Living With HS: Hidradenitis Suppurativa

[@AnaB9898]

This made me cry. I finally came across someone who also understands HS

[@something8330]

Me 2

[@miahopkins8254]

Same! I’m currently going through a flare up of my HS and I’m just tired of no one understands how much pain I’m in everyday because of it. I don’t mean to seem lazy every day I’m just in pain

[@luluciferia1948]

For real same. I've had this my entire life.

[@xoxolinett]

HS is awful. I haven’t worn shorts & tank tops in two years because it’s honestly embarrassing to have these flairs & scars, but I’m at the point where I basically have an open one that’s draining at all times, so dressings are a part of my daily life these days. It’s unfortunate that Doctors don’t know more about this condition, considering so many people suffer from it. Thanks for making this video, and spreading more awareness about HS 💕 **hugs**

[@shatece]

*hugs back* Thank you so much! I’m glad you liked it! I feel the same way about shorts and tank tops. I forgot to show this in this video (I think I’ll do an update), but I also have scarring on my legs from HS and I completely understand where you’re coming from. I was so nervous about uploading this, but it’s been bringing me closer to so many people like you that finally understand where I’m coming from, so honestly, thank you! 😊💕

[@thedon207]

One treatment called ksharasutra in india... it cures the condition

[@anacelysreyes9468]

Linett Reyes same here. Dressing is a part of my life. I been having a lump under arm and outside my arm and daily draining. I’m so tired of antibiotics. I’m To the point i don’t know what to do anymore

[@rosaroja4208]

It's hard for us who suffer from this. I love swimming but don't go swimming because it's embarrasing to me.

[@trent7736]

@@rosaroja4208 same here. I was a competitive swimmer until I decided it wasn't gonna work out with my hs. And I'm 19

[@summertondee7117]

It's the worst 😢😢😢😢 we can't be happy in our own skin!!! I'm tired of crying.

[@Adamimmune]

:)

[@thekiddpooh5132]

Summer Tondee honestly 🤦🏽‍♀️

[@rashanacraig7657]

My daughter just had surgery here in Memphis TN Dr. Hickerson. THE BEST!!! NO PAIN FROM SURGERY OR AFTER NONE!!!! Regional One Hospital. Folks check him out!

[@Michelle-em7zo]

I had one of these days last week I’m so tired

[@amandaglowgetter]

Thank you for sharing. My underarms and thighs look like this. I'm seeing a new dermatologist and starting treatment today. Talking about it and seeing others who are in a similar position helps me so much. Thank you!

[@shatece]

I’m so glad this video helped!

[@zandyphillips]

Good luck!! I understand. I heard diet Really plays a role

[@tj1219tj]

Hey I’m Danielle I have this on my thigh can I email u ?

[@Barbs_Collectibles]

Just heard of this disease. And my heart goes out to everyone with this disease. It looks so painful.

[@shatece]

Thank you ❤️ So appreciated

[@justdenise6838]

Thx 4 sharing. I suffer from this too. Currently I am in a lot of pain & I’ve missed 3 days of work because of it. When I was vegan, I had no flare ups. Definitely changing my diet forever. Lifestyle change may look different for everyone. This pain is driving me to be healthy & stay in remission. It’s hard but we gotta change our lifestyles. Love to all u who suffer with me.

[@shatece]

Thank you so much! And I’m so sorry you’re in pain and will be sure to keep you in my thoughts and hope you have a speedy recovery. I know how unbearable the pain can be; keep staying so strong ❤️

[@dosesofvideos]

I totally agree with you, I have seen many patients getting benefits by avoiding triggering factors. Lifestyle modifications and diet modifications definitely helps. There will be some factors which may be responsible for triggering flare ups, avoiding them helps avoiding flare ups.

[@zandyphillips]

I heard this too! It's the diet. Our bodies cant handle alot of foods. It sucks

[@therealgizemgueven]

I went vegan (not only) for that as well. And it helps a lot

[@SavageKya]

The pain that comes with it is excruciating 😖 they leave ugly scars and always come back regardless of treatment. I have a mild case but it’s still a hinderance.

[@briannajaliyah2529]

xXKya_GamesXx have you tried Humira injections ?

[@joshuabess4408]

My doctor just told me about HUMIRA idk I should do it tho 🤦🏿‍♂️

[@briannajaliyah2529]

Joshua Bess that’s what I do it’s been working great

[@joshuabess4408]

How long you been on it??and I may have to try it

[@briannajaliyah2529]

Joshua Bess 3 months they say it may take a year for me to see my full results but it has tamed it a lot and stopped my lumps from leaking

[@Cinnam_33333]

👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼 No more suffering in silence, so here for this!! Thank you for being open!

[@Synicall]

Had this since i was 13 (now 19) I found overtime it got easier with diet changes. Thanks for sharing your story! :)

[@girlsh0t2]

Can you share the diet please??!!

[@YankeeRose92]

Lucky! I've tried a few different recommended diets. None worked for me. I'm not sure if it's because it was so bad by the time a doctor finally listened to me but I'm glad you found a helpful thing!

