472]

Fabulous video ! Thankyou , no issues for me of any kind but have heard stories and are a curious person ! 67 years old and a fit road cyclist !

[@keithmcgregor2546]

Made it through. Feeling good. You guys were truly an inspiration... Thank you

[@drummeruss]

Awesome, and you’re already on the Internet, you must be feeling pretty good! Congratulations, you’re already on your way to recovery. Blessings!

[@PapaGsAdventures]

hey there, I rewatched your video and its cool because I am at the same place on your recovery timeline 5 1/2 weeks. thanks again it really helps with the frustration of this recovery to hear your progress. Hope all is well. thank you!

[@Oldparson220]

Thanks for this. Im 3 weeks out, slowly getting better. Its encouraging hearing your story.

[@mightymaule]

Thank you so much. I’m 2 days post Da Vinci radical prostatectomy. Your story really helps. My pain control and cath. management is good, just no poops yet, but feel I’m close, though I’m a bit nervous when it does come so hope the lax does it’s job. So glad I was windy only a few hours post op. as it really helped with abdominal pain control.

[@GetInspiredMedia]

Thank you so much. I am now at day 5 since my catheter removal following my radical robotics prostatectomy and I have come back to listen to this again. My experience at this point is just like yours so I am encouraged that I am normal. Thank you again for your openness, it is very much appreciated! Dave down-under

[@PapaGsAdventures]

Wow thanks so much for your courage to talk about post prostate cancer and post surgery. This is super helpful. Its so taboo to talk about anything related to prostate cancer! I'm 10 days out from Robotic Prostatectomy, got the cath out 2 days ago. Glad the algorithm brought your post up first thing. With your post I'm good, i can get on with life! Good to hear this is part of the process. there is definitely a lack of information on the subject. Thank you!

[@drummeruss]

@@PapaGsAdventures so glad to know the video was helpful. Hope you do well and recover 100% blessings!

[@johnsde35]

Thank you for this. I am at 12 days since my surgery. I had my catheter removed two days ago. I had been preparing myself for incontinence, but nothing like what I have. I'm fine sitting or laying down, but as soon as I stand up, my bladder empties. I literally had a panic attack yesterday because I feel like I have no control. I have been doing kegels for the past several weeks in preparation. Your video gives me hope.

[@drummeruss]

My situation was very similar, hang in there, it will get better, give it a couple of weeks. freaked me out too! Use the pads, the clamp, whatever you need to get through the next couple of weeks. Praying healing for you.

[@icushaka]

Hi Dennis how did that go for you. When did your incontinence end ? And the erectile dysfunction ? 3 weeks post op and still incontinent and ED

[@gwendolyncoggs8257]

Thank you so much for posting and helping families know how to support family members with this process! God bless your candor!!!

[@theolmaestro]

Hey, drummeruss, thanks for the encouraging words. I’m three weeks post surgery, and the incontinence it’s really frustrating. Just when I think I’ve got a handle on it, well, I don’t. But it is getting better, and your suggestion of the clamp is a good one - it has helped. Wishing you the best in your continued recovery. - Gene

[@drummeruss]

All the best to you too, just be patient and let the body heal.

[@michaelpaleos4123]

Thank you for being so honest and open about your experiences. Men never discuss these things, and it is so important to know what you could be facing, and how to deal with it. Bravo for you and good wishes for your continued improvement and good health.

[@MrDezMitch]

So grateful for your courage and honesty. I’m 3 days post op, still managing the pain, but have eyes on the horizon thanks to your thoughtfulness.

[@geoffregent9606]

Thanks for your personal journey, glad you are on the mend.

[@anthonyarmstrong3548]

Hey Russ you helped a lot I was feeling down because of the leakage and it was very frustrating your videos help put things in perspective for me

[@drummeruss]

@@anthonyarmstrong3548 glad they helped you, a lot of men write and say the same thing, they are shocked with the amount of leakage. I am six years post surgery and 99% continent. I have an occasional leak and wear a thin pad as part of my daily routine doesn’t bother me at all. All the best to you!

[@anthonyarmstrong3548]

Thank you very much Russ you pulled me out of a dark place

[@anthonyarmstrong3548]

I'm just coming up on my 4th week

[@anthonyarmstrong3548]

I'm just curious why did you pick surgery over radiation

[@drummeruss]

@@anthonyarmstrong3548 like most men who have commented here, I just simply wanted it out of me! Another big factor, if radiation does not work then prostatectomy is not an option.

