SIDECAR | A film about the myths of advanced multiple sclerosis

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A diagnosis of #MultipleSclerosis can leave people to live a life full of uncertainty about their condition and future 🤔 It’s common for the conversation around the progression of MS to go untalked about, in clinic and around family and friends 😕 It’s the elephant in the room 🐘 it’s the thing that nobody wants to talk about. It often leaves MSers feeling alone and afraid.
“I know it’s different for everyone, but I wonder how quickly peoples’ MS has progressed from invisible at diagnosis to obvious mobility problems...?” - Shift.ms member.
Sidecar 🏍️💨 is a film that tells the story of MSers tackling the fear of onset of advanced MS and the impact this may have on their quality of life. This highly emotive, thought provoking film explores the challenges of handling the psychological burden that comes with new disease activity, such as relapses and loss of mobility.
The