Seeing one of the most severe symptoms in Hospice Patients

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Hospice Nurse Julie

Hospice Nurse Julie

Күн бұрын

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#endoflife #hospice #activelydying

Пікірлер: 414
@valeriereinhard2790
@valeriereinhard2790 6 күн бұрын
This was my poor mom. It luckily only lasted less than a week, and she wasn't constantly vomiting. But the last hour of her life was rough, and even after she died, there was so much pressure built up from the tumor in her intestines, that she had almost continuous purging. I never knew it was possible for something like that to happen. It was horribly traumatizing. She was thankfully unconscious during much of the last day of her life. I am forever grateful for hospice nurses. Ours was our literal superhero that night. You are all angels!!
@valeriegood8427
@valeriegood8427 5 күн бұрын
Sorry you had to witness yr poor Mums suffering. Sorry also that she suffered. I understand what Julie is saying about taking time to come up with a resolution for the pain. I agree with Julie, if theres no relief then I'd want to be heavily sedated.
@christineangelafarmer4900
@christineangelafarmer4900 4 күн бұрын
I feel your pain❤
@PhDParapsychologistDr
@PhDParapsychologistDr 4 күн бұрын
I'm so sorry, but now she is in no pain and watching over all of you. God Bless 🙏
@christettec3045
@christettec3045 2 күн бұрын
I'm so sorry. My mom experienced the same ❤
@agathahofmann6977
@agathahofmann6977 Күн бұрын
so sorry for your loss and the suffering your mom went through 🫂 if you are up to it could you inform me about something? as a nurse in the Netherlands we are allowed to give all sorts of medication and give extra on our own when we see fit. this will speed up dying of course but there is also very little suffering. it this allowed in your country, for your mother, would you choose this?
@hunterf258
@hunterf258 5 күн бұрын
All of your videos show you sitting at a desk, makeup on, hair fixed. The beginning of this video shows the true Julie. The working Julie. The Julie being and looking exhausted, tired and overwhelmed. This makes me respect you even more, giving you the credit you so deserve for your work as a Hospice nurse. It isn't easy working in a hospice environment. You, Julie, deserve every credit given to you. For what you do in your work and for making these videos for family members to understand the death and dying process. I commend you. 🥰
@mollytremblay1396
@mollytremblay1396 3 күн бұрын
I wanted to give you a big hug!
@SilentHonor2012
@SilentHonor2012 2 күн бұрын
Same!
@alanprior7650
@alanprior7650 6 күн бұрын
Thank God for people like you Julie. Most people cannot cope with what you and your fellow nurses see/go through. Angels every one of you.
@southernsass2937
@southernsass2937 6 күн бұрын
Amen
@Mars-77
@Mars-77 5 күн бұрын
Yes
@494ava
@494ava 4 күн бұрын
Amen 🙏🏽
@christettec3045
@christettec3045 2 күн бұрын
Amen 🎉
@tmaloney56
@tmaloney56 6 күн бұрын
This happened when my dad, on hospice, had a raging UTI. He kept trying to get up and fell over and over. We finally had to palliatively sedated him. He died two days later. It was all we could do. The hospice nurses could offer no other solution than to medicate him. Instant relief for him and us. 😢
@valeriegood8427
@valeriegood8427 5 күн бұрын
Thank God you did. I've had utis & I've been crawling on the floor. I can't imagine the pain when one is dying. I'd beg for sedation.
@nicholawilks1171
@nicholawilks1171 6 күн бұрын
I’ve got Crohns, NG Tubes are horrendous, bowel obstructions are incredibly painful, and constant nausea is terrible. My heart breaks thinking of hospice patients going through this, along with everything else they’re suffering from.
@Hollyucinogen
@Hollyucinogen 4 күн бұрын
I don't have Crohn's, but I have a different disease that I suspect may be related to it. I think that both Crohn's and my disease (Hashimoto's Thyroiditis) are caused by the consumption of gluten. Try cutting out gluten and see how it goes.
@gregorymalchuk272
@gregorymalchuk272 4 күн бұрын
Are you on any biologic drugs?
