Sarcoma Won't Wait: Andrew's Story

[@aplainjaneproduction8285]

How is he today? Hopefully well!

[@SarcomaUK]

Andrew is doing very well. He finished his treatment successfully and is back to living a full life once again. Thank you for asking.

[@sallyphillips9175]

@@SarcomaUK You need to pin this comment so people will see he's recovered.

[@faatima3]

@@SarcomaUKhow is he now? My boyfriend had been diagnosed with fibrosarcoma a few days ago and he is going for surgery soon.

[@LP-fz5xm]

@@faatima3How is your boyfriend doing today?

[@faatima3]

@@LP-fz5xm He is doing well. 🤲🏼🌸 Thank you for asking. :)

[@pantoponrosegoatoe4129]

A GP misdiagnosed me at age 13. The lump was the size of a grapefruit by the time a plastic surgeon refered me and my family to an orthopedic surgeon. They opened me up and before I was awake they told my parents that I had a stage 3 rhabdomyosarcoma. 22% chance of survival. That was 1980. I wish the best for everyone going through this.

[@mrflyingsourcer3515]

I am so glad you’re still with us today

[@kayodedaniel6319]

My dad is currently at stage 4 sarcoma. It started from the leg then it spread to his organs , he’s belly is looking almost like a pregnant woman…the doctors have already said we shouldn’t wait money on him coz he has a very slim survival rate … it’s so painful because he’s a really good man who help people around him a lot … I’m really scared of losing my dad because I want him to be at the front roll of my NBA game , I promised him I’m going to take care of him ..but this stupid cancer came from nowhere…I can’t explain the amount of tears running down my cheeks I’m sooo scared

[@pantoponrosegoatoe4129]

@@kayodedaniel6319 I am so sorry to hear that this is happening. I believe it's more difficult to watch someone you love suffer through this diagnosis, than being the actual patient. I'm sending lots of love and blessings to you and your family. 🙏💓

[@mckenziemader3446]

A lady I grew up with died 5 days ago from rhabdomyosarcoma. She was 23. It is so sad, im so happy to see you all doing well

[@Brandon-21MN]

​@@kayodedaniel6319I hope he makes it alright 🙏

[@ladychatelaine697]

My friend's daughter died of breast cancer 9 years ago. She asked her GP to check a lump, which he did, but he told her it was nothing to worry about! Doctors need to take their patient's concerns more seriously...

[@iamkaren73]

Meditation is very vital to people’s health, once we activate the minds eye the light from within heals!

[@ladychatelaine697]

@Eric Lee Sorry, Eric but that's complete rubbish. In the UK your Dr does the initial examination and has the choice to refer you on to a specialist if he/she suspects a malignancy. In my friend's daughter's case her lump was dismissed as 'nothing to worry about!' Her Dr was culpable; there was no excuse for him to be so sure it was benign.

[@Daffyduck1988]

@Eric Lee what do u they mean they scan it are you a doctor?

[@edkes123]

@@ladychatelaine697 GPs are under pressure to refer fewer people for expensive scans because of rising costs. 99% of breast lumps in young women are benign, so the GP must have made an incorrect margin call. It's terrible, but I can see how it happens.

[@Amilakasun1]

@@edkes123 free healthcare for you.

[@shekinahzion262]

My brother had bone cancer, Ostreo sarcoma, he battled for 3-4 years but it spread to his lungs and after a long fight he passed away. I miss my sibling. Being the only child really is not nice after living with my amazing elder brother for 16 years.

[@SarcomaUK]

💙

[@Exract]

Rest in peace Alexander "Technoblade" who sadly lost his battle to sarcoma but has spread a great deal of awareness to so many.

[@Hego_Damassk_The_Wise]

rip

[@kriptionite8412]

Not confirmed, but it definitely sounds like Techno’s condition.

[@maxzmoose7459]

I thought his name was Alex not Alexander but rip

[@Exract]

@@maxzmoose7459 alex is short for alexander

[@twistedbliss58]

@NerfDartsAreAndForeverWillBeLethal if you die from cancer you definitely lost to it I don’t know why you’re trying to put some weird spin on it

[@JamieStallingsworth]

It's mind blowing how doctors always go for the easiest, most simple diagnosis.

[@aplainjaneproduction8285]

Right?? You would think they would cover their tracks and at least try to eliminate the worst case scenario

[@olyacarell6434]

Doctors don't give a fuck because they know they have nothing to lose if they misdiagnose someone

[@sookie4195]

That is where you start. For example. You don’t come in with a cough and think they have lung cancer.

[@fauzianalwoga]

These days doctors only want money. They don't care❤

[@premilabenjamin4444]

Praying for all the sick and suffering. God hears and answers prayers.

[@richardbenitez7803]

This guy is very well spoken. He explains things very well. Odd, that even so, there is difficulty in insisting on “extra looks”. Doctors have patients who are not well spoken, don’t look very good, have disagreeable personalities, get confrontational. I totally agree that correct and timely diagnosis is haphazard.

[@faizahsani8548]

This clearly shows that patients r their best advocate. If u think something is wrong with you make sure u speak up and communicate. Any pain that requires pain meds is not normal...

