Treating CRPS: What's in My Toolbag? - RSDSA

[@SomethingLikeJoy]

Dr Datta!! my first appointment with him was two days ago and I actually cried because I can’t remember the last time a doctor was so gentle, understanding and kind to me. And i’ve had chronic lyme for 16+ years (i’m 31) and he made me feel so seen, validated and I just was overwhelmed by being believed and given hope. I may or may not have CRPS it’s hard to know bc it has overlapping symptoms with lyme. But I have hope for my horribly worsening neuropathy for the first time.

[@deaburmingham8753]

I wondered if there was a PDF or something else of his slides. Good video, but I wish I could have seen what he was talking about

[@GARTHBOOTS]

Great video .I will be making a appt. He gets it and he knows how bad we suffer.Thank-you Dr.Datta and Jim this was very helpful.Thank-you Rsdsa.

[@RSDSA]

You're welcome, wishing you God speed

[@doreensheinman1958]

I would have liked to see the slides. Thanks for excellent commentary.

[@kathys3919]

too bad we can't see the slides:(

[@kristabowers6725]

I was just thinking the same thing. 😔

[@dhebert111]

I've had C.R.P.S. now for 9 years. We lost our dr. at the pain clinic, so I had a much higher quality of life for 4 years in a row. I've been deteriorating rapidly over the past 2 years since having no more access to that multidisciplinary treatment here in Canada. I don't think I have much time left. Just can't see the light at the end of the tunnel anymore.

[@RSDSA]

where do you live? Email us at [e-mail] and we'll send a referral list for your state.

[@RSDSA]

www.rsdcanada.org/parc/english/index.html

[@drpremlatasangwan435]

Please visit any pain management clinic for help.

[@cristobalmanuelmoreno.llan2215]

What was the origin trauma of your CRPS?

[@particularbored6072]

I'm being under-cared for, dismissed and even lied to for two years now, was finally diagnosed with CRPS almost two years after my ligament was torn in my ankle and over a year since my surgery (I complained of the same pain before and after my surgery and was told by my surgeon he would address it if persisted after the surgery which it did and nothing was done), was given a dangerous mix of nerve meds, and just received an injection in my spine to block the nerve pain from my right ankle and the degradation of my lower half from being nearly bed bound. My PCP doesn't know what to do and, even though everyone directs me back to him, does not respond to my messages anymore. I'm in with IPA, a pain management clinic who does not fully understand what is going on though. I need competent doctors who understand I'm not in the early stages, these treatments aren't working...in fact, the injection actually made this worse. I can barely walk. They aren't managing the pain so that I can even do PT. I live in Killeen, TX and am on Medicaid/Medicare. Can you suggest anywhere?

[@KeroseneBbg]

In the last 7 years, I've done the stellate ganglion block, the spinal cord stimulator, and physical therapy... none of those have worked for me... until ketamene is easily affordable, I'm limited to medication therapies.. my current doctor is convinced that amitriptyline is the only the thing that works and it doesn't help me at all... sigh

[@yogaflirt7]

Seems very phamacological. What about Holistic protocols?

[@alyssadiceflipper5201]

What is the best treatment if gabapatine, steroids, marcaine can not be used?

[@PC-od6xb]

Not in my head the PAIN IS REAL!!!!

[@RSDSA]

The pain is 100% real!

[@dr.premlatadangi3676]

Hello sir ,please tell how can we buy LDN.I meas to say from where,because it is not available here.

[@safaaabd7313]

Thank you for this information i did X_ RAY for my right foot after an injury 5 month ago and the doctor tell me that i have osteoporosis and that because of sudeck ( Iam 20)so he prescribed 5 needles of (calcitonin 50 ) once a week and some vitamins( d3 with calcium ) . And another doctor prescribed vitamin d calcium , painkillers ,vasodilator and gapabentin 200 every day for 2 month . And now i am really confused and don't know what can be better for my condition so can you help me please and tell me what is better, i think the swallow become worse now and i want to start the treatment quickly and i try to move my foot gently and i can walk but not normally

[@hardw0od]

My mother was diagnosed with Thalamic Pain Syndrome/Complex Regional Pain Syndrome by Dr. Jeffrey Horstmeyer here in Miami. I am looking for some sort of relief for her. She is in constant pain after having a thalamic stroke in 2009. Can someone please help me?

[@RSDSA]

email us at [e-mail] and we'll try to help

[@yogaflirt7]

Occupational therapy.