[@karacole2304]

@@girlsh0t2 check out the website "helpforhs" 💗 www.helpforhs.com/ But, in general, follow the Paleo diet with as little sugar as possible. It IS possible to eat this way. Going on an elimination-type of plan is going to help HS, as it has a lot to do with gut health. Clear your gut and balance the microbes in your gut you and you will see a difference! Feel free to email me, if you would like help or even a friend. kcole0613@gmailmcom

[@ajagianna5626]

I suffer from this. I was diagnosed at 12 years old and I’m almost 14 now. I haven’t worn tank tops in forever because of my underarms. It’s painful mentally and physically... I found a sense of relief and happiness to know that I’m not alone. Thank you so much for sharing this

[@abbi5984]

I was recently diagnosed with HS this past summer when realizing it now i've been struggling with this disease for more than 3 years. And for me, it really has torn me apart. I constant felt like I wasn't pretty enough or good enough, and my friends would always ask 'why are you wearing long pants and a long shirt is 94 degrees out' and the only reason I gave them was because of body insecurities because I was scared of opening up. To this day I still havent told any of my friends/family except for my parents. You have a lot of courage to post about this, and I think these topics should definitely be brought up more. Nobody should go through these kinds of things and nobody should feel like they're going through this alone.

[@shatece]

Thank you! I completely understand, love. This is something that’s incredibly hard to open up about; it took me a long time to open up to my fiends too. From my experience, I think that once you’re ready to tell your friends, they’ll be happy to know so they can help you out if you need anything. For example, my fiends totally get it if we’re hanging out and I need to run to get gauze pads or check my blood sugar or request certain foods or need to tend to my wounds or anything. It’s taken such a huge load off of me and I think one day it will for you too. Thank you so much for your kind words. Sending good vibes your way! 😊💕

[@carolynrobinson1838]

Thanks so much for this video 🙏🏽 my daughter is dealing with HS and she has been hiding it for a couple of years. She had problems in High School, but I had her sweat glands removed and 1 other boil that mostly everyone gets. She went all the way through college and is now 30, but her flare ups has been bad the last year and they can’t seem to find a infection medication that works. I’m just finding out how bad it is because like you said she was so embarrassed and trying to take care of it alone.😢I have now taken over and thank God she is finally coming to grips that she is sick. She’s lost so much weight and now understands Mommy is going to get this disease under some control even if we have to travel where ever. I’m on a fixed income, but we are going defeat this devil. 🙏🏽🙏🏽 I will definitely forward this video to her if she hasn’t seen it. Thanks 😊

[@cnbctelevision3041]

I'm super excited Finally free from HS permanently without no surgery or anything, All thanks to Dr uduogie who helped me get rid of this with his herbs protocol. I've been living with this for long got married still battling with HS, I tried all possible best with all remedy I know to get rid of it and still yet, nothing happens. I came in contact with the Dr after me friend told me she got rid of her Herpes virus with his herbs medicine, so I hold on my fates and mail the Dr. which he responded, told me what to do and I got his medicine and soap. I made use of the product as directed by the Dr and within weeks it's actually work and all the boils in my private areas and armpit all dry up same after using the soap to bath, he's indeed a genuine when it comes to Herbalife. Contact Dr's help @ [e-mail], he's great indeed.

[@Amukiibi737]

I’m 15 years old and I’m also struggling through this condition. Thank you for this video it really helps🙂

[@shatece]

Thank you so much for watching love!!!

[@Jessrubyromero]

I was diagnosed with H.S and idk what to do ive been crying for a week because it made me feel insecure

[@shatece]

I’m so sorry, love. HS is so painful and can be embarrassing and bring up those feelings of insecurity. But you are someone who happens to have HS; HS DOES NOT have control over you. And I’ve seen so many people talk about home remedies that have worked for them. I left a couple links in the description box; wish you the best! ❤️❤️

[@lynnphree731]

Hi Michelle, I was about age 14 when I discovered "my acne" didn't tell my parents. I just dealt with it until I moved out. I was misdiagnosed in 1987 and given Accutane for acne. Went to a different doctor in 1989 who diagnosed me with HS. I know exactly how you feel. What a blessing to see this beautiful young woman bringing attention to this so others can lend support. I had no one back in the eighties. I was truly alone. I did not have a severe case but I was insecure, and felt like an outcast. Each outbreak that happened to me was very painful. I'm now almost fifty it's very rare for me to get any boils at all. I've learned that diet does help so much. I am currently using colloidal silver. This is really strange as well... When I would go use the tanning bed of all things, it helped ALOT. Not only did it mask scars, the outbreaks decreased. I know your pain, but you'll be okay sweetheart.

[@lynnphree731]

@@shatece God bless you Shatece for being so courageous and reaching out to help others. You are beautiful!

[@shatece]

Thank you love!!

[@th2992]

Lynn Phree Hello, what diet are you following if you don’t mind me asking ? I recently been having flare ups back to back and I’m honestly lost as to what I need to do to stop them from happening.

[@binal83]

You are so brave! Thank you for sharing this. I recently started getting HS outbreak under my arms and have not wore shirt sleeves shirts since.

[@shatece]

I understand the feeling! I’m so sorry for your pain, I know how debilitating it can be. I hope you can eventually find a treatment plan that can help! Keeping you in my thoughts. 😊

[@tiffanymeeks9808]

You are so brave. Thank you for sharing. I have suffered since I was 12. Sending love and hopefully they’ll find something for us soon with everyone talking about it.