@johnkizziah108
@johnkizziah108 6 күн бұрын
Julie my lovely bride passed 1 year ago this week after a long struggle with cancer..i watched you video's prior to her passing so i could take the best care i could and try to understand what was gonna happin. You were and are a blessing dear..you helped me so much. You have a special place in my heart..love you big.
@femalady
@femalady 6 күн бұрын
I worked, as an Activities Director in a nursing home, for two years. Impactions, NG tubes, etc were common. I hated that residents were alone, at the end of their lives. I would try to stay, with them, during this time until the inevitable. I was only able to do this 4 times. The process took a toll, on me in a lot of ways. It’s such a helpless feeling. You have answered the call that few will. Thank you for your kind work and the support you provide.
@hospicenursejulie
@hospicenursejulie 6 күн бұрын
Thank you for all the help you've provided 💕💕
@meep2576
@meep2576 6 күн бұрын
I will remember the hospice nurses that took care of my father for the rest of my life, they were like angels for my family ❤
@craigseptember4029
@craigseptember4029 3 күн бұрын
Thank you for highlighting this. My mom had intractible nausea and vomiting, for MONTHS, leading up to her demise on 29 Jan this year. She was in and out of hospital so many times, she became tired and worn down. It was horrible to watch her experience this up until the very end. I spent days on end crying and trying to comfort her the best way. I started watching your channel around that time, not knowing what to do. Your videos helped me understand and prepare for her passing IMMENSELY!! Thank you so much, Nurse Julie❤❤
@ThinkerNinja
@ThinkerNinja 6 күн бұрын
My grandma had stomach/colon(??) cancer before in her life and spoke about painful it was. She passed later in lonely isolation in hospital during covid from something else, but i think of all thr pain she must have endured and it's heartbreaking. Thank you for making these videos
@randomstuffwithjoe
@randomstuffwithjoe 6 күн бұрын
I'm an AFC case manager and I've shared your channel with several Caregivers in recent months who are caring for loved ones in Hospice. Your channel has been very helpful to them. Thx for providing this important information.
@mamajotobin
@mamajotobin 6 күн бұрын
I had morning sickness with all five of my kids. I couldn’t imagine nausea and vomiting at the end of life. I think I could handle pain more than that. I hope there is someone to advocate for me! You’re a good nurse/woman Julie.
@RegeneSonja
@RegeneSonja 6 күн бұрын
It's so sad to see anyone suffer... Thank God that there is some meds that can ease some of the suffering and pain....
@michellemurphy9071
@michellemurphy9071 6 күн бұрын
I have Gastroparesis and you just described the last 7 years of my life. It breaks my heart to hear that others are suffering the same way
@jennifermaguire666
@jennifermaguire666 6 күн бұрын
7.41am Brisbane Australia. I find your videos so insightful . They helped so much when my Mum was in Palative care and now my sister is very unwell. I find the information so helpful. ❤
@Nutty8114
@Nutty8114 6 күн бұрын
🙏
@thomasfox4513
@thomasfox4513 6 күн бұрын
So sorry that you had to go through that. Your vids have been indispensable while my wife of 40 years was dying. The periods of helplessness were so brutal. Your empathy is what makes the service you provide so valuable. Thanks for the nursing you do, as well as sharing your experiences and insights
@equynenergie
@equynenergie 6 күн бұрын
Hospice nurses are angels 👼
@wendygricken3369
@wendygricken3369 6 күн бұрын
I am not obviously hospice but suffer from constant nausea sometime vomiting and had 2 small intestine blockages that were repaired by major surgery. Living with this constant nausea that no medication takes away (Canada) is a terrible way to live thanks to gastroparis. Thank you Julie for this video
@alllight1822
@alllight1822 6 күн бұрын
I cannot express how traumatized I was by my mother’s passing. I had heard for years how wonderful hospice is and how those passing don’t suffer. We had the most horrendous hospice experience, and no one can ever convince me she didn’t suffer. I feel cheated, to this day, by how little peace and comfort our hospice team provided to both my mother and me. I was never afraid to die, until I experienced this. To top it off, I’m an only child with absolutely no living family, and the only expression of sympathy I received was from my dentist when I had to cancel my appointment due to her death. In some odd way, this video made me feel the tiniest bit better knowing that my mom, whom I loved so much, wasn’t the only woman who suffered in hospice, when I was told what a blessing it would be.
