RSDSA's 3rd Annual Virtual CRPS Awareness Walk Livestream

Watch our livestream as we talk with teams and Walkers during our Virtual CRPS Awareness Walk on Saturday, June 11th.
Participants included:
→ Jim Broatch, RSDSA's Executive Vice President and Director
→ Kelly Considine, 3rd Annual Virtual CRPS Awareness Walk Chair
→ Team Kelly's Crusaders - Torrington, CT
→ Cassie Christensen and Karen Spear Ellinwood - Team Just Keep Swimming - Sacramento, CA
→ Josh Borg - Detroit, Michigan
→ Lynda Louisa Avallone
→ Debbie Josiah
→ Rose Temblador & Kristie McCurdy - We're on Fire! Walk, Roll, Stroll CRPS Awareness Walk - Cypress, California
Learn more about virtual walk here: bit.ly/3Hf3WHs
To learn more about complex regional pain syndrome (CRPS) and reflex sympathetic dystrophy (RSD), visit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)’s website at rsds.org.
#RSDSA #CRPS #RSD

[@traceywilkins6013]

Love to all you crps warriors from wales uk ❤️❤️❤️❤️🙏

[@lulukuc8250]

Diolch yn fawr.

[@debdel2871]

From Pennsylvania here!

[@tastyrecipesonabudget1689]

Is the noise from the walk or an event in the background ? Or just because they are outside? Oh, never mind, it was , I had to mute most of the video in the beginning especially. Maybe mute the source of the background noise next time guys 💕 it was really difficult. I certainly would like to have something locally in my area. Are we able to address issues with access to pain care ? Is there any advocacy surrounding CRPS patients who are not able to get proper pain treatment? I feel like the focus has been solely on ketimine, which is great for those who it’s worked for , or can access it. But many are suffering and getting advocacy for pain care is extremely difficult for CRPS patients, we need to first educate the medical professionals, while addressing the misplaced war on pain medication. But we have hospitals who will not even look at or acknowledge a CRPS protocol. Or they will ask CRPS patients to leave for even mentioning the protocol or need for accommodations for emergency or medical care. How do we combat these problems with support/ advocacy? I really would like some help with the local hospitals and colleges who are employing and teaching our medical professionals. It’s dangerous when CRPS patients have other issues going on that they need to seek medical care for . A car accident, COVID , other injuries or illnesses, often go untreated or patients avoid medical care because they have to worry about a flare , or pain getting worse from how we are handled . Or the noise , lights , IVs ,or a medical team unwilling to acknowledge CRPS in order to provide care safely . Pain care is almost non-existent , so if a CRPS patient needs dental work, but it will cause a flare without proper pain care. Or if there is an injury not treated that is painful, it can initiate CRPS to spread . These things need to be addressed.