Recent Advances in Complex Regional Pain Syndrome CRPS RSD DR. Joshua Prager

[@shadowspond3488]

Dr Prager is an angel. He teaches others about this terrible illness and is extremely knowledgeable. Thank you, Dr. Prager.

[@fredisready]

At last the medical field is taking crps patients serious!!!! Hooray we are not going crazy with this horrible condition

[@Rain11Eleven]

10 years later to this comment believe were not crazy ...but they say its in our head!

[@TheMarianneRose]

@neomilly . My daughter was diagnosed 8 months ago. The doctor said they couldn't help us. She couldn't tolerate even wind moving over her leg. We started doing Reiki, EFT, Kinesiology balances and Acupuncture. She is now so much better and we are expecting her to be completely well very soon. Try all the alternatives. They really work. Wishing all sufferers well very soon.

[@philruff1]

I have had crps or as it was called rsd from 1996. I now go to Walton Centre Liverpool England. And what you said is just being talked about and I have had some tests and hope to have more, to help with the research. My crps started in the left arm and now is in most of my body. We need more people like you here to get more doctors to understand crps. Thank you for speaking out about it. Philip Ruffley

[@Angelgirl712]

thank you for sharing this and keep updating us more about CRPS/RSD. we need to find a cure for this horrific disorder. I was diagnosed with causalgia in Aug. 2008 and also have JRA. We need to end chronic pain..too much pain.

[@dr4062]

I have been fighting this since 1997. I worked for 2 docs one had been a professor at University Of Alabama Birmingham and he made the diagnosis. Then the journey began! !!!!!!!!Today is March 5. 2017. I am in the hospital again trying to get relief! !!!!

[@patzarellina]

Thank you for posting this video. I have RSD/CRPS for over 5 years......

[@cindiloohoo552]

I have tears. RSD/CRPS was so hard for my doctors to dx. Now, due to CRPS and RSD, I fell and broke my upper arm and shoulder and have titanium plates and rods in my arm and shoulder. So much .. so late. ~Cindi Lowe, Ohio. USA

[@incredible1djacobs]

Thank you for your posting. I had a bunion removed and he cut several nerves, broke my toe in two places but never straighten it. 8/31/12. Was diagnosed on 12/13/12. I am a RN and I was working as the lead Pain Procedure RN. Lost my career, home, insurance because of this!

[@isabella3025]

So sad ¡¡

[@Lucrecia136]

Thank you for for posting this information. It goes a long way in explaining the spread and physiology of CRPS. Now I have a clearer knowledge of how my condition has spread and hopefully I can use this information to respond to the statement 'it's all in your head'. I can agree and expand on the statement without being called a malingerer.

[@usecori]

I've had CRPS for over 10 years, maybe longer. I thought everyone had burning limbs. It blows me away that for all the doctor visits (neurologists incl), that NO ONE asked me some basic questions that would have helped so long ago. When I started to have some serious internal symptoms, the specialists refused to believe me until my leg became paralyzed. I've had it with doctors who take our $ and don't bother to research an illness.

[@jules9992]

If only I had doctors here in VT that have more knowledge of this problem than I.... It's scary and hopeless.

[@SeanAedan.007]

+Julie Skaretka i have it julie to most of my body. its never hopeless. go see dr oaklander at Harvard & MGH Massachusetts General Hospital. Its not too far from Vermont. I'm contemplating flying 15,000 miles to see a doctor! The LORD is my hope: "Fear not, neither be dismayed saith the LORD. I will help you. Yea I will strengthen thee also. Yea, I will uphold thee with the right arm of my righteousness!"

[@dr4062]

I am 60 now this started in1997 and I'm still fighting severe pain! !!!!

[@ivicamanovic4847]

Donny Robinett Hello friend I am 45 years old, I have been suffering CRPS for 24 years. in 2016 I attempted suicide but I some how survived it to my shock. So my question to you is does it get worse as you age. I am feeling is getting worse. I am in Hospital having a spinal stimular implaint and its helping me big time. please skype me ivica.manovic1 GOD BLESS

[@dr4062]

Ivica Manovic Hi this is Donny Robinett in your question doe's it get worse with age. in my case it has. I will text you back my pain is sever right now! !!!!

