Roger's story: ALS research at Washington University School of Medicine

When Roger was diagnosed with amyotrophic lateral sclerosis (ALS), a debilitating neurodegenerative disorder, he decided to participate in a clinical trial at the ALS Center at Washington University School of Medicine in St. Louis.
Learn more at alscenter.wust...
Note: This video was filmed before the SARS-CoV-2 pandemic.

[@thefrase7884]

I was recently diagnosed. 33 years old. If it it can happen to me it can happen to anyone. Still minor symptoms for now. I’m a former marine, including a 3 year rotation as a DI. God bless everyone battling this horrible disease and God bless their families and loved ones

[@ikaikahoskins1094]

I haven't been diagnosed. But I'm having facial twitches. Leg twitches, arms twitches everywhere, been feeling myself getting weaker over past two years and I used to be near pro level athlete. Do you have any input on this or similarities. Could you tell me a bit about your onset of symptoms that led to diagnosis

[@DClean]

I was surprised to learn that only 5-10 % of ALS sufferers were hereditary, the other 90-95% seemingly develop it at random?? So it really can happen to anyone

[@thefrase7884]

@@DClean …..its tough Sam…I’m still pretty much mobile / dependent but I’m starting to feel the weakness at times

[@Myworldmymind908]

So sorry to hear this has happened to you . Have you ever taken a Flouroquinolone Antibiotic ?

[@Myworldmymind908]

@@ikaikahoskins1094 sorry to hear what you're dealing with . Have you ever taken a Flouroquinolone Antibiotic ?

[@pipewelda]

I’m 52 and was just diagnosed back in January of 2023. I don’t wish this on my worst enemy. It’s just awful having to live with this.

[@peacemaker710]

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[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@smokejc]

@@jamieplercemilson7144 pathetic

[@stevi6236]

The Dr said it…… “BRAVE volunteers “…..this man is a warrior ❣️blessing of strength & peace❣️

[@l.saucedod8865]

I have this disease for 5 years. Now I know that it affects each person in a different way and speed of advancement. I also know that although slow in my case; the deteriorated never stops. I move around in a wheelchair and my arms are very weak. Not having hope and seeing the dark future that awaits me, depending on others, for my basic functions makes me wish a quick end.

[@abhrajitsaha7]

Take care sir😔😔😔🙏🙏🙏

[@shanhe7914]

Please accept Jesus Saucedo…. In Him, we have real hope and free everlastingly life

[@joyceknursecanada2460]

I believe that no condition is permanent , I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFw

[@joyceknursecanada2460]

​@@shanhe7914 I believe that no condition is permanent , I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFw

[@pipewelda]

I know how you feel buddy!

[@suessosimplesogoodrecipes5410]

you are an angel Roger...thank you and bless you and your wife.

[@joyceknursecanada2460]

I believe that no condition is permanent , I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFw

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done

[@mairim4578]

My son in law just passed away from that illness,so sad for those who are going through with this illness RIP

[@mikehancho2082]

My dad died of ALS but he was a stubborn hard working man from Chicago. I respect his hardness, but I wish he had fought so that others may benefit. He stayed in the denial stages until the end.

[@joyceknursecanada2460]

I believe that no condition is permanent , I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFw

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@MrRawMonkey]

My good friend was diagnosed with ALS aged 61. She was super fit and healthy yet died just 4 months after diagnosis. I am still in shock.

[@joyceknursecanada2460]

I believe that no condition is permanent , I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFw

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@westfield90]

My friend was absolutely fit but needed spinal surgery for a lingering back pain issue. After immediately after surgery he developed GI issues where he couldn’t eat much. Over the next year he lost a lot of weight since he couldn’t eat much. He saw specialists across the medical field with each saying they couldn’t find anything wrong. Finally after two years later he was diagnosed with ALS. He’s now wheelchair bound. I saw a British medical journal paper that perhaps there was a correlation of spinal surgery and subsequent ALS. Not indicating that it causes it but the trauma or manipulation of the spinal chord could have accelerated or triggered it. For my friend the spinal surgery was literally like flipping a switch to ALS

[@20usuario]

Hi, iam a 30 years old man. I had fear to had ALS, after visited a Chiropractic i begin with dysphagia, i lost weight too. All this after Chiropractic moves. So, maybe your theory is true. Im sorry for your friend, i hope he still fight with this horrible monster. My english isnt good, so, understand please.