@LoveFalmouth
@LoveFalmouth 5 күн бұрын
@@alllight1822 I am so sorry to hear about what you went through when your mum died. I lost my mum last year and she died in her own home, it was so peaceful. I am still traumatised so I feel sorry for you that you had to watch your mum suffer. Make sure you do one nice thing for yourself every day x
@ellietenenbaum3486
@ellietenenbaum3486 4 күн бұрын
I am so sorry.
@alllight1822
@alllight1822 3 күн бұрын
I appreciate your messages/replies more than you know. Thank you.
@judyshepard1425
@judyshepard1425 3 күн бұрын
I am sorry for the experience you had. I also was The only living child my parents had and I lost both within six weeks of each other. Very hard for me but thank God there was little suffering. May Godbless you and you have my deepest condolences.
@darlenewilkins6998
@darlenewilkins6998 3 күн бұрын
​@@alllight1822 - I am so very sorry for your grief and what you went through with your mom. I am an only child and lost my mom from cancer a long time ago when I was 25, it's so painful to watch them suffer. My heart goes out to you, I wish you had experienced this with a good care team. The best ones are such a gift. Again, I'm so sorry. ❤
@carolmartin4413
@carolmartin4413 6 күн бұрын
Such a shame. Any gut pain with any type of reaction...diarrhea, vomiting...is just so hard to deal with. You sure don't want that end-of-life.
@seinfeldchik
@seinfeldchik 6 күн бұрын
I don’t want that during any point of my life.
@CalHarle
@CalHarle 6 күн бұрын
It makes the Robin Williams method sound good. Not awful, just an out. The universe is compassionate and loving.
@ravensdotter6843
@ravensdotter6843 6 күн бұрын
Dying or living, nobody should have to deal with this.
@Judi4Him4Ever
@Judi4Him4Ever 6 күн бұрын
Thank you for your heart ♥️ Your videos and insight got me through losing TWO parents this past year, both in hospice.
@Nutty8114
@Nutty8114 6 күн бұрын
🙏
@MamaBearWimzi
@MamaBearWimzi 5 күн бұрын
Yet again....more help for those of us who are coming to the end of our journey so we are better prepared. Thank you, Nurse Julie.
@scottlambert2949
@scottlambert2949 4 күн бұрын
I thank all the hospice nurses who took care of my mom and Dad and I mean that from the bottom of my heart
@debramulcahy9979
@debramulcahy9979 6 күн бұрын
God bless you. I am a retired trauma nurse. Used to do “car talks” to myself in the car after my shift too. ❤️🙏
@angelakalmer1852
@angelakalmer1852 6 күн бұрын
What a nightmare! I HATE being nauseous! I would beg to be put to sleep! I feel so bad for these poor people!😭
@devonalr72
@devonalr72 6 күн бұрын
I’m thinking of you. I know it’s hard. I went thru that with my husband. Keeping you and your patients in my prayers
@Nutty8114
@Nutty8114 6 күн бұрын
🙏
@watchcity2068
@watchcity2068 6 күн бұрын
Marijuana MJ (emjay)is commonly used with dying patients to curb nausea. It really helps!
@Mypuppies812
@Mypuppies812 3 күн бұрын
OMG.I wonder what the heck the hold up was.I agree .
@maryketter2227
@maryketter2227 3 күн бұрын
@@Mypuppies812 strangely enough, I’m a retired palliative care nurse, and was floored with the lack of use for hospice care with this family of medications. Anything that helps, and you are not totally zoned out. My daughter is a drug addictions and mental help nurse. It astounds me how public feeling is more understanding with drug addicts, than those that are on their last days and in pain. Hopefully the pharmaceutical companies can focus on those comfort meds, less on using the diabetic medication to lose weight.
@AyyRalphy
@AyyRalphy 4 күн бұрын
It’s a nightmare. For 2 decades I was medically neglected as a child. Non stop nausea, strange gagging/retching. Missing 3-4 days out of the school week. Turns out I had an intrahepatic gallbladder deformity. Forever thankful for this surgeon shout out to Irfan Wadilla in Houston. That man saved my life performed exploratory surgery and found it. It was horrible. I lost so much out of my life. Recovery was brutal. I was told sphincter of oddi dysfunction or gastroparesis could happen but we went forward. 4 years later i’m fit, a successful LMT, and have never experienced nausea ever.