[@airyfast]

Hey just wanted to say thank your video has been a great help to me through this. 14th day and today I got my cath taken out and let me tell you the water is running I was shocked. Using the depends & pads ( thanks for telling me) I'm keeping an open mind for a few days praying the control comes back. I had the open prostate surgery in Pittsburgh ( Shady Side hospital) 14 days ago very smooth, great care. Came home the 3rd day took it easy the first week or so about the 10 day walked around the farm with the dog did a little light work on a classic vehicle project no problems. Now the next step get control. Thanks for the help. 67 years old

[@drummeruss]

Took me about six weeks to get some control, so hang in there in case it takes a while. I was shocked too and nobody warned me! You will gain control again. All the best to you and prayers for a full recovery!

[@1norgman]

Mic, I’m at 2-1/2 weeks post surgery and am leaking while standing, very little sitting or laying down. I’m using 4-5 pads a day depending on how much I stand. I’m curious if you became continent and how long did it take? Looking for some light at the end of the long tunnel🤓

[@airyfast]

@@1norgman well I'm with in a few days of being 11 months and it's been a quite a ride I'm going to say I'm at 90-95 percent control, walking and setting, riding, driving, sleeping are all dry But I really have to pay attention setting on a bench or the edge of a barstool if I get up fast I may loose a drop or so, I work with heavy farm equipment and semi trucks and do a lot of shop work, if I'm lifting 50 - 100 pounds I find I have to pay attention and concentrate or you will loose a drop but I average probably one (very thin ) slightly damp pad and if it was a easy day it may be dry and things are still improving my Dr has told me my progress has been really slow and has offered a couple outpatient surgeries ( a lift ) but I feel myself getting better as time goes on So I'm thinking I'll be 100 percent dry to soon. We went went on a 4 week vacation put on around 3000 miles and no problems at all

[@1norgman]

Thank Mic for your recovery progress update. I have been using the scale tracking method for the past week to track my leaking. I’m currently at about 180/6.3oz per day. Not horrible but I have a ways to go. This is a very frustrating and angering process to endure, good days and bad. I’m 63 and a very active guy, at least I was. Your message along with other men encourage me that better days lie ahead…my birthday is in July, which is 3 months from my surgery date. That is my target date to be down to 1 shield per day, thank you again!…David

[@airyfast]

@@1norgman yep I know where you are coming from I'm 68 and I'm just now starting to feel comfortable doing about anything we have a small farm also so I kinda stayed to myself for a bit, but that didn't last long. Once you fell comfortable standing and bending and you won't even think about it, hang in there I hated the exercises but I gotta say I think they helped a lot when I finally gave them a chance. Good luck and let me know

[@JohnGlennSunga]

Thank you so much, Drummeruss for this wonderful opportunity and sharing. It’s very uplifting and yes, the only way is to move on positively post prostatectomy. Am on my five and a half weeks recovery post surgery and all is falling into place well with prayers and patience. God bless

[@awlthatwoodcrafts8911]

I am 6 weeks out today. I had the catheter in for 10 days. I was just like you those first few days but each day I saw improvement. Right now, I leak when I stand up. I'll leak a little if I stand still for too long. I certainly leak when I cough or sneeze or bend over too far. I'm sleeping a little longer but I'm not dry when I wake up. I've been getting 2-4 hrs of sleep at a time. Personally, I just use the Depends. I go through 4-5 a day. I also use some wipes to keep myself clean between changes. So, still a ways to go but like you, I have no regrets on choosing the surgery. As far as the pathology report goes, the lymph nodes were negative but they did find some cancer in some tissue they removed from the bladder neck. So, even though I'm still considered a 7, there was some cancer found outside the prostate. It is considered prostate cancer and not metastatic so the aggressiveness should still be low. The doctor feels like they got it all but the PSA tests will be the tell tale sign. Doing a little research, the internal sphincter of the bladder is in the bladder neck so with some tissue being removed, that may be why I'm not as far along, continence-wise, as you are. Hopefully everything will repair itself in due time, so I'm being as patient as I can.

[@deanhall9796]

I’m now 4weeks past op 9 days ago had catheter out I can sleep ok just need to visit bathroom 2 times in the night. I can sit ok as soon as I get up need to go straight to bathroom etc If I’m standing or moving around I’m dribbling most of the time I get through 2/3 pads a day. Lymph nodes clear contained in prostate. 55 years old Good luck to all of you keep strong we will get there.

