RYLEE'S TYPE 1 DIABETES UPDATE!!

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[@lexieee2443]

Day in the life of riley and her diabetes management!!!

[@Dreamy_paws]

Good idea lexieee btw I am a type 1 diabetic

[@jamiefrancis9693]

Thank you Rylee for sharing. ! You are courageous and so responsible! You have accepted your condition and still living and doing what you want to do! You go girl! Jensen you love your sisters so much! It shows!

[@emma663]

Rylee has been so strong. I love her new hair 💖❤️

[@SunShine-zy9vj]

Hey Rylee and Jensen 🙂 So, glad your dealing with the diabetes so well. I Pray that God continues to bless your entire family. Thanks for sharing and educating us.

[@kelina1666]

Im 10 years old and just got diagnosed with T1D as well, i can relate so much to this video and on how me and you both found out. So many people confuse type 1 and type 2 i hope one day people learn more about type 1 and the difference between the two

[@avas.5016]

I love your hair so much Rylee! It’s amazing how good you are doing with your t1d. I have a chronic illness as well, and it took me like 2 years to get things under control. I also agree that it’s hard mentally some days, it really hits me when I see people doing things that I can’t/should do like eating certain things like you said. Love you!

[@DisneyNuiMOAdventures]

Love you guys and love watching your videos. I’m so glad Rylee is doing well with her diabetes. I’m so sorry that happened to her. She don’t deserve this. She is a very strong sweet girl. Prayers for her to help her feel better and to help her get through this. Please keep us posted with her diabetes updates and how she’s been doing. Sending you all love hugs, prayers and positive vibes. 😘🤗💜💜💜💜🥰🙏🏽✝️

[@sachadaher]

you guys are so well spoken, thank you for educating people on type 1 diabetes.

[@valwerner3376]

Rylee, what a special young lady that you’ve become. By the grace of God you can live out a fully fantastic life. My little sister was diagnosed with type one childhood diabetes when she was very young. Today she is a mother of Five and lives a beautiful life with the help of family, friends and most importantly her relationship with Christ Jesus our savior. You keep strong and happy. You deserve the best. Helping younger people maybe a calling, a calling from God. This is special. You are special! Never forget this! So proud of you Rylee. The world isI praying for you. Be strong, chin up ⬆️ Have the most beautiful holiday season. 🌲❤️🙏🏻♥️

[@robynbroussard8315]

I have been type 1 diabetic for almost 40 years. I love my Omnipod and Dexcom and you can set it to different amounts for when you dance etc. Once on the pump you stop using the lantus. Also, when your blood sugar starts to drop you can stop the pump from giving you insulin for a certain amount of time to stop low blood sugars. I fought getting pump for years but now wouldn't go back!

[@alial-qasim2453]

I was 22 y.o. almost 23 when diagnosed with t1d around a month ago in the middle of university, as Rylee said you put a lot of work but it is not showing because your body cannot get enough glucose due to lack of insulin that happened to me in the middle of exams, it is hard in the beginning as it appears to me but every hardship in this world can be overcome with courage. Stay strong everyone

[@hatorade1031]

My boyfriend was diagnosed with diabetes when he was six, and now he's 18 and we've been together for almost three years. The most important things that I learned were how his mood is effected by his bloody sugar, how to administer his emergency glucose shot, and how to take care of his Ketones if they're high (and the warning signs for high ketones). I've checked his sugar before, and I also help him to pack his diabetes snacks. Also, my boyfriend has a pump (I think it's one of the newest medtronic models) and it's super sturdy and he likes it because he doesn't have to pack the syringes and have to inject himself with every meal because his insulin is literally on his person at all times. and one sight every three days was better than a needle every meal/snack.

[@sophiem3938]

So proud of Rylee! She pulls off shorter hair so much!!💗

[@sophia-rb7ou]

She is such a strong and sweet girl God bless you

[@addisonmiller7493]

Rylee's HAIR!!! I LOVE IT SOOO CUTE! My mom has been getting built bars forever now and they are so freaking good! I bring one to school everday for lunch!