[@3one84]

Take care m8! Im batteling right now liposarcoma!! Wish me luck guys in the war!! :)

[@godislove7500]

kzbin.info/www/bejne/qpzNn2B7e5d2jJI

[@FreesoulJazz]

God help you

[@jessehiggins8288]

hope ur doing well brother

[@AKELfortyseven]

Hopes all well

[@jintyc9133]

How you doing my friend 💖💖

[@trixie-bellfaith5380]

Sending you prayers and love. Praying for a complete remission for you xxx

[@MandaClaudiuMCM]

My gf was diagnosed recently with sarcoma on one or more top left ribs, we are still waiting for another biopsy to see what exactly it is 😥. Yesterday we went for a CT scan to make sure that it also didn't spread to other parts of the body. She's only 24, mentally she's okay so far, mostly because they didn't deliver any more bad news so there's good hope. I'm just so afraid of what follows and from a " it's going to be okay " mood we turned to " we hope it's not going to be worse" mood. I wish that everything will be okay for everyone suffering from this....

[@lindalopez5538]

My dad has sarcoma cancer and he's done with radiation but still really weak and lost alot of weight..prayers he gets well..🙏prayers to your love one as well

[@Mibonitodesinaloa]

I hope so too.

[@KP-tn9cq]

Hope she (and you!) is doing well as of today! I was diagnosed with Chondrosarcoma in my sternum in 2019. Scariest time of my life but the whole debacle has since shaped me into the person I always wanted to be. Cancer is an existential crisis that burns your life to the ground but from the ashes you grow into something far more beautiful. Sending love and cancer ass-kicking vibes to you and your gf! We can do this! 💛

[@indiancuisine24]

@@lindalopez5538 Dont worry i also lose weight at the time of treatment but gained so much weight after completing treatment like more weight than before

[@kolvaugh3762]

God Bless You and Your Girlfriend 🙏

[@khananme]

I hope you are now cured and living happy and healthy. A friend from across the pond.

[@amycolonna-robinson8335]

Bless you for sharing and advocating...awareness is power!

[@iamkaren73]

You are amazing ..my daughter had half of her tibia removed and has scar from the top to the bottom of her leg, my heart goes out to you and anyone who has had to go through any type of chemo! Stay stong and meditation is also very healing!

[@nk5io]

Worth paying for an mri to avoid waiting lists, if you need a referral from GP ( which I do not agree with, not like they are paying) then demand one. I did this for my hip with out a referral, turned out the supposed bone spur and useless physio from hosital could not be further from reality, Hip was a total mess, had to pay for total hip replacement money did not have but least I knew and it was a relief from endless pain, It would of been a 2 yr wait, no one should every have to live in pain and be pushed into a wheelchair, the £385 I paid to get answers was worth every penny. Dont let them fob you off, guessing is no good you need evidence!

[@daphneway659]

Six doctors, five of whom were oncologists, did not recognize the purple spot on my breast that indicated secondary angiosacrocma. I'm now in my third regimen of chemotherapy. It's such a scary disease. Thanks for sharing your story.

[@KP-tn9cq]

I’m so sorry you were dismissed. Please know you’re not alone in that. I was as well. Mine is Chondrosarcoma. How is your third line of chemo going? I hope it’s proving to benefit you in the fight. Stay strong. You can do this. 💛

[@Crypto_ki_duniya1-j8v]

How are you now

[@noringsis9124]

I came to know about my friend that he is suffering from this disease near his lungs . Tumor will b removed. It is Very hurtful. Very painful to know how much he will suffer in term of pain and treatment. I m watching different stories on this since yesterday and my heart is bleeding for him .

[@brucedanton3669]

Thank you for this of course. A real shame for him but as he is having treatment I hope too that he is as well as can be of course too. Thank you so too.

[@henriettadenzig5023]

Prayers. For you and your family. Best of luck in all.you do.

[@chclark235]

Sending prayers from Warwick Rhode Island, USA keep your head up mate

[@abipowell3373]

thank you for sharing your story. wish you all the best

[@timothyb949]

I had a huge sarcoma on my leg... my left calf. I'm still here! They did it. They got rid of it - minus my fibula.

[@carlbernngl]

Good to hear. Did you have to do chemotherapy or anything else?

[@JGGarcia-kh8uq]

Was it just surgery or radiation, therapy?

[@kavinsri687]

No coming again

[@babyblue7798]

how big was the tumor?

[@TheAcworthdude]

I was so lucky The GP did not like the lump and two days latter had a CT it was synovial cell sarcoma.removed in 04 then Chemo (M.A.I.D) 05. NED since then .Stay Strong

[@KP-tn9cq]

I was diagnosed with Chondrosarcoma in my sternum in Sept 2019. I had two separate GPs tell me the lump was “cartilage overgrowth” and to simply keep an eye on it. When it began throbbing and radiating with pain I put my foot down and basically demanded imaging be done. Had x-rays taken at 4pm on a Wednesday and by 11am the next day my GP called me to tell me to get down to the ER right away for additional imaging as the x-rays “can’t quite tell what it is”. He didn’t have the nerve to tell me the x-rays showed a malignancy. A grouchy, unfeeling PA in the ER came in, told me it was cancer. I think one of the worst parts of my cancer experience was that day... Being told you “definitely have a bone cancer but we won’t know which type or what grade until the biopsy comes back”. I waited 13 days for the biopsy. I was in an abyss of despair. Finally got a call with the actual diagnosis and was then transferred to the Mayo Clinic and from there on out I felt the hope. If I could give any new sarcoma patient any advice it would be to find a sarcoma specialist. What a difference it made in my cancer journey. I hope this lovely man is doing well today. 💛🎗💛🎗

[@carolejones5676]

Did you have any other symptoms before being diagnosed please.