[@deanhall9796]

I don’t drink after 6. 30 pm that may help you

[@mikeallen2065]

I’m having my surgery on 14 January , I’ve got a lot of anxiety already so while your complete transparency scares me it also is very helpful knowing that I’m going to be ok. Thank you very much for doing these videos.

[@drummeruss]

All the best to you Mike, and remember a lot of people have written to me who healed up a lot quicker than I did! Praying for a full recovery! Blessings!

[@robparadise6099]

Mike - Just had my surgery last week. Told myself repeatedly leading up to the surgery = 1) This is going to fix the problem. 2) I am going to feel better 3) I am going to be healthy long after. It wasn't just words, I truly believe this and it helped.

[@andrewaustin9536]

Thank you for your video. I just had my catheter out two days ago and I am experiencing terrible incontinence. I am hoping It gets better soon. You have my respect.

[@1norgman]

Andrew, I’m at 2-1/2 weeks post surgery and am leaking while standing, very little sitting or laying down. I’m using 4-5 pads a day depending on how much I stand. I’m curious if you became continent and how long did it take? Looking for some light at the end of the long tunnel🤓

[@andrewaustin9536]

@@1norgman Thank you for reaching out. I am afraid I am still incontinent over a year and a half later, although it has slowed down a lot. Iam told I am in the minority, so please do not take my misfortune for a prediction of your own results. I have improved down to two pads a day. Do that pelvic floor rehab with a specialist, do those kegels and I hope you will have success. All my best.

[@1norgman]

Andrew, thank you for your update. I’m sure your current 2 pad per day is a far improvement over where you were at the 2-1/2 week mark. I have adopted the weighing idea others have mentioned. I weigh my wet pads for a given day and determine the number of grams/ounces I am leaking. Good way for me to measure my progress. I’m at about 3-4oz per day at this point. Good luck with your continued progress…David

[@andrewaustin9536]

@@1norgman Thank you, David. And good luck to you, too.

[@stoggiefortynine]

Thank you for recording your process. It helps more than what the Dr says "it's normal an you can exercise now but don't run yet ". I like what you said its in our minds so don't look to far ahead just whats in front of you.

[@slygarcia4310]

Very helpful! Wish I could find more post survery videos of this guy!

[@denniscogan630]

Thank you so much for your honest updates. I have gone through them and am about to mark my calendar and use your experience gauge my progress. I am at 6 weeks and am about where you were with incontinence but I am unable to regain an erection, even with 100mg viagra. I see some improvement but not firmness yet. The road seems frustrating but your experience has helped me so much. I was feeling a little hopeless until I saw all your videos. You’re a godsend!

[@drummeruss]

The fact that you’re seeing some improvement in sexual function at six weeks is great news. Hang in there, it takes time and all the best to you. Blessings.

[@robertfunk1628]

Thank you for your willingness to take the time to share this important information with us.

[@MPjdog]

Thank you I am soon to be 65 and will be going through this in a few weeks. I waiting to heal from a resent appendectomy. Thank you for posting your progress. It is be a big help.

[@drummeruss]

Always glad to know my journey was helpful to others, all the best to you, blessings.

[@ThomasEwertsen]

Thank you very much for your optimistic report on your operation. It is very assuring being one week from my operation. It is a big help!!

[@drummeruss]

Glad it was helpful for you, I hope and pray all goes well and you heal fully. Blessings!

[@ThomasEwertsen]

@@drummeruss 14 hours after operation all is fine. No pain, have been up walking, all looking good. Best wishes to you and thanks again. I am writing you from Copenhagen, Denmark. 👍🏻😄

[@lewislikens275]

Surgery on Dec 13th and this video was helpful regarding incontinence issues. The first two weeks with the cath were miserable and it was great to have it removed. Now, I'm going through Depends like crazy. Really appreciate your candor and willingness to share your experiences. BTW, path report was all good and I should now be cancer free!

[@drummeruss]

Great news on the pathology! Progress is slow but steady, blessings!

