I got ran over by someone going 65mph. I was in coma and suffered a major TBI. Was told I wouldn’t walk or ever return back to work! One year later after a lot of prayer and pushing myself! I returned back to work and have no issues!!! Theirs hope for everyone! Just stay in faith and know you’ll recover!!
@nylaaleiah65612 жыл бұрын
Same exact sorry as me.. I returned to Work within 6 months after the accident. However, it wasn’t easy…. Had to learn everything again.
@nylaaleiah65612 жыл бұрын
@@hawkishunting6223 honestly it takes time… however continue to Exercise your brain, eat healthy, also play memory games.
@Nancy-ow9wy2 жыл бұрын
This gave me hope
@elsakifle10742 жыл бұрын
This is my fiancé at this exact moment I’m in the ICU right now & been reading online and watching videos about severe TBI and I’m so scared but your comment made me feel a little better and have hope 🙏🏾 please keep him in your prayers 🙏🏾🙏🏾🙏🏾
@nopinkymatinise48612 жыл бұрын
My sister is currently at ICU with brain injury, we've been told she won't be able to use her left leg and arm or she might be on a wheelchair. We are praying a lot for a miracle.
@billygnosis69763 жыл бұрын
No one knows the dark and lonely highway one takes in becoming the person you become...stay strong
@Nancy-ow9wy2 жыл бұрын
Exactly
@bruceradz2 жыл бұрын
It's a journey for sure, take it day by day
@ritacampbell12622 жыл бұрын
Billy keep going! There are rough dark days, but I think ( hopefully) mine is resolving! I saw my Physical Rehab specialist in Dallas Tuesday. She said I was doing so well, she didn’t need to see me unless I need her! Yea!!! Coping is still a reactive response, I need to work on.
@bruceradz2 жыл бұрын
@@ritacampbell1262Hello Rita, twelve years from my stbi. Who knew they labelled tbi's. s for severe they say. Anyhow, if your finishing up with medical things, I recommend keeping a psychologist handy, even if its to talk twice a month, once a month. Its someone who you can talk to about your life, and dealing with things, even medically related things. My friends and family arent a good support group lol not that its any of their fault. Originally I was seeing a psychologist every week, then as my medical issues subsided, I went to every other week, then eventually once a month. But I just thought I would put that suggestion out there, I was seeing one for ten years until covid hit, then they went to online virtual visits, and I ended it at that time. Just not the same as an office visit. Take care Rita, holler if you have any questions or comments 😃
@bruceradz2 жыл бұрын
It doesn't have to be dark and lonely Billy. I lost my job, lost my place to live, and lost my love, my girl. Been thru so much, but I began volunteering once a week, at a hospital of all places It got me out amongst people, nurses and medical workers, and I felt as if I was helping patients, which I did in a small way. I did whatever the staff told me to do, sometimes even taking wheelchair patients outdoors on nice days. I am disabled myself from injuries from an auto accident. But I try to make each day a good day for myself, even if its just tying my shoes unassisted. Anyway, just thought I would throw that out there, take care Billy
@moirasul3 жыл бұрын
I love his comment on emotional recovery. Nobody ever brought up how difficult losing so much would affect me in 2018. It is a form of PTSD I can’t explain. Plus if one more person tells me “well you can’t tell by looking at you,” I’ll scream. They don’t know that I lay in bed 90% of the time too depressed and fatigued to care.
@faisalbi13303 жыл бұрын
Hi are you back to normal?
@moirasul3 жыл бұрын
@@faisalbi1330 I won’t ever be normal again unfortunately.
@faisalbi13303 жыл бұрын
@@moirasul o dear what happened to you?
@faisalbi13303 жыл бұрын
@@moirasul have you got your emotions?
@faisalbi13303 жыл бұрын
@@moirasul some people say brain takes own time to get back to normal I am suffering emotionally numb
@eoallan13 жыл бұрын
I’m nearly ten years in from a brain injury in a road traffic accident. Still discovering new things about my new brain - it’s lifelong and so hard, especially when you’re lucky enough to be able to walk, talk and present to the world as if you are normal.
@maramorrison31443 жыл бұрын
I totally understand. It's been over two years and I'm still struggling with several issues. Sending prayers for your recovery. Take care.
@faisalbi13303 жыл бұрын
@@maramorrison3144 hi which issues you having
@faisalbi13303 жыл бұрын
@@maramorrison3144 ???
@mintudas24333 жыл бұрын
4 months ago i meet an accident... My right side totally broken and my wife brain hemmorrage surgery done... The blood clot is 3.5 mm.. We are newely married.. My wife right now doing cooking and other home activities...But problem is that she can't hear loud noise sleeping problem and fatigue problem... Is this problem stays for long time ? I love her so much.. It is possible or not got back old life as 100% ... Please reply please
@niggawdgawdnigga78783 жыл бұрын
Same I feel you
@BrainInjuredTortellinni Жыл бұрын
For anybody coming here because they or somebody they know has a tbi, if a Dr tells you that you’ve recovered as much as possible, walk away immediately. My TBI was over 26 years ago and I continue to recover everyday.
@brainline Жыл бұрын
Thank you for your comment. Yes, recovery from traumatic brain injury can happen for the rest of a person's life. It is always best to advocate for yourself in your healthcare. It is always okay to ask for a second opinion. Best of luck on your healing journey.
@bruceradz7 ай бұрын
The recovery never ends. When I look back, there's a BBI, and ABI, BBI was who I was before brain injury, and ABI is after brain injury. It really is being you, a person before the injury, and then you, being a different person after....
@BrainInjuredTortellinni7 ай бұрын
@@bruceradz yes, I feel the same way as you.
@bruceradz7 ай бұрын
@@BrainInjuredTortellinni off subject, I was raised in an Italian family, we rarely had Tortellini, and they were my favorite lol
@Annoyed_Human3 ай бұрын
I was in a rehab facility and they stopped my therapies (rehab) and told me id die in 6months. How is this even a thing? I left unable to talk, walk or see and rehabbed myself on the STREET as i dont have family. Healthcare is an utter joke. All of this is an utter joke.
@murph5290 Жыл бұрын
I'm 8yrs in.... Living with a brain injury is like losing your job, your relationships, your health, it's about losing your identity and living with and relearning what's left of the person someone used to be and dealing with that loss. A brain injury leaves people with physiological, psychological and emotional problems, it's a life long disability. The hardest challenge I've found is balancing the neuro-fatigue, because if that goes everything goes and I can't deal with anything, everything is dread.
@aussieaussieaussie9438 Жыл бұрын
Never stop trying to improve yourself. I'm 17 years post severe TBI and I have found from talking to others with similar and even less severe injuries, its up to the person. Yes, it's lonely, depressing, heartbreaking, confusing and repetitive but please don't stop trying. I now help others with disabilities. Find your purpose. When you can see value in yourself, life has meaning ❤
@viesuwito8 ай бұрын
Lifelong disability, no body cares, no insurance coverage, I feel so alone.
@tamiduncan7778 ай бұрын
🙏🙏
@g-ants75478 ай бұрын
@@viesuwitoThere are free resources available online. Have you looked for TBI groups and advocates in your state and city? I pray you would have the help and encouragement that you need. I found my Hope in Jesus. He loves you too. ❤️
@daadiandganggrandkids50022 ай бұрын
😢😢
@tamiduncan777 Жыл бұрын
The worst of it is when you look normal on the outside but the struggles of living with TBI affect every area of your life .my skills my processing ability, noises,over stimulation, problem solving, making unsafe choices, fatigue social Life,so much has been affected in some areas I'm like a kid .short term memory is affected.then there are bullies that downplay or disregard anything you try to tell them you want or need , if you can even put in to word's what your wants and needs are sometimes I don't even know.im just so tired yer I am improving. prayers for strength comfort and healing to all that are in recovery from TBI
@TheBlackCat1337 Жыл бұрын
yeah, for me its that im stuck in total confusion and cant trust anything, even when logic says its the right choice. then with all that thinking I get tired so quickly most of my body turns off and im in a world like i had 6 shots of tequila.