[@KP-tn9cq]

@@carolejones5676 No other symptoms. Just a lump that had been there for a long time and it would ache every now and then but never enough to motivate me to demand more testing. It wasn’t until August 2019 when it started hurting constantly and it had gotten larger in a short period of time and was throbbing. I remember rubbing lidocaine cream all over it... if only it were that easy!

[@carolejones5676]

@@KP-tn9cq Thank you

[@b_u9096]

I have a big painless lump on the side of my thigh. Do you think i should get that checked out? I have no idea if it is a muscle or not.

[@KP-tn9cq]

@@b_u9096 Has it been there a long time? My advice to anyone who finds a foreign lump on their body is to call your GP and have him/her evaluate it at which point they will surely send you for an X-ray. And the X-rays take like five min. So easy. Not trying to freak you out. There is a far greater chance the lump on your leg is NOT cancer. But just based on my experience now, I’ve had a firsthand lesson in “the sooner you catch something, the better your chances”. So many cancers are curable if you detect them early. Again, I really don’t think you have cancer. But just have it x-rayed and then you can just move on with life. If you think of it, keep me posted!

[@sebastianbartholomew5567]

the doctors are so overwhelmed, they have a limited time, very easy to get lost in the system oh it's an ache and pain. persistence is the key, if you're not happy with a particular doctor don't be scared to request a different one and don't except the usual line " we can fit you in for 3 week's time."

[@debbiehobbs9090]

The problem is that the doctors are not taught much about nutrition. :( The body is made to heal itself with proper nutrition, vitamins and minerals from the earth vs. artificial foods laced with hormones and chemicals which the body was never meant to eat nor recognize as food. People are becoming smarter and curing themselves from it seems all diseases by consuming the right foods/drinks (Diabetes, digestive issues, cancer, heart disease, kidney and liver disease and even muscular diseases termed "uncurable"). Socrates said it right when he said "food is medicine and medicine is food". The medicines they advertise on t.v. to treat different ailments are atrocious!! Many cause kidney disease, liver failure, heart disease, cancer and even death!! Antibiotics ruin your immune system which is meant to naturally fight disease. Build up your immune system with good food and your body can naturally fight just about anything. Not against modern medicine if it can help, but a lot of the time, it seems it creates more problems. :(

[@jonathanbarron8311]

What a lovely gentlemen, hope he is on the mend now.

[@jonathanbarron8311]

@@bikeshop2002 aw that is so sad! 😭

[@kellywhite9157]

@@bikeshop2002 I know him and he is alive

[@andreac980]

@@kellywhite9157 how do you know?

[@sallyphillips9175]

The channel that uploaded this video replied to a comment currently just above this one that said Andrew has recovered and is doing well as of seven months ago.

[@catman8670]

Early detection is vital the doctor said, but they’re reluctant to do necessary work up to find cancer, go figure.

[@chrismathis4162]

In the US, the problem is Insurance companies who are reluctant to pay for anything until it is too late and the average person can't afford to pay for it themselves. Disgusting example of people's health being sacrificed for profit.

[@biancadesousa]

The "necessary" work often comes with risks, which the doctors have to weigh if it's worth it because most likely the person with chronic migraines doesn't have brain cancer but the doctor has to decide if that 0.001% chance is worth getting radiation for. Even MRI's have risk with the contrast, I had to sign a huge form every time I got one because I could end up getting heart failure. Yes it rarely happens but it still is a risk.

[@edkes123]

The doctor saying early detection is vital is not the same doctor seeing thousands of patients a year with vague symptoms of pain. He said GPs might only see 1 in their whole career, so why would a GP send every healthy young man off for a scan just for leg pain? They'd be told to stop. Saying that, 2 years is way too long.

[@HDWorldclass]

Hope you're going well and healthy Andrew

[@kellywhite9157]

@@bikeshop2002 that is not true! He’s very much alive and well

[@andreac980]

@@kellywhite9157 how do you know?

[@fobypawz418]

Lol I was very stubborn and distrusting of doctors and the medical industry, I said to myself I will never go to the hospital...either I live 100% or not live at all! The only time I will go to the hospital is if I fell flat on my face and am still alive. Well, thats exactly what happened. About 2am in the middle of the night, I felt the worst pain in my life, I could barely crawl up the stairs to get help from my mom (she's over 80yo...I'm the one who's supposed to be supporting her actually) but by 6am I made it up the 2nd story of the house and was able to wake her up. I was rushed to the hospital, fed morphine, fentanyl, oxycodone, every pain killer they could give me. I was soon diagnosed with Stage III spindle-cell sarcoma which interfered with my left kidney blocking its uteral from releasing fluids. Three cystoscopies, 6months chemo, one month radiation, and upcoming surgery to remove my 16inch diameter tumor and possibly losing my kidney. Please pray for me that I can make it through this and stop being such a burden to my mother!

[@SarcomaUK]

Goodness, we hope you're getting the treatment you need. We are based in the UK, but if we can be of any help with advice, please get in touch: [e-mail].

[@fobypawz418]

@@SarcomaUK ❤ hehe thanks! UK or wherever corner of the world, it really proves cancer is such a universal thing. As for me I've been residing in Hawaii for over 20yrs. Hawaii is an interesting case, as its truly a senior citizen magnet so many elderly people all come here to retire and live out their lives, so that means, most of the healthcare facilities are filled to capacity even before covid. It took almost two months before I could even start my chemo treatments after diagnosis, in the meantime the sarcoma was growing as such a fast rate I had to get the 1st stent replaced with a bigger stent within just a months time! Fortunately the tumor has stabilized, but its wreaking havoc with my bowel functions as its now also interfering with my colon.

