The Maizie Rae Story - Life with Mitochondrial Disease

[@catherinesemeluk-brown327]

What a beautiful story of a beautiful little girl and her family. Thank you for sharing Maizie's life with us Amanda.

[@user-jc6ok6cf7m]

What a beautiful family, May God Bless the parents, in reading the comments I realize Maizie has passed. I understand some of the things this family has gone thru. My son was 17 when he was diagnosed with Leigh Syndrome. My son is now 33. It is a difficult journey but I believe parents with children with lifelong diseases are chosen for this. M

[@lisamiddleton2219]

Sending love & prayers to you, your husband & your beautiful little Maizie Rae.

[@debbiemacrae3609]

Beautiful story of an exceptional family💜

[@chicfromthesticks8900]

Hope she is doing well... 4 years on. ❤

[@Winter11158]

She is beautiful little girl

[@flame-on-3]

Love

[@deliciaford4343]

I thought they lived in Toronto, Canada and that all medical healthcare is free. But from the way the mother speaks about the medical expenses I am surprised.

[@amandashea1176]

We live in Moncton New Brunswick. Being seen by a doctor is free (we pay though federal taxes) however all of the other expenses are not (ie; medical equipment, support care worker, medical trips, certain medications that are not covered, transport, parking ect)

[@deliciaford4343]

@@amandashea1176 Wow thanks for explaining all of that. I just thought that you can just decide you want to go to the doctor and just go! And get everything from A to Z just because everything is FREE FREE FREE!!!

[@lmrharper3586]

@@amandashea1176 so sorry you lost your little sweetheart , she was adorable.

[@judy-9999]

The mum said they flew home in a private jet because of the plastic tunnel (missile). Private jets cost $100, 000 - $300, 000 (hundreds of THOUSANDS $$) per trip. That’s outrageous. I’m certainly grateful to Canada for providing opportunity to save a human life, if the parents (&/or family & friends) are able, willing & capable to work at it. I wouldn’t want any parent to be refused medical service especially the way they refused my sick newborn child in 2002.

[@deliciaford4343]

How old was she when she passed away. Thanks

[@amandashea1176]

Maizie passed away June 2021 (She was just shy of her 5th birthday)

[@chicfromthesticks8900]

​@@amandashea1176I am so sorry to hear. I hope you and your husband are doing OK. Since condolences 😢❤

[@MaryettaGraves]

Sadly she passed away in July of 2021 👼

[@lela8081]

My niece also had same disease and passed away in 2021.She was 3 years old:(

[@chicfromthesticks8900]

Oh that is just just so sad for all of you. 😢​@lela8081

[@Odo55]

Maybe a vegan diet during pregnancy isn't a good idea ?