@tamiduncan777 Жыл бұрын
don't give up 🙏
@viesuwito8 ай бұрын
Well said. I thought it’s only me😢
@lizardhierophant82938 ай бұрын
You're not alone. One positive for me. I learned to slow down a smell the roses.
@DanaMalone-ws4zk8 ай бұрын
My injury occurred two years ago I was drugged and in a coma for four months after I'm trying to put my life back together I have come so far from where I started a trake in my throat and peg tube in my stomach both are gone me not being able to walk is discouraging
@JarredPayne5 жыл бұрын
So true. I am about 2 years in and still seeing improvements all the time. Thanks for your advocacy
@jokepolicesalakory91863 жыл бұрын
Thnx for sharing that
@jenniferarcher68773 жыл бұрын
My injury just happened recently. I truly hope you improve. thx for sharing.
@JarredPayne3 жыл бұрын
I am sorry to hear that. I am over 3.5 years in and it’s still going so keep at it! There is not much I can’t do (even if it’s different) and that was not the case for a long time
@bhupendrasingharora61833 жыл бұрын
@@JarredPayne myself 5 year 😟
@JarredPayne3 жыл бұрын
Sorry to hear. Time does seem to fly after this but I definitely feel a purpose now
@Ashysand4 жыл бұрын
I’m recovering from a brain injury. I lost a lot of memory and the ability to control my legs. I lost a lot of muscle in my body mostly legs. In the first 2 months I’m speaking and remember more and more each day. I also walk short ways with a Walker. The hard stuff is feeling worthless and very low. My healing has no doubt been help by the love and support of my wife. The brain is healing but don’t forget about the mind. The personal feelings of the hurt people. Thank you and God bless.
@faisalbi13303 жыл бұрын
Hi your emotions are same? R you emotionally back to normal? Please reply me
@Ashysand3 жыл бұрын
Mostly back to normal
@faisalbi13303 жыл бұрын
@@Ashysand have you had emotions numbness experienced?
@faisalbi13303 жыл бұрын
I don't have my emotions feelings fully ho w I was before it's been 8 months
@Ashysand3 жыл бұрын
@@faisalbi1330 no I was just feeling upset but that gone now
@bruceradz2 жыл бұрын
This is for all survivors of brain injuries. To help explain to other people what has happened to you with a brain injury. I am a survivor, you are a survivor. Having a brain injury, recovering from a brain injury, is like this. For comparison. A library of books has an earthquake (your brain). The books(your thoughts and memories) all get shaken around. Results of the earthquake (your TBI) Some books are knocked on the floor, some books are picked up but put back in the wrong places on the shelf, some books are just knocked over and need to be put back upright, some books are still in the correct place (again, books are your thoughts and memories). Clean up, some books are right where they should be, some books are put back on the shelf but in the wrong places, some books are just swept up in the mess and thrown away. Remember, books are your thoughts and memories, in this comparison, this analogy. This is the "brain earthquake" (TBI). Hope this helps you in trying to let others know what you have been thru
@cindymobley892610 ай бұрын
I would add that there was a fire and the sprinklers went off, people ran around panicked and screaming "fire" and you stayed to make sure all escaped, but some books are drenched and pictures are stuck together, ruined, and words are smeared so you can't use them anymore. And now the pictures are fading like in the movie Back to the Future so you are afraid you will cease to exist.
@82ndabnveteran8 ай бұрын
Awesome analogy...very spot on. I'm a parent of a 21 year old young man who has just became a TBI survivor. And I've been trying to put into perspective and try to understand what my son is going thro so I can better help him and be better equipped myself to be able handle this new road myself. And from what I've seen so far....you described it the tee! Thank you and I hope the best for you and your continuing recovery!!
@ToneBone314 ай бұрын
I just tell people for me it’s like factory resetting a phone every time you go to use it but you didn’t do the reset lol
@ToneBone314 ай бұрын
I just tell people for me it’s like factory resetting a phone every time you go to use it but you didn’t do the reset lol
@bruceradzАй бұрын
@@cindymobley8926 well said Cindy, thanks
@chloescaptures808 Жыл бұрын
I had a severe traumatic brain injury at 17 . I was double barrel kicked in the head by a horse. And near beaten to death , two on one 7 days after getting out of hospital. Leaving me wheelchair bound, with no memory whatsoever, having to learn to walk talk and count all over again. With faith and determination I was lucky enough to be so functional that no one can tell iv had a injury. Memory struggles, fatigue, confusion and concentration are still tough. I'm so grateful to have found this video knowing it's normal to have ongoing symptoms. Thankyou .
@bruceradz7 ай бұрын
Sorry for your loss, of who you were. It's been fourteen years for me now. I had to do all the things you went thru. Steps can still give me balance issues. But, like "they" say, it could have been worse... yeah ok Just keep trying, don't quit, don't give up. Im here today because my brain injury "anniversary" is coming up 🤔😉
@naamahocean76742 жыл бұрын
thank u for the video! i’m 18 and had a tbi after being ejected in a car accident a few months back. since getting out the hospital i haven’t noticed many differences besides temper and memory loss but am continuing to pray for full recovery 💗
@robynmichelle61822 жыл бұрын
Don't give up and keep trying to heal and recover- you're young and your brain is amazing in its ability to keep getting better!
@elpimpi7135 Жыл бұрын
You will!! 100% stay positive my friend ❤
@kristine30765 жыл бұрын
Thank you, I suffered a TBI when I was 17. I am now 46 and on disability . I worked as a Medical Assistant for 8 years and enjoyed working however , it became too much for me. I hope other’s keep getting better informed about TBI’s and how to help other’s.
@mjm07875 жыл бұрын
What happened to you?
@faisalbi13303 жыл бұрын
Hi which disability you have?
@jenniferarcher68773 жыл бұрын
Thanks for sharing I can relate oxo
@faisalbi13303 жыл бұрын
@@jenniferarcher6877 hi have you had brain injury?
@faisalbi13303 жыл бұрын
@@jenniferarcher6877 please share your experiences
@daverusssum22148 жыл бұрын
This is one of the best articulated and most insightful speeches I have witnessed. As the father of a sever TBI son, it resonated well and, based on my experience, is very accurate. Looking forward to continued improvement and acceptance.
@shaunhill8176 жыл бұрын
Dave Russsum hows your son coping, and is he continually improving... Does he follow a particular diet?
@jenniferarcher68773 жыл бұрын
Yes! He seems very understanding
@faisalbi13303 жыл бұрын
Hi how is your son now?Dave Russsum
@davidrussum36203 жыл бұрын
@@shaunhill817 My apologies for not replying. My son has coped fairly well. There are struggles from time to time - self doubt, some forgetfulness, and other minor issues. He is an avid hiker/biker/runner and loves the outdoors. My wife and I remain very close to him (not geographically as he is a few states away) and have learned over time what the best approaches are in dealing with anxiety. His diet is very health focused - we are always pushing him to up his calories as he burns through them. We are thankful for internet video chats and open communication with him. A good sense of humor is always in order and helping him to let things go (especially the "little things"). Our life has changed as well as we focus on our relationships and enjoying the life we have with the cards we were dealt to make the most of everything.
@davidrussum36203 жыл бұрын
@@faisalbi1330 He is doing well. He graduated from college with a degree in Integrative Physiology. He has maintained good health and stays active. His attitude has been positive, but he still has some lingering self doubt and minor social issues. In 2 weeks, he is starting on his graduate degree and we know there will be some periodic struggles. He remains in close touch with a small group of TBI survivors whose struggles are much greater than his. It is a long process and continues - step by step and day by day.