[@SarcomaUK]

Glad to hear it has stabilized. Fingers crossed for a recovery too.

[@fobypawz418]

@@SarcomaUK ❤ thankyou!

[@amiramahmoud3877]

We will pray for you

[@gurudevan6241]

thank god.....god bless Andrew....

[@markjoseph196]

My friend was lucky because we both work in an orthopedic ward, he had this pain on his left knee instead of going to his GP one of the Senior Registrar requested for an X-ray that’s when he found out that he has stage 1 Sarcoma , his still alive and kicking 20 years after this diagnosis..

[@SarcomaUK]

It's great to hear that your friend is doing well 20 years after the diagnosis! Early detection really is key, and your friend's story shows just how impactful that can be. Thanks for sharing Mark!

[@andreias5564]

This is what is frustrating about sarcomas: nobody cares! Doctors suspect the ''lump'' may be a sarcoma, but they don't care (never want to make a biopsy, doctors just ask for imaging exams... perhaps hoping that we are already dying).

[@SarcomaUK]

We hear you - we've started to make a difference, but there's so much work still to be done. We need to have better and earlier diagnosis. Have you seen our report from a couple of months ago? Hopefully, this will have an impact faster in the next few years. In the meantime, if you ever need support, we are here. sarcoma.org.uk/supportline sarcoma.org.uk/delays-cost-lives-call-policy-makers-improve-early-diagnosis-sarcoma

[@andreias5564]

@@SarcomaUK thank you. I saw the report today, was amazing

[@lilbigg3581]

I dont know how it is in the uk but in the U.S I had a deep seated tumor in my back and I had a biospy within a month

[@stefaniemartin7262]

I'm currently dealing with a lump 4-5cm got an xray and they examined me I talked with the Dr and have several things to rule out one being sarcoma. I'm thankful I had a dr that was willing to brainstorm and listen now I'm waiting on mri both contrast and non. I have found 2 or 3 more lumps/mass in 1.5 weeks, so we shall see. I'm trying my best to be positive but also tryin to prepare incase my gut is right. I went in to the ER the day I found the lump due to pain and my knee popping

[@doriswalsh3929]

Prayers and thoughts

[@andrewharman6861]

Great inspirational video most of us are unaware and bravery like yours really helps Thank you and God bless

[@louisesmith641]

I have a Phyllodes tumour, that when malignant is a type of Sarcoma. Rare rumours just don't get the funding they so desperately need!!

[@SarcomaUK]

That's sadly true, Louise, but we have been making great progress in investing in more over the last 10 years and we will keep going. If you ever need us, we are here: sarcoma.org.uk/supportline

[@Lynne...]

People know their bodies better than any doctor. They know when something is off. Its sad when concerns arent addressed, or youre just brushed off until things bad enough to warrant correct testing.

[@ericrang207]

Chondro Osteosarcoma. Shoulder. Newly diagnosed. Let’s get through this

[@SarcomaUK]

Thanks for your message Eric and good luck with your treatment. If you ever need any help or have questions do use our Support Line sarcoma.org.uk/sarcoma-uk-support-line

[@megmucklebones7538]

My twin sister has just been diagnosed. She's waiting for a full body MRI. She has it in her leg. She's scared.

[@SarcomaUK]

Hello Meg, We understand that this is a scary time for your sister. The Sarcoma UK support line is open Monday-Friday 10am - 3pm. You can also email or text us, the details are: Freephone: 0808 801 0401 Email: [e-mail] Text: 07860 058830 We are here for every person affected by sarcoma, including family and friends. Best wishes, Carly, Support Line Advisor

[@saniyacrap7520]

I hope she is ok now🙏🏾

[@kerribennett3013]

You’re amazing! ❤️❤️❤️

[@xRachelO]

Prayers and thoughts. I hope you’re back on the soccer field now.

[@SarcomaUK]

Thanks, Rachel. Andrew has recovered and is doing very well. :)

[@H20PM]

@@SarcomaUK so glad to hear Andrew is doing well. Gives me hope for my cousin 🙏

[@Wesley-i7c]

I went through this almost 11 years ago in my Tibia (shin bone). I had to have most of the bone removed and replaced with a titanium prosthesis. The RNOH are brilliant. Looks like the cancer has returned and I'm awaiting a scan. My yearly x-ray looked very worrying but it is what it is. Good luck to anyone going through cancer.

[@SarcomaUK]

Hello, my name is Sam and I am one of the Sarcoma UK nurses. I am sorry to hear you are awaiting a scan please do email us on [e-mail] or ring us 0808 801 0401 if you want to talk anything through. Take Care, Sam

[@adamwright3313]

I have cancer for my 3 time and it really sucks

[@joshuagoldberger616]

What kind

[@martinduggan4077]

now GPs ring us how many misdiagnosis will there be now

[@acxezknightnite1377]

It’s ridiculous that a GP doesn’t routinely do musculoskeletal examination. It is so easy and quick to establish whether something is likely to be a more sinister nature. I’m an osteopath and pain patterns are crucial, as well as clinical examination. With the correct questions and orthopaedic tests, you can be well on the way to casting your index of suspicion to the correct origin and cause of pain.

