Recovery and Outcome after Subarachnoid Hemorrhage (Preview)

Nicole L. Mazwi.
The complete video and our full video collection can be accessed via the Neurosurgical Atlas at www.neurosurgicalatlas.com

[@user-oh7iv3ij5x]

I had a SAH 5 years ago and I am home 1year, 4years in various hospitals I feel that I was kept lying in a bed with out physio therapy, I started physio (private) 1 year ago and have made excellent progress. NOW I can walk with a walker and although I still have balance problems my life is so much better.

[@Iam-me]

Im hemorragic stroke survivor since march 2017

[@ann-mariewilliams1712]

I’m a 34 year old woman recovering from a spontaneous SAH. The incident happened about 3 weeks ago. I managed to walk around, caring for my 3 children and working full time for 6 days before finally going to the emergency room. I knew something bad was going on. My head hurt in a way that signaled a sense of being unwell. I’m very lucky. By the time my bleed was discovered, it was already in the stage of reabsorption. I have zero neurological symptoms and required only an angiogram. Go surgery. I’m lucky and I can accept that. All I have to manage is the horribly painful headache associated with the healing process. However, I am traumatized by the experience. I’m terrified. I feel so sad about my situation. Not sure if that just a part of recovering because I’m not in general a sad individual. I just want to feel like myself again.

[@SomeBuddy777]

I am a 10 year survivor of SAH, in coma for one month, hydrocephelus, coiling, 8 weeks in a rehabilitation facility. I walk with a quad cane, need assisstance with some ADL's. I have problems with speech, balance, I can no longer write. I drove for about two years, but had to stop because of cervical disk related neck and arm pain. But I survived!

[@KristyW72]

I do have a great fear of another but that's because I have two more. But wanted to say my ptsd was from where I or my mind was during the 2 1/2 week coma after the rupture. Even though on full life support and in a coma I was in another world. Hell to tell the truth. Anyway I was awake and self aware day by day, just not in this world. The memories of those horrifying days even now 2 years later are as vivid as yesterday. Nothing like a dream or nightmare state. It did help that all this took place during the beginning of covid. I had only one visitor, my son. And he was told to leave less then 5mins in. I clearly remember him there. One of the only times I came out of the other world. I remember begging him to pull the plug, that I was trapped in hell. After coming home I asked him about that day. It was very upsetting for him to talk about. He said I was clearly in a coma cause I didn't open my eyes, nor did he feel any life in my hands. But just a few mins in he was told to leave because I was getting agitated. He drove 6hours to see me less then 5mins. And it was the only time I had a break in the horrific nightmare I was stuck in. I have left out the details but just needed to say this. It is so crucial to a patients mental well being that family is there as much as possible during a coma. Whether drug induced or natural. No matter what is going on in the world each and every single patient deserves that in their personal care while in step down or still in ICU. I still have 2 unruptured aneurysms that need clipping because they are to wide to coil. I'm terrified of going through that again, and know my time is ticking away fast. I'm only 49 years old. It feels like carrying a death sentence but that's nothing compared to carrying those horrifying memories.

[@evonne2220]

OMG Kirsty you’ve just described exactly what I went through in February this year. The trauma of the hallucinations and auditory hallucinations was horrific. I didn’t feel I was in this world I felt stuck between two worlds and the other one was terrifying 😢. I heard demonic voices and chanting and I felt that I was already dead because I’d all my jewellery wedding rings and my late Mums necklace that I never remove wasn’t on me. I couldn’t see when I was lucid and that was scary. My husband and daughters visited me constantly but at times they’d just arrive and then be told to leave. They stopped doing that and let my family stay longer because I was becoming so distressed when they left because I knew I’d slip back into the other world. You’re the first person I’ve ever heard say this and although I’m so sorry you had to deal with that but I don’t feel so alone if that makes sense? That feeling continued for a couple of months that I felt I was in two worlds. I was terrified to sleep at night so one of my amazing daughters sat up with me all night for months! One of our daughters has complex needs so my husband had to care for her and me so he was exhausted hence why I had my daughter stay up with me. I was 45 when it happened and now I’m 46 im terrified that im suddenly going to die or worse be stuck in that demonic world. Thank you for sharing your story. I hope you’re doing ok. Big hugs from Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

[@KristyW72]