[@williammegow8780]

My surgery was December 15th

[@1norgman]

Lewis, I’m at 2-1/2 weeks post surgery and am leaking while standing, very little sitting or laying down. I’m using 4-5 pads a day depending on how much I stand. I’m curious if you became continent and how long did it take? Looking for some light at the end of the long tunnel🤓

[@lewislikens275]

@@1norgman Yes, there is a light at end of the tunnel, just be patient. It took me about 6-8 months to feel like my incontinence was fully controlled and I could quit using the absorbent briefs with pads inside. All through it my Doc kept reassuring me this was normal with the disclaimer that everyone is different. Seems like he said if we get to the year mark and are still incontinent we could talk about options, but it didn't take that long. Even now I will leak a little when I sneeze or laugh real hard. So, stay away from comedians and pollen! Around 3 months I was really tired of the inconvenience and "humiliation" of it, but it will get better! My PSA has been undetectable post op and I wish the same for you!

[@pamelaknits]

Thank you for being so candid. My husband and I just watched. He’s 74 and his surgery is is October. His only option was to have the robotic radical prostatectomy impart to the aggressiveness of the type of cancer. Thankfully contained to the prostrate only. We have done our homework and we know what’s ahead. Your video gave us even more info we needed.

[@drummeruss]

Hope and pray all goes well. Recovery is slow and steady. Patience is the key. Having a supportive wife is important too ! 😊

[@pamelaknits]

@@drummeruss All that and the Lords healing and grace.

[@retiredracingwriter]

Pamela, I had the surgery on Sept. 28 and couldn't be more pleased with the outcome, incontinence issues notwithstanding. I was eating real lunch two hours after recovery, walking around the hospital room that evening and home 24 hours later. My pain was mostly from constipation and a dull ache in the abdomen, like having done too much heavy lifting. Rest and recover first. I've walked the golf course with my foursome three times since, but I also nap when I'm worn out. I'm starting to get more sensation, but I still haven't mastered standing or walking without protection. As the original poster said, it's all about patience.

[@pamelaknits]

@@retiredracingwriter we are back in hospital. Blood clot to lungs from surgery on the 18th. Also more cancer from the prostrate. You just never know.

[@drummeruss]

@@pamelaknits so sorry to hear, prayers for healing!!

[@chrisbrode7099]

Thanks for posting these viy. My name is Pam and my brother had prostate cancer and this is helping me understand what he’s going through.

[@drummeruss]

Hi Pam, having support from family is a real blessing. Glad my journey has been of benefit to you. God Bless!

[@pjbaird52]

Great videos, drummeruss. Thanks for doing these. I got diagnosed 4 wks ago with a 6/7 Gleason score and my urologist gave me a great book to read on all of this, but these videos help even more because you give real-life experience of it. I go see my urologist tomorrow to let him know I want to go ahead with this surgery. This has calmed and reassured me that it is the smart thing to do. I'm 68 yrs. old and don't want to drag this out.

[@kevinhnlee7414]

Hey, Thanks so much for your encouragement! Thanks for your openness with your personal experience. Bless you for sharing 🙏

[@drummeruss]

@@kevinhnlee7414 thank you, I hope all is well with you!

[@HS-yk9he]

Very informative. Thank you for sharing it. My surgery is next week March 18, 2021 in Mission Viejo California.

[@drummeruss]

All the best to you! Prayers for a quick and complete recovery!

[@aqualuna8116]

Legend mate. Many thanks for the candid posts. Greetings from down under!!

[@georgerios7491]

Thanks 😊 for the video I’m glad 😀 ur doing well keep strong never surrender to PC good luck 👍

[@daveburt1961]

Countdown to my surgery 24 hours. Thanks for your videos!

[@drummeruss]

Dave Burt you are in my prayers for tomorrow's surgery, before you know it you will have a success story of your own to tell, think positive and have patience.

[@MC-xv3eu]

Dave, how are you doing today?

[@daveburt1961]

@@MC-xv3eu A little over 1 year since surgery. Thank you for your encouragement. Last two PSAs undetectable. I had a real struggle with incontinence....gradually got better, than a relapse.....etc. I stopped Kegals for awhile because they seems like they made it worse at times. when corn planting season started about a month ago, all of a sudden, for no reason, the incontinence almost stopped. Last two weeks I've used a light pad and may only use one a day. And that includes heavy physical exercise and work. PTL! Thanks for asking......I'm pushing ahead. Again, your videos were so helpful. God Bless you and your mission.

[@MC-xv3eu]

Dave Burt God bless brother! I will remember you during my surgery this Wednesday! 🙏🏾

[@stevemerchant1862]

Thank you for posting your experiences. It has helped me enormously. All the best. Love from the UK

[@rubberside3969]

Drummerus Thanks for your videos . I’m 2weeks post surgery today & they helped with the anxiousness that builds before the surgery & having a realistic idea of what to expect after surgery. For incontinence I’m ahead of your experience but for ED I think it’s going to take a bit longer for me as the surgeon had to take out the nerves on 1 side 😢 Thank you so much for your honesty and humility 🙏🙏

[@drummeruss]

Hope and pray the ED heals up over time. I kept seeing improvement for a full three years. I know your situation is different because they didn’t spare all the nerves but you do have some and keep praying for the best.

