Diagnosed with Soft Tissue Sarcoma? Support is Here.

[@TOVANorseWitch]

Thank you for this infromation. I am in the process of being Refered to Royal Marsden for two one 9cm the other 5.5cm soft tissue masses in the abdomin. had an ultrasound which shows possible liposarcoma now being fast tracked. just so good to get the right information as you cant get peace of mind till the proper diagnosis so you know what you are dealing with thank you once again

[@SarcomaUK]

Thank you for your kind comments. If there's any way that we can help, please do get in touch. We have friendly sarcoma specialists available for you on our Support Line. sarcoma.org.uk/supportline

[@walidabdelwahed6984]

Hi, Great video and channel. I am from the US, just got diagnosed with Sarcoma, and I am in the process of seeking treatment, will be happy to share my journey and experience with the network if my location is not an issue.

[@SarcomaUK]

Hi Walid, thank you for your offer - you can get involved by sedning us your details here sarcoma.org.uk/shapeourwork Wishing you every success with your treatment. If we can help, our Support Line is here for you by email. sarcoma.org.uk/supportline

[@sorayadaniels3491]

Thank you Sarcoma UK for a great KZbin pags and website. It has been cery informative since my diagnosis of muscular sarcoma in February this year. My specific subtype is so rare, there are only 100 reported cases worldwide. I live in South Africa and I wonder if I'd be able to join an online Sarcoma support group. Kindly advise.

[@SarcomaUK]

Hello Soraya, Thank you so much for your lovely feedback, we are so pleased you found them helpful. My name is Sam and I am one of the support line nurses. Can you email me on [e-mail] and I can sign post you to the best group, Sam

[@sorayadaniels3491]

@@SarcomaUK Thank you Sam. I'll do so.

[@juliepage4041]

This is so frustrating so i have had the ultrasound and had the MRI and thats it i have no results i may have fibrosarcoma but im on day 43 and noone has told me anything

[@SarcomaUK]

Hello Julie, We are really sorry to hear this. Please contact us on the support line to talk things through. You can contact us on Freephone 0808 801 0401 (Mon - Fri 10am - 3pm) or email [e-mail] Best wishes, Carly - Support Line Advisor

[@juliepage4041]

Thanks so much sarcoma UK I rang and spoke to someone today and she was amazing and has helped so much and I feel like I am finally getting somewhere and knowing more where I am

[@No-qwewe]

Hello im 22 my sister is 8 years old , she’s diagnosed with soft tissue sarcoma … if she take the chemo etc….. and did the surgery, can she live after that normally or she will die 😢?

[@SarcomaUK]

Hello there, I am sorry to hear about your Sister, I understand it will be a worrying time for you all. Please do feel free to contact our support line team on 0808 801 0401 or email [e-mail] who will be able to answer all the questions that you have. Best Wishes, Helen

[@harikasurapaneni09]

Hello i have recently diagnosed with pleomorphic sarcom on fore arm and surgery was done to remove that.. I would need some guidance for what to do next

[@SarcomaUK]

Hi Harika, my name's Ellis and I'm a support line advisor here at Sarcoma UK. I'm very sorry to hear about what you are going through. We will be able to give you some guidance. Please could you e-mail us at [e-mail] or give us a phone call on 0808 801 0401 and we will be able to help. We are open Monday-Friday 10am-3pm. Best wishes, Ellis.

[@vex-666yt6]

Hey i am a 16 year old guy and i have a big hump in my upper thigh at left leg it have been for more than 5 years but it only grew bigger sometimes like in the morning and it used to disappear after some days and reappear after some months or years and it has came back few days ago and it is really painful i cannot even touch my upper thight and i hurts really bad do you think there is chance of me having sarcoma

[@SarcomaUK]

Hello, my name is Sam and I am one of the support line team. I am sorry to hear you are having problems with your leg and for so long. Sarcoma is usually characterised by a lump that keeps growing and does not come and go over many years. We always advise though if you have pain and symptoms that are changing that you get it checked out by your GP. Do send us an email [e-mail] if you want to talk it through so more, Sam