[@shatece]

That’s what I’m hoping too 😊

[@tamicurtis2007]

Bless your heart for being so brave to reach out and help others understand. You are such a beautiful amazing soul❤️.

[@shatece]

Thank you so much!!

[@elizabethgillikin7339]

thank you so much for making this video. it’s been a struggle learning to accept my HS and it’s so amazing to see people like you spreading awareness and telling your story 💙

[@shatece]

I’m so happy you liked it! 💕

[@ren6510]

i feel you pain :( i had hidradenitis since i was 13 and now i am almost 28. When i say these things are painful THEY ARE .. My dad have it so i know its genetic some how. I even get flare ups on my face sometimes. I use to let it stop my life but i couldnt any more.. If people ask i just tell them what it is. I had to realize there is are people in more worse conditions than me. I can walk , i can talk and breath on my own and it helped me continue to enjoy life:) . You are not alone. Everyone watching this video are with you

[@shatece]

Thank you! This is definitely something I need to remember; as painful as this is, we can still enjoy our lives. I’m glad you liked the video 💕

[@divinebeautymf]

Ren I totally agree with you. I have it as well and I try everyday to not dwell on what I have. It’s not what we’re going through it’s how we handle it. Because stress can make it worse. And I’m grateful to have come across this video and your comment ♥️ much love to you guys.

[@megernst6356]

I was actually just recently diagnosed with HS. It took me so long to go and even talk about it with my family doctor. I was even scared to be around my daughter in fear of her catching whatever what was going with me. I finally had enough with a really horrible boil on my inner thigh and went to my doctor. It helped so much, and I started doing research about it, and found you! Thank you for sharing your story

[@shatece]

I’m so glad you liked it! Keep fighting, love!!!!

[@Navixa1234]

You, my dear, are extremely brave. For four years I said nothing, living with constant pain and humiliation is excruciating. Thank you for feeling the need to speak, HS is awful. I have an appt at Stanford tomorrow, and I’m really nervous considering that I’ve been to four doctors for this with no help whatsoever. One even scoffed at me and said that there wasn’t anything that he could do, “good luck” he said. I’m so tired of being in pain, self conscious, and overweight. I can barely move half the time. It’s no way to live...

[@shatece]

I feel your pain, love!!! I’m hoping you can find the help you need at Stanford and that you take care of yourself in the mean time.

[@tiffanypayne3699]

I've had HS for 20 years now & I completely empathize with you.. hearing you talk about how it made you feel about your physical appearance made me cry. I feel the same way too, that other people think you're dirty or have an STD.. & it has nothing to do with that. You are so BRAVE - Thank you for sharing your story. I know that was hard to be so transparent but hopefully with more awareness, the mindset of this condition will change for the positive. Hugs my friend 🤗

[@shatece]

Thank you so much love! This really helps 💙

[@theacarter8205]

So glad that it's not going unnoticed. There are clinical trials out there. I've been HS abused for about 40 years and in 2019 there may be a medicine coming to help. Painfully grateful.

[@therealgizemgueven]

Could I ask you how is it to get intimate with a partner. Because of it I always stop before everything goes down. And I’m to embarrassed to tell him.

[@yvettealvarez53]

I’ve recently been diagnosed with HS.I’ve been struggling with HS since I was 15.Thanks for sharing this video; I literally had tears running down my face watching this because I’m going through this right now.

[@teehee3737]

Thank you so much for this video..! My mom (42 years old) recently got diagnosed with HS, and I've been quite worried. I researched a little bit about it, and got concerned when I read that it improves chances of skin cancer. But looking at the comments and seeing how many years people have gone through this condition yet still being really strong is really quite heart warming, and it encourages you as well. ♥️

[@karenrojero506]

omg army 🥺👉🏼👈🏼 tell your mom she’s not alone :) i’m one of those people who are diagnosed with hs

[@nataliewiggins5894]

Girl you are not alone! I've had this since 13 (I'm 23 now) and it's a bitch! But diet and exercise has really changed the game. Right now I'm just trying to figure out ways to lighten up all my dark skin. But it's very refreshing to know that we're not alone. Stay strong! 💕

[@shatece]

Thank you love! Girl, let me know if you find anything out for that because I’d love to lighten up some of my dark scarring too. I’m glad you liked it!!!!

[@nataliewiggins5894]

Shatece Haynes I've been watching a lot of BeautifulBrownBbyDolls content. She has a few skin lightening videos. A lot of forums and stuff have also said that exfoliating the skin also helps and using antibacterial soap like dial. Hope that helps :)

[@firstnamelastname8143]

Natalie Wiggins Can u pls share about the diet you followed???

[@shatece]

I’m not really on any specific diet; I’m just more conscious of what I’m eating and I try to keep my carbs low for diabetic reasons. For me, when my blood sugars were running high, my HS got worse.

[@nataliewiggins5894]

Durga Videos Im on keto but if I eat more carbs I try to stay within a low carb diet. I noticed that processed foods, high sugar foods, and dairy make my HS flare up. I also try to get stricter on my diet around my period because that's when it gets worse.