@judyoneal7887
@judyoneal7887 4 күн бұрын
My brother was sedated with 2 sub-Q lines in his belly & a pump. He had brain cancer & his terminal restlessness wasn’t awful initially but one evening, in the overnight hours, it just got waaay worse. We had to have someone physically sitting in a chair right next to his bed to keep him in it. We couldn’t walk away for even 30 seconds. We got him to the hospice facility later that morning via Ambulance. They had quadrupled all his meds & he was still fighting to get up, & miserable. In the end it took a good 2.5 days to really get him fully sedated, sleeping & staying asleep. He was a healthy 54 year-old who ran 3-4 times a week, w/a healthy heart so it took another 4 days till he died, but his suffering was over once he was sedated. Terminal restlessness is awful but he really had no pain or other symptoms. We miss you, Tim. ❤️
@CKane-oh3nc
@CKane-oh3nc 5 күн бұрын
Thank you Nurse Julie and all the hospice workers. This must be an incredibly challenging career. Thank you for all the work you do and for the educational videos.
@okdk7
@okdk7 6 күн бұрын
💔 Hugs 💔 Poor people.... Glad you are there to try and help.
@loisroberts2216
@loisroberts2216 4 күн бұрын
I will alway be thankful for hospas nurses who took care of my 17 yr old they give so much love .
@BR-kk9qu
@BR-kk9qu 6 күн бұрын
Julie, Thank you for addressing this issue. You explain issues extremely well. The suffering is horrible.
@Rani-gr8yi
@Rani-gr8yi 5 күн бұрын
God bless you Julie 💚 It is so hard to see the suffering.. I wish we were honored as our beloved pets..
@MsLoma1212
@MsLoma1212 6 күн бұрын
Thank you for every life you make easier and better ❤ Thank you for all the help and care you provide to those who need it so much. Praying for you and your patients🙏🫶🫂
@Isszarya
@Isszarya 6 күн бұрын
Julie stop suffering you do your best
@thechronicplanner2284
@thechronicplanner2284 4 күн бұрын
I like that even as a nurse of 11 years, sometimes I need reminders: rectal medicine, OF COURSE! I've had a patient the last 2 weeks who was 1000% hospice appropriate but not ready. Gastric cancer, abdominal abcess, surgically created fistula, and all I wanted was to relieve her nausea arms vomiting. Why didn't I think of rectal meds? Ugh! Thanks Julie!
@miranduri
@miranduri 4 күн бұрын
What a hard job you have, Julie. Your compassion is appreciated.
@AbrahamsAnt
@AbrahamsAnt 3 күн бұрын
Thank you for your work and for doing what you do with love ❤️ Nausea to me is sometimes worse than pain.. So sorry the doctors couldn’t help your patient to have a better death.. I will never forget my mother’s death. I was a kid and… it was somehow traumatizing. I will never forget, how her upper body/back looked after weeks of lying in the hospital bed. Thank god she was “sleeping” (don’t know, if she was sedated - she seemed conscious at times..) most of the time and got medicated when she showed the slightest sign of discomfort. She was still young and had had a tough life. More than tough. I hope that God will explain to me one day, why this beautiful human being had to suffer so much throughout the years she was on earth and why she didn’t get the chance to see her children succeed and spoil her in the later years of her life. It has been 34 years now and after pushing the pain away and not really dealing with it in my youth, the mourning is more painful now, than it ever was. I would like to go back in time, hug that little girl that I was and tell her that it is okay to be sad and cry. Please remind the families of the children that are left behind, that they need support - even if it seems like they are doing… okay 🫶🏼
@karenrader2160
@karenrader2160 18 сағат бұрын
God bless you, as you have suffered too.
@christopherstephenjenksbsg4944
@christopherstephenjenksbsg4944 6 күн бұрын
Thanks, Julie. I had a nasogastric tube when I had peritonitis back in 2015. I was delirious most of the time and I kept pulling it out. It wasn't comfortable, to be sure, but it wasn't agonizing. Still, I was so glad when it was finally taken out.