[@adrianasoto8573]

Rylee, your perspective is so positive and refreshing! My husband has been type 1 for 30 years , i met him as a T1D in high school ❤️ Something that has helped us tremendously is we’ve joined a monthly T1D meetup group , all ages are included and it’s super nice to meet people going through the same thing and knowing you’re not alone ! God Bless you ❤️ keep inspiring!

[@trumpwon8972]

Rylee is beautiful and resilient! Love her gratitude ❤️

[@kristenbrown9782]

Rylee, you are such an inspiration and role model like Jensen said to look up to and for anyone who also has type 1 diabetes and thank you for this video, and being a voice. You guys are awesome and so beautiful, and I enjoyed this video and just hearing more about how Rylee is managing having type 1 diabetes, I know it is so tough but it can be manageable so thank you for this. I love you guys and the weekly videos and I am looking forward to the next one as well. :) :D !!!!

[@Selenelaszlobjj]

I've had type 1 for 9 years now. I, like you, was a dancer when I was diagnosed and too I found a tubed pump to not work for the amount of hours I was dancing. I did MDI (injections) for the first 6 years of my diagnosis. I liked it and it's what worked best.

[@schmidtfit7037]

I love the variation on you guy's channel. We get sister together content and individual content. It's always interesting and entertaining.

[@Nannerchan]

You should update the opening. Sage has grown so much since the last one.

[@EliannaHorner]

Soo proud of you Ry!

[@claireduckworth7659]

Thank you Rylee for sharing! You are so strong!

[@myhuyennguyen7883]

love the hair rylee!! also love the diabetes updates!!

[@danaking9676]

Glad everything is going well Rylee! Please post more dance videos! 😆

[@justinakiefer8505]

Love your videos and I want to try the built bars and I am happy that rylee is doing good

[@pamjohns1520]

Thanks for sharing….you are doing great and with such a positive outlook. Inspiration to others!

[@amz5227]

Just discovered ur acc n it makes me so happy tysm for uploading vids abt diabetes ur family is so cute god bless

[@deborahann1997]

Watching this video while I change my freestyle Libre sensor. Love you guys 😍❤️

[@ericah7820]

I don’t want to scare you but make sure if you’re considering a pump to look into the rates of infection or malfunction to really make sure you’re making an informed decision. I’ve seen a lot of realllllllly sad cases in regards to this and families always say they wish they knew

[@gweisa899]

I would recommend Rylee looking at the different types of pumps and there pro and cons vs shots she is doing. What would be good. For her life. Since there is several types like Medtronic.

[@addicook9873]

Type one diabetic or 10 years today! So glad to see how you handling diabetes and the update! I can tell your much more comfortable with type one in general, can’t wait to see more updates!

[@rileycrawford1766]

Hi. There is an insulin pump that is just a small pod on the skin and a wireless controller. It is called the OmniPod. While pumping, you are getting constant doses of Humalog or Novolog. Those doses are called basal insulin, and they replace your Lantus shot. The cool thing about the pump is that you can change your basal based on your blood sugar. I would recommend Think Like a Pancreas by Gary Scheiner. The book explains things really well and was written by a t1d.

[@garrilynhoward5183]

Hey Riley, make the people who are close to you know about your DM, so if you are having symptoms of low sugar they know what to do. Not casual friends but ones you really hang with. Keep up the good work!!!

[@amandakisiel9313]

They say put built bars in the fridge which is good, but I’ve found that they are even better when you warm them up for 10-15 seconds! Tastes like a warm brownie!

[@ttulady06]

My 11 yr old daughter is type 1… diagnosed 1 Month ago. So wonderful to be outspoken and an advocate for education. So many misconceptions and ignorance out there. Keep goin 🙌

[@martinschmidt2683]

A rare combination Rylee and Jenson. In the future, she just has to watch her values. In a year at the latest, she will know without help how many BE she has on her plate.

[@katiejones8310]

Yeah we

[@theresejustynetomanengd8704]

Love you girls! :)

[@skylahellem5671]

Her hair look sooo goood

[@subbimadhavan9728]

Love her new hair! Also where is Riley's Nirvana shirt from? It's so cute

[@anakarengutierrez8684]

it's from urban outfitters, sold out:(

[@pearljessop1877]

I’m a T1 diabetic, I have the tslim and love it, been using it for 5 years! It unplugs and is pretty flat on you and also when updates on it come out, all you have to do is plug it into the computer and update the software, that way you’re not having to send the pump in.