[@peacemaker710]

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[@peacemaker710]

@@20usuario Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@kellyofthehead]

I've currently got symptoms and I'm terrified. Wait times for a neurologist here in the UK is up to a year currently, I can't even get to see a GP. I had two spinal surgeries last year for cauda equina. My leg was getting better ....now it bad, as well as both hands. The spinal team keep saying it's nothing to do with my back. 😢

[@westfield90]

@@kellyofthehead I’m so sorry to hear this. Best wishes to you and hope everything works out well for you

[@scottlee8498]

It always seems to choose the most amazing people. RiP Roger.

[@joyceknursecanada2460]

I believe that no condition is permanent , I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFw

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@kityumcashcokityumcashco5740]

RIP Roger.

[@Haste25raho]

Why you say rip, what he is no more now??

[@gunnerhiro394]

@@Haste25raho - he died in 2020

[@Haste25raho]

@@gunnerhiro394 my father is also died in the last month

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done

[@DCFunBud]

What a brave loving couple.

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@zentafergiefergie7044]

We should be so thankful God bless you mate rip🥰🙏🦚

[@latebloomershorts]

You use the words “god, bless, and thankful” and an emoji to top it all off. Go eat a rock. Maybe top it off with a side of gravel. WAKE UP from fantasy island.

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@thewatchcollector007]

my dad has been taking statins from 2017 and got diagnosed with ALS in 2020, and passed away this year

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@peacemaker710]

@kris scarpetti Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@JuanaGal220]

May I ask.... I'm still on the waiting list to see my primary doc.... I've had numbness in one arm.. it's oon and off all day. Both arms and left leg move in a spastic manner sometimes. Hadd any of you had these symptoms?

[@janeacusar]

It makes me really sad. I noticed this symptoms 2 yrs ago from my forearm but I was told , it was from my carpal tunnel. But last night for the entire night, for so many hours, my left arm bicep muscles was moving uncontrollably on its own. I massaged it, took a prescription muscled relaxer, and it didn't help. I can feel it even in my sleep. It doesn't hurt but it sure does bother me a lot. I took a video of it so I can show it to my doctor. I will also show the video of the one on my forearm. I have had an MRI of my brain I think last year but it came out normal. I might request for more test or even a spinal tap if needed. I do have a really bad weakness in my legs and my arms. I cannot stand for long period of time. I get tired so easily. Fatigue that is , yes. I do have an auto immune disease as well. And I have had a stiffening of my inner left thigh muscles that rarely happens since 2012. But when it does happen, it is very very very painful. A feeling that is hard to describe. But I used to be a health care worker, and I have had patients with MS and when they are in pain, I can almost imagine that pain I have in my inner thigh and it hurts me to watch them in pain. So, I might request for a spinal tap just for a peace of mind. I really hope sooner, doctors will be able to find something to help with this disease. To those who are suffering, and to their families, I cannot imagine the pain they are in. And me seeing that symptoms I showed last night, I hope it is not. It scares me because my kids are only teenagers, and I am a single mom, with both their dads, not helping me and not in communication with us nor with them. I have to do everything to find out what is wrong with me to find a way to slow it down if ever.

[@Myworldmymind908]

So sorry to hear this . I pray wellness over you . I have a question... Have you ever taken a Flouroquinolone Antibiotic?

[@janeacusar]

@@Myworldmymind908 No, I haven't. What's it for? Oh and thanks.

[@Myworldmymind908]

@@janeacusar Be grateful you haven't. It causes symptoms just like ALS and or MS . I've been damaged by this class of antibiotics two years ago . Flagyl is also another brutal antibiotic

[@janeacusar]

@@Myworldmymind908 oh that's good. Really good to know. Thanks for the great info. Will take note. Pks take care yourself too. Praying for all of us. 🙏

[@joyceknursecanada2460]

I believe that no condition is permanent , ,I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFw

[@clintblinks8946]

You're such a kind Doctor. After many years of Having ALS disease I still find a kind Doc like you that Helped me get reserved my Als disease with his her bs. . God Bless You #drjuderobert

[@emilywilliams6157]

Great

[@joyceknursecanada2460]

I believe that no condition is permanent , I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFw

[@peacemaker710]

@@emilywilliams6157 Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@jamieplercemilson7144]

​@@emilywilliams6157 Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@littlevol15]

My uncle is also suffering from this horrible disease. I live several states away but I want to help. He has no one, no caretaker. He hasn't been able to work so he lives in horrible housing conditions sharing 2 bedrooms and 1 bathroom with 8 other strangers and no one who'll help him. My heart breaks open for him and his situation and I would give anything to be in a different stage of my life where I had both the financial and professional freedom to move up there and be there. He can barely talk on the phone anymore because he has a hard time answering it or talking. I'm just not sure what I can do.

