Seeing my cardiologist + mini Q&A

[@ef7496]

The camera quality is amazing

[@FullTimePatient37]

Wow 10:32 hugs that's rough

[@alyssawssinging4039]

Heyy my gastro doctor left the office sadly I have to see new gastro doctor 👩‍⚕️ I have the same surgeon I gotta make sure to call them this coming week set up with a new gastro doctor I was with her since 2017 and it’s good to see you ❤ glad ur appointment went well

[@TheMitoWarrior]

Oh no that's such a bummer. I hope you're able to find a good gastro doctor. Thanks for leaving a comment! Hope you are well❤️

[@michalgoldstein-f2f]

Would you mind sharing how your mito diagnosis was confirmed? Like did they find a mutation on a dna test, Did you have a muscle biopsy etc. Thanks for spreading awareness!

[@TheMitoWarrior]

I was diagnosed with mito based on symptoms back in 2006 when I was 5. At the time my doctor wanted to wait on doing a muscle biopsy because treatment wouldn't change. ( he put me on the mito cocktail.) And when I was younger, I had more mild symptoms than I do now. In 2013 I had genetic testing done through a spit tube. The results of that genetic testing confirmed my mito diagnosis. And then in 2018 I redid genetic testing through a different company. That was either a spit tube or a swab, I can't clearly remember. But redoing testing gave a lot more information dna/genetics wise. And to clarify yes I have a disease causing variant that was found!

[@stefs3460]

Thank you as always for your helpful posts!😃 I also find that missing Coq10 dose makes fatigue worse, also for me vitamin D vitamin Bs and Folic acid super important since I always seem to be low. My heart is giving me some trouble with tachycardia arrhythmia lately, hopefully can get that settled down soon. May I ask do you also use CPAP? If so has it been helpful? So far I am not finding it helpful.

[@TheMitoWarrior]

Aww you're so kind! No I don't use CPAP❤️

[@ef7496]

I hope everything well . Please can you give us an update about the supplements you are still taking ( brand, amount , changes) thanks

[@TheMitoWarrior]

I'm planning on filming that video soon!