Sacha's story - brainstem cavernoma

In 2023 Cavernoma Alliance UK was approached by a filmmaker who has cavernoma, Lucy Gohm. Lucy wanted to help amplify the voices of the cavernoma community, by interviewing people with cavernoma and sharing their stories. In this film Sacha tells Lucy about her cavernoma journey.
For more information about cavernoma please visit www.cavernoma.org.uk and if you would like to connect with Lucy you can find her on instagram at _go_cy_

[@AlexFord-vw1fi]

Articulate and delicately expressed. Thank you

[@jonlarcombe3226]

Thank you for sharing; very similar to me. Seven years post 2nd surgery.

[@Aleakwe]

💛This really helps me, Obulu (thank you)

[@shayeraalam5877]

Inspirational to have 2 surgeries and live your life masking pain but having weakness in body. Knowing bleed potential.