[@summerkeel1830]

i love rylee’s hair🤩

[@diannathurow9292]

I tried the Built bars. I like them.

[@edwardleecaliforniausa]

You guys are all amazing umm I just wanted to say that you both are sweetheart

[@Steeler86Fan1]

Bret Michaels from Poison has had Type 1 diabetes since he was young.. he's 58 now and still doing great. He is a huge advocate for it.

[@adonafortune231]

I love you all ❤️❤️❤️❤️

[@katherinecollins4685]

Rylee is amazing

[@summerkeel1830]

hey i love y’all

[@confused124]

Same I love them.

[@sshannondaviss]

I take 30 units of Basaglar (another brand of Lantus) in the morning and another 30 units at night and that sting is so accurate! It’s definitely the most hurtful shot out of them all.

[@Cesteth]

u should do a vid where u rank ur fav flavors of Built for each sister

[@itsbittersweetest]

Please ask your Dad to research other long acting insulins like tresiba or levimer .Lantus was one of the first long acting and has been much improved. Pumping or injections both get insulin into you. Injections don't malfunction in ways that having a pump site can... It's a different type of planning and expense. Read the book Sugar surfing, it's a cool book about using a Dexcom cgm. Shots can be just as good, don't let anyone tell ya different. Do what works for you it's all options and your active lifestyle there are advantages to shots. BTW you can wear Dexcom anywhere, I love my forearm or in front of my armpit, it never gets bumped. My question for you have you decorated your transmitter if it's visible I use nail stickers and add some glam.

[@melaniejones2238]

I'll keep you in my prayers too sweetie 🤗💜

[@apriltownsend8463]

Are you guys gonna film a new intro now that Sage is a year old??

[@confused124]

Hi ladies

[@jordancoe-demoore1620]

Do the imnpod it's amazing

[@missterri8207]

Rylee, you are doing just fine and will be a pro with this thing. Love the haircut.😍

[@maryanncantila1167]

pretty much.!! more update on your t1D..

[@AdelaCandy-cv6um]

Can you do a day in the life

[@Justthatgymnast]

I mean I research diabetes and it gets me worried so times cause it feels like I have it in my brain but u made me not worry as much so thank u of that

[@confused124]

Where can I find built bars in nyc.

[@summergirl3671]

Also try Amazon.

[@matthewhood2428]

Y'all so cute

[@marylonergan8511]

that's looks good, where can I get it anybody knows?

[@jazzyjen5083]

I’ve actually noticed a lot more dexcoms just when I’m out and about after seeing you wear and talk about yours

[@magenpetroski8691]

A said the same thing about not minding giving shots and refused a pump but eventually you get burned out from shots and you’ll be like give me a pump rn lol I have the tslim x2 now and love it.

[@sshannondaviss]

I definitely felt this. I’m a T2 diabetic and chose the shots over a pump because I knew that my insurance would cover the supplies to do shots more than the pump and supplies that go with it, but I’m a year in and completely burnt out. Even checking my blood sugar without a Dexcom is burning me out 😩 especially when a shot and BG check needs to be done every two hours. I’m thinking about switching because I feel like it would be worth the extra cost out-of-pocket.

[@magenpetroski8691]

@@sshannondaviss I would say it’s definitely worth it. It mostly just saves the hassle and it’s so simple.

[@shakirasmylie6178]

You are not alone because I have diabetes too I have it since I was 10 and you are very tough person managing your diabetes 🥺❤️

[@nicolemarie6463]

nice

[@JewelBelleLove]

🧡🧡🧡🧡

[@magenpetroski8691]

The reason you have to switch the location is because you will get scar tissue in that area if you continuously put it there and then it just doesn’t read properly or you will get more sensor errors

[@hunteralgeria1453]

Rylee i love you

[@ItsTamerah]

Only 2/9 Built Bars Are Good It’s Good If You Like Dark Chocolate

[@be_happy7986]

will you ever get an omnipod

[@pumpergirl]

You should get an Omnipod it’s tubeless

[@lexijacoby1163]

if you get an omnipod you can dance with it on!

