RNL 2021 - Iritis and HLA-B27: Dr. Robert Wang

[@johnhawkins7274]

I've suffered with iritis since 1982, with bouts once or twice a year. While looking for treatment for rheumatoid arthritis, my doctor tested for HLA-B27 and found it in me. She then suspected ankylosing spondylitis for which I'm now beginning to exhibit symptoms. Combined with juvenile idiopathic arthritis as a tween, my life has been a long history of autoimmune diseases. And I cannot afford biologics. Sigh.

[@susankapur4364]

Wow! Interesting. I'm HLA-B27 positive, have glaucoma and my eyes get red and hurt a lot. I'm going to discuss this with my ophthalmogist when I get my eye pressure check next month! Thank you!

[@bonniebennetsen3622]

Very informative. I have recurring Iritis & trying to find the cause. Testing soon

[@robertavisevic4331]

Great talk. Thank you for sharing.

[@Barbkr777]

I'm curious what you think is great about it

[@VancityComputers]

Being HLA-B27 gene positive... fasting initially followed up by meat with cinnamon helps. Also green tea. To fix long term, animal fat keto should help repair the colon.

[@Barbkr777]

That's all discuss Operation Paperclip in medical school good place to start

[@leahanneesch6546]

Very good presentation. Where do you work?

[@thelioness6102]

My vision is getting worse I have Hla b27 Presents as AS and psoriatic arthritis I went to eye Dr bout 3 years ago and have had scleritis red eye super painful swollen in middle of eyeball during the flares But more in last year it’s been trouble with seeing in longer periods I was given steroids about 2 years ago and this year it’s gotten worse I just got new glasses last month with a stronger prescription and I’m already having trouble seeing again I’ve been on Humira Do I need something different? I don’t understand why I’m still having flares on it and not being able to see well Can I loose my eyesight completely? I’m very frustrated Thank you for the video it’s been very helpful Do you know anyone in Illinois? Wish you were here You seem very passionate and knowledgeable

[@rafidiraq9682]

Talk to your rheumatologist , and to make sure a humira it’s working or need to go with different injection, I hope you feel better soon

[@thelioness6102]

@@rafidiraq9682 thank you

[@thelioness6102]

What’s frustrating is the dermatologist prescribes the Humira and when I said my eyes were getting bad he said go to eye Dr I said I did and I got steroids I said the pharmacist said I might need another shot every month when he asked me questions and I told him that my eyes were being affected So told dermatologist He said your eyes have nothing to do with psoriasis and your psoriasis seems under control I said but isnt it a side effect of my AS and PA my flares are attacking my eyes and he said talk to your rheumatologist So I did and they said go to eye Dr No one addresses it as a whole and I’m like do they not understand that AS affects the eyes? The rheumatologist doesn’t prescribe the Humira The eye Dr told me to talk to the other Dr bout increasing Humira because they can’t I just go in circles it’s not a managed plan that’s what get frustrating Wish I could find a Dr who knows about AS

[@rafidiraq9682]

@@thelioness6102 make search for the best Rheumatologist in your area and talk to them about the good treatment for your symptoms

[@Barbkr777]

I'm sorry that you have to be victim of this ridiculous system that has no clue about what to do for you even though the cures are easy