[@terrim.602]

Sir, I absolutely agree with you when you said (or thought to yourself), " will you at least touch it?!". It feels degrading as if you are not important enough to be taken seriously. I have had 2 boughts of cancer (23yrs and 30yrs, but not dx until I demanded a biopsy). I went through hell the second time. I had every symptom there was, but they just blew me off. I very recently found a random lump in the apex of my deltoid region. Potential Sarcoma, based on my research (I am an RN, BSN, with very little faith in the medical field) Diagnostics, (MRI, CT, etc) very rarely find things on me, i e. Cancer, broken root in my tooth, vision issue in my left eye, etc. I am very frustrated at having to go through many months and years of going through diagnosis again. 😢😡

[@SarcomaUK]

Thank you for sharing your experience Tee. It’s concerning to hear how challenging it’s been for you, especially with your background in healthcare. Sarcoma and similar conditions can be difficult to diagnose, but it’s concerning that your symptoms weren’t taken seriously, especially with your medical history. I hope you’re able to get clearer answers soon, and that the process is more straightforward this time. Please don't hesitate to contact our sarcoma specialist support line if you do need someone to talk to, for more info on how to contact them visit sarcoma.org.uk/supportline.

[@jbarron4596]

Doctors just want something easy to deal with so they can charge you for the visit . They don’t want to have to dig - that means they would have to investigate and do tests that they may not get paid for because you have to be able to tie what tests you order to something concrete that has been found. The insurance companies and the doctors don’t want to spend time and money “looking around “ or “investigating “ these doctors just want a sore throat or something simple that they can treat easily and make their money and move on to the next, ear ache, laceration or something they can charge a lot for and spend little time “investigating.”

[@jonathanbarron8311]

good name sir! Good name! ;)

[@marialove6467]

😪

[@No-qwewe]

My sister is 7 years old she had stage 4 soft tissue sarcoma in her leg , it saperated only to her lungs, doctors told us 0% chance to heal im so sad

[@SarcomaUK]

We're so sorry to hear about your sister’s diagnosis. It must be incredibly hard to cope with such news. Please know that we're here to support you and your family during this difficult time. If you ever need someone to talk to or more information, our Support Line is available, more info at sarcoma.org.uk/supportline 💙

[@sarahelmore83]

I was just diagnosed with sarcoma yesterday (waiting to find out what type exactly from the biopsy)- I’m 37 and I, too, had to put my foot down. Having a plan is making things so much easier mentally. Man, do I relate to the anger at being brushed off, especially now that I have the diagnosis (I was told I broke my collarbone at some point & that was all that was wrong with me).

[@nireneelloc5565]

Hey, how are you??

[@maryammehboob5684]

Same your sarcoma is painful?

[@veronikanon2]

Is yours around your collarbone too? I've read that it's a lot less common. I have a big tumour (synovial sarcoma) above and under it. How are you doing now?

[@maryammehboob5684]

@@veronikanon2 In axilla doctors said it's effect liver, nose and right arm

[@maleapaige329]

@@veronikanon2 how are you now?

[@janececelia7448]

This is untenable that these so called doctors are not catching this terrible disease in time. People shouldn't have to battle to get a diagnosis. They need to be held accountable. A plain x-ray probably would have been sufficient to seek out further diagnostics and a referral to a specialist. RIP Alexander. You were a fighter.

[@jennag6107]

I got diagnosed with shin splints over a year ago and I still have pain in my shin but I haven’t gone to the doctor for it ever again because they always tell me it’s nothing and it will get better. But it concerns me.

[@SarcomaUK]

Hello Jenna, We are here if you wish to discuss this with us. The Sarcoma UK support line is open Monday-Friday 10am - 3pm. You can also email or text us, the details are: Freephone: 0808 801 0401 Email: [e-mail] Text: 07860 058830 Best wishes, Carly, Support Line Advisor

[@bearsrodshop7067]

Fire that doctor and let your heart guide you. Sarcoma of any type, if caught early can be stopped. We are praying that my brides mass is not to late it's discovery.

[@chantellewoods31]

his strength amazes me ❤

[@BeaIEngio]

He comes across as very likeable

[@dianedundas390]

I came across this by looking for cancer and had to look when it stated Sarcoma, my brother was diagnosed with the same cancer in his neck thus losing three vertebra. I note the discussion about diagnosis and the time frame. My brother kept going to his GP with pain after much back and forth had various ex-rays, etc. The long and short his operation was more aggressive than it needed due to the time frame of communication one Dr not passing on this information and during the time the tumor grew bigger. (summer breaks). He had to have three majors surgeries- he is alive but the treatment of chemo and radiation made him sick and has certainly made him more hyper sensitive. The point in his care/treatment etc was that the hospital had to make changes in communication with cases like this. I am aware if it was 2020/21 he may not have made it, so in spite of difficulties of communication he is alive but his life is changed for ever.

[@traceyhateley3925]

God bless this young man x

[@Mibonitodesinaloa]

They acted like they didn't care. How sad

[@danielthompson4039]

That's what I have Rebecca, it it has moved forward into to next objective, D.

[@JessicaFletcher-nn5ss]

Who is Rebecca

[@dafcjim]

Is there any update on Anfrews story? :)

[@SarcomaUK]

Thanks for asking. Andrew is doing very well these days. He is in remission and has started his own support organisation for people with bone cancer. We keep in touch and he is a good friend to the charity.

[@hillsrecoil9132]

This should never take 2 years to diagnose medical proffesion needs to get there shit together!! I noticed when i was young the treated me real good soon as i turned into an adult they always disrepected me treated me poorly very poorly whish people would speak up on there situations so there can be change. Most medical instruments used in health care proffesion are trials patents never been tested they use those instruments on people going into surgery to test they are there test subjects.

