Raise your voice for Duchenne: the documentary for World Duchenne Awareness Day 2024

[@SerhiiSholodko]

It's a great news. At the same time, we also want to suggest an idea of filming a similar documentary about Ukrainian Duchenne patients, who are waiting for their voice to be heard. They are waiting for this being shelled by russian bombs and missiles, either in Ukraine or having been forced to flee their native country and find shelter abroad. Some of these boys, I am sure, will be happy to share their story with the world.

[@worldduchenne]

Thank you for your suggestion. Shortly after the war began, we launched the DMD Emergency Program to support Duchenne families in Ukraine. We’ve also created a documentary featuring their stories, both within Ukraine and abroad. You can watch it here: kzbin.info/www/bejne/iWK0cpWLf5mKjKs

[@نوهاتعثمان-ت1ز]

DMD💔

[@humerashah1680]

My 7 year old nephew affected from dmd disease ...... Please tell me how to cure from dmd disease

[@worldduchenne]

Sorry to hear your nephew has DMD. Please send an email to [e-mail] and we will follow up on how to provide the best care for someone living with DMD

[@ignaciosgon]

No lleva nadie makina para respirar? Mi hijo por desgracia si.