Filum Disease and ACM diagnosis, surgeries, symptoms, info - AST #1 [13.02.2024] [English]

[@samanthawoodward5362]

Thank you for sharing. I also have Chiari Malformation, Syringomyelia, cervical Kyphosis and Dysautonomia. I am previously decompressed (last year) and wish I had known about the Institut de Barcelona. My surgery is March 14th, in just a few days 🥰. I leave on Sunday for Barcelona.

[@ACOnetwork]

No problem and video is here to spread the info 😁. I do not remember about cervical Kyphosis and Dysautonomia but I will research it and add it to a list for the video about all those diseasses 👍. We found Institute by internet searching because here in Slovenia could not find any solutions. I wish you all the success, maximum recovery and all the positives. If you have any questions or just to talk, check the video description for socials links 😁. BTW where are you from??

[@samanthawoodward5362]

@@ACOnetwork Thank you! I Am from the United States. Originally from California, but have moved to Indiana two years ago. We have an awesome Filum Disease group on Facebook and it was members of the group who shared about the Institut for me, and I'm forever grateful. Cervical Kyphosis is an overly straight neck. I have no natural curve in my neck. Here, it is also called Military Neck. And Dysautonomia is the dysregulation of the central nervous system.

[@ACOnetwork]

► Text version of video ◄ aconetwork.net/filum-acm-en/ ► Video parts ◄ 00:00:00 Let's get it rollin 00:03:51 Neurological and neurosurgical checkup 00:06:24 Decompression surgery time 00:07:09 How ACM looks like 00:12:48 Decompression surgery for ACM 00:14:44 Recovery after the 1. surgery 00:17:57 Neurosurgeon checkups 00:18:56 Find and contact ICSEB institute 00:20:17 Preliminary assessment info on ICSEB 00:24:45 Neurological checkup at the institute INFORMATION 00:26:29 My preliminary result and setting up the date 00:28:17 Expanses 00:30:16 Travel + my first ever plane ride 00:33:14 Checkup time 00:34:56 Filum disease in TCS INFO 00:38:54 Surgery Filum Terminale description 00:39:26 About bank transfer and meds 00:40:30 Booking the surgery, ... + expanses 00:41:59 On the trip we went 00:43:56 Any other health issues? 00:44:24 After the pre-surgery checkups + the surgery 00:45:50 After the surgery + next day 00:47:15 About the medications 00:48:24 Post-surgery checkup 00:50:19 Flight back was amazing :) 00:51:11 1 month after the surgery 00:52:27 1 year after the surgery 00:52:52 Symptoms before and after 00:56:32 Exercises 00:57:08 Before the surgery 01:00:29 Stats after the surgery... 01:00:08 How long recovery lasts? 01:03:21 Conclusion words😁

[@sunsetwolfqueen8837]

I'm a day off missed you live. Thank you for making this video very informative and helpful☺️

[@ACOnetwork]

No vorries 😁 but video is still up for watching. No problem and thank you 💛

[@sunsetwolfqueen8837]

I did watch it was very good

[@ACOnetwork]

Thank you 😁💛

[@daniie9643]

Sorry that i missed your live😢

[@ACOnetwork]

No worries, it was Premiere and not live but you can watch it any time if you are interested 😁

[@sanja4484]

pozdrav Aco❤ čekam Hrvatsku verziju

[@ACOnetwork]

Dobro veče. Srpska verzija če bude u 18:00 četvrtak

[@sanja4484]

@@ACOnetwork ok

[@epskolirska]

Zakasnih bratac, sorry. Bitno je da si ti nama ziv i zdrav i da nam uvek budes dobro i da se lepo rucka. Ziv bio.

[@ACOnetwork]

Ma če bude i prekosutra na Srpski 😁, nema zašto da se opravdavaš 🙂. Hehe falja brate 💛 isto i tebi 😁.

[@joketajoketa6958]

Ja sam tu ne znam engleski 😊😊😊puno pozdrava i zdravlje zelim😊

[@ACOnetwork]

Dobrodošla i hvala 😁💛. Nema problema, u četvrtak je srpska verzija pa dok prvi put video igra može se četuje u lajv čet 😁.

[@joketajoketa6958]

@@ACOnetwork Ja nisam ni otišla pratim sve tvoje objave,poz