[@adityatalwar8563]

Hi.. i am a 36 year old patient of pleomorphic liposarcoma patient from delhi , india .. i want to share my experience here . Is it possible . I just want to take this this small step to aware everyone for sarcoma's and how each and every lump in our body should be taken seriously.. let me know if its possible

[@IronBhoy]

Brave guy. 👏👏👏👍💖

[@Mibonitodesinaloa]

How are you doing?.please let us know.

[@SarcomaUK]

Andrew is doing great! Thank you for asking. :)

[@Mibonitodesinaloa]

@@SarcomaUK woooooooohooooooo!!!

[@henkpoog1264]

@@SarcomaUK so good to hear !! Greetings Lillian 🌹🇳🇱👍🏻

[@debbiehobbs9090]

I have been able to shrink my tumors and they are shrinking more every day (by leaps and bounds). At this rate they should completely disappear within the next couple of months. I was diagnosed with a stage 4, Her2 positive breast cancer (fairly fast moving) and I don’t believe Chemo is the answer for most cancers and that there is a much better way -- most people do not survive it long term and hundreds are curing themselves naturally. I am also curing myself of a cancer that had mestastasized to my lymph nodes and hip joint simply by flooding my body with nutrition, with juices and supplements that are pure and avoiding anything that contributes to feeding cancer. You have to read all labels, even supplements and exclude all animal products, including gelatin, dairy, oils (except for a little extra virgin olive oil but not at high heat), no refined flours, enriched white rice or processed foods -- anything that is man-made, only organic produce from the earth, but no peanuts because fungus attaches to peanuts and good water, not from the soft plastic bottles because it contains a chemical called BPA. No sugar, not even honey or organic agave, etc., only natural dates as sugar. Organic fruit is fine and mainly raw organic veggies. Since I was not raised eating healthily, it’s been hard for me to eat 2 large salads per day so I also started taking amazing supplements (had tried many other brands before), but this together with juicing (with a Breville Juicer which seems to be the best value for money - I paid about $160 for mine at Bed Bath and Beyond), has helped me get healthyll!!. The juice consists of mainly organic carrots (which makes up most of the juice), organic beets, organic celery, organic kale, organic cauliflower and broccoli and about a 2 inch piece of ginger with each batch. I drink about 48 to 64 oz. per day, made once per day and kept in the fridge. I also drink juices from other parts of the world (tropical regions that are so nutritious) that I get from the same company that produces the supplements. They tout to have one of the best cleaners in the world and I take that too. A scan last week showed no evidence of cancer and my blood work is phenomenal.

[@gurbakhshkaur7331]

Which supplements ? please reply me

[@debbiehobbs9090]

@@gurbakhshkaur7331 At the very least do the juicing and watch "Chris beat cancer" on youtube. Here is what I did: I am curing a stage 4 cancer by flooding my body with excellent nutrition and staying away from foods/drinks that feed cancer!! I do not eat any animal products (including dairy), no sugar of any kind not even honey and agave (which also feed cancer), only organic dates and fruits as sweeteners. No processed foods, including oils, except for a little organic extra virgin olive oil on salads, but not used at high heat. No soy whatsoever (check all food and supplement labels and do not take any supplements that contain iron, instead get natural folate from veggies like spinach and kale). Good quality vitamin C (about 2,000 mg taken 3 times per day) or even better, if you can, intravenous Vitamin C (from a naturepath/alternative doctor). Only Himalayan salt/celtic salt and no peanuts. Juicing organic vegetables every day - about 48 to 64 oz. -- make a big batch in the morning and keep it in the fridge, then drink it throughout the day (all organic: carrots, kale, beets, celery, brocolli, cauliflower and a piece of ginger). You can buy a juicer for about $160 at Bed Bath and Beyond - it's called a Breville Juicer. If you can eat two large bowls of salad full of different vegetables (not tomatoes) with no salad dressing every day, this will be great, but for me it's hard to eat a lot of salad. This is why I take amazing supplements (and juices from Asia) which is really helping me shrink the tumors! Also drink good water throughout the day, but not from soft plastic bottles or straight from the tap/faucet. Be careful not to drink so much water that you get water poisoning. Do not take cheap supplements/drinks that contain dangerous substances such as “Ensure” (which contains carrageenan which is also in Slimfast) or anything with sweetners. The supplements and juices from Asia really helped turn things around for me, at first I didn’t want to spend the money, but decided to give it a try when it cured my friend who was on her deathbed. If you're interested in the supplements and/or juices I take, you can go to the website referenced below, once you're on the site, here is where to look, the supplements I take are listed after the headings in capital letters (such as Immune6, etc.): BEST SELLERS - Immune6, Immune+ Organic Sulphur, Energy variety pack and Mila. SUPERFOODS (these are the bottled juices you might be able to forgo): GoYin - 4 pack, acai bottle, mangosteen bottle, noni - 5 pack, fusion 2 x 5 packs. This is very important: under NUTRITION: Daily Build x 2 and CalciuMK. A great item is their "cleanse" touted the best cleanser on earth and it is found under the WEIGHT LOSS category (the drops work best). Under NEW search for Immune Plus and then do a regular search for Greens. Here is how to take it every day to flood your body with nutrition -- all bottles need to be shaken up first: In the morning, take two droppers full of "cleanse", then if you're going to take their bottled juices, in a blender add 3 oz. of Fusion, 2 oz. of noni, 2 oz. of mangosteen, 2 oz. of acai, 2 oz. of GoYin (but as mentioned you might be able to forgo these juices and just juice the vegetables in a juicer which you drink throughout the day), 2 oz. of Daily Build, 1 oz. of CalciuMK, 1 scoop "greens", 2 tablespoons Mila, 2 scoops organic sulphur (this is very bitter and can also be taken separately in water but needs to dissolve) -- it adds oxygen your cells need, one packet Energy (from variety pack, do not take this at night/bed time) and blend - use water to blend it if you're not buying the bottled juices. Drink with 2 x Immune6 capsules and 1 x Immune+. At around lunch time you will blend 1 scoop greens, then 3 oz. fusion, 1 oz. Noni, 2 oz. Mangosteen and 2 oz. Acai (maybe just drink your homemade juice blend here if you’re not getting the bottled juices)and 1 oz. Daily Blend. At bedtime you will take 2 droppers full of "cleanse" and 2 scoops of bitter organic sulphur dissolved in water. Supplements/bottled juices can be purchased here: livepure.com/HealthisVital Please watch videos called “Chris beat cancer” on youtube.