@Vitriol-Divergent2 жыл бұрын
I was one of the "lucky" ones who was put in several good rehabilitation centers for my specific issues, it's 3 years later and I'm still recovering in hops and skips. Not leaps and bounds but I'll take it. When this happens to you, society at large tries to disregard the person you are and push you out of the way like you don't matter. Don't let them do that to you, the help IS out there. If nothing else, keep pushing for that aid/growth just to spite them.
@saha91363 жыл бұрын
Thanks Dr I'm watching this video tonight 20/1/2021 after you posted it two years later and now i feel better because of your beautiful speech saying people can recover from TBI for the rest of their lives, thanks again.
@JD-ks5xy2 жыл бұрын
How are you doing if you don't mind me asking I would like to know
@rosarioivie48553 жыл бұрын
My hushand has TBI and every day there is improvement and I'm happy his my miracle
@shonuff76123 жыл бұрын
@@nothingletitgo3305 hey how is your memory has it improved at all? I need someone to talk with about antograde amnesia
@JD-ks5xy2 жыл бұрын
@@shonuff7612 how are you doing if you don't mind me asking
@danielprose5878 Жыл бұрын
Also cognitive and mood disability ? When yes ...are they getting better?
@kelleyfort99894 жыл бұрын
Here I am in 2020, after dying in a car crash in 2013 due to the blunt force trauma of my head going through my window. No one other than other survivors, gets it.
@nancybarla34493 жыл бұрын
Really?
@faisalbi13303 жыл бұрын
Hi are you ok you fully recovered?
@lexiheart65583 жыл бұрын
The VA told me my tbi would be gone within 6 months. It's been 12 years now and they still tell me I should be over it now
@esahm3732 жыл бұрын
They lie. TBI doesn't just disappear. It causes permanent and ongoing changes such as gliosis, atrophy and neuroinflammation. It has to be treated continuously. Aerobic exercise and anti-inflammatory diets involving plants such as ginger and turmeric (+ B12, Omega 3 supplements from a clean source) helps.
@danielprose5878 Жыл бұрын
Also cognitive and mood disability from that TBI ? When yes ...are they getting better?
@Fragmentsofmatter3 ай бұрын
Yep. They don't give a duck about us home boy. "Thanks for your services" doesn't suffice. We all must unite and fix our broken systems.
@Fragmentsofmatter3 ай бұрын
@esahm373 That's how all medical doctors should be
@albert3274Ай бұрын
This is horrific to hear. I am now 30 days injured. I had headache for first week every mornining. I have passed all cognitive test and can do normal things. My memory is better but this fatigue doesn’t seems to go away.@esahm373
@jobloggs80223 жыл бұрын
I am 63 years old I played guitar since I was 13. I had a serous accident spent a week unconscious and then had amnesia, time went on I recovered more. after weeks in hospital I was aloud to come home picked up my guitar to my shock and surprise I realized I no longer new how to play, I still knew chords and the notes and scales but every thing that i could play was gone so I've been trying to remember every thing. My capability is low also, just to play a few chords sounds like a learner, there is about 20 tunes that I remember playing but not how, its is very depressing all I can do is to keep trying.
@ashnasingh94543 жыл бұрын
Yes.. keep trying. And it'll be all good soon 😊. Wishing you luck. - just another human being.
@jobloggs80223 жыл бұрын
@@claraali1352 I'm getting a lot of help thank you. I'm a lot better now, as time goes by things are improving
@kimd16643 жыл бұрын
How long did it take for your memory to come back?
@akbarlakhani66242 жыл бұрын
you remember playing like an image in your mind right . If its an image and not just the sound of it then maybe you could focus on the finger movement in that image try remember how your hands and fingers moved and try replicate it on your guitar .
@tamiduncan7778 ай бұрын
🙏🙏💪🙏
@michelleg53713 жыл бұрын
After head injuries yes your spot on it affects a person for the rest of there lives .worse thing the public have no patience.people don’t understand people couldn’t care less .
@brittanypatterson87202 жыл бұрын
Your sincerity .. was felt . .. As a person in recovery . I can tell you this meant more then you know.
@robynmichelle61822 жыл бұрын
Hope is so very important to all of us. Thank you for reminding me of that with your note.
@DishonestTrack63 жыл бұрын
I've had many people assume since I have a TBI I'm mentally slow. But when they hear how I speak and how intelligent I am they are in shock. I'm like, "Why so surprised? Just because I have a TBI doesn't mean I'm stupid."
@suhart4142 жыл бұрын
I have a TBI and I am still working as a university lecturer
@nicbarth3838 Жыл бұрын
congratulations! did you have a lot of cognitive reserve to begin with or did you not have as severe of a trauma not in emotional but just overall damage? How has it changed your sense of self to what extent do you think we can derive an existential sense of self rather than from the attributes, traits and self referential sates of thoughts that characterize our experience of person hood. You having gone through something traumatic like that while I have not, made me wonder if you have had success in this modal shift.
@tamiduncan7778 ай бұрын
🙏
@ToneBone314 ай бұрын
@@nicbarth3838it’s like someone factory resets your phone everytime you go to use your phone and you didn’t reset it you can’t tell but I was on my moped and was in a hit and run left for dead but someway somehow an ambulance was right there and somehow I was able to get up and get into the Ambo on my own and called a few people to let them know what happened brain bleed broken skull and somehow I seem normal and Bam can’t remember what we were talking about mid conversation
@marilyncolasanto99573 жыл бұрын
So very grateful to stumble upon this video. Thankyou for saying it so well. Our son Daniel has had a traumatic brain injury since 2026. We live be great Hope and see Daniel heal little by little 🙌
@nmmorin35092 жыл бұрын
Truly appreciate your advocacy for the Invisibles whom get forgotten by most around them
@brainline2 жыл бұрын
Thank you for taking the time to watch and comment.
@taylorraeboylan2 жыл бұрын
Thank you so much for the information I am a nurse and I was that person that had a 2 pm injury on a Monday haha my memory has been growing since my accident 3/11/19 but I do struggle daily. It gets really tough around people who don’t understand. It gets tougher for every single reason your memory is everything… I’m very lucky & blessed to only suffer the way I do. It’s hard for people like me who worked up for a future and then in an instant an accident happens and it’s hard to recall what I ate for breakfast before it’s even noon. I’m lucky I had such a strong memory before my accident. It’s also a curse though. People can see how good my memory is now but they don’t know what brilliance of a memory I had. Some do, some don’t. I hope somehow I can get my memory back to its peak potential but I know it’s going to take a long time. I’m thankful to be alive. Thanks for your positivity and hopefulness on the topic it makes a world of difference to the patience and all healthcare workers who have lost their hope.
@arvindsharma-fw4ej2 жыл бұрын
Howlong your memory come back Pls reply iam facing about 2 year after my stroke
@kaysiacorbett27992 жыл бұрын
Thank you so much for sharing this. Im currently a nursing student and it is very encouraging to hear from another person who is an actual nurse that they feel the same way that I do. I too had a brilliant memory, but i know God has blessed me with a new brain that can do new things ! And im so happy im still here on this earth with my family able to spend every day with them.
@jeremyotten5137 Жыл бұрын
Do you have an Instagram or Facebook? I’d love to chat about this with you as I can relate
@Shak19932 жыл бұрын
I suffered a TBI and am a proud Veteran. I wish I could explain what I went through from April 2017, when it happens, to now 2022. I’m still working to better myself overall and experience a mix of emotions. A difficult truth I’ve been working to better understand is “everything happens for a reason.” Today (12JAN22) is a good day!
@ritacampbell12622 жыл бұрын
You can be sad if you want to. I know keeping a great attitude is very helpful. You may never get that memory back young man. I would like to get “ my fall memory” back. Maybe one day when you are carefree ( I know), it may return. But right now , if I may be so bold, live for today, plan for a vacation or retreat for something to look forward. Thank you Shakeel for Your Service and Sacrifices, for all in the name of “ Freedom”. Thank you sir,
@danielprose5878 Жыл бұрын
What are your lasting disabilities from that TBI over the years ?