@damienwhitfield2423
@damienwhitfield2423 6 күн бұрын
If i was suffering like that, you better believe that i would want to be put to death, rather than have to go through all that terrible suffering. I don't know the rules, and what's allowed, but i do believe that the patient who is suffering should be allowed to make that choice, on wether they want to be put to rest or not. Bless you Julie!, and for all that you do with your chosen occupation, as not many people would be able to go through seeing those poor people, at the end of their lifes. 💯💗
@lc4936
@lc4936 6 күн бұрын
Thank you for providing such extensive details. Your videos are so helpful and I am using the knowledge I gain to provide exact instructions for my end of life care whenever that may occur.
@sailingmoore
@sailingmoore 3 күн бұрын
I wish I knew about palliative sedation. My husband suffered so much! He was constantly vomiting, (like coffee grounds), unfortunately the hospice gave him only liquid morphine, and they never understood it didn't work because he will vomit it. I wish I knew about this before. I would have asked for palliative sedation for sure. Thank you nurse Julie for educating people! Hopefully nobody has to suffer the way my poor beloved husband did.
@paijlee1
@paijlee1 3 күн бұрын
Thank you, Julie, for giving so much of yourself to provide the best care to your patients. I hope you get the regular rest and rejuvenation you need to stay healthy and quiet your mind during the trying times. ❤&🤗🤗🤗& The Force be with you💞
@YukikoAkazui
@YukikoAkazui 4 күн бұрын
thank you for these extremely empathetic videos, i've always had the opinion that palliative sedation (and being put to sleep) is something that should be legal everywhere and it's clear that it alleviates suffering for the one dying. Knowing i may have to puke and suffer until i die is an incredibly haunting thought.
@daniel66weir
@daniel66weir 6 күн бұрын
I'M very happy Julie is making these videos. it's extremely important she is doing this. because families don't or refuse to deal with this issue. Julie, continue to educate families. thank you Julie. from a former CNA, Daniel
@paulbernardo7987
@paulbernardo7987 6 күн бұрын
You sure are convincing me of MAID before I get to that stage!
@marciadichiara5688
@marciadichiara5688 6 күн бұрын
My sis used that a year ago even though in hospice. Crohns disease and malnutrition. So sad
@BeauChampion
@BeauChampion 4 күн бұрын
I was so worried that this is how my grandmother's life would end. She struggled with bowel obstruction for the last sweveral years of her life. I am so grateful that it didnt go that way for her. Thank you for doing this. You and the other Hospice nurses on here that shed light on end of life care and experiences are doing a great service. Death is a part of life and there is not way around that. Many of us are so disconnected from it that we can't fathom it.
@UncomfortableGinger
@UncomfortableGinger 5 күн бұрын
@HospiceNurseJulie thank you for your videos! My father is on home hospice care, and your videos have been very helpful and comforting.
@elaineplowman9621
@elaineplowman9621 6 күн бұрын
We should have the right to end our life if this happens no matter where you live! No one should be able to tell us what we can or cannot do!!!
@KarenJohnson-nr6gf
@KarenJohnson-nr6gf 6 күн бұрын
@elainplowman9621 I agree 100% I live in Induana and I support "Death with Dignity ". I have had my stomach removed from a botched bariatric surgery. Gallbladder removed, it made me feel like I was having a heart attack. I have 5 different types of arthritis, fybro, RSD, neuropathy and I had a pain pump installed that had Fentanyl in it for years, I was named out on the doseage. I switched to Hydtomorphone. It seems to be doing better. I'm 66 yrs old. And for more years then I care to count , every night I pray. PLEASE GOD JUST DONT LET ME WAKE UP INBTHE MORNING! It's not just because of my health, it because I have lost all my family over this. My husband of 35yrs divorced Mr because he didn't want to take care if me. Which my youngest daughter fuled and told everyone I was addicted to drugs. I lost all 3 if my kids and 7 grandkids that I basically raised. So you see, I have nothing or jo one to live for. I wish I had the guts just to pop a handful of pills and chase it with Tequila or a good stong MARGARITAS! But I know that would be wrong. If Induana ever passes the " D.W.D." law. I'll be first in line , demanding my rights be given to me. This is a horrible world we live in. I can't imagine bringing a precious baby into it and have to deal with all the evil there is.
