Sarah Marshall from Banbury on what it's like to live with the rare heart and lung disease pulmonary hypertension (PH).
Пікірлер: 35
@syncsummit3 жыл бұрын
This disease is so horrible and so tragic. my heart goes out for all the people who have PH. We need to find a cure.Sarah is an inspiration.
@andrewmarshall15786 жыл бұрын
My wonderfully brave and inspirational daughter-in-law.
@wenjingsaf5 жыл бұрын
Shes truly amazing, Im a medical student, my sister died of PH, I heard they dont last long max 5 years, hows she doing now?
@naturalkinkycurlymarie74965 жыл бұрын
@@wenjingsaf People are living longer these days _(10-20yrs)_ with proper treatment, depending on the underlying cause of their PAH.
@CiniMini694 жыл бұрын
@Valerie O'Brien How are you today? You should find a PH specialist and insist on tests.
@muhammadumair-vi8wp4 ай бұрын
Can i get her email ?
@jonhdetroit24875 жыл бұрын
People think you can keep up with them and you cant so I don't bother anymore , your lucky you have someone who cares.
@andreacooper80484 жыл бұрын
Wow. My husband in the US is just starting on this journey at a severe level (and already has had symptoms for years). He is 70. I so appreciate your candor. It will help me to deal with how our life has already and continue to change.
@danyaa23 Жыл бұрын
I have ASD, ASD and PH are like best friend. I got the asd diagnosed and PH at the same time, no need long time. But i already felt it about 7 years ago bcs when i feel tired/ less breath, i think i need a moment to break then i back to normal and think i'm getting older, it's normal right when u are getting older you are easily tired
@NoodlesEaton4 жыл бұрын
My symptoms began 5 years ago and was told I had asthma. This week a CT scan revealed pulmonary hypertension as possible lung cancer (I have never smoked) - I have to wait 6 weeks before my next CT scan. I went 5 years without knowing I had this!
@CiniMini694 жыл бұрын
Hi, you never had symptoms in 5 years?
@NoodlesEaton4 жыл бұрын
@@CiniMini69 Dry cough with no blood or phlegm. I was diagnosed with asthma and GERD back then and a nodule was found on my upper right lung that is still benign. But now something is showing on that same lung. I am a lifetime non smoker although my father smoked heavily. My right neck and shoulder were hurting and thenwent away. Idid not cough one time at the hospital when they kept me overnight for evThe doctor said I had pneummonia and did a COVID test that came back negative. If I had pneumonia with no fever it would be a miracle. I am on a journey that has consumed my emotions. I did not have pneumonia. If I did it was strange.
@CiniMini694 жыл бұрын
@@NoodlesEaton Hope you'll be good. But did you have chronic fatigue or dizziness in all these years? Or just the cough?
@NitrogenOxygen-ey7wk Жыл бұрын
Hi, what were ur symptoms?
@candykittiegaming38014 жыл бұрын
This is so touching, may Allah heal you, believe and trust Him, He is the universal healer, we will pray for you Inshaallah
@NitrogenOxygen-ey7wk Жыл бұрын
She aint muslim
@Tyggzz5 ай бұрын
Thanks for sharing this ..! I’ve also been diagnosed with…!
@mr.cleanone39005 жыл бұрын
Got diagnosed in October 2018 . Getting viagra for treatment and some inhaler . But I feel fine. Luckily the v.a pays for all my medical bills. Been on ssdi since 45. I’m 52 now . On top off this I have chirosis if the liver. But I’m ok with death .
@NitrogenOxygen-ey7wk Жыл бұрын
U r ok with death?
@John-xn3sc6 жыл бұрын
Hi my wife is in hospital in papworth just diagnosed with polmonary hypertension veinal in her lungs and is being put forward for a transplant. We are all as a family devastated and absorbing the news as we were told today I just wondered if foods can help with her condition of were to look as we are completely ignorant of this dessert and don’t know were to turn to feeling very lost ❤️
@MrSongwriter24 жыл бұрын
Sadly no, but they can help a little like not having much salt as it will make the fluid retention that comes with right heart failure. Obviously weight control is important as you need to retain a healthy weight. That is very difficult when you can’t breathe well enough to exercise. However there are special exercises you can do but it’s not the same as what a normal person would do
@CiniMini694 жыл бұрын
How is your wife doing? Did the transplantation go well?
@katizz9883 жыл бұрын
Seems like doctors want to wait for the worse to happen...almost death, and then they want to diagnose.
@NitrogenOxygen-ey7wk Жыл бұрын
Cos y not?
@robinbrown7953 Жыл бұрын
They always try to say that most any problem is fro anxiety or just being unfit, if you are a woman…not the way most men are treated
@smily28882 жыл бұрын
My age is 24 Iam suffering from primary PAH Plz tell me the permanent treatment which hospital is best for this Plzz tell Mee solution It's a difficult situation in my life😭😭
@NitrogenOxygen-ey7wk Жыл бұрын
How r u now
@suprarace3 жыл бұрын
Going thru the same thing ... I’m to the point where I dread walking to the bathroom
@NitrogenOxygen-ey7wk Жыл бұрын
How r u now?
@suprarace Жыл бұрын
@@NitrogenOxygen-ey7wk I'm alot better I've found out by changing my diet has done wonders. I'm doing the keto diet
@andrewbarker4992 Жыл бұрын
@suprarace diet is the key I'm almost totally carnivor I also followed intermittent fasting keep the belly empty and avoiding carbs works well for me
@bettedavis96102 жыл бұрын
Shame on that benefits system 🤔
@snape-itachiel6167 Жыл бұрын
I was diagnosed this year with PAH and my life changed forever, I though 6 months was harsh but you say 8 years? I can't even imagine a life with these horrible symptoms for 8 years. sorry your symptoms are still harsh. are you doing Tyvaso? you can pro with echo eamination,CT etc....
@andrewbarker4992 Жыл бұрын
Think positive be thankful for everyday keep strong exercise is my saviour fatigue is a big part of this illness but believe me u will get used to it