[@valandra70]

Just went through radical prostatectomy on 3/29/2021, rough going but watching your videos are extremely helpful, Thank you very much!

[@drummeruss]

All the best to you, just be patient, the healing will come!

[@guymassie5482]

Thank you very much for your information I am facing the possibility of prostatectomy. I have found yu to be most helpful and very encoring to me. Thank you for your honesty and upfront presentation. My doctors are at Northwell Long Island Jewish. Thank you. I will continue watch your updates. This is a great help.

[@hashby111]

Thanks for your video I'm scheduled for Surgery In Sept 3024 I'm a bit nervous but your videos are helping me prepare for what's ahead thank you so very much

[@drummeruss]

@@hashby111 good to know the videos were helpful, hope all goes well with your surgery. Blessings.

[@jeffreyjoseph9769]

Thank you for the candid video. Difficult decisions to make and even more difficult journey to make. Your comments are reassuring.

[@drummeruss]

Yes, a very difficult decision, dig into it and get as much information as you can, with information you start to feel in control and then you can make your decision with confidence. All the best to you on your journey! Blessings!

[@jmanke6057]

I reduced my water intake to 64 ounces that helped but my body seems to need 80 ounces a day for it to be happy. So still ware depends to avoid embarrassment. Thanks for recommending Wisern clamp may try that on cold days. Some people take over a year.

[@jmanke6057]

Thanks

[@davekempema8437]

Thank you for your encouragement. I am 5 weeks out of surgery today. My catheter had to remain with me for 26 days due to complications of internal leaking which was noticed from repeated cystograms. This may delay my incontinence training I was told. I'm feeling great but going through about 3 to 4 pads a day. I found your video to be encouraging and hopeful. I was beginning to get very discouraged but I am making progress but a long way to go yet.

[@drummeruss]

Dave Kempema slow and steady progress, takes time. All the best to you!

[@oraziobarna6527]

I had a robotic assisted laparoscopic radical prostatectomy two days ago at UCLA with Dr Robert Reiter. Your videos are a great help i cannot thank you enough for taking the time to do them

[@drummeruss]

All the best to you Orazio, the first 7 days are the hardest. Hang in there and take it easy.

[@oraziobarna6527]

@@drummeruss Thank you, my girlfriend and I learned a lot from you. I have pain from the incision and my scrotum is very swollen, but it is a great help to know when i can expect some relief. right now its hard to move around and I wonder how incontinent I will be when i remove the catheter, I try to walk every day but am afraid of eating and dread the first bowel movement, they will remove the catheter in three days. I will follow your advice and try to take it easy.

[@willmansfield6532]

You're the best! Thank you, thank you, thank you for your openness and honesty.

[@ATSdmartinking]

Great stuff, thanks. I guess my personal concern is that I was negative for lymph node exposure but I was 50% positive for my extra prostatic extension….ill ask the doctor about it in my first doctors visit at six weeks.

[@morriswasser]

Thanks for sharing. I watched this 1 week prior to surgery. Had Davinci Knife Robotic Prostatectomy 6/19 so i’m 15 days post op. Cath came out on day 6, only wear a small pad to capture minor leaking. I’m 65 and cancer had barely started to invade the bladder but dr. Got it all and says all margins are clear.

[@drummeruss]

@@morriswasser that sounds great, and the fact that you don’t have much leaking, you are way ahead of the game. All the best to you, blessings.

[@tomschwartz2811]

Thank you so much for your frank discussion regarding your surgery and recovery. I am probably looking at the same surgery in the Spring and listening to you has made me feel much better about it.

[@Rikki-lh2mw]

Have you had the surgery mate? Hope not!!

[@stevenr5149]

Thanks so so so much for sharing your experience. Helps so so much. I am 8 days post Sx. I am looking forward to viewing more of your videos. I wish you continued good health and happiness!

[@drummeruss]

All the best to you too! You are already past the most difficult part of the healing process! Blessings!