[@dprkidd5780]

I'm 21 and diagnosed recently, I have HS since like 13 years old. It emotionally affects me so much bc I have it in the groin area and I can't have a boy/girlfriend bc it makes me so uncomfortable to think of someone seeing me and thinking that I have something contagious or that I don't shower, it also sometimes hurts physically, there are days that I can't even walk. Finally I found people that understands that kind of pain

[@shatece]

I understand your pain and I’m so sorry that you’ve had such a rough experience. I remember feeling the same way about relationships too and it made me feel kinda hopeless. But sometimes people can surprise you and be pretty understanding. But again, I understand how hard that may be at times. Please know that there’s nothing wrong with you for having this very real and debilitating disease and if someone thinks otherwise, that’s on them. Wishing you the best on your HS journey and I’m hoping that you’ll eventually find a treatment plan that makes it easier on you. 😊💕

[@kendallcloud7692]

Girl, you are literally me. I have been suffering from this disease for a long time. I dont get it often under my arms or breasts but i get it on my legs. All over my thighs and buttocks and.... it has been so hard to live life normally. I have had several surgeries and treatments and it is so nice to see i am not alone. They tell you millions of people suffer but then you never meet antone that suffers other than you and it makes you feel so alienated. Seeing this video made me cry and watching that same tedtalk made me cry because i have had HS since i was 13 and its good to know that you arent alone. I am with you girl, and we can get through this!! ❤❤❤

[@shatece]

Thank you love!! 💕I didn’t know so many other people had it and I’m glad more people are being so open about it and talking about their struggles too. Thanks again for your kind words 😊

[@YankeeRose92]

I have a really severe case under my arms. I've only just started getting it under my breasts and on my butt. But I get it on my inner thighs pretty often too. My underarms are incredibly scared from it which is why I'm glad I'm finally getting a surgery. You are certainly not alone!

[@siluq6485]

I had them under my arms, just the scars now, like you. I had them in my bottom and it was very very painful. I am doing better now añ my scars are smaller. There was a time that I just couldn't stand the pain because of the location of the boils but I pray and ask God to help with the pain. I know that faith and Jesus has helped me to be healthy again. God bless you!

[@shatece]

Thank you so much!

[@feminineflame3693]

Your courage gives me inspiration to talk about my hs that I’ve had for 5 years and have always been embarrassed... Thank you for your bravery!!!

[@shatece]

I’m so glad it could help! Keep fighting love! 💕

[@whatshappenin265]

I'm 19 now and I have had HS since I was 12 or 13. The part when you talked about the fact that you couldn't lift your arms in a movement class definitely hit home for me. I used to be in band and dance and there were days where I literally had to miss a performance because I couldn't move my arms and it made me feel so alone and worthless. Your video helped me so much in ways you can't even imagine. Thank you for being brave enough to tell your story.

[@HannahBarling]

THANK YOU for posting this - I've had HS for almost 10 years, too, and was only diagnosed this summer. I've been wanting to share my story and haven't had the courage...thank you for your inspo ❤️

[@shatece]

I’m glad it could help!!! 😊

[@senabaccus463]

Sis!! You are beautiful! Thank you so much for this video! I have suffered from HS since I was 14yrs old, I'm 25 now and I feel your tears and pain. I'm finally working with a dermatologist and nutritionist to manage it. I'm sending good vibrations and love your way!

[@shatece]

Thank you so much love! 💕☀️

[@framed166]

I was diagnosed with HS in jr high, I'm a 33yr old white male. I feel your pain and I know your Frustration. The physical pain really sucks but the worst part is what others think. You're gorgeous and stay strong! Thank you for the courage to make this video!

[@shatece]

Thank you so much!!! Keep fighting 💕

[@Raq457]

I’ve been having HS for over 15 years under my arms. I control them with tea tree oil or Vick’s to soothe the pain. Thank you for your courage and sharing your story I relate to it very much.

[@MultiAbc678]

Really vicks helped you? How often do you apply?

[@MultiAbc678]

Really how well did the vicks work? And how often do you do it?

[@Raq457]

Carryy_onn_18 almost everyday, but I started a treatment and it has my flares under control. Its actually clearing my under arms pretty good it’s not a cure but anything that can help control it. Treatment is bad so far.

[@Raq457]

Carryy_onn_18 Humira it works well for me. No flares no bad odors..nasty bumps have dissolved. Everyone’s reaction is different the only thing I don’t like about it..Is I have to get an injection once a week 😏

[@MultiAbc678]

@@Raq457 Even tho I really hate needles I would rather do injections than suffer more. Thank you for responding

[@Starlightrenee72]

I was diagnosed with HS about 2 years ago. But I've been dealing with for 8+ years now. One thank you very much for sharing this with the world. Every time someone talks about it, it helps with getting word out about it. I totally understand how hard it was to deal with as a teenager, it was so hard to cope with. And honestly I'm still learning to cope with it. But we should not be ashamed because of it. We are still beautiful people and no one should make us feel otherwise.

[@shatece]

I love everything about this! Thank you love 💕💕💕

[@IamCynDoll]

Sending you all my love. I’m fighting with you.

[@shatece]

Thank you!!!