@Shak1993 Жыл бұрын
@@danielprose5878In order the most challenging is Fatigue, Memory, Lower Body, Legs.
@valleygirltotallyforsure5 ай бұрын
Thank you for your service. ❤🙏🙌👍
@Patricia-j4s4 ай бұрын
Thank you for sharing this information!! People are so misinformed and give up on their loved ones. My daughter suffered a TBI 13 years ago and she has continued to improve and I am so thankful she has the opportunity to enjoy life and love
@debblackmore74603 жыл бұрын
Never give up keep going doing amazing keep positive you got this stay strong stay safe sending love from headway Nottingham UK x
@bluv64303 ай бұрын
I'm coming up on my 40th anniversary of surviving my TBI from being shot twice in the head in 1984. It's been a heluva road back and yes, it takes years to rewire yourself. I've written my story into essay form and am currently trying to put it into a book format to go into more detail. My injuries forced me to push myself harder than I ever thought possible. Never quit on yourself, just one day at a time, never stop trying. TBI is an incredibly difficult thing to survive, mine hurt really, really bad.
@cescadarien-hyde50332 жыл бұрын
Thank you for this encouragement - having suffered another TBI a month ago - a fall from 5 ft straight onto solid wood and then another fall onto a concrete floor - natural medicine - ARNICA - lots of patience and recuperation - and research has been a God send. Thank you to all those who share their research and experiences.
@debblackmore74605 жыл бұрын
Never give up keep trying keep going it's a hard road a road have been on since 2009 hypoxia doctors saying I will never walk or talk again yet I am writing comment on my own no help just me so guys and gals never give up on yourself there will plenty who have dont yourself you are all doing amazing sending luck and love from headway Nottingham UK xx
@anitanita58755 жыл бұрын
Bless you, true never give up. So glad you're writing
@debblackmore74605 жыл бұрын
@@anitanita5875 thank you
@letstalkmentalhealth70203 жыл бұрын
Hi im from Bristol uk, I need hope its been five years
@debblackmore74603 жыл бұрын
health stay strong your a survivor you got this
@kenskhronicles60043 жыл бұрын
Can you explain what happened dealing with this with my dad currently
@doriencarr90934 жыл бұрын
Great analogy And speech. A doctor that gives me hope! I know I’m doing the right thing but it’s always nice to hear encouragement and to keep plugging along. Thanks
@user-qe8bd6qv5j2 жыл бұрын
I love reading comments because i know im not alone. The Neuro fatigue is horrible and now im having seizure like activity
@Karin-qv5mq5 ай бұрын
My son had bad seizures as a child so I kept praying and it went away. It used to make his brothers cry, but it will be ok. I was in the hospital recently and a girl had 8 seizures in one day.
@aminah7616 жыл бұрын
Currently dealing with this .. this is the hardest thing I ever had to deal with the headaches 24/7 dizziness n it been 2 n half years still not fully recovered
@braininjuredbabe5 жыл бұрын
I am so sorry 😥
@mjm07875 жыл бұрын
What caused your brain injury?
@joejoe77094 жыл бұрын
It will get better been in the same place. 07 till now 😀
@georgesilva17374 жыл бұрын
It's like you're drunk but haven't drank. I know first hand. I was arrested and put in jail. 🤦♂️
@lav8563 жыл бұрын
Same Problem
@3ksbeterthen16 жыл бұрын
I applaud all your efforts wish more drs and funds can help people like me
@empathg14705 жыл бұрын
Lovely these kind of speeches I'm recovering from brain injury dew to accident.
@faisalbi13303 жыл бұрын
Hi how are you now?
@faisalbi13303 жыл бұрын
Hi how you doing please reply me
@kmdglobe54023 жыл бұрын
I'm 30 years old. I was attacked age 15 with a metal pole, a plank of wood, fists and I think a baseball bat. I was refused hospitalisation as it would have affected my parents routine. I didn't notice at first the devastation to my psyche, the loss of social ability, the degredation of my joy and my security. Now half my life later I see how much of an effect this event had, I can not sustain employment, I only recently got control of my brain and headaches after 'breaking a crust headache out of my brain' which released all kinds of smells that I have been exposed to in my life. It's easy to feel depressed and hopeless: I'm hoping someone with knowledge or experience of a heart can come forward with some motivational words or guidance or hope, help light.my world again. I miss the me I was.
@niggawdgawdnigga78783 жыл бұрын
If I can give you some light I've had a severe tbi about 2 years ago keep your head up I'm still learning so much been feeling lost but I for me you all us things will get better and better... Recovery for brain surgery is for life
@2manycatsforadime2 жыл бұрын
I lost the ability to do math, classic symptom. Have a hard time reading, get lost and never make it from one paragraph to the next, Don't watch television, can't follow the plot. I have PTSD, sleep patterns are really bad when I can sleep. I sleep in my street clothes, don't know why. speech patterns really different like I am searching for words. Lose my thoughts in mid conversation. The good things are I can drive if I am careful. I can walk without suddenly falling down. Bad thing is I can not be on a boat in the ocean, the motion makes me very ill and with bad headaches. Emotional stress triggers horrible headaches. The ringing in my ears comes and goes but is still with me. Sometimes I have to stop to listen for it other times it is screaming. Everything in my world is now different and I could sit down with you and tell you stories of my ongoing recovery. I am so sorry that you were attacked, what a horrendous thing to happen to a young man. You will progress, it just takes time and help.
@ritacampbell12622 жыл бұрын
I am so very sorry that happened to you and you did not receive care. That’s evil. I wish you well. I fell almost a year ago, and had problems finding good care. I went to Dallas..,, awesome place. Better than Mayo. They do a lot of research at Dallas as well.,, UTSWMC. Good luck. I will pray for you
@ChooseCompassion2 жыл бұрын
What a horrific experience to have to have gone plus a lifetime of this which includes PTSD. I will send all the light and love I have in my heart to you right now. Have you looked into TMS treatments or ketamine? 💫❤️✨
@lronhoyabembe16922 жыл бұрын
I sympathize 100 percent. Being present is very fucking hard for me. Everyone thinks we’re all good. It’s just like dealing with any severe issue. Only a few people really see where you’re at. Those are the people that care. Everyone else has a problem. I understand what’s wrong with my brain. Yet I listen to others who think they can help. I’m wrong. Only you the holder of a tbi know what you’re going through. You gotta do what you know is right. Nobody else understands the perspective of a severe tbi. I got in a frontal collision going 45 no air bags. I feel like I’ve lost love, people that care want to help but I can’t tell them what’s wrong. I gotta sit in a cave for 3 years. You know what you’re going through. Take it easy, focus, push. Everything will work out just don’t stop pushing. Also the doctors ain’t shit as soon as I could speak clear I got kicked to the curb.
@normanmacfarlane672411 ай бұрын
I am reading the comments and i agree with everything said here. This Doctor is an absolute gem of a human being. Thank you so much for this podcast 😂
@willand313 жыл бұрын
This worries me about my motorcycle accident in 2013. I haven't felt normal at all and I seam to struggle to hold on more and more everyday. I am happy though. Just fucked up in the head or something, things like my emotions and aggression have become a lot more frequent causing me to program my day in an odd way, like having to catch my self and scolding my actions out loud. Changing my personality has been the only thing keeping me hopeful and feeling safe from what goes on in my head. It takes incredible focus to feel normal.
@willand313 жыл бұрын
@@claraali1352 thank you, but I am not familure with that app and don't feel safe trying it out. I do very much appreciate the reaching out however, and hope you have a wonderful day.