[@jeffbaron7718]

Thank-you, I am 5 days post robotic surgery, stomachs pains diminishing, just the uncomfortably of the catheter and some bowel pain, I was worried about the somtime leakage from the penis when especially sat on the toilet for bowel movements. Thank-you for reassurance on this and will have the catheter out on day 12. And I will cross this bridge when it comes. Thank-you again.

[@HTX_Son]

You will feel so much better when the catheter is removed. It is not painful. Be sure to buy some depends pads when you go for the catheter removal. You will need them. Leakage is pretty bad for the first week but it gets better. Do your Kegel exercises and don’t over exert yourself. I’m at week 6 and about 95% continent. I stopped wearing pads this past weekend and it feels so good. Hang in there!

[@roberto7261]

Thank you , Great information.

[@bronco524]

Thank you!...your videos have given me an idea of what to expect after the operation in a couple of weeks. Keep the faith bud!

[@remco2777]

Really appreciate your video and sharing your experience, thank you

[@JayPerkins-ed9qj]

I am 2 weeks post surgery, 4 days post catheter removal. I am heartened by the video and by all of the replies below. This early incontinence phase is very frustrating but I am keeping my eye on the prize. I had turned 70 5 days before surgery. Was a Gleason 3+4.

[@drummeruss]

Yes, no doubt the incontinence can be very disconcerting. Knowing that so many of us recovered the same way does help. I thought it would never get better yet at the 6 to 8 week mark it suddenly started to improve dramatically and almost 5 years later all is well, hang in there, it will get better

[@1norgman]

Jay, I’m at 2-1/2 weeks post surgery and am leaking while standing, very little sitting or laying down. I’m using 4-5 pads a day depending on how much I stand. I’m curious if you became continent and how long did it take? Looking for some light at the end of the long tunnel🤓

[@alliaj1]

​@@1norgmanhow are you today?

[@1norgman]

@@alliaj1 I’m 100% continent and potent! That’s the good news…. Now the not so great news, as of 17 months post surgery my PSA is no longer undetectable, 0.14… with a PSADT of 18 months. Will need to monitor. If it hits .2 that will indicate a biochemical reoccurrence…

[@alliaj1]

@@1norgman by PSA 0.2 take you PSMA PET scan, im 65years, PSA before surgery 9, PSA after 5 months stable 0,.018, final gleason 4+3, no positive margins, ..Strong inkotinence after surgery-first 9 pads, than 7 pads, today 2 or 3 pads ...due to the removal of the lymph nodes, I was told that my recovery would be slower....I will be super happy with only 1 pad😏

[@shadowsdad903]

Lots of good info. Thanks for posting. I appreciate your candor and advice.

[@seanshaw8321]

Nice job posting your journey. I’m 58 and 4 weeks post op

[@Rstpete1]

Thank you. What a great help your videos are for those of us going into journey.

[@joeclarke5234]

Thanks. Appreciated

[@alaskacpu]

66 yrs old, 4 weeks post surgery, 2 weeks ago, Catheter pulled, pee without problems. A little blood, stinging at the end of peeing stream, which gets better each week. Sleeping great, wake up once or twice per night. No leakage, no depends or pads. No exercise until my body completely heals. I do walk and take short walks. Sex is normal. Honestly, haven’t peed this good for over 40 years 😂 Hoping in the next month my bladder regains its normal size, which time will tell. Currently I pee about once every 2 hours or so. Coffee can effect that, making me pee every hour or so. I was driving 1 week post Surgery, but kept it very limited. My surgery was Robotic Enlarged Prostate Surgery, no cancer or other issues. Prostate was not removed. I never had pains from the 5-point cuts on my stomach. No pain killers or meds. Catheter, my body rejected, caused all kinds of bleeding and pain, until a nurse showed me proper positioning. But my body hated that Catheter 😂 it was a big relief to get rid of that 2 weeks ago. Great Video, hopefully my thoughts could help someone 💞

[@pauldenali6367]

I just had catheter removed 12 days post op. Same as you the urine basically just drains out on its own. You give me great hope that you've been through the same but improved. God bless for your posting. My post surgical biopsy should be back any day now as well and I just pray the got all the cancer. Once again thanks and I pray that you continue to be well.

[@drummeruss]

Paul Stanley it’s going to get better, give it time. Glad I’m able to give you encouragement with my posts, and I pray for you as well that you have a great result from the surgery.