[@corynapadgett5931]

I have had HS for 11 years now. When you talked about the TED talk you watched and how you felt like somebody finally understood what you were going through, that is what your video was for me. Thank you so much for sharing your story. I have spent the last decade hiding my condition, even from family, and honestly I have always felt completely alone. I hate that you also have HS, but it felt really good to actually see and hear somebody else talking about having this condition.

[@shatece]

Thank you my love! I’m so happy it could help!!! 💕

[@SimplyShaBer]

Thank for sharing and bring courage to those people who have HS. I had this since 13 and now i 30. With love!

[@AmberJeneen]

I am so happy I found your channel. It feels good to know I’m not the only one. You are so beautiful. Subscribing. 💖

[@shatece]

Thank you my love!!! 💕

[@terriabates1530]

Thank you for sharing your story. I have had HS since I was 12 and I am 41 now. I understand your struggle. You are so strong. Keep sharing.

[@samanthajones7556]

Thank you so much for sharing your story when I found out I had it all the info i wanted to know I couldnt find! So happy people are starting to talk about it!!

[@Vibrant_Delights0123]

From one HS Warrior to another, you are so brave and inspiring. I’m 50 and have had HS since I was 11. Stage 3 with 10+ surgeries. HS is real. I have seen such a change in research in the past few years which is amazing. It is overwhelming sometimes. I’m in Illinois/Chicago burbs and would like to connect. I’m on IG Vibrant_Delights0123. 🙏🏾

[@MultiAbc678]

Me too. Definitely will reach out.

[@jamiechacon2797]

Have you tried changing your diet? Do you have any stomach issues?

[@kristalcintron245]

Thank you for speaking for all of us with HS, your so brave

[@greeleyraue3540]

I definitely relate to you. I just recently got diagnosed last week with HS. It has been going on for almost a year and we kept thinking it was just infections or ingrown hairs. I also have chronic migraine and chronic amps in my joints. I am 15 and a sophomore in high school and it has really gotten to me. It has stopped me from wearing clothes I want to. I only wearing sweatshirts. I don’t want swim suits. Thank you for sharing this video

[@pennyclark3425]

My daughter has HS. It's awful to see her deal with this on a daily basis... The scaring will never go away and HS is here to stay unless someone finds a miracle drug. I'm sorry to see the pain you still deal with! Praying for everyone with HS!

[@LadyK007]

Look into laser surgery for your daughter. Maybe she’s a good candidate. It really helped me.

[@miyajacross1058]

i’ve had it since i was 10 and i’m 16 now, and i have to do school online because the pain is so bad... i’m constantly on medication and antibiotics... i’m so thankful that there is someone out there that understands what i’m going through. thank you for sharing your story💕💕

[@shatece]

Thank you so much for watching love 💕

[@destinyortiz8166]

I was recently just diagnosed with HS literally a week ago ever since I had my son my flair ups have been getting recently worse working in fast food and the constant sweating. I understand your pain and have been crying for the past week cause I feel so helpless, this is my third day trying the paleo diet and it is so hard.

[@theacarter8205]

I so understand as I have dealt with it for 40 years. It does feel like you're alone.

[@theacarter8205]

There's a new drug that's in the trial stages right now..Avacopan. Look around for it. Just found out about it 2 mos ago. Stay up and stay blessed...Each one teach one.

[@yahnemiere1989]

Hi love, I've been living with HS for some years now. I thought I was alone until I found Dr. Nina and she was talking about it and how she deals with it. This condition is seriously painful and the fact that there is no cure really saddens me. I know your pain literally! I have felt the same way you felt, but I also know now what to do to reduce the symptoms. Everybody's body is different, but I noticed when I lost weight it helped. I also notice that I can't eat dairy or I will flare up a lot. I don't know what kind of diet you are on, but for HS the Ketogenic diet is a very great diet to be on. I know I don't know you, but I'm praying for you, as well as, everyone else living with this condition.

[@shatece]

Thank you so much love!!!! I’ve noticed a lot of people i talk to also say dairy causes flare ups and I’ve actually been looking into the keto diet for diabetic reasons but now that you’ve mentioned it I think I’ll look into it again. I’m so glad you commented! Thank you for your kind words ❤️

[@AnayaNicole07]

I started crying when you started to cry bc I felt the same way. I was so embarrassed to talk about my pain. Some days the bumps got so bad i couldn’t even walk! Although my case isn’t as severe through the ages of 12-17 I kept getting recurring bumps on my groin and every doctor I went to told me I had MRSA and finally when I turned 17 I went to the dermatologist and they finally told me what it is and I’ve been prescribed a gel that works wonderfully. I use this gel every day after a warm shower and I soak in the tub with hot water. In the shower I use a soap called Hibiclense with exfoliating gloves and after the shower I wipe my legs with alcohol and rub lavender oil and tea tree oil and coconut oil and that has helped my skin significantly! I also saw that my change in diet helped. Drinking essentia water has helped, lots of lemon water as also helped.