@robertw.23259 ай бұрын
My TBI accident happened 31 years ago. I was hit by a car while riding my moped. I've fully recovered but I lose my balance more than before my accident. It's always a good reminder and to be thankful for my recovery.
@hthrlnc4 жыл бұрын
Have had 3 bad head injuries in my life. Ran me head thru a fish aquarium when i was 4. Head almost shattered windshield in car accident when i was in high school then a few years ago i tripped over a lawn steak & hit concrete step/brick wall with my head. All 3 were around same area of my head. My memory is pretty much non existent. Don't have vivid memories of anything, not even the births of my kids. Makes life quite difficult at times
@teeganmcpherson86903 жыл бұрын
ah i’m really sorry abt that:( how’s your memory now?
@bruceradz2 жыл бұрын
Yes, how is your memory now. I am twelve years out from a stbi, my memory was trash for six to eight years, couldn't even remember where I lived as a child. Both long term and short term were affected. Ever so slowly bits came back here n there...
@bruceradz2 жыл бұрын
@@teeganmcpherson8690 how is your memory
@serenitydimitroth36653 жыл бұрын
My son suffered tbi at 2 months age. Sbs by his dad while i was at work. He is now 15 doing better than expected. Still 4yrs behind in development. Some days he acts his age other days he acts like a toddler teddy bears, cartoons and tantrums. Lately his aggression and outbursts are too much and i consider a home as he is huge and towers over me. It breaks my heart. I love him and did every therapy under the sun. Abilify seem to be his miracle medicine, but even that doesn't stop the violent outburst he has at times. Breaking things and not understanding consequences.
@ericisabadbadman39786 жыл бұрын
Being I have a TBI and many more years to come I plan on just doing things to keep my mind fresh. I'll regress like I do from time to time the rest of my life but I'm ok with that just how life goes.
@dk29197 ай бұрын
My TBI was not properly diagnosed for a few years(it was 10 years ago). I remember going to a specialist and thinking I would be a waste of her time. She started telling me how my life was. I was blown away because she was spot on! I finally had to stop working, which has been devastating. I recently found watercolor painting and it feels like it’s starting to make connections.
@FoundationGoodSamaritan6 жыл бұрын
Thanks you for care about us the brain injury patient. 🙏❤️👸🇩🇴
@lav8563 жыл бұрын
Stay strong and don't let negative thoughts work on you 🙏🏻✨
@FoundationGoodSamaritan3 жыл бұрын
@@lav856 Thank you, you as well! ❤️🙏🏼
@rainygirl652 жыл бұрын
Ohh thank you. I needed to hear this. It’s been 10 long years.
@bruceradz7 ай бұрын
Fourteen for me, and my anniversary is coming up 😲🤗
@aplusmerchant22814 жыл бұрын
This is one of the most terrible things I believe can happen to someone. It feels like I am in a glitch in the matrix. It feels like I am living in Hell on Earth
@jiteshasman23154 жыл бұрын
Like sometimes being drawn into an alternate timeline where you have to act/ feel/ deal with stuff.... only to feel crazy once that reality slips away like how a dream feels the next day when you try to remember it? Like your mood is being deliberately cycled over and over again between normal and absolute hopelessness?
@aplusmerchant22814 жыл бұрын
@1491: Thank you. It means a lot. I’m doing better since I wrote this comment. It’s a long road to recovery but exercise has been helping a lot and I am going to a very good Chiropractic Neurologist
@positivelytatiana58904 жыл бұрын
Clicked on this comment to agree, then noticed you’re doing better. That’s truly amazing 🌸
@aplusmerchant22814 жыл бұрын
@@positivelytatiana5890 God is good. When I was at my lowest point I almost took my life but Christ saved me in my darkest hour. He is amazing and I owe it all to Him 🙏🏼🙏🏼🙏🏼
@momentalsolar33374 жыл бұрын
Pius I had a brain surgery 2017 and till date I’m still going through it with seizures and all. I sometimes feel I should just take my life honestly. I had another seizure last night and it wasn’t funny...
@andrewd.harris6564 жыл бұрын
I had a TBI in 1989 as a child, and I've gone back to college, pulling up my GPA each semester. It's been inspirational to hear videos like this one. I've had a 2.8 my college career in Junior and Senior year. It's been a blessing to have been shown mercy the way the Lord has seen to me experiencing. The problem I had with my treatment was the amount of condonation I seemed to have experienced, like with marijuana smoking in a lot of places, doctors condone their patients to be intoxicated for much of the day, and I felt like I was being condoned by a treatment facility and recovery group or two to my detriment. These types of treatment facilities can be a burden on the individuals in them because of condonation of sinful behavior. I absolutely hate smoking grass because my body can't tolerate it. I'm not saying I was personally burdened with treatment that condoned marijuana, but they did seem to be a bit to loose in an area or two. Smoking grass was just an example. At the point in my life I ended up in such a facility, I could have done more for myself than they'd let me. But oh, I'm not well, I'm not well. Well, maybe our society isn't well, and I'd be glad to leave.
@yellowdayz180010 ай бұрын
What is TBI?
@karencita35205 жыл бұрын
My dad has two stokes and now he has an anoxic brain injury. It’s been difficult the last could of weeks. He moves his limbs and looks around the room he’s began to track again. I want my dad back he’s all I have.
@ЗаретаЕсиева4 жыл бұрын
It is good that he is tracking. Is he in rehab ?
@leodelrosario6934 жыл бұрын
Hi Karen! May i know any updates with your dad?? Would love to hear his progress
@kenskhronicles60043 жыл бұрын
I’m going through the same thing how is he ?
@hellokittydimaggio Жыл бұрын
How is he ??
@scotthullinger46842 жыл бұрын
Yes, tell me all about it, and thanks for being HONEST - Yes, I had a brain injury, and somewhat traumatic at that.
@andrewde783 жыл бұрын
My son was born with Severe HIE (Hypoxic Ischemic Encephalopathy) sustained during the birthing process. I hope and pray that my son ‘recovers’ and not just live, but become and independent, productive member of society. I hope but I’ve decided to no longer hold my breath. I have beautiful memories of how my father raised and molded me into the man I am today. It breaks my heart there is a chance I won’t be able to impart the same onto my son. My wife and I do everything we can in support of his treatment. I only hope…
@the_Pooja_Patel2 жыл бұрын
How is your son now?? Hope he is recovering.
@phishENchimps4 ай бұрын
The title of this video made me cry. I will never be like I was again. Ill never be the same. Phish - Driver is the best way to explain my days.
@rosieramirez254 жыл бұрын
My sister suffered Brain injury thru being hospitalized with covid. The lack of oxygen and high fevers caused it. They diagnosed it as symmetrical basilar artery stroke. They told me she would probably not have her personality there no more, probably not be able to talk, no movement and so far my sister is talking more everyday. She remembers absolutely everything. He is starting to have some movement in her arms! At the moment we are struggling with putting her in therapy because of limitations on insurance. I had a dr say this is as far as she is getting and just start accepting the fact and see what other steps we are going to take. If there is any suggestions please help me out!
@doriencarr90934 жыл бұрын
We have been doing hyperbaric oxygen therapy and it works. The sooner the better.
@niggawdgawdnigga78783 жыл бұрын
What helped me after its been about 2 years but is diet visiting places you grew up had good memories research like you been doing encouragement and so much more I'm learning
@debblackmore74602 жыл бұрын
Bless it's a hard road but keep going doing amazing things music helps me wordserchers spelling etc. Sending luck hugs prayers most of all love from headway Nottingham UK takecare xx
@janicetorres42483 жыл бұрын
It's been about 11 since my TBI and I recognize changes all the time!
@lav8563 жыл бұрын
Try and stay strong and don't let negative thoughts work on you ✨🌸🤜🏻🤛🏻🤍
@danielprose5878 Жыл бұрын
Which symptoms get better all the time ?