[@gurbakhshkaur7331]

@@debbiehobbs9090 thanks can my husband take home made cooked food once. a day or avoid totally cooked food?

[@debbiehobbs9090]

@@gurbakhshkaur7331 Vegetables cooked in good water with a little Himalayan or Celtic salt and natural spices/herbs with no chemicals are okay, but stay away from starches like potatoes and rice and do not cook anything in oil. Hope this helps!

[@gurbakhshkaur7331]

@@debbiehobbs9090 please suggest me full diet plan morning to evening

[@laurakimmons641]

The medical society spends billions of dollars on Advertising for early detection, that when we go to our general practice they do everything they can to deter us away from these options such as x-rays anything that cost money. Our GP dad says purposely, when asked they always bring up the fact that is too expensive for your insurance won't cover what you're asking for. I'm 62 years old and when I was growing up I remember if doctors didn't know what they were looking at with a patient, they would automatically give them a referral to a a doctor that specializes in what the patient needs. So all this early detection is basically only for the rich and people with high up jobs that have good insurance, but for the poor an and elderly are people with no insurance at all they are purposely persuaded by their GP away from these life-saving techniques Basically, we are not Worthy because of our status to qualify for these treatments that could save our lives.

[@unhealingwithsandy]

My 14 year old daughter just got diagnosed with Ewings Sarcoma... and a week before Christmas 2020. Hers is in her calf too. First it was growing pains, then restless leg syndrome, then flat feet. Finally we got the right diagnosis- Ewings Sarcoma. She has a long journey with a lot of unknowns ahead of her but one thing we do know for sure is that she is strong and positive and is a fighter. Blessings to everyone going through something difficult right now. Just remember, it is not the adversity that defines us, it is our mind that defines us.

[@mereej8924]

all the very best xox

[@marthavillalobos970]

🙏🙏🙏

[@reidchambers2521]

So sorry, but better in a leg than in the central part of the body. There's a much higher survival rate.

[@unhealingwithsandy]

@@reidchambers2521 they found it in her lungs and behind her knee. But it is only begining in those other places. Sometimes I pray for her to live but then I think of all the other children who have died from it and all the other parents out there with broken hearts because their child didn't make it and I think what right do I have to ask for MY child to make it. Now I just pray that this disease can be overcome globally and that ever person suffering from it can find peace.

[@calcavino]

@@unhealingwithsandy I lost a good friend of mine to Ewing’s-Sarcoma a few months ago. He also had a lump in his leg and metastases in his lung. After a 2 year battle he had lost the fight at only 23 years old. I pray for your daughter that she will make it! ❤️

[@maxHeadroom325rayxerin]

rip technoblade

[@Hego_Damassk_The_Wise]

rip

[@bucktooth3684]

Hey I’m 15 and had my surgery 1 month ago I had Ewing sarcoma my surgeon was doctor pollock

[@maryammehboob5684]

How are you

[@bucktooth3684]

@@maryammehboob5684 I’m good now I’m cancer free and I just turned 16 two months ago 😁

[@maryammehboob5684]

@@bucktooth3684 well God bless you

[@maryammehboob5684]

@@bucktooth3684 I have a hard epitheloid neoplasm in armpit what should I do😶 can you help me

[@bucktooth3684]

@@maryammehboob5684 go to the doctors and your disease is curable if only it’s treated early so I suggest you talk to your doctors or give them a ring

[@ZachariahTaikon]

I have a rare soft tissue sarcoma cancer, I am really hoping I can find someone who also has it. It’s called Fibromyxoid sarcoma. please if you have this cancer it would be nice to have someone to talk to. And if you have this diagnosis recently, don’t panic about not finding it on any cancer page! I found that too!

[@SarcomaUK]

Hello my name is Sam and I am one of the Sarcoma UK Nurses. Please do contact us on the support line 0808 801 0401. [e-mail] we can see if we can help.

[@narratornow3444]

This is me right now.

[@sookie4195]

My primary is an internist not a GP. Retired medical professional here. Socialized medicine can slow a diagnosis down. That’s why I do not want it in this country.

[@lupitaportillo1011]

Ohhh at the end they didn’t robotic bc the big of the mass and was dangerous for my body, I had a big incision under my ribs like big sad mouth 😅, I call it like that !!

[@marcojankovic5171]

do andrew had lump or swelling in his shin?

[@SarcomaUK]

Hi Marco, Andrew didn't have either, but he had a great deal of pain which led to his diagnosis.