[@koreensanders4281]

Please tell me I’m not the only one to go crazy with the crackling of the built bar wrapper😳😉

[@SW01]

I have a harder time watching them chew while talking with their mouths open.

[@lydiad_type1journey989]

i was diagnosed whith type 1 Diabetes when i was 6 &know i am 7 it is hard

[@bakeryqueen5311]

I had COVID when I was getting diagnosed in the hospital and then I came back and my friends said it was funny I had it because they don’t understand and they think it’s just a once and done shot, I got it the Monday after thanksgiving 2021, I just switched from my suringes to the pen and I like the pen a lot. I cry a lot because of it and it sucks my friends aren’t really here for me, but hopefully as they understand it more they start to realize it’s actually not funny and my life sucks. Oh and I got my period a week after being diagnosed it was my first one ever and my mom was worried because I was getting older and it wasn’t coming but we later realized it was because of my sugar levels. I was also really sad about that. So yeah, also I’m failing ela rn

[@tiffanyclark956]

What do eat on a daily basis

[@manurmuhammad555]

Did she get her libre or pump yet?

[@kelly7905]

If on a pump you nolonger take Lantus. I been type 1 for 23yrs and up until a yr ago I had been doing shots. There is no right or wrong it's what u like most. Keep up the good hard work.

[@kristithepamperedchefgal931]

T1D for 39 years. Having a pump is life changing. I began pumping in Feb. 1999. Keep up the great work, @Kelly Huckins.

[@kelly7905]

@@kristithepamperedchefgal931 thanks I actually had to get on a pump I was never feeling my lows so I'd get down to 25, 22 all the time and not know it, but one day I was just caring on like any day and checked my sugar cause my mouth was dry so thought I was high NOPE I was 15 and nothing. So it was to dangerous for me so being on a pump helped me not go so low and now I feel lows at 75 so it's better lol. Crazy

[@kristithepamperedchefgal931]

@@kelly7905 that is part of the reason why my endocrinologist was encouraging me to get one. I have been hypoglycemia unaware for about 30 years. The other reason why was my work schedule as a RN it was too crazy to stay on my short acting and my Lente insulin’s. It’s nice to not have to worry about eating at a certain time and waking up in an ER.

[@kelly7905]

@@kristithepamperedchefgal931 right i don't miss those days either yeah im a CNA so yeah for no more Lantus it's so much easier with a pump.

[@kaitlynumbach2393]

Hi

[@thefabfuller4wileyadventur623]

The reason that they want you to change where are you inject yourself and also Where you put your CGM is because of scarring tissue that can occur when using the same site.

[@kendrawatson662]

When I found out I had diabetes I lost 30-40 pounds in one week they thought mine was type 1. But thank God it’s type 2 🙌🏾. And I say thank God bc type 2 is revisable I’m on no medication at all for mine I control it by diet and exercise. But I still have to check my sugars but I only check once a week tho

[@alial-qasim2453]

May I ask you at what age your diagnosis was revealed? and did you get thirsty and frequent urination symptoms? and based on what test they decide your diabetes type ? and Thank you

[@sshannondaviss]