@equynenergie
@equynenergie 6 күн бұрын
Julie ❤ Thank you for being here for us and helping us 🙏
@jdk5379
@jdk5379 6 күн бұрын
Big Hugs, Love & Comfort to You Julie 😘🫂
@JulieAnne17-dn
@JulieAnne17-dn 5 күн бұрын
You are a God send, Julie. I learned several new things today. Not easy by any means, but important information.
@dabuya
@dabuya 6 күн бұрын
I pray that if I’m ever in a situation such as this that I will be blessed to have a muse like you. God bless you for taking care of the dying in their last days, with compassion. Of course, my loving survivors all understand my desires.
@angelareimann6433
@angelareimann6433 3 күн бұрын
"We have them comfortable for now". This is a big sentence. Like you've been hauling them up a cliff toward a good death but it has been beset by snags, interruptions and delays. Bless you and all other hospice people.
@EpiicxFuziion
@EpiicxFuziion 4 күн бұрын
BUT. The anti euthanasia people say adamantly that no one has to suffer while dying due to palliative care. This video proves them wrong.
@susanfrausto3561
@susanfrausto3561 5 күн бұрын
Bless you and all hospice care team caretakers. You were a godsend for both my Mom and Dad
@diaryofsisinurse
@diaryofsisinurse 6 күн бұрын
❤❤❤❤Bless you
@shelleysiegel2039
@shelleysiegel2039 5 күн бұрын
Sending love from Northern California across the miles to Julie.
@maryjenkins6848
@maryjenkins6848 4 күн бұрын
Thank for educating all of us.
@dianareddell1496
@dianareddell1496 4 күн бұрын
Oh my gosh, bless you and all other hospice nurses like you. You are truly doing God’s work. 😇
@GinnySmith700
@GinnySmith700 6 күн бұрын
It sounds brutal.
@steven.h0629
@steven.h0629 6 күн бұрын
Robin Williams had it right, there's absolutely no reason to share your death drama with loved ones.
@rainymctrixie1
@rainymctrixie1 5 күн бұрын
What?
@michellecahill9702
@michellecahill9702 4 күн бұрын
My mum and I were talking recently about her mum who passed away from ovarian cancer that spread to her stomach etc in the 1950s, she told me her last memories of her mum were with a NG tube draining black stuff out of her stomach which sounds like this 😢 how horrendous, she ended up saying no to tube. Awful way to pass this makes me so sad. You and all your colleagues are amazing ❤️
@iflylo1528
@iflylo1528 6 күн бұрын
What a tough job...... You are awesome.....
@kathymcsheffrey5398
@kathymcsheffrey5398 5 күн бұрын
As an RGN in the uk and seeing this first hand I know how traumatic it is to see. Hence why I’ve always said to my NOK please don’t prolong my death, the body knows how to die. Respect the process. I feel like an awful lot of these symptoms caused by the body being kept alive longer than it should. Correct me if I’m wrong as I’m eager to learn but in my experience it’s always been the case. Let the body die naturally 🙏
@flipflops4sherri
@flipflops4sherri 6 күн бұрын
You are just such a wonderful hospice nurse!!!!
@mcrchickenluvr
@mcrchickenluvr 5 күн бұрын
My nephew is a celiac. He’s had to have an NG tube placed a few times to get nutrients into his body. He’s also allergic to anything in the caine family. So any kind of anesthetic has to be monitored so he doesn’t have an anaphylactic reaction.
@PastaMakerCordy-qy4uz
@PastaMakerCordy-qy4uz 5 күн бұрын
My sister has celiac disease. It’s a hard one.
@veganbatman
@veganbatman 6 күн бұрын
As one of my favorite Drs pointed out, a mechanical problem will not be fixed without a mechanical solution. Things like SBOs, or large sediment clumps/clots that break off in the bladder & clog even large bore foleys, or near constant seizures due to brain tumors, etc will continue to cause intractable symptoms until we are able to mechanically remove the blockage (not always possible) or we palliatively sedate so the pt at least doesn't have to feel it. Sometimes we can remove the mechanical problem like in the case of severe constipation/impaction, or urinary retention that needs a foley catheter but sometimes we just don't have the tools in our toolkits to do it.