[@marcojankovic5171]

@@SarcomaUK tnk for the answer.. and it's so scary he didn't have swelling or lump..at least he had great pain..right?

[@SarcomaUK]

That's right, Marco. He was in a lot of pain. A lot of people will notice a lump, but it's not always the case. It's always a good idea to get anything unusual - a lump or discomfort - checked out.

[@manishabhanot5756]

If the sarcoma cancer spread in the brain,is that curable or not.

[@SarcomaUK]

Hello Manisha, my name is Sam and I am one of the support line team. Please could you send us an email to [e-mail] and we can help answer this for you. Thanks you

[@Crypto_ki_duniya1-j8v]

How are you now

[@sianpryce3685]

Sarcoma, are you involving yourself in drawing attention to this in your area byart work of posters fund raising, asking the medical staff to give talks to organisation s This will give you and your family a active role to play than being a member of a Sarcoma band

[@walterdemarchi5256]

Doctors are like any profession. You have good and bad.

[@Megan-zz2co]

I’m being tested for this at the moment. I found a lump on my ribs, and I am so scared. I genuinely think it would break me.

[@SarcomaUK]

Hello Megan, We understand that you are scared, but we can support you through what is happening. Please do get in contact with our Support line team on freephone 0808 801 0401, email [e-mail] or Text 07860 058830. We are here to help. With best wishes Helen

[@andreac980]

How was it?

[@aboundinggrace7029]

"For God so loved the world that he gave his one and only Son that whoever believes in him shall not perish but have eternal life" John 3:16

[@unhealingwithsandy]

Amen!

[@reidchambers2521]

Shut up, you fool! There is no sky daddy, and the Bible was made up by many people over hundreds of years, with hundreds of rewrites, but if you believe in this fairytale, you should question why millions/billions of innocent babies, animals, innocent people suffer unimaginably and die, while this all-powerful, all-knowing entity lets them. Amen

[@motleydude73]

@@reidchambers2521 Because we sinned against God that's why. The wages of sin is death.. in this life anyway. Typical ignorant angry atheist 😅

[@jamespayne80]

Love that. I have known this verse by heart nearly my entire life.

[@debbiehobbs9090]

@@reidchambers2521 I believe suffering is eased for them even under very trying circumstances and this life is very short -- eternity is long and they will live in a state of never ending happiness!!

[@Puppypaws04]

Very best wishes (cute cat)

[@MementoDespair]

Technoblade... :{

[@theonewhodrums_]

Ok seriously what is up with athletes getting cancer? I know that disease doesnt pick favorites but ya know all these websites yeah work out and stay active to maintain a healthy lifestyle but even still this dude got sarcoma. Tf...

[@80srenaissance67]

Well done that man ...get rid of G.Ps, they are no longer fit for purpose.

[@infinitiii360]

Rip Basil #fuckcancer

[@ptohopouloujuliana7930]

😇SOSThere need to go back to school drs Govermment's polices army and more🤬🤬🤬🖤🕳☻️

[@mindy2215]

Doctors are doing the right thing. First they have to make sure is not simple before they go to a more exhausted tests if the situation does not get better. Do not blame them, the insurance will need a report of all the steps taken before going for more expensive tests . Otherwise they will not pay for the tests.

[@kp361]

This is in the UK. We have a national health service. Insurance is not relevant.

[@kiwipics]

I have only just realised that my ex girlfriends cottage / studio is in the intro.

[@SarcomaUK]

Small world!

[@Letstalkmedia2025]

You don't even look 21 lol 😂 let alone, to have been in a relationship for 21 years KUDOS 🎉🥳

[@spagbowlsparmacheese629]

Taking chemo tablets doesn’t make sense...

[@katiefitbrit]

I was misdiagnosed after a lump was removed from my foot in October 2016 and then left for another 1.5 years whilst it grew back before a biopsy was taken at the Royal Marsden, after pushing to be seen by a specialist. Last year I had two further ops to remove the tumour from my foot and ive just been left with being told I have a rare type of sarcoma and I just need to be checked every 3 months. Which isn't being done properly due to covid. I feel completely left alone with it and constantly anxious as I still have pain in my foot 😥

[@maggiechen6305]

Oh no, this experience sounds awful, I am really sorry you are experiencing this during covid of all times.. my heart goes out to you.

[@andreias5564]

That's too bad, altough if you were followed in a specific sarcoma center or cancer center would not deal with issues from Covid-19

[@katiefitbrit]

@@andreias5564 im under the Royal Masden in London. Unless your private, they don't seem to care much.

[@ss-if6ns]

Hi Katie, I am really angry about how you and other cancer patients are being treated. My sister was diagnosed with synovial sarcoma towards the end of last year. Fortunately, she has private health insurance. She was treated (chemo, surgery, radiotherapy, CT & MRI scans etc) at Royal Marsden without delay, and irrespective of the restrictions supposedly imposed by covid-19, she has been able to get follow-up appointments promptly. Private patients from all over the Middle-East, including Qatar were also being treated without delay or interruption. This is not fair to British patients. With the kind of resources oil-rich countries like Qatar have, they can set up the best cancer hospitals - that too, within a few months!

[@katiefitbrit]

@@ss-if6ns she's lucky. When I've been to the Royal Marsden I've been treated like a 2nd class citizen. You get asked if your private or NHS and the NHS get put in an over crowded waiting room whilst the private patients get a nice quiet room with tea and biscuits. If id of known what I know now, I would of joined Bupa a long time ago.