@@alial-qasim2453 | Hi! I noticed that Kendra has not responded, and I am a T2 diabetic so I thought that I would share my experience with you to give you a little bit of insight 😊 I was diagnosed with T2D at the age of 17. I had all of the symptoms, ESPECIALLY excessive thirst and frequent urination. I had been battling chronic fatigue for months as I had been living with undiagnosed diabetes, and it wasn’t until a week prior to my diagnosis that I realized something was truly wrong within my body. I became very thirsty, all of the time, and CRAVED iced water. I began drinking gallons of water each day, and then urinating 15+ times per night. I was sleeping 14-16 hours a day because I had felt so tired and sick, and actually thought it was food poisoning for awhile. I also dealt with reoccurring chronic yeast infections that were due to my body fighting hyperglycemia for so long. I then noticed one morning as I was grocery shopping that I could not read any of the signs in each aisle. My vision was blurring and I had no energy to even walk in the store, so I went home and took a nap that unintentionally lasted 6 hours. When I woke up, I only felt worse and told my mother (she is a diabetic) so she insisted that I check my blood sugar with her glucose meter. I didn’t follow the proper steps for testing, as I just pricked my finger without using an alcohol prep pad, so I got a reading of 514 but I thought it was incorrect because of that. So I followed the proper steps and got a reading of “HIGH” which meant that my blood sugar was 600+. I checked one more time to be sure and it said “HIGH” again, so I called 9.1.1. and went into the ER. They ran blood work and found that my blood sugar was 706, and I was in DKA (diabetic ketoacidosis) which is a complication within diabetes that, in short words, begins to turn your blood into acid and then can potentially put someone into a diabetic coma if not treated. Since I was only 17 years old, they told me that they did not have the doctors needed to treat me so they rushed me to a children’s hospital in Ohio (from Michigan), where they had a pediatric endocrinologist ready to treat me. There is where they admitted me for a few days and diagnosed me with T2D. There is a lot of misconceptions around T2D, and although every person is different - I was immediately put on insulin injections and other medication. I am one year into my diagnosis now, and will soon be switched over to a pump to make living with diabetes a bit easier. T2 diabetics may also have the same management plan as a T1 diabetic, which is something that not a lot of people know. I then found out that I have polycystic ovarian syndrome (PCOS), which is what caused me to develop diabetes so young. I found this out because my pancreas continued to produce less and less insulin over the last year, which led my doctors to think I may have been misdiagnosed as my treatment plan of insulin, Metformin, diet, and exercise was not working (because of this, my body went into DKA once again). This was alarming to my team of doctors, so I was sent to a specialist whom increased my insulin and Metformin dosage, and then found that I have PCOS which confirmed my T2D diagnosis. I also was diagnosed with hypertension, which is another chronic disease that goes hand in hand with diabetes. I’m now doing better than ever with an amazing doctor. I hope that helped you understand the disease a little bit better and gave you some extra information about life as a diabetic! 🥰

[@alial-qasim2453]

@@sshannondaviss Hi Shannon I am sorry to hear that and glad that you are now in charge of your diabetes with a good supporting team taking care of you also I’m thankful for the effort you put writing all the details and this was absolutely informative for me as a T1D also I was dealing with allergic asthma but it is not affecting me at all since I discovered what triggers it. What is really surprising is how can a T2D be quite similar to T1D in terms of symptoms and treatment besides that my diagnosis was one inch prior the age of 23 around 6 weeks ago from this comment’s date that after my diagnosis I took couple of months break from university then started searching for a solution to help me living a normal life, I started reading dr. Bernstein diabetes solution (audible version) and searching about the ketogenic diet simultaneously distracting myself a bit which was not a good idea as I ended up following low carbs diet which is the best choice for me at the moment and a big help to maintain my blood sugars in the range as the keto diet needs a trainer that looking after you and your progress…. also your story inspired me thank you from the bottom of my heart ♥️ be safe please

[@elizabeth5985]

I bet it's boring/embarrasing to talk about, but you really are doing a HUGE service. You're going to get kids to tell their parents when they have symptoms like yours and get proper treatment, and you're showing kids with Type 1 that you can have it and be gorgeous and a dancer, and it lets them tell their friends: "You know Rylee Arnold, that really pretty dancer? She has it too!" so they don't feel "different" than other kids. Good job Rylee. ❤️

[@summerkeel1830]

i have type one diabetes and i didn’t want a pump that had a tube because i play volleyball and basketball so i got omnipod that has no tube and i 100% recommend it i love it i was mad at myself when i got it because it was so much easier

[@themindexperiencesofnadirs1944]

🤗🤗🤗🤗✌🏾

[@mrsfsu2925]

What’s your most recent A1C?

[@gweisa899]

That are very personal

[@mrsfsu2925]

@@gweisa899 how so? Do you honestly know what an A1c is?

[@gweisa899]

@@mrsfsu2925 yes I follow people with Type. 1. Many of them do not want to tell you because it’s personal it like telling people your weight . I know want to be 6 range for being good blood sugar.

