This is the first time I’ve heard taking L-Arginine for migraine. Thank you for sharing! Sadly I don’t think I can handle it as I have very low blood pressure 😢. I have recently started taking Co-Q10 and Riboflavin and feel some improvement in lessening the severity of my Hemiplegic attacks. Medications have also helped to lessen the severity. But the frequency is still chronic - once one attack ends, another begins within hours :( so frustrating. Please keep sharing your journey🙏🏻 You’re experience no doubt will help someone out there some way or another. Blessings to you!

I got my first complicated migrane. The aura is so scary. Im in so much pain. Last for days.

I lost my grandma last year 2023 aug in my birthday month hurts really bad but I know she’s with me and hope u do do 12 days of vlogmas so excited for those videos good to see u back on here ❤

4:30 we have a German Shepherd named Mahlo, he’s a sweet boy. You’re so smart, beautiful and brave you need a million more views! I’m 57, a mom/grandma with POTS ( and other stuff), I’m going to pass your video on to my adult daughters and maybe Facebook, if that’s ok? It’s important to share our experiences, it helps both the giver and the receiver.

I love, love, love the chair! Thank you for sharing parts of your day, I subscribed. Grief is hard. You know how sometimes you wake up in the middle of a dream and it takes a minute to realize, oh I was dreaming and now I’m awake? Well that is what death is like, it’s like waking up and realizing it was all a dream and what you experience is more real than this life. Have an incredible day!

Histamine can be an issue. These symptoms started for me in 2020. After two years of tests and my own research I have found a low histamine diet has reduced my daily symptoms and aura significantly . I don't take any daily medication, even though I was offered multiple drugs. I hope this helps someone. ❤

Still on zolft ??

Hi. What kind of mitochondrial disease do you have and how long can you live with it?

I was just in the hospital with a stroke and my hospital was rationing bags

Thanks you I am praying for them

Thank you ❤

Zoloft worked pretty good for my PTSD, depression and anxiety. It’s a trade off though.

You are amazing thank you , my little daughter have meto and she is 3 years and this helps a lot

Thank you 🙏

Im trying to figure out what i could possibly have, and mito is on my list of possibilities. Ive been trying to get into the mayo clinic but so far, no luck. Since i was young, ive had issues with my muscles, with spasms, twitching, really bad tightness, pain, and tremors, as well as fatigue that within the last few years has gotten much worse. Even without a diagnosis, im learning to manage things but it would be so much better if i had answers. I used to use soley a cane, but now i need to use forearm crutches to manage my fatigue. Do you have any advice for seeking a possible disgnosis for this or other rare diseases? Possibly any active support groups? Lately i feel like im just having even more of what may be crashes, generally having a rough time, and i wanna just go to my doctor and cry it out to them.

I’m impressed with how well Planet Ayurveda’s migraine medicine works! The natural ingredients make it a safe choice, and I love that it aligns with my holistic wellness goals.

I to use a electric wheelchair, I'm not able to walk long distance.i have Celebra pulsy n my joint are weak.

Nice! I haven't been here in many years, and I live close to Yellowstone Park!

you should do more videos with your brother

you have such an cheerful personality this is the feel good content we all need

Jesus christ blessed you....!!! From sri lanka...🇱🇰🇱🇰🇱🇰

Get MedCenter it’s easier

I love watching your videos Happy world mitochondrial week stay strong

Thank you very much.

Can it cause micropsia when i got attack my micropsia increases further.

Saw your title & I have subbed ! I have many of these symptoms & have had bad migraines for the past 6 years : ( I'm looking forward to seeing more of your vids, Thank-you for sharing : )

Girl I'm dealing with a Hemopelegic migraine spell right now. I just got diagnosed like four days ago. Thank you for helping me learn a little bit more. I'm so scared.

Poor dear sweet girl, I hope everything works out. I've have migraines now, but without the symptoms you described. Maybe it's just stress.

You are awesome! I love your positive attitude ❤ God bless you

Hope you’re doing better

Sorry about your condition. Mitochondria is not a life sentence. The male and female body's has different and specific times when precursor, NAD is produced in adequate amount to activate and replenish the.mitochondria, the medical fraternity is not aware of this fact.

This is lovely videos

Hi my name is Imre. You probably won't see this but I hope you do. I also have mito. I was diacnosed when I was 9 years old and I'm 15 now. I love your channel I love watching people with chronic illnesses that is more or less in the same shoes as me. My heart and intestines is effected. I have low mucle tone. I'm always nauseaous and most of the meds you take I take. I have a feeding tube and a port a cath. Me and my dad watched you before and he really likes your channel and I'm a new subcriber. I'm still going strong.😊❤ Thank you for posting and keep up the hard work and never give up. You are special in your own ways. 😊❤❤❤

Had my 4th episode in the past year this week. Worst one ever.. full blown stroke symptoms. Couldn't speak, left side completely dead and aura all at the same time. Lasted what seemed to be 6 hours and set in the ER for 12 hours. Hoping for a cure. I changed my diet and am strict with it. I don't even drink caffeine anymore. Hopefully it will go away. Praying the same for you kiddo.

How come doses are always increased, can you not just stay on a low dose if it's working

Looks like a lot of fun ❤

I hope you have a great vacation

Glad to see you can travel to enjoy the great outdoors.

My doctor just prescribed me Zoloft. I hope it will help me with my anxiety.

great contant please please continue

I started taking CoQ10 and Carnitine on advise of my neurologist. It didn’t feel like it helped at first until I stopped it for a surgery and I got really sick. The hardest part is finding CoQ10 that I can take down my GJ tube. Have you found any liquid brands?

Thank you for the updates ❤. Calling it feeling potsy is so cute, I might use that... being I deal with POTS also 😊

Hey hun are you still taking Zoloft I started taking 25mg for a week on June 14 this year and went up to 50mg about a week ago I’d like to know how it’s going for you ❤

I’m always happy to see you are stable. I have talked to you one time here, you gave me an adorable long answer. Those of us who are sick know how difficult it is to be consistent. Don’t apologize so much, we know the struggle. :) It is amazing that you post at all! 🥰 God bless you.

Thank you as always for your helpful posts!😃 I also find that missing Coq10 dose makes fatigue worse, also for me vitamin D vitamin Bs and Folic acid super important since I always seem to be low. My heart is giving me some trouble with tachycardia arrhythmia lately, hopefully can get that settled down soon. May I ask do you also use CPAP? If so has it been helpful? So far I am not finding it helpful.

I’ve never heard someone explain this horrible mito episode so well -

And the DW pillow- Mitochondrial disease patients who are also doctor who fans…… Start club?

I’m see that CO-Q-10, sister!

Hi, I am in love with a guy who has mitochondrial disease. I met him through a dating app. I want to know the chances of this disease being passed down cause he is rejecting my love due to his anxiety

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