[@unforgotable1]

I am so sorry to hear that, my dad has als and its horrifying to think someone alone dealing with als. I hope you can get to him somehow, maybe you can transfer him to your place. I hope the best for you guys, stay strong!

[@pamalojo]

Will adult protective services help in a situation like this? It sounds quite bad.

[@philipancell516]

@@philipjackson5348 stop the feeding bologna!!!! Just ✋ ✋ STOP

[@joyceknursecanada2460]

​@@unforgotable1 I believe that no condition is permanent ,, I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFwv

[@joyceknursecanada2460]

​@@pamalojo I believe that no condition is permanent ,, I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFwv

[@michellesantillan7312]

Rest in peace.

[@SusanDayz3912]

Can the muscle weakness come and go? Meaning can you feel good in the morning after a good nights sleep only to have the muscle weakness increase as the day goes on? Or is it constant?

[@joyceknursecanada2460]

I believe that no condition is permanent ,, I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc kzbin.info/door/7Qx8cMXo_vf2rwcTrt_CFwv

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@davidfleck9635]

Yes I would hope one day they will have a cure but it's like there's no cure for cancer yet it's so sad some people do recover from cancer but you don't recover from ALS my husband had it he died 6 months ago he had it for two and a half years there's not a day go by that I don't miss him I was just caregiver and wife

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@tvismyonlyfriend]

My Dad is presenting similarly to Roger

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@amandasmith749]

Hello I watch this video I am waiting for a diagnosis. Would mind if I ask some question?

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@yonishperling1531]

Bless you and I wish you health

[@zentafergiefergie7044]

When you watch these people you know your blessing of how luck you are covid is nothing compared to this even in covid we didn't learn to be compassionate enough we are back to our selfish ways I some countries

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@melmcbroome8726]

Prayers!! God bless him

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@chriscipiti6005]

Anyone here after Börje Salming passed away from ALS?

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@dligg413]

Could stem cell treat this issue ?

[@carleenjohnson9063]

I have seen videos on a channel on here called Your ALS Guide, it has alot of info, some on Stem Cell treatments that have helped patients, but it is very expensive.

[@dawnbaker7861]

I lost my sister 12 years ago to this. It's awful.

[@funkyflights]

Oh no he already passed ? :(

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@InsightsAbroad]

Drugs? Isnt that a silly solution? Lets focus on gene therapies!

[@peacemaker710]

Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments. Visit @DrChala1 on KZbin channel and get this done .

[@Minnie_Minnie123]

กำลังรอผลที่แน่ชัด ความเป็นไปได้95%ที่จะเป็นals มันทำให้ฉันหัวใจสลายที่กำลังจะตาย

[@Susan-bp2ft]

Hi

[@jamieplercemilson7144]

Dr ubarlo on KZbin here, thanks for all you have done. me and my son are doing well now and free from this ALS, I will keep letting the world know about your good work sir Dr ubarlo I'm convince he can help you with any health issues like this

[@BalletShoes-c1k]

My brother aged … 80 got it 😳☹️.

[@Donnie-u9i]

He was 40 at death....

[@elainerobertson1988]

60

[@DRE383]

Nationwide Insurance/Ohio Health/Orthopedic One/Chiller Ice Rink fucked up my back/spine/shoulder/neck/arm aka massive nerve damage

[@DRE383]

i guess that their reasoning is, the more that people get hurt/physically-injured, at their ice rinks/the ice rinks that they brand/sponsor, the more money that they can make at their hospitals... aka 1 Timothy 6:10

[@pjob123]

This is why I’m an atheist! If I had the power to cure this disease I would in a heartbeat. May he RIP!

[@philipancell516]

Right there with ya!!

[@lizbethtrejo9382]

It is a horrible disease but God only knows why this happens we have to trust in him. God bless you!

[@pjob123]

@@lizbethtrejo9382 I will never trust him. He’s not a loving god to not cure this disease. God can go to hell.

[@reinhardvonhoengramm7842]

God does not bring suffering into the world - that is the work of sin, and of the accuser, the evil one. Rather, God permits it to test our faith. Sorry your faith has failed you. As a Christian with these symptoms… I am not giving up an inch. Peace, friend.

[@pjob123]

@@reinhardvonhoengramm7842 Are referring to the devil?