[@shatece]

Thank you so much!!!! I’m going to try Hibiclwnse and I hadn’t even thought of essential oils! You’re a life saver! 💕💕💕

[@AnayaNicole07]

Shatece Haynes any time!! I really hope in the future there will be a cure for HS

[@emilyfrancis6403]

I have it too, I’m here just for some support, I’ve been feeling really shit Lately

[@miawilliams7238]

So glad you had the Courage to share what you and your body are going thru. I know this Video is helping other people some who may have the knowledge that you have and knowing that they’re not alone and others who have no clue what is going on in their body and your sharing light on the possibilities of what they may have you are awesome and brave thank you for sharing

[@shatece]

Thank you so much love!!!!! 💖💖💖

[@luluciferia1948]

I literally haven't been able to hold down work cuz of this, it gets so so painful and nobody understands, only judges. Have had this my entire life. You are so amazing. Thank you for this. So much love and support to you.

[@shatece]

Thank you so much! It’s so nice to hear from other people who have had similar experiences 😊

[@hannhvarez2062]

Your not alone ! I have hs also .. struggled with it since I was 13 .. I starting on the paleo diet and it has helped a lot , I haven't eaten potato or eggplant in 5 years .. it was one food that gives me the worst flair ups.. thanks for sharing your story !

[@shatece]

Thank you so much! I’m still in the process of finding what foods I should cut out to help, and this helped a lot! I’m glad you liked the video! 💕

[@ReeseCupp29]

Me too frenchfries a mash potatoes

[@cherylcooper3734]

I have HS its hereditary. I've had it since about 1995 around early 2000 finally got a diagnose. Some doctors don't know how to treat it. If your over weight losing weight helps. I had it in every area you can image. Very embarrassing with smell drainage. I think we you need a support group. I'm in California I found things to help with the swelling and pain. Stay strong young sister your not alone. It gets better with time and knowing your body.

[@shatece]

Thank you so much!!! I really appreciate this. 💕

[@lyeshidrearogers5314]

Cheryl Cooper what are some of those things that help with the swelling & pain?

[@nspiredlife6608]

Can you share the things you found to help?

[@millieempowers]

You are so brave!! Thank you for sharing your story!! ❤️ Honestly its not that bad looking! Doesn’t take away from the beautiful person that you are!!

[@shatece]

Thank you so much!!! That really means a lot! 😊

[@siobhanappleton3990]

I’ve just been diagnosed after years off suffering and it’s so painful and I don’t feel like they is a lot of support I’m currently suffering and struggling to lift my arms up thanks for this video

[@AlweeNBoo]

Darling you are not alone. I'm proud of you for your strength to talk about this! I suddenly developed HS at age 25 and felt so scared bc I had no idea what it was. There was such a relief to know it had a name and my body wasn't dying on me or something. It's been a few years and I'm still making up excuses about why there's open wounds in my underarms. I haven't gotten your strength yet to openly talk about it but I believe if it were talked about more, I think more people wouldn't be so scared. Wishing you the best love!

[@shatece]

Thank you! 💕💕💕

[@allthingsjanee7192]

Thank you so much for making this video. Very brave of you. Been going through this for a while now but with age it seems to get worse I definitely need to get on a healthy lifestyle because the pain is no joke!

[@shatece]

It is! Feeling like you can’t move at all without being in pain is horrible. It was definitely a wake up call for me to get my health in check.

[@allthingsjanee7192]

@@shatece I'm just seeing this but exactly!! God bless hun!

[@Ashgaming23]

I’ve been dealing with it for bout a year and you have no idea how much of you speaking about this means to me 😭 thank you

[@shatece]

I’m so happy it could help, thank you love!!! 💕😊

[@RyanARaymond]

Thank you for sharing and being brave to discuss this condition and sharing your story.

[@345_ash]

Currently sitting here with 4 under one armpit in pain and so grateful for coming across this video

[@shatece]

Thank you so much! I hope you heal up soon, love! 💕

[@ayyyyyycccceee]

I just stumbled across your video. I am SO thankful that you had the courage to make this!! I was just diagnosed with HS. I had no clue what it was and have had flare ups since I was 16. Now I’m trying to learn as much as I can because I thought I was alone in this. Hearing your pain and reflection on living with this similarly to what I have experienced makes me feel so much less alone. Thank you so much for sharing your experience and shining a light on this for others who might not otherwise know about this condition. We’ll stay strong together!! 💕

[@shatece]

Yes we will! HS warriors need to stick together if we’re ever going to beat this thing. And thank you so much for your kind words. 😊

[@lucian2dbone670]

Get rid of all other soaps and use only dial antibacterial soap only. This changed my life

[@sheryllazars8053]

I swear I couldn’t stop crying here I feel like I’m not the only one

[@fiyahthoe5043]

Sheryl Lazars me rn 😩🤦🏽‍♀️😂💕

[@Baker.sblissbynatasha]

I'm really glad you decided to share this as alot me people were not comfortable talking about it. I'm suffering with HS for almost 4 years now and it's awful...thanks alot it really helped knowing that I'm not the alone. Lots of love!

[@shatece]

Thank you so much! Best of luck love!!! 💕💕💕

[@angelinabell5503]

Thank you. 🙏🏽 you’re “never alone” was so genuine 💖

[@geraldineperez2000]

I feel you so much. I hate how this completely stops you from living. I’ve had this for a while and it sucks. It’s hard to have hope and keep living. But we gatta do it. We gatta keep going right. Sending you all the love and good vibes to you and everyone else who has this horrible disease 😊

[@shatece]

Yes! And thank you love! I honestly believe we’re so much stronger knowing how to deal with this and it’s honestly made me want to fight even more for a healthier life. We got this 💕

[@jeanneswift9519]

Do you see a dermatologist. They can help with treatment and scar tissue. I’m so sorry you are experiencing this very debilitating condition. I know it is very painful.