@wrotenwasp8 жыл бұрын
Amen Sir. 4.5 years into my 2nd TBI (happened when I was 48) and it's still a daily, annoying pain in the ass. The first TBI was bad enough(2008) but I did recover a little better but the 2nd TBI has been much more of a challenge especially in the emotional department not to mention the headaches, fatigue, ringing in the ears. I suppose it will be possible to continue to improve but Im not very optimistic that I'll ever be the same person I was before 2012.
@shaunhill8176 жыл бұрын
wrotenwasp yeah fuck i had my brain injury in 2012, thats when the world should have ended...
@shaunhill8176 жыл бұрын
wrotenwasp how did you get your tbi, just curious... You still write very coherently
@davebarber38276 жыл бұрын
Fight on do'nt ever give up i am in the same position.
@debblackmore74605 жыл бұрын
Never give up keep going gets better sending all luck x
@Brenway20114 жыл бұрын
@@davebarber3827, I am a stroke with 8 years in and i still have horrible issues from it. Chronic fatigue, ringing in the ears, forgetful, have anxiety and depression and am highly emotional, hard to focus, hate noise, and crowds on and on. I just want to live a normal life again.
@bluv64303 ай бұрын
I found this poem years ago in my recovery from my TBI from being shot in the head. It helped motivate me to push myself harder than I ever thought possible. I hope someone else can use these words now. DEFEAT “No one is beat till he quits, No one is through till he stops. No matter how hard Failure hits, No matter how often he drops, A fellow's not down till he lies in the dust and refuses to rise. Fate can slam him and bang him around, And batter his frame till he's sore, But she can never say he's down, while he bobs up serenely for more. A fellow's not dead till he dies, nor beat till he no longer tries."
@Margi183 Жыл бұрын
Wonderful doctor!!! Thank you!
@brainline Жыл бұрын
Thanks for watching!
@WilmerCook Жыл бұрын
Fell on my head at work in 2003. I was violent in and out of consciousness, Dr.'s put me in an induced coma for weeks. Don't remember 2004, couldn't sleep and didn't like to be around people. Now after all these years I still can't get to sleep and after my wife died I have become hermit.
@joshholzinger64822 жыл бұрын
I have had over 10 concussions over my life fighting MMA I can be in sunlight without getting headaches, mood swings, speech issues, depression and anxiety and more. But Psilocybin is helping me beyond measures. I'm actually hopeful for the future for once
@antoynebeaucheminroy9197 Жыл бұрын
Are you following any specific protocol?
@sarahford65862 жыл бұрын
This is my favorite tbi video ever! Ty for the positivity
@234123mexico3 жыл бұрын
God bless this man
@debblackmore74603 жыл бұрын
Hi hope all going through this is doing well keeping strong keep going doing amazing things stay positive thinking of you all sending love from headway Nottingham UK x
@superspark23742 жыл бұрын
TBI/PTSD means putting up with everything and everyone who aggravates you all day long because there's nothing else you can do
@garywalling43412 жыл бұрын
Yeah man some days I just wish everyone and everything would just 'PISS OFF AND LEAVE ME ALONE'. However, be careful what you wish for.
@moirasheridan23843 жыл бұрын
Thank you for what you do to give hope and help.
@drsiigabb99354 жыл бұрын
I am Brain Aneurysm survivor, 25/06/91, unlike my mum, who passed or a brain aneurysm 25/06/90. People keep telling me that, you can do what everyone else can do, they really have no idea. A colleagues son had an ABI, suddenly changed her tune, as she witnessed it first hand. Fortunately I got most of my cognitive abilities back, I can still pass the Mensa test.but am unable to go on most amusement park rides. Mates of mine like pointing out, at least they found mine, they can't prove they have a brain. Fortunate side of ABi, is we can prove we have
@jamesr57413 жыл бұрын
lol @ your mates.
@agoogleuser39182 жыл бұрын
This is so true. So many of us have had concussions, brain 🧠injury, and do not have access to rehab. I was traumatized after domestic violence, and told every doc about the multiple blows to my head. I was just offered meds. FF, years later, and I can add to my only dx of Epilepsy: Dystonia, Parkinsonism, tardive dyskinesia, Akathisia,memory loss, and Serotonin Poisoning, and I've not been the same since. My neurologist has said no more meds. I never know when these movements will happen, but I am very blessed that they do not happen every day, but off and on. The inner Akathisia is getting worse, It's hell. I have been enduring that for 6 years now, it was caused by Serotonin Poisoning, meds taken as prescribed, I don't wish to live with this hellish affliction for the rest of my life. The PTSD is causing problems,remembering... And I can be angry all day, then be happy rarely. Then numb. This was NOT me before 2016...
@TownGirl045 жыл бұрын
This is great. There is little help for those past hospital stay and for ones you can find, it cost lots... too much.
@garywalker3317 Жыл бұрын
My wife is in a coma like state after having a hemorrhagic stroke.The Drs push me for hospice within hours of going in ER.They let her aneurysm bleed for six days before treating it.Julia deserves help.Since 02/16/23.
@thomasparsons3168 Жыл бұрын
After my TBI, I have no hope for my future. But, saying something like that to people makes them stay away when what I really need is help. I don't know how to ask for help in any way. I'm losing everything.
@brainline Жыл бұрын
Thank you for your comment. It can be so overwhelming at times. Please know that you are not alone and there is hope. Asking for help can be difficult for anyone, sometimes more so with a brain injury. Recognizing you need a little extra help is a huge accomplishment. One day at a time, one step at a time. If you are on Facebook, please feel free join our group and ask questions: facebook.com/groups/braininjurycommunity
@danielprose5878 Жыл бұрын
Waht are ur TBI disabilities ?
@justcallmetony44939 ай бұрын
I completely understand. All hope is lost. When I reach out for help I am misunderstood by everyone. Just pray these days for life to finish, I am just not the same. No one even cares
@erincecilliadyer39009 ай бұрын
Thank you for sharing your message!
@vanillrmilk93706 жыл бұрын
depending on the severity of the damage I suppose recovery in time would be a possibility if the injury was quite mild..
@chinookvalley5 жыл бұрын
I am in my 60's and am 29 years POST-INJURY. I am still recovering. It took ten years to be diagnosed from an auto accident TBI. I still have swelling of the brain - and along with that a plethora of symptoms mild to severe. Never ever give up. Every few years something comes along that helps me - supplements, therapy, Rx, etc, you never know what tomorrow may bring!
@JillMurphyBeanerz885 жыл бұрын
I suffered a Severe TBI 30 years ago. I am still "recovering" but, I am a WARRIOR and I will not quit! 💪🏻💚 (Your wording, "depending on the severity" and "quite mild" riled me up. I hope you just put what you were trying to say in the wrong words.✌🏻)
@crystalfreeman5374Ай бұрын
I am in this fight everyday 💪 tbi over a year ago. My emotions and brain fog take constant mindfulness and so much time thinking. I know I will improve, I believe it!
@drsiigabb99354 жыл бұрын
Having had an aneurysm in 91, at times I can't explain, why some days in really up and other days can't be bothered. The only way, I feel I can communicate ,is through constant humour. Other people can't work it out if they haven't had an injury to the brain
@Little_Rose709 Жыл бұрын
Been walking around with a brain injury for 18 years I had encephalitis when I was a kid drs didn’t help me I’m honestly thankful to be alive. Then from 20 to 23 I was in an abusive relationship where I have occipital nerve damage now I’d never want ppl to experience that pain. I’m 28 been getting rehabilitated for a few months now. I’m making great progress tho we all have good and bad days I’m just grateful I’m getting help now. Now I know why life was hard for me for a long time now I can fix it and feel better about myself.
@danielprose5878 Жыл бұрын
In which TBI problems u see results? i have only psychological and cognitive symptoms . After 4 Month nothing gets better !