@@evonne2220 thank you for sharing your story with me as well. Our stories are truly terrifying but please they are a blessing also. My faith in GOD was strong before. But now is rock solid. To me, both world were as real as we are. I was thrown out of what I call hell when I remembered the name of Yeshua (Jesus). Although I was self aware I had no memory of where I was before. One the nurses said my daughters name. While in hell I herd her name and thought to myself what a beautiful name. And thought if I should ever have a child I'd name her that. Then the hopelessness sunk in. Where I was, I was hanging on meat hooks so how could I ever have a life? I cried out to GOD. Then all my memories flooded back in. I suddenly knew where I was and that I had life before there. And three grown children. But most importantly I remembered the name of my Savior so I screamed it. You should have seen the eyes of the demons around me. Total fear and pain. Finally they felt what I had felt. So I screaming for Yeshua. Then the head demon over me came and ripped me down. I screamed and said where are you taking me? All he said was you can not stay here. Then through me in some water. I thought great I'll try and swim. Nope. It sucked me down and I drowned. But then woke up at my front door. I walked. My dog was so excited to see me. But when I went to pet her my hands went right through. Then I was transported to my sons house. Again tried to hug him and he walked right thru me. I knew then I was getting the opportunity to say goodbye. I didn't remember this part til later, but then was given a choice of going on to heaven or coming back here. I walked around the hospital another three days before waking up in a room. I thought I'd been waiting in the hallways for a room but no. I just hadn't found my way back to my body. There so much more I could say, but what I want people to know more then anything is there is a Heaven. And GOD is truly loving and merciful. As horrible as our stories are I feel so truly for getting to see HIS love and grace at work. And getting the opportunity to come back and make amends for so much. I'm no longer scared of leaving this world behind. May GOD bless and keep you. Peace be with you and your family.

[@aliceshrader5705]

Thank you for explaining all sides. As a family member, I am quick to express concern, fear, suspicion of the medical side. It helps to know what they are thinking (what could have been ) as I am thinking what was and what we WANT TO SEE.. ..I do have more questions now and hope to get answers. Her SAH occurred one week ago. Balancing meds, decisions regarding movement, etc. ARE ALL CHALLENGES.

[@breannedixon9712]

I know this comment is a year old but if you see this how is your family member today? My mom had this yesterday and I’m terrified to be honest

[@tifneyw.5623]

Blessings

[@aliceshrader5705]

@@breannedixon9712 thank you for asking. She has no short term memory and cannot drive. But she’s alive and with us. It has not been easy!! But again, she is here.

[@aliceshrader5705]

@@breannedixon9712 I’ll keep you in my thoughts and prayers. Stay with her in ICU. Be an advocate. She needs you!!

[@TheGixernutter]

I live a totally independent and live a full life after a 4cm clipped SAH 1 year ago. I was out of hospital in two weeks and rebuilt my life with my will power and dedication alone. So can you.

[@alexisdeforge8237]

TheGixernutter have you experienced seizures

[@SomeBuddy777]

@@alexisdeforge8237 I did prior to the SAH, but none since. But I have remained on anticonvulsants ever since. Although I began having seizures 4 years prior and was then taking the anticonvulsants, seizures of unknown cause (idiopathic). It was presumed that I was possibly having a slight leak of blood from the unruptured aneurysm, just enough to cause the seizures.

[@SomeBuddy777]

Thank you for this presentation!

[@IAMMYANCESTORSPIRIT]

Am a recent traumatize brain injury victim and were classified with subarach Hemorr condition. But there weren't a needed for brain surgery. Nor did I need the prescribed medication, levetiracetam 500m. But I decided to go with my lifestyle, which is herbalist medicine, It had work well with reducing the headaches to no headaches. But my lowerbody is at a limited of movement.

[@TheGixernutter]

I am anxious about my long term prospects. Even though I am 46, i remained conscious and i returned to work and driving within weeks. My SAH (over 4cm clipped) was over a year ago and other than some tiredness and sensitivity at the surgery site i am normal again. I am mostly personality wise back to normal except for this anxiety about my long term prospects. Should i expect to live a full and normal life? or expect ten to fifteen years at best? Lets face it, from what i can find, some medical documents say twice the chance of dying some say no excess morbidity? Thank you for everything you do. You are a blessing.

[@fitzroyarmour7391]

How does immersion in a natural environment compare to rehab in a clinical setting?

[@mzjewlzz]

How do you find the proper therapy, it’s been 2-1/2 years later and I’ve had none