@JW-mq4ng
@JW-mq4ng 5 күн бұрын
Praise FatherGOD, for those in your field. HNJulie, keep pressing forward and being you. Thank you for sharing experiences to teach us what is ahead, what to expect, how to deal with it. Amen! ✝️🕎📜⚖️📖🕊️🛡️⚔️🙏🏽🇺🇸🇬🇺🇯🇵
@mssdn8976
@mssdn8976 5 күн бұрын
My mum’s brother had stomach cancer, she said he was vomiting what looked like coffee grounds. I wish that the U.K., where I live, would permit assisted dying, because if I was terminal I would want to choose when I have had enough. A campaign is underway to implement this
@mariahamed681
@mariahamed681 6 күн бұрын
I have vaginal cancer also in lymph glands, during radiation n chemo , i was so sick vomiting,diarrhea non stop during treatment,i had to go to the e.r. twice it just wouldnt stop, i started vomiting diarrhea out of my mouth and nose, wretching, now i get pancreatitis ~ been admitted 2x n once it starts it wont stop ,i think its goin to stop, not til i go to the e.r. ,its so horrible i pray to die, now ive got blood clots,aneurysms,vaginal necrosis all my bones hurt, the vomiting n wretching are so bad when it happens, one super smart nurse thought she was funny by imitating me behind the curtain in the e.r. my young son saw her making fun of his mother, still gets him upset .
@lauridorrance1305
@lauridorrance1305 6 күн бұрын
That nurse wasn't smart, except smart ass maybe. Or just a garden variety ass. .
@rainymctrixie1
@rainymctrixie1 5 күн бұрын
@@mariahamed681 How cruel. They should have been fired.You know what they say about Karma.
@darrellhicks360
@darrellhicks360 5 күн бұрын
I had a NG tube. Removal is horrible. Same with catheters. 😢😢😢
@gazzathomas1423
@gazzathomas1423 4 күн бұрын
You are a brave and compassionate woman Julie.
@visi7891
@visi7891 6 күн бұрын
tysm for being real. love u
@ninamc6116
@ninamc6116 4 күн бұрын
As a RN & GI patient myself, one of the best things ever is Phenergan. I swear by it. It makes me sleep also
@karenA6039
@karenA6039 6 күн бұрын
Thank you for this helpful info!
@christinep.4238
@christinep.4238 5 күн бұрын
I watch you often... I am grateful for nurses that do what you do!!! You're amazing & I have high respect for you, girl!!!! Question, off topic: is that background your real background or a picture? I love the decor!!!! :)
@carolwhite6979
@carolwhite6979 4 күн бұрын
you looked so very tired. I am sorry as I know you are doing your very best to support and provide optimum care your patients.
@kathyhayward5730
@kathyhayward5730 5 күн бұрын
My mother signed up with a hospice home care group that did not provide (or permit) anything "invasive," such as an IV or med pump. Once she lost the ability to swallow, it became nearly impossible to control her pain. So, choose wisely... you may think you want to die at home, but it puts a severe strain on the family members who are providing round-the-clock care, and you do not want to be in pain for days, or weeks, before you die.
@catlyn777
@catlyn777 6 күн бұрын
If my son is suffering I will request this for sure.
@osrs_scrublord2039
@osrs_scrublord2039 5 күн бұрын
I had an ng tube inserted when i had adhesions in my abdomen. Omg, it is rough. I non-stop gagged on it before surgery. I feel so awful for the patients having terminal illness and also needing this device. 😢
@wxman2003
@wxman2003 6 күн бұрын
I can put my dog down if it is suffering, but god forbid, it's murder if I ask to be put down if I am suffering and will not live.
@shannonbailey7580
@shannonbailey7580 5 күн бұрын
This.
@christineangelafarmer4900
@christineangelafarmer4900 4 күн бұрын
This happened to my hubby he's primary cancer which was lung cancer metastaside to his stomach ❤❤
@jguenther3049
@jguenther3049 5 күн бұрын
Hugs, Julie.