[@pauldenali6367]

@@drummeruss Updade: The pathology report showed some cancer on the margin and also a small amount poked through the prostate capsule. However the urologist said that since the margin was a Gleason 6 score (low risk) and the rectum, lymph and surrounding tissue were negative, then there is little likelihood that the cancer spread and I don't need radiation. So praise God all is well for now and I have faith this will continue as I continue to heal.

[@1norgman]

Paul, I’m at 2-1/2 weeks post surgery and am leaking while standing, very little sitting or laying down. I’m using 4-5 pads a day depending on how much I stand. I’m curious if you became continent and how long did it take? Looking for some light at the end of the long tunnel🤓

[@pauldenali6367]

@@1norgman Well there's good and bad news. The bad news is that my incontinence never improved. The good news is that I eventually had an artificial urinary sphincter (AUS) placed and that improved my situation at least 90%. The other thing to know is that due to a birth defect I had a neurogenic bladder to begin with which put me at a much higher risk of the incontinence never improving after surgery. So you are much more likely than me to recover your control. And worse case scenario there are solutions like the AUS out there. Wishing you all the best.

[@1norgman]

Thank you Paul for your recovery progress update. I’m sorry to hear that you had to have an additional surgery to address your continence issue but it sounds like a good solution for you and an option for me if needed. I have been using the scale tracking method for the past week to track my leaking. I’m currently at about 180/6.3oz per day. Not horrible but I have a ways to go. This is a very frustrating and angering process to endure, good days and bad. I’m 63 and a very active guy, at least I was. Your message along with other men encourage me that better days lie ahead…my birthday is in July, which is 3 months from my surgery date. That is my target date to be down to 1 shield per day, thank you again!…David

[@keithmcgregor2546]

Thank you. Your an inspiration to me

[@artmaltman]

I can't thank you enough for this. Fantastic.

[@michaelroberson7055]

Thanks for the encouragement. I've learned a lot from your series.

[@docmostafa]

Very helpfull. Thank you from Morocco Africa . God bless you

[@stevendaniel5649]

Did my Davinci seven months ago. Best thing I ever did. All cancer contained. Nodes neg. PSA is less than 0.1. No pads used now. Wearing male absorbent underwear for the occasional leak when I sneeze. Feel great. Great decision. Cancer free!

[@drummeruss]

Couldn't agree with your more!! Glad to hear you had a great result.

[@daveburt1961]

Glad your procedure went well. I go in tomorrow and have been a mental wreck thinking about it.

[@platka]

yea baby!

[@Mark-is6re]

Thank you so much for your videos. Your calm, positive descriptions have been a real help for me (I’m 7 days post surgery). It’s truly a big deal to help so many people. Though you are likely too humble to recognize it, your willingness to share your private experiences with incontinence, and more particularly sexual function, have helped all of your viewers to understand that the life-changing experience of prostate cancer doesn’t have to mean an end to our lives.

[@drummeruss]

Mark Thanks for the positive feedback Mark, I’m always so happy when I hear that my experience helps others. Hope and pray you heal up 100%!

[@nicanordeguzman6994]

Thank u so much for your videos. I will be having surgery soon . Gotta be honest pretty scared about all u discuss. Greatly appreciated. By the way I'm 60 .

[@wmichaelh29]

Great advise. You're a good patient. Thanks.

[@rogerhale3959]

I'm 62, and 5 weeks post surgery. Had catheter removed 8 days after surgery. Wore depends with a pad for the first ~2-3 weeks; now wearing just a pad & going thru one per day. Progress was rapid the first week; now much more gradual. I think my amount of leakage has been low compared to some of the folks here. Like others, it tends to happen when I stand, cough, or sneeze. If I think about it before standing up, then I'm much less likely to leak. So it's less a matter of being able to control when I'm trying to - if I feel like I have to pee, I can hold it. It's more a matter of it sneaking up on me when I'm not thinking about it & don't feel like I have to pee. Best of luck to all!

[@sdsteele11]

Thanks for these continued updates. SO HELPFUL!

[@retiredracingwriter]

This is awesome, Russ. Right now, two weeks since the surgery, and it's Gravity 1, Me 0. I just have not enough sensation to stand without either the Depends or the guards. But listening to your journey makes me feel much better about the process.

[@andrewaustin9536]

Best of luck, Mr. Aumann. I just got my catheter out the day before yesterday and am experiencing very bad incontinence. I hope it gets better soon. I hope it all works out well for you, too.

