2014 Anaheim - Prediction of Progression & Complications in Scleroderma - Dr. Laura Hummers

[@johnjenkins129]

Thank you so much for Everything All of you Do!! God Bless You All ♥️

[@melaniewalker5226]

Thank you for this I was diagnosed 8 weeks ago I've been ill for at least 3 years I've had every test on the planet and finally the diagnosis systemic scleroderma. 😥😥

[@Markinpuff]

Me too, and I’m male..

[@melaniewalker5226]

@@Markinpuff well I think I can say I know how you feel it's quite a horrible and frightening illness. There's not a lot of information about it because it's a rare autoimmune disease. How long have you been diagnosed is it a while are you a newbie as well.

[@Markinpuff]

@@melaniewalker5226 Well, first it was thought to be crest syndrome. But after time and seeing many doctors, they changed it to defused type. I’ve had it officially for about a year, they suspect I probably had symptoms for many years, but were to mild to see. I had a rough 6 months, getting this and then covid on top of it. Had my butt in the hospital for 3 months , including 3 months in rehabilitation. Lost around 65lb. I have since gained 45lb in 3-4 months. Putting me almost back to 195lb. My mental state is actually good, because I have excepted my possible fate and actually looking forward to moving on in existence. I knowthat sounds nuts, and perhaps suicidal. But I feel that fear is the mind and body killer, live your live and do what makes you happy.

[@melaniewalker5226]

Mark, I've had mine for 18 months, how are you?

[@T1998-h3x]

I finally got diagnosed about 2 years ago but have seen signs of this for almost 10 years your not alone in this fight you got this ❤️

[@MegaFernando250]

Thanks so much for the news, you help a lot!!🙂

[@sewingBay1255]

Thank you! Great information.

[@kirstygreen8533]

Amazing information, thankyou.

[@mohkarimify]

a wonderfull women