@njsmkmmsthatsit3518
@njsmkmmsthatsit3518 5 күн бұрын
I’m chronically ill with several systemic (affecting the whole body)diseases. 2 autoimmune diseases and a trio of rare-ish genetic syndromes that are often co-morbid ( found together but not necessarily caused by one another, or current medical science has no explanation for why they are found together) I have had lots of procedures that the vast majority of people will never experience for lots of different symptoms. On a personal level I have lived with Dysphasia (not being able to swallow safely or effectively) for several decades now. I have had lots of investigations and treatments for this so know there are definitely ways and means to have all sorts of things (including NG tubes)put down your throat that don’t cause the kind of suffering Julie is talking about. There are also ways to remedy symptoms without going the NG tube route. In my opinion even though there are several medical specialties dealing with end of life care people are still suffering for no reason just because they are considered terminally ill. Its really not acceptable IMO. Not that there aren’t lots of other medical specialties that allow people to suffer needlessly for even longer periods of time than hospice care or Palliation. You don’t have to be considered terminal to know real suffering. I have or have had lots of friends with similar diseases or sets of symptoms to my own. One of them being gastro paresis (Paralysed Stomach/ digestive tract) there are certainly far more procedures than I completely understand to help with these symptoms. Lots of people I know or have known have had diagnosis’s that they understand are terminal or can be terminal but still have years, sometimes decades of “life” to live, depending on so many different variables. There are G tubes, NGtubes NJ tubes, there are some procedures that place big 20 or 30 mil in diameter tubes for digestive tract drainage that go into different parts of the GI tract through the abdominal wall (very confronting to see) but extremely helpful for allot of people who have lots of life left and would definitely prefer not to be suffering for that entire time. In my opinion medicine needs to be far more dynamic than it currently is so people are not being left suffering at any stage of life. I think this happens for a multitude of different reasons, none of them remotely acceptable.
@beckyberlin6433
@beckyberlin6433 6 күн бұрын
Why cant u leave them in a coma so they dont know they are in pain? Especially since they are dying😢
@deadandburied7626
@deadandburied7626 3 күн бұрын
My grandmother died from stomach cancer. She was on a driver for her last week. 😢
@charlenereilly96
@charlenereilly96 3 күн бұрын
Thank you for sharing the information.
@Sariah
@Sariah 4 күн бұрын
This is why I believe in the medical aid in dying pills.
@margaretneanover3385
@margaretneanover3385 4 күн бұрын
BTW, check doctor for old fashioned castor oil. It can mix in warm liquids but is effective.
@goforthegoldful
@goforthegoldful 5 күн бұрын
Thank You For all you do.❤
@jenniferlord6381
@jenniferlord6381 6 күн бұрын
Super important.❤
@midnyte6195
@midnyte6195 3 күн бұрын
I won't let my family go through that when my time comes is why I would rather die at a hospital while in hospice care, my parents honors my wishes and won't dissuade me from my wishes..
@loisroberts2216
@loisroberts2216 4 күн бұрын
You are amazing
@juvi6787
@juvi6787 4 күн бұрын
It's not right to let people suffer like that. It's inhuman. Comforting to hear that one can get palliative sedation in such cases.
@ginj5375
@ginj5375 6 күн бұрын
I've had a broken nose twice, it's no fun, and no one will touch my nose again.
@ronaldkrug9623
@ronaldkrug9623 6 күн бұрын
In 1997 I was hospitalized for 9 days I was vomiting very badly before I had a ng tube placed to completely empty my stomach no dr.had an answer as to why this happened I was 22 at the time
@dimpsthealien333
@dimpsthealien333 3 күн бұрын
I 🙏 I just drop dead one day. Watching my mom slowly decline is heartbreaking 💔. And all this pain. Again, I hope this doesn't happen to me. 😢
@carilariviere505
@carilariviere505 5 күн бұрын
I NEED TO KNOW this: As a hospice patient, can you just get to the point of this issue (obstruction with the nausea and vomiting), get told the processes available, (as you explained) and just skip to the palliative sedation part? I absolutely am not afraid to die, ready at HIS calling, any time! However I DO NOT want to suffer. I would like to know that I can just turn it off when I'm ready; so, DOES it work that way for the patient? Or no?
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