@Little_Rose709 Жыл бұрын
@@danielprose5878 my reading comprehension is getting better and controlling my temper
@jasminacortezonline3 жыл бұрын
I’m still recovering and it’s hard….. I’ve had tbi for two years.
@faisalbi13303 жыл бұрын
Hi how are you are you recovering?
@jasminacortezonline3 жыл бұрын
@@faisalbi1330 today is a good day. Thanks for asking. I’m learning a lot to increase the quality of my wellbeing and recovery💘
@faisalbi13303 жыл бұрын
@@jasminacortezonline what happened to you please share your experiences.i am struggling I had brain injury thn emergency brain surgery since I am not normal anymore.please help me
First thing I will say thank you for that video. I am acquired brain injury encephalitis I do have my own apartment. I’m achieving my goals. It’s a miracle and faith what we live through every day. God bless you keep up your hope and faith. Thank you for your support CONOR.
@carolrocky98032 жыл бұрын
I've had small 'strokes' since my TBI one durring a MRI (the girl running the scan was so excited, my neurotolight said it was normal and would go away - 6-2017 - I used to have them 10-20 times a day. They haven't let up, and Dr's want to start with testing but don't know why they are on going from time to time somedays nothing other days clusters. One step forward sometimes 3 steps back. And it's wait until my mind finds middle ground again.
@holistic79806 жыл бұрын
This guy talks a lot of truth from what I've seen.
@aarongarcia11012 жыл бұрын
its a horrible nightmare losing you mind. No reliable memories, loss of independence, and the depression that goes along with it makes life not worth living. Not sure how much longer I can stand this.
@brainline2 жыл бұрын
Thank you for taking the time to comment, Aaron. We hope that you are able to find some comfort in that you are not alone in these feelings. It is not easy. There are tools and techniques to help but it can be difficult to find the right balance. If you are on Facebook and would like to chat with other brain injury survivors, please consider joining our Traumatic Brain Injury Group: facebook.com/groups/braininjurycommunity. If you need to talk to someone right now, please call the Suicide Lifeline: 1(800)273-TALK (8255). You can also text the www.crisistextline.org/ at: 741741. Thank you again for watching.
@TheKatiness5 жыл бұрын
Brain aneurysm and stroke on the OR table as my neurosurgeon was trying to coil it in 2011. I was lucky i didn't come out with physical limitations but my executive function skills went haywire. Taking a shower, laundry, dishes, etc require so many steps we aren't aware of until we rly have to focus on them. I'm appx 60% better than i was but idt I'll ever be 100% again.
@TheKatiness5 жыл бұрын
Note - i had to figure all this out on my own as no medical professionals seemed to know what was going on with me. 2 books - "the brain that changes itself" and "my stroke of insight" - helped me so much.
@faisalbi13303 жыл бұрын
@@TheKatiness are you ok now?
@SailingSarah2 жыл бұрын
Don't let them stick you in a nursing home, IT'S REAL BAD IN THERE.
@TheKatiness Жыл бұрын
@@faisalbi1330I'm sry I didn't see this until now. I have memory issues. I'm hella disorganized but I'm alive so I can't complain. Thx for asking!
@NorseCode.8111 ай бұрын
i have constant ringing in my ears and i am tired all the time. my brain injury and brain bleed was 14 months ago, im not better now than i was three months after the injury. its a like a nightmare that doesn't end and the mood swings are horrible.
@undeadhero91413 жыл бұрын
when the brain starts hurting the recovery begins
@undeadhero91413 жыл бұрын
@@claraali1352 i smell scam
@undeadhero91413 жыл бұрын
@@claraali1352 do you want money for medicine ?
@wanda16162 жыл бұрын
I am not the same after my brain injury almost two years ago still dealing.with i cut everyone out of my life I am always isolated.always crying angry because I have lost my old self.and very sad about it.still coping with memories issues.I think everyone body is just different and heals different
@danielprose5878 Жыл бұрын
Also cognitive, mood disabilities and social anxiety from that TBI ? When yes ...are they getting better?
@gingerthetrailpup72232 жыл бұрын
I thought I had great insurance when I had a tumor explode in my brain … leaving me in a coma and causing all kinds of havoc. I had to learn how to literally do everything over again at an acute rehab center. My insurance kicked me out after 3 weeks. They could not even wait a couple more days to make sure my follow up MRI was clear. I had surgery to remove another brain tumor less than 3 weeks after I was kicked out of rehab by my insurance (thou I guess in the end, with the 3 week hospital stay prior to the rehab facility … I did rack up a huge bill … to which I paid a tiny $200 copay for it all). I was 32 at the time. People can say they understand, but unless you have gone through something that changes your brain for the rest of your life in a blink of an eye, at most, you can be understanding. Most people do not have the patience/empathy/are too stupid even to begin to understand just the facts about brain injuries. I am stubborn. I made adjustments to be able to live on my own, but I was angry. It was 16 years after this ordeal when my tumor started growing again. It will always be a constant (and silent) struggle to maintain the appearance of “normal.” I have to allow myself to cry and release the burden/stress of maintaining this outward appearance, else it will just break me.
@jodynicoleb2 жыл бұрын
My sister is going through this- sudden bleeding tumor, now in a coma. Any chance you would be open to sharing more of your story with me? Struggling.
@g-noraturab30525 жыл бұрын
Thank you for posting
@Iam-me6 жыл бұрын
I ve massive brain injury. Hemorragic stroke. Left. A year ago. Coma 2 months. I woke up. Now i remember things back. But when i unconscious until i woke up. I dont remember none! Who is coming. What im talking about with my friends who visited me. I almost blind. Cant eat. Cant breath. My last I rememebered. I vomited inside ambulance car several times. And cant breath Im no surgery. Its hard. Its deep insidw the hematoma
@MellyBelle6 жыл бұрын
I appreciate the assertion that TBI rehabilitation is a relatively poorly funded and resourced endeavor. It is disingenuous to characterize neurosurgeons in general as being pessimistically dismissive of recovery. Also, emergent crani for SDH is actually NOT a great, taxing procedure for a neurosurgeon. And furthermore, the management of long term recovery/rehabilitation of TBI is also NOT appropriately the purview of a neurosurgeon, rather it's the PM&R physician/team. Please let's be very careful and accurate about barriers to best outcomes (severity of injury, pre/coexisting morbidity, age, socioeconomic status) and also not to overstate recovery potential or dismiss long term sequelae.
@Dilli_boogieАй бұрын
My father had a subdural hematoma he was struggling and i lost all the hope but in prayed and prayed to Jesus,it was a miracle he is normal and fit never give up on someone who is having this,be with them and care for them and pray alottty
@mrtitanup9296 жыл бұрын
I had two brain surgeries in 2016 & still can't get it together smfh.....
@aminah7616 жыл бұрын
mr titanup omg what kind of surgeries did u have
@faisalbi13303 жыл бұрын
@@aminah761 hi
@faisalbi13303 жыл бұрын
Are you ok now?
@1conservativegrl8 ай бұрын
My son had overdose on a pill loaded with fetynal. His brain went without oxygen. No pulse no heartbeat but they brought him back. His thinking ability is all there and very smart. Speech is slow but can spell of trying to tell you his needs. Physically, can lift leg a bit and move one arm down. Can’t sit up at all. I’m praying he recovers physically. It’s been 6 months.
@berliancahyadi2794 жыл бұрын
I hope someday if i could live longer maybe 20 or 30 years later i can reach the phase that my neuro fatigue wouldn't troubled me anymore. 🙁
@billygnosis69763 жыл бұрын
completely agree, I suffered a serious TBI in 2013 and I am still making progress, however the more I improve the more dramatic and unpredictable my fatigue becomes. I can look good and seem like I am doing OK but inside my head its a sh!t show. Meditation, family, diet, exercise and a positive attitude have been my may main focus. Bottom line, no one really knows what you're going through. Stay strong and stay positive......also, read The 5 Agreements...helped me tremendously.....Prayers....