[@sshannondaviss]

If your question is too personal, she simply doesn’t have to answer it. I don’t understand some people 🤦🏻 but because it isn’t too personal for me, I’ll tell you mine - 11.6% 🤫 it’s been rough but my next one is due on 12/15 so I’m hoping for a better number 🥲

[@alisonjanvrin5448]

Many many people wear Dexcom or other forms of CGM, not just T1D. Many athletes wear them to help their performance and also T2D wear them. You will continue to learn, 40+ years later I’m still learning. Also people think that if you are T2D, it’s because you have bad eating habits. I’m T2D and that is the furthest from the truth. Although, eating healthy helps as it does all diabetics. My T2D is genetic. All my siblings and cousins from my father side of the family have Type 2 and we are all insulin dependent. I have one nephew that is T1D. So as you see, there is a lot to learn, scientists and Drs don’t have all the answers either, but it’s important to educate others around us and each other. Sounds like you are doing well, keep up the great work of educating others. Many years ago diabetes was so taboo, but I feel Dexcom and other CGM companies changed that. Love your videos, I just found them, sister are the best aren’t they?

[@angiemellon7953]

How about your vision?? I know right before you found out you had diabetes you had to get glasses. Vision issues is also a sign. Did your vision improve?

[@melindanormanblackwell8010]

You need to train yourself to say they have diabetes when you see a Dexcom cause T1 and T2 wear them. I have the pump and you could wear it with a sports shirt with a pocket for your dances or they have a belt also. Or a clip that would stay on you. You could take it off during that dance and then put it back on if its going to be a while between your dances. Hope this helps with ideas.

[@ryleepaddock1394]

How old are u rylee

[@1GGBEE]

I have Type 2 diabetes and we can have sugar too. Type 1 is autoimmune and Type 2 is genetic. Genetics and lifestyle cause type 2.

[@summergirl3671]

Type 2 also. It is Genetic. Grandmother had it. Father has it. His siblings have it. Now my brother and I have it too. Everyone always thinks type 2 is only lifestyle. But that’s not always the case.

[@sshannondaviss]

@@summergirl3671 | Thank you! It’s so upsetting to see so many people not properly informed of T2D. My grandparents, both mother and father, all of my aunts, uncles, and a few cousins have T2D which then led me to my diagnosis of it at 17 years old. I was diagnosed with polycystic ovarian syndrome at 18 also which answered that question even more. Genetics and underlying health conditions are oftentimes a HUGE factor to developing T2D. Although lifestyle choices can and have been a reason, it is not always the case!

[@sarahcallaway7479]

How old is Riley

[@emilyparker1734]

Rylee looks a little bit like Jensen, but Jensen doesn't really look like Rylee lol

[@melaniejones2238]

My son's dad tried to say that I caused his diabetes in it was very hard on all of us it's hard for my son but not eating his favorite foods is really hard on him he seemed to want to eat sugary foods more

[@allieglozier2389]

Oh that’s awful! I am so sorry that he said that! That couldn’t be further from the truth though. You did not cause it, mama. You are doing such a good job advocating for your son!

[@carlenewilliams1564]

What dance.do.you do

[@ericlloyd7993]

do y wearing a med braclet

[@hayleemarshburn7255]

I get lantus in the morning bc when I was younger like 4/5 I had a seizure from getting it at night the lantus and I get novelog every time I eat

[@korineahollander348]

As a mum of 2 boys with diabetes type one I know how hard it can be. Everything will influence your blood sugar levels and it changes day to day. Keep your head up sweetheart

[@jrock1030]

I want to be Jensons friend

[@melaniejones2238]

My youngest son is type one diabetic we found when he was 9.years old and it was very hectic the way we found out he started peeing the bed and took him in and his urine was pure sugar and his blood sugar level.was over 400 and admitted him into the hospital I was ok when I had to do his shots then he got off age it worries me that he was taking his shots he has to take a short every time he eats and at bedtime he is on a novalog pen and Atlantis shot

[@quincystucki]

How often was he peeing the bed? And how soon after did you take him in? I’m concerned about my son.