Self-Care Tuesdays: Noticing Changes - Meditation

From the appearance of first symptoms to the point of diagnosis can be a long, painful journey for raregivers. The raregiver’s journey often starts with a gut feeling-something’s not quite right-that leads to questions. What’s wrong? What’s going on? How do we fix this? Who do we talk to? Let’s come together and talk about what it was like when you first noticed something wasn’t quite right with your Rare child. Getting clear on what matters most at the Noticing Stage is very important as raregivers have limited time and resources to find diagnostic answers and solutions. Prioritizing what matters most (which will be unique to each family) will help to streamline decisions and create a platform for moving through the stages of the raregiver’s journey. Coming to share your personal experience with others who can relate to you in a disease agnostic environment can be deeply healing.
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