@faisalbi13303 жыл бұрын
@@billygnosis6976 are you back to normal?
@faisalbi13303 жыл бұрын
@@billygnosis6976 please guide me with ur recovery I know everybody different just for hope recovery
@billygnosis69763 жыл бұрын
@@faisalbi1330 I would say my new normal. It has been a long road but I will say I much better then I was after year 3.....changes occur slowly but you do get progressively better. Honestly, you gotta stay positive and trust in yourself. positive vibes for you.....
@faisalbi13303 жыл бұрын
@@billygnosis6976 thank you for reply I had hydrocephalus cyst brain surgery it's been 9 months now many things gone better but still I have issues memory concentration thinking and also I don't have my emotions feelings that's why I do feel I am not same person anymore.i used to a good person
@gobuyone2910Ай бұрын
I was a passenger in a car, my friend driving made an illegal u turn and pulled out in front of a car traveling 70mph. The guy that hit us hit his brakes roughly 10ft before impact. My friend driving took the main hit, the rear view mirror went through my forehead, I was in a forced coma for 2 weeks. When the swelling went down, they woke me up. To this day, I only remember certain bits and pieces of my life prior. I buried my mom a year later and had barely any memories of her life with me. To this day, I'll never forget the sound of the helicopter when it arrived. I studder when I get excited, I have 86d 95% of my friendships because I don't know them anymore. This has been the single incident in my life that has completely changed the outcome of where I am.
@ewayjeng14 жыл бұрын
Although my son has a hypoxic brain injury this gives me hope even though my son may have odds against him we must continue to be patient with rehab as new treatments continue to develop in the mean time
@ЗаретаЕсиева4 жыл бұрын
Does your son track and fixate his gaze ?
@ewayjeng14 жыл бұрын
Poidu_ Gotovit his eye movement is ranfom when he has a so called seizure his eyes will point fixate towards the upper left
@kimd16643 жыл бұрын
How is he now?
@the_Pooja_Patel2 жыл бұрын
How is your son now? Hope he is recovering.
@ewayjeng12 жыл бұрын
@@the_Pooja_Patel still the same we take it one day at a time
@travistobias3 жыл бұрын
Thank you for Sharing I needed this
@tessapjohn2 жыл бұрын
There is God above for each one of us, put your faith and trust in him. Miracles happen, I have seen it personally happen for my son who underwent a major craniotomy n cranioplasty. Recovery is slow, but you will be cured. Remember Jesus is our healer🙏
@C3RABRAX7 күн бұрын
2 years later I am able to eat in my own, walking, talking without great trouble. I do it my own way but it’s working. There are issues that I can work around but others I cannot. I toe walk in my right foot. Slut words and forget where things are while driving. My vision has come back 70% my memory is about 50% but this is a huge leap and way beyond where I was. Recovery is possible you just cannot give up every little thing should be celebrated and use the emotions to motivate yourself when it doesnt happen as fast as you’d like.
@karripadmakar54754 күн бұрын
Brother my brain shrinked please help
@karripadmakar54754 күн бұрын
Can recovery possible
@dustintsai18396 жыл бұрын
Also says brain injuries never fully recover.
@aminah7615 жыл бұрын
Dustin Tsai omg
@berliancahyadi2794 жыл бұрын
Yeah, that's so true but sad too. Because neuron tissue is different from any other tissues in our body (flesh, skin, bone). Once it damaged, it never been fully recovered 99%.
@davidrussum36203 жыл бұрын
Never let that get you down or dissuade you from knowing that you can have a great life. It is a very slow and lengthy process. My son is almost 10 years post severe TBI. His life was forever changed and he is a happy person with a lot to look forward to - focused on what is possible and ignoring what isn't (it took some time to get to this point).
@faisalbi13303 жыл бұрын
@@davidrussum3620 thank you so much your comment is giving me hope . please share your experiences he is fully recovered? I really need help please
@davidrussum36203 жыл бұрын
@@faisalbi1330 He is recovered enough to only have minor issues, primarily social. He is able to work, exercise, and enjoy time with a small group of close friends.
@i.m.i.73103 жыл бұрын
1st tbi 2013 ad adult 2nd tbi ad hoc 2017 still trying to recover my soul. Thank you for you kindness it is scarce in my times. Much less understanding. What's wrong with you .???. i hate this.... Because... Peace to you .... Always
@faisalbi13303 жыл бұрын
Hi how are you now fully recovered?
@danielprose5878 Жыл бұрын
Also cognitive, mood disabilities and social anxiety from that TBI ? When yes ...are they getting better?
@marcelovidal19695 жыл бұрын
Thanks to Ryder Trauma Center / Jackson Memorial Hospital I am grateful to be alive. I am Marcelo Vidal and use to work at Pistils & Petals on Miami Beach, FL. and had my second night time job working on Venetian Lady Yacht Charters doing fabulous weddings and private parties for the rich and famous unfortunately on 10/17/15 this high speeding driver did not stop on his red light and crushed me in my car until firefighters arrived with, " Jaws of Life " rescued me out by boarding me on a Black Hawk Helicopter owned by Jackson Hospital which airlifted me Ryder Trauma Center / Jackson Memorial Hospital were I laid in coma for 29 days and stayed hospitalized for 6 months recovering from a fractured leg and Traumatic Brain Injury, TBI.. What saved my life was wearing my seatbelts as I am going to be doing therapy for the rest of my life and so grateful to be alive. I was released home wheel chair bound and wearing pampers because I could not comprehend until Brain Injury Association of Florida authorized therapy at American Pro-Health Physical Rehabilitation Center and by the Grace of God and the excellent therapy within a given me by Rafael GarciaOrtiz within a year or so I can walk, talk, comprehend and use the restroom.as I am grateful to be alive. By this time I was cleared to do Aquatic Therapy by Kelly Gomez Messett at Jackson Health System Recreation Therapy Neuro Group and had an awesome time swimming in an Olympic Pool as I am grateful to be alive. As I continue seeking Adaptive Rowing Therapy at Miami Beach Rowing Club while looking up I would to enjoy the beautiful South Florida weather as a crack of smile appears on my face knowing how thankful and grateful I am to be alive. During all this time till present date I have sessions with my Neuropsychologist Dr.Susan Ireland from the five inch head scare I have across my head that gives me constant pounding headaches with hallucinations and I can not take any medications because it would intensify my hallucinations so Dr. Ireland tought me this breathing counting exercise a form of meditation that has taken all my symptoms away as I have been DRUG-FREE NO MEDS for more than a year now as I continue doing therapy at Jackson Rehabilitation Hosp. continue my sessions with Dr. Ireland and attend TBI EXPRESSIONS CAFE/Recreation Therapy Neuro Group hosted by Kelly Gomez Messett every last Wednesday of the month at Diagnostic Building at Jackson Memorial Hospital in Miami, FL.from 6:30pm-8 pm as I continue my daily therapies listening to tbi Music lovers and do LoveYourBrain YOGA- Meditation -BIKE/ELLIPTICAL/WALK as I am extremely grateful to be alive as I enjoy reading and listen to I CARE FOR YOUR BRAIN with Dr. Sullivan & Brain Chat because I am extremely grateful to be alive.
@anitanita58755 жыл бұрын
Bless you, so glad you made it out alive
@joycekysor13484 жыл бұрын
Odd, isn't it? We are both so thankful to have Survived Head Injuries!
@marcelovidal19694 жыл бұрын
@@Deepsea73 Good morning TBI & Stroke Survivors. Thanks to GOD & Ryder Trauma Center/Jackson Memorial Hospital I am grateful to be alive. While listening to TBI Music Lovers I do my daily therapies Love Your Brain YOGA-BIKE/WALK/ELLIPTICAL because I am grateful to be alive,