This video offers advice and tips to myeloma patients on their recovery from high-dose therapy and stem cell transplant.
Пікірлер: 40
@hassanfakih39412 жыл бұрын
I recovered a bone marrow transplant 7 months ago after suffering AML with myelofibrosis for almost 2 years, it was terrible going into 60 blood transfusion finally with God almighty's help leukemia has gone now I'm starting a new life with my own family.
@Skits_Missions2 жыл бұрын
Good to see Stem Cell transplant being used effectively for AML also. I had APML in 2014. Not sure how I got through but I did. Sickest patient she has seen survive apparently. Anyway I was lucky to have a Stem cell collection after as I now have IgD PC Multiple myeloma and AL Amyloidosis. And will have a ASCT in the next month.
@heru-deshet3594 жыл бұрын
I'm going through this now. It's been two months since my transplant for Multiple Myeloma stage one. It's been rough. I'm depressed, mostly alone and have had to take care of myself, but I maintain a positive outlook all the same to get me trough.
@jerodewert83344 жыл бұрын
Well done friend.
@heru-deshet3594 жыл бұрын
@@jerodewert8334 Thank you.
@rhartl3254 жыл бұрын
Heru- deshet My wife is getting the chemo today. She is a strong person mentally. We will see soon how well she tolerates the transplant. Stay Strong!
@heru-deshet3594 жыл бұрын
@@rhartl325 Prayers for her. I'm happy now as my cancer went into remission.
@benl63284 жыл бұрын
I have had my transplant over 1 year now. I had/have an aggressive form of systemic sclerosis. Was looking at a wheel chair before and now I'm gardening and working in the yard. It took a good 6 to 8 months before getting better. Went through Pericarditis and other side effects afterwards but worth it. Stay positive... oh and steroids like Prednisone can really be hard on you mentally. Keep that in mind.
@Intothegap842 жыл бұрын
Hi great video as always 🤜🧡🤛 I am having high dose chemo next week & stem cell transplant on Thursday. I am also going to be treated as an out patient with recovery from home instead of staying in hospital for the 2-3 weeks. All will be revealed on Thursday 🙏🙏🙏I have all faith in Professor Jackson at the Freeman hospital at Newcastle.
@taozen46012 жыл бұрын
I am going for allogeneic stem cell transplant this week. This was a very good video; informative, reassuring, and the presenter was very knowledgeable and fluid in her presentation. Thank you.
@declanwatson93253 жыл бұрын
This series of videos have been extremely helpful in preparing me. I am now D+15 and doing well. Thank you MyelomaTV - keep these videos coming
@kendall6439 Жыл бұрын
❤🙏
@declanwatson9325 Жыл бұрын
@@kendall6439 thx Kendall. I am starting Maintenance Cycle 18 this Tuesday and still MRD Negative. Hope to row at the European Indoor Rowing Champs in 3 weeks time and the Worlds in 7 weeks time - both occasions I will be wearing my MyelomaUK orange singlet - just trying to build awareness 👍💪
@teledogz Жыл бұрын
I go in for my transplant in 2 days. It is all very intimidating but keeping the faith. Thanks for this video.
@ldwithrow085 жыл бұрын
Thank you. I am still in melodysplastic syndrome due to heavy metal poisoning and have been having trouble getting straight answers from my doctors. They say I can survive on blood transfusions but my marrow is so messed up that a transplant is all that will save me.I'm 74 and I'll have trouble getting one and this helps me get my facts straight. By the way, this would be much easier if we yanks had a single payer health system like you.
@gokulpadmakumar5642 жыл бұрын
Thank you for these infos. God bless
@LibellulaGlass7 жыл бұрын
Very helpful thanks, my husband is day 31 after transplant in France, still on antibiotics as he often has a fever at night.
@wathsalap3 жыл бұрын
How is he doing now.? I am on day 32 got a temperature and cough but negative for all the infection reports
@RobinRamp2 жыл бұрын
Wife dhad it last month instead of staying in hospital we went home altera week . Went in quarantaine both and did a3 times a week short check in hospitaal. Being at home helped a lot . For recovery. (Dutch)
@laipinglee65184 жыл бұрын
Very helpful thank you
@Belka507 жыл бұрын
Great video, Thank You!!
@rlk542 жыл бұрын
I am still awaiting the results of my blood test to see if I've got myeloma. However, I am concerned regarding the steroids and chemo therapy. I am type 2 diabetic and do not wish to increase my weight. Staying in hospital for 2 or more weeks is not on for me, not even for more than a day as I live with an indoor rescue cat I do not wish to stay in a cattery. If it can't be done as an outpatient I will have to decline the steroid and chemo treatments.
@tuborice4571 Жыл бұрын
I am also waiting on results to see if I have myeloma. I hope you got the all clear.
@paul20076 жыл бұрын
Will hospitals in Ontario allow an 84 year old in good shape both mentally and physically treatment or clinical trials?
@atifamjad1233 жыл бұрын
How much time of the whole procedure
@monicaperez28432 жыл бұрын
Atif, it varies. I am here because my brother who has multiple myloma is undergoing a stem cell transplant.
@edmackenzie60975 жыл бұрын
Will stem cell work for Ed if the prostate is removed, for a senior 75 years old?