REN - ME vs M.E - Living with M.E. - My life with CFS blog - May 2015 video update - SEE DESCRIPTION

#renmakesmusic #sickboi #mevsme #lymedisease
Bearing in mind that Ren did not have an accurate diagnosis of Lyme Disease at this point;
I am very reticent to post Ren's Feb 2015 post as it shows Ren at one of his lowest and probably most desperate points. Ren is VERY emotional in it and it is quite upsetting to watch.
Parts of the video have been released on Ren's music channel and on IG previously, (although the short on Ren's music channel has now disappeared)
If you choose to watch it, the details are below:
Living with M.E. - My life with CFS blog - feburary 2015 Help
• Living with M.E. - My ...
The May 15th 2015 update of Ren's CFS blog sees him talking about following various diets/therapies etc but he feels worse and losing hope.
He also is pretty much bedridden at this point but has exhausted IMDB's top 250 films.
He is obviously frustrated by the diagnostic process and is beginning to lose hope!!
Background:
Many Ren fans watching this will be familiar with his health journey over the years that he often captures with the lyrics in many of his songs. As a consequence you probably know that he was misdiagnosed for several years with a myriad of different illnesses before getting a PROPER DIAGNOSIS of Lyme Disease.
However, some of you might not know that Ren has vlogged his journey on various platforms and set up various channels and groups across the internet to help inform the public, add support to fellow sufferers and to insist that the medical profession do more to research and tackle these types of autoimmune diseases!
Some of Ren's videos on these platforms are hopeful. Others are dark and desperate. They are, however, all important in my opinion to understand what Ren and many other sufferers of these terrible diseases were dealing with and where they might be now!
Original Video here: • Living with M.E. - My ...
Please do check out these channels:
@mevsme3108
On FB check out the group : Lyme 101

[@hilarycharman-2924]

Bless him

[@krikat3485]

It was a courageous and hopeful thing Ren did to periodically post these video updates for the ME community. It was also life saving for him. A Dr saw these videos and offered him a stem cell transplant if he could make his way to L.A. It gave him the first marked improvement in his health, and set him on a path to recovery. I think his sharing these videos with the world has kept him grounded, and offered hope to others with similar conditions.

[@SandraP3796]

I have such respect for Ren throughout this very bad time before his stem cell transplant. I would hold him and hug him. I’m so proud he battled his way through it to get to where he is today even still having treatment.

[@helenbicknell6659]

This beautiful young man deserves every ounce of his success and I’m so glad to have found his music to share this amazing journey.. I don’t think anyone has worked harder to get where they are today… Ren is a true inspiration to so many, truly beautiful inside and out.. x

[@autumngrubb1468]

Bless young baby Ren! He’s such an inspiration to us all. He’s just amazing and I’m so glad he made these videos because they can teach us so much about our own selves. I love him and he’s taught me so much 🫶🏻🙏🏻💜!!!!

[@sampanther8854]

Thank you for supporting Ren in his quest of finding answers.. For others. ❤ Yes it can be hard to watch for some and maybe it's hard for Ren to see himself this way but there's two sides to every coin as Ren has said himself.. If anyone is willing to show the good bad and the ugly then it's something to be admired and inspired by. I have upmost respect for Ren 💖 and through doing this he did find answers for himself maybe not what he wanted to hear but he it gave him more determination to fight knowing who his real enemy was. Lots of love goes out to anyone suffering alone ❤️💕🥰

[@fionaclark4346]

Thank you @sampanther8854 for your understanding of the benefit of sharing these videos. My daughter, who has had ME since 1994, was following Ren back when he was making them, and writing a blog, I believe, and for her, it felt like they were fighting through their illness together, and she wasn’t alone with it. She is now completely bedridden and cannot cope with watching anything that Ren is doing, although I have been able to quietly tell her a little bit. Over the years, Ren has given my daughter and myself unfailing hope for the future, and she truly believes that one day, when scientists find the key to unlock ME, that she too will rise like a Phoenix. Huge thanks to Ren for keeping this record, and thank you again Pete for sharing with us ❤❤

[@sonjavanderwalt5417]

🪽🤍🪽

[@kt_kroovy1031]

❣️🦇❣️🦇❣️🦇❣️

[@sunsayer]

Why are you filming Rens pain

[@PeteFindsObscureStuff]

I'm not filming Ren's pain. He uploaded these himself in order for other people to understand the difficulties and issues with chronic illness.

[@SandraP3796]

He wanted people to see his journey through his illness. It made him feel better