Savannahs medical supplies organization

[@nicolegray3978]

I love how neat and tidy Savannah's medical stuff is. I'm chronically ill as well and have a surgically-placed jejostomy tube. I know how difficult it can being unwell at a young age. I'm thinking of your family and hoping you are all keeping safe during the panademic :)

[@UniquelyZebras]

Thank you!

[@Wasjigcrmso35]

How many pieces of medical items she has now? Savannah you look fantastic you've done so well! Kelly you've also done so well iys not easy but after a while you get use to the new routine. I'm just glad things are working out for you guys. 😊👍🏾❤🇬🇧

[@UniquelyZebras]

To many to count.. Lol Thank you she is doing so well and we are adjusting to everything.

[@thaliaoneal3847]

Love her medicinal organization I try to organize my medical supplies Trying to save money to buy some storage

[@highmater]

Love how organized you are! If you have extra ng stuff Id love it (especially if you have tape).

[@UniquelyZebras]

Message me your address. I can send some. Is it the yellow NG tubes your using? I have a couple I can send ya.

[@IziGryffindor]

Hey guys hope y'all r good.

[@UniquelyZebras]

We are doing great.

[@Malgal]

Make a blog about the pads

[@UniquelyZebras]

Ok we will after she switches to her buttons.

[@klynch7912]

Zebra is also the mascot for primary immune (PI) disorders

[@UniquelyZebras]

Interesting

[@shaleniavanorsdale93]

Btw I Never Had the Feeding Tube Pads. Wish I Did, They're a good way to show your personality and Interests in Life. Cute and Amazing to 💙😀

[@gothafloxacin]

Where did you get the big cart?

[@GeorginasJourney]

Is her Malone used for irrigation? Sorry, if that’s completely wrong- I didn’t realise her irrigation routine had changed, I assumed the g tube was to drain the stomach and the Malone was for feeds (like a j tube), but now I’m thinking she feeds and drains through the g tube and the Malone is for irrigation?

[@UniquelyZebras]

Yes she feeds through her Gtube and irrigations with the Malone.

[@faithirwin7899]

What do the syringes look like? Fellow tubie here and there might be an easy solution to your syringe problem.

[@UniquelyZebras]

They are the normal ones for needle attachment. I'm hoping after she switches to the buttons we will be able to use them.

[@aliciamoore6493]

How much Pedialyte does she get a month

[@shaleniavanorsdale93]

Do Not let her take regulia (it's a liquid medicine for acid reflux) i was on it and have some of the side effects. I had a Feeding tube as well. Had it removed but will eventually need it later down the road. Yes i'm 28 However; i was 12 yrs old, when I got My Feeding Tube and Trach. Thankfully she can have more of a normal teenager life experience than i did; I couldn't go to school, due to needing a nurse and all, so from 6th to graduation I was Homebound. If she has Facebook and wants to add me; I would be Happy to Accept, or even PenPals. I have some Lisa Franks Stickers that i can send her as well. I'm into Horses more than Unicorns 🙂

[@anikabaddeleyrollingbackwa7341]

MACE is short for malone antigrade continents enamma

[@UniquelyZebras]

Perfect

[@anikabaddeleyrollingbackwa7341]

Uniquely Zebras I love your storage. I just have plastic draws in my bathroom

[@UniquelyZebras]

Thank you. I did my best to make it look nice in her room.