[@retiredracingwriter]

@@andrewaustin9536 Same to you, Mr. Austin! The incisions are almost totally healed. I tried the external condom catheter on a day trip yesterday with decent success (had two issues where I wound up with a vacuum issue in the line). I've ordered the Wiesner clamp -- maybe here Tuesday -- and will let you know what my impressions are of it. The most important thing is beating cancer. Everything else is frosting on the cake as it slowly normalizes.

[@1norgman]

Mark, I’m at 2-1/2 weeks post surgery and am leaking while standing, very little sitting or laying down. I’m using 4-5 pads a day depending on how much I stand. I’m curious if you became continent and how long did it take? Looking for some light at the end of the long tunnel🤓

[@retiredracingwriter]

@@1norgman I'm now about 18 months out since the surgery and significantly better than when I first posted here. I'm trying to wean myself off the diapers this spring (which I'm down to once a day) and get back to wearing underwear with guards. My biggest issues are sneezing, coughing, bending down, etc. I've got quite a bit of control back, maybe not as much as Russ, but my urologist also said he was unable to save some important nerves because of where the cancer was located. I'm able to play 18 holes of golf or drive the car on long trips with just the usual bathroom breaks. It's not always a steady progression -- and I got frustrated about two or three months in because it felt like I was never going to get those muscles to figure things out -- but you will make progress as time goes. I could do a lot more this winter than last! Good luck and good health to you. -- Mark

[@1norgman]

Thank you Mark for your recovery progress update. I have been using the scale tracking method for the past week to track my leaking. I’m currently at about 180/6.3oz per day. Not horrible but I have a ways to go. This is a very frustrating and angering process to endure, good days and bad. I’m 63 and a very active guy, at least I was. Your message along with other men encourage me that better days lie ahead…my birthday is in July, which is 3 months from my surgery date. That is my target date to be down to 1 shield per day, thank you again!…David

[@davedunn4285]

Thank you so much for sharing this very personal story with all people I hope your recovery is a good one

[@ShropshirePastPresent]

I had my Radical Prostatectomy in 2015 at the age of 47 but my post op pathology showed 2 tumors both breaching the prostate and spreading into the seminal vesicles --prior to the surgery a Mri scan showed no spread but I am still here and my PSA is still zero but battling Cerebrovascular disease and coronary heart disease now --I think I have a target on my back --lol---great videos thank you.

[@Romelefty]

Thanks for posting, I’m 8 days out from surgery and am suffering in the same way as you, once the catheter came out the urine just leaks. I’m doing kegal exercises but only helping a bit so far. Standing worse than sitting for leaking. Happy to know it gets better.

[@ricknowak4582]

So you could do kegel exercises as soon as the catheter comes out? Or wouldn't you have to wait a week or two and make sure it's all healed up.

[@Romelefty]

I was told to begin doing them after removing the catheter.

[@matthewfearing3650]

I am one week after a radical robotic laparoscopic prostatectomy and I am one of the lucky ones with no incontinence maybe because I had a suprapubic catheter which is a direct port in the abdomen above the penis into the urinary bladder. It was taken out yesterday at 6 days after the surgery. I am urinating well but frequently. My ability to hold it for a while is slowly getting better. I really think there is something about the suprapubic catheter that helped and I hope anyone who reads this and is facing the surgery ask their surgeon about it.

[@drummeruss]

That’s great news, I dealt with incontinence for many months. I’ll have to look into that all the best to you!

[@OscarGonzalez-vg3cp]

I am very happy for you , for me the opposite, regret vig time, no feelings feel like dog castrated. Very soon, 2 years. My doctor said it will be 3 to 5 years. Other consequences can't tell. If I go back in time, I won't do it. But eny ways every one is different. I miss my prostate with my cancer.

[@drummeruss]

Sorry to hear that Oscar, I hope and pray you continue to heal and the doctors can help.

[@eatplantsforlife8168]

Thank you SO much for this. My surgery is scheduled for April 12th (wish it was sooner). I'm 77 years of age. Did you use winged pads or wingless? I will continue to watch your videos during my recovery to keep me mentally stable. Thanks, again, for your videos. Very helpful and honestly refreshing. :-)

[@drummeruss]

All the best to you, I used wingless initially. Good to know my journey gives you some peace about your surgery. Healing takes some time, be patient. Blessings!

[@catmando4914]

Thanks for doing this video. I am a few days away from catheter removal, and wondering about the healing. Thanks for speaking out.

[@drummeruss]

Take a look at all my videos, for me it was severe leakage after catheter removal and took about 6 weeks for good control. Takes time!