[@topekawilliams6767]

So happy to see more people opening up about this!!! You’re video is so helpful to people who have no idea what it is! I didn’t even know it had a name until just recently!!! Thank you!!!

[@shatece]

I’m glad you liked it! Thanks so much!!!’ 😊💕

[@rickywg1993]

I’m in tears watching this. I was diagnosed last month and I went back a few days ago for treatment and they cannot offer me anything due to kidney damage I already have and their medication could make it worse. I’m currently not able to walk as I have boils everywhere. I’m feeling your pain xxxx

[@Michelle-em7zo]

There’s a lot of stories here that made me feel Better. I’m currently crying in my bed avoiding a boy who wants to hookup with me bc I have a nasty flare up. I feel disgusting and I just don’t know what to do except watch other ppl talk about it so I don’t feel so alone. My heart hurts so bad I just want to be “pretty”

[@shatece]

For the longest time, I felt the same way. And I still do sometimes. I think it’s natural for us to avoid people when we feel there’s an opportunity for judgement and rejection, especially during a painful flare up. Please know you’re not alone. 💕Also, screw conventional standards of what “pretty” is or isn’t. You already are 😊

[@constantlyinlove]

Thank you for being so open ❤.

[@lareethomas7162]

This shook me to my core. Partly because this is my story! Being active in dance and drama and not wanting to raise my arms without sleeves. Thankfully, my close friends and family all understand , but I'm starting to find videos of inspiration, like this one to add to my support. Thank you!

[@AdrianneBrown]

I have it too. I've had it for over 20 years (37 now). And just only found out what it is. Thank you SO much for this video. It's nice to know I am not alone. Blessings.

[@kalynmonroe4503]

i had it for 2 years :9 since i was about 13. I was so embarrassed i searched my symptoms and thought i had herpes! luckly i didnt but infact had acne inversa. honestly i was to nervous to let anyone know including my parents,until on day i had a carbuncle. Sharing this led me to find out that i wasnt the only one in my family who had it, my grandmama had it

[@YankeeRose92]

I'm going in for my first HS surgery in a couple weeks. So glad to have found this channel!!

[@shirleythomas6689]

Glad you’re getting your feelings out, may God bless you we all have some kind of problem. Thank you for sharing 🌞

[@briisoka_]

i’m crying, i’ve been watching videos about this all night because i’ve been researching for myself because nobody, not even my doctor, knew what it was... thank you so much for this video and letting me know i’m not alone.. i’m a high schooler still and i’m just so uncomfortable and embarrassed all the time 😞

[@lifewithice4462]

I am so glad I found your video! I have been struggling with HS since I was 18 (I’m 21 now) but it started out so small and progressed tremendously my first year. It got to a point where I stopped wearing anything that showed off my armpits. At the time i didn’t have any health insurance and was prescribed this medication that NEVER WORKED. I turned to research and holistic methods. I later learned I was lactose intolerant and many people in my family were as well their bodies just reacted differently. Last year, i decided to lessen the intake of dairy which has helped a lot as well as exfoliating(I know it sounds weird) with an exfoliation cloth and light soap EVERYDAY. I don’t get boils as often and am able to wear deodorant that isn’t super strong. Of coarse I have scars but I found empowerment in them and recently started showing off my underarms. I’m happier and feel way more free. I share my story with you and others to say this “ Find empowerment in your scars and struggles.” It’s only a flaw if you make it. Yes it’s hard, yes there aren’t many people that struggle with HS, however don’t let your scars make you belittle yourself. I admire your residency and courageousness for creating a video to share your experience. ❤️

[@shatece]

Thank you so much for this and I love your message “find empowerment in your scars”. I’m going to remember that. And I didn’t know about the exfoliation tip; I’m definitely going to use that! 💕

[@lifewithice4462]

You’re very welcome! I purchase my exfoliation cloth from the 99 cents store or dollar tree. You can get them almost anywhere.

[@GudGurlB09]

I have been dealing with this is i was about 16, I’m almost 32. After years of doctors telling me all i needed to do was use cornstarch as deodorant I finally got a diagnosis. Somehow knowing what it both eases and excites my anxiety. However, I am glad I there are people dealing with this at different severity levels sharing their experiences. That said. THANK YOU.

[@delgadelisious]

So awesome your talking about this, I always felt like I was alone in this! Thanks for speaking out!

[@classydenisha]

Thank you for sharing. You are helping others deal with this awful condition.

[@SERENAJANELOPEZ]

I realized i had hs when i was about 19 or 20 (ive had since i was 16)....i havent looked it up on youtube or google since then. I decided to today about 7 years later. And im so happy i came across your video. I haven't completl2 accepted my "cyst" "boils" ....ive kept it hidden and private because I'm digusted by it. Ive tried different soaps. And was apart of fb groups to get ideas on how to control thr flares. Nothing works. I've asked for help rarely by different doctors over the years. And i havent gotten any help.