[@ivicamanovic4847]

Donny Robinett Hello my new friend Donny. I live in Melbourne Australia. I have had CRPS for 24 years since 1993 from a motor ycle accident. I broke my left leg in 5 places. in 2016 aged 44 and noticed its getting worse I couldnt take it anymore and attempted suicide. I have no bloody idea how I survived it. I AM STILL IN TOTAL SHOCK. I am right now recovering in hospital from a SPINAL cord stimulator operation. Its amazing. Please do text me [phone] I know the pain your going through. I am right bye your side my new friend. Try settle your pain and text me and take my skype name ivica.manovic1 GOD BLESS MATE

[@ivicamanovic4847]

Hello Donny how are you. I hope your coping as I haven't heard from you yet. You can contact me anytime mate. God Bless mate

[@Rain11Eleven]

@@ivicamanovic4847 wow ive gone through that the stimulator helped but it by no means solves it....i dont know what im gunna do but quality of life does matter most ppl with crps dont see themselves dealing past 5 10 years... amongst other problems i have degenerative disk disease..sciatic nerv damage ..planters in my feet ect im 20 n been dealing for about 5 years now

[@Dan_Alien]

I've had RSD/CRPS since my 20's I'm 34 now and thx goodness these things are coming out. I always think I'm crazy but it's good to know I'm not:)

[@nancyries2534]

I had my first flare up was 3 mos. Gradual moving pain ,burning in the neck was

[@kendramooremusic]

Me too

[@dr4062]

Hey Ivica Manovic! !!! I have had a internal ten's put in about 1998.Now in that procedure, I just had a local to numb the area. I forgot to tell you the area was C6. I was in to body building. My left shoulder was injured during a work out. I tore my so sorry my pain right now is Absolutely severe I'm going to take some med's and lay back. last word's my pain manifested to the right arm also and since I don't have any living kin folk's. so I'm trying to get my pain under control so I can live at home. But the odds are only 1 person out of 10 will make it to 65. the 9 other will have to be placed in a full time facility to take care of all there needs. Sorry I must stop now. my prayers to you and all patients with CRPS PAIN! !!!!!!

[@ivicamanovic4847]

Hey Donny Robinett thank you for replying, please text me [phone] I live in Melbourne Australia, I have had CRPS FOR 24 YEARS. So I know exactly how you feel mate. I just had a spinal stimulator cord implant, so see how I GO. It sound like its a lot harder to get help in America, from what I have read. I do know doctors are extremely hesitant to prescribe morphine, ketamine and other meds as it becomes a cocktail. I have had this problem for years. I have CRPS in the worst place possible, in my groin, the pain burns into my private area. That just buckles me over. Please skype me on ivica.manovic1. I would love to talk to you about it. I have been fighting it 1993. GOD BLESS MATE

[@ivicamanovic4847]

Hello Donny how are you and family. I hope your well and coping, I haven't heard from you yet. I dearly hope to hear from you as soon as you can. You have all my contact details, just remember your 15 hours behind me Text me any time mate and we will go from there. I look forward to hearing from you. GOD BLESS MATE

[@markof2739]

Donny Robinett I would suggest you explore The Neurologic Relief Center in Fayetteville Arkansas. I am here now and am seeing positive results!

[@karenloughman7985]

My doc thinks I have this and it totally sucks. I have been through the diagnostic wringer, first thinking I had MS then Fibromyalgia. I have had every test available over the years and have seen a lot of specialists. My pain doc referred me to this anesthesiologist/pain specialist who is thinking I have CRPS. Believe it or not I have hope. Not for a cure, but for a treatment that works, namely an implant that shoots signals up my spine to control the pain.

[@jamiehasfun23]

Where's he located?? I'm almost sure I've seen him as a patient!

[@Zakkman1803]

Thanks For Posting This Video

[@N0hN4me]

Mother of god... the mirror effect is what causes the pain stimulation to progress from a unilateral to a bilateral condition?

[@oliviaortiz5989]

How so??? I am doing this therapy, and don't want it to spread!!!!

[@dr4062]

Ivica Manovic Hi! !! It is 1.40pm.here.I live in Northport Alabama which is just across the river from Tuscaloosa ALABAMA. A UNIVERSITY OF ALABAMA IS HERE. I would love to talk with you. Can I get with you this evening. Just let me know it be super to talk to someone who has CRPS PAIN! !!!!

[@ivicamanovic4847]

Hello Donny your 15 hours behind me Alabama to Melbourne time zone, just text me [phone] I will call you back then you can skype me at ivica.manovic1 what amazes me that people say its in your head, 20 years ago there was only one doctor here in Melbourne that could diagnosis it and my lawyers didn't believe him as it was a work place injury. So imagine that brother. Still here in Australia people don't know what CRPS is 20 years later. Only a few pain doctors can diagnosis it. I am so lucky to have the spinal stimulator. Please text me anytime Donny it helps to talk to someone that knows exactly what your going through. Mentally, emontionly etc. I am pretty flexiable on time to text me. Just check your clock 15 hours in front. as I am up very late most nights. God bless brother.

[@michaeldeluca8976]

What type of doctors can diagnose a person with CRPS?

[@kendramooremusic]

Nero I think

[@mikellwingard6874]

Speak English doc! We who have CRPS have no idea what the hell you are talking about! It hurts like hell get it together