[@needzmotivation]

I have it as well. I’ve been taking Tumeric in the pill form and it’s been helping and due to that my flare ups haven’t been as bad any more. I notice that I get bad flare ups when I drink alcohol so I’ve been cutting that out. Thank you for sharing your story.

[@shatece]

I’ve heard so many people talk about tumeric, but I’ve never tried it. I’ve definitely got to now.

[@healingwithheavn7558]

I saw this video a long time ago and though man she's brave I won't be doing that. Update: I finally found the courage to share my story on my channel and I'm so glad I managed to be brave like you ! Lol. Thanks so much for sharing. This sucks sooo bad but its really nice to know I'm not alone. I identify with the dancing story you told so much! I loved dancing on teams and in groups but after a while I couldn't anymore and it broke me down so bad. Thank you so much for sharing again, you're amazing.

[@charmainedivvaa677]

Just diagnosed omg been outta work for 1 week I’ve been crying 😢 ever since, just coming to terms that this is life long

[@missladywill1994]

Thank you for sharing your story! It has given me more insight of what my 14 y/o daughter is dealing with. She was diagnosed yesterday and had her first surgery as well on yesterday ☹️

[@shatece]

I wish her the best!!!!! 💕

[@ingridmcfarlane8348]

Ditto. My 13 y/o has been struggling but I didn't understand how much, until I saw Shatece's video. Thank you.

[@adrielrodriguez3742]

I was just diagnosed with this and I have to say it is not fun but the fact that you said everything that I am going through, made me feel at ease. You the bomb!

[@shatece]

I’m glad you found the video helpful! HS is already debilitating enough; those of us struggling with it need to be there for each other. 😊

[@rawenab2126]

Thank you for this video! I'm suffering from Hidradenitis suppurativa.. i jusg found out by myself after searching for a long time what the things in my underarms could be , at first i thought it could be swollen lymph. I'm thinking about doing laser hair removal one day ,i'm just soo insecure and embarrassed and i don't want anyone to see my armpits. I thought i'm alone because i didn't see anyone having armpits like mine but after searching and finding out a lot suffer from it and no one really has the courage to talk about it. I'm thankful you did, it makes me accept myself more , we are strong and beautiful with or without HS

[@shatece]

Yes we are! Thank you so much for being so kind and I’m so happy it could help! 💕😊

[@kdrose1958]

This made me cry, I think this is what my granddaughter may have. After seeing your video and the guy on Ted talk you mentioned I’ve sent the videos to her. She is going to Doctor tomorrow and she will tell them she wants a referral for dermatologist. I will say prayers for you and all that have this. I had never heard of it. Thank you for your bravery to tell your story

[@shatece]

I’m so happy you found the video informative! Wishing your granddaughter the best of luck! I hope she gets the help she needs 😊

[@therealgizemgueven]

Thank you. I feel so alone. I “only” have it in my private parts. And I’m the only one in my family. I got diagnosed in March 2019 and he said that I could remove the skin and replace it with skin from my leg. I cried. Sometimes I still do. Because I’m so embarrassed. I don’t feel sexy. If I do I still remember that I’m scared if I’m having sex with a guy. I know it’s a bit private but I can’t talk with someone about that. But it got better. I went vegan and only use natural shampoos. And I saw a difference when I shave or wax. If I shave two or three come up. Now I wax and once every two months one comes up. So yeah. I just wanted to tell you -thank you. I know this was hard to film but it helped me so much.

[@shatece]

Thank you so much; I’m glad it could help! And I’m so happy things were able to get a little better for you. Please know that you are so strong and so supported. 💕

[@sandwich382]

I was diagnosed at 18. I've had it since I was about 12. I never told anyone about it until I was about 17. I didnt want anyone to know. And I didnt want to talk about it. It makes me feel ugly and disgusting. And it is very painful. I always thought that it was because of something I had done. But no, it isn't. Anyways things that can relieve it for some is any soaps that have like hemp oil in them, obviously not a cure but it can help. Atleast it has helped me.

[@maljohnson4757]

Thank you so much for doing this video! You are so strong! HS is so embarrassing to have...your video makes me not feel alone, thank you for your strength. 🧡

[@shatece]

I’m so happy you liked it, thank you!!!! 💕

[@bschoola1611]

Thanks for the video I been having hs for over 10 years and was diagonised with diabetes 3 years ago.

[@ranaadel6893]

i feel you i have it also :) praying for us to find the cure

[@toniwillis7309]

Thank you for your transparency, I too feel your pain😍

[@qtee4life901]

Thank you for sharing. I have this and could never due what you just did....showing and sharing Much love and RESPECT

[@alpha.entreprenuhers8837]

thank you so much for doing this... i have been fighting with it for almost 10 yrs...im grateful to know we are not alone too!!

[@brownsuga4513]

Thank you for sharing this! I’ve been suffering from HS for nearly a decade, and no doctor could tell me what it was it’s so awful being in pain every second of every day and not being able to tell anyone what’s wrong. I had surgery about 3 weeks ago to remove it from one of my arms and I feel like a whole new person, just waiting on it to completely heal to get my other arm done, there is hope!

[@shatece]

Same here! I had a skin graft done just over a month ago and I already feel like I can move that arm more than the other one that hasn’t even needed the surgery yet; it’s a really liberating feeling when you start to have motion in a part of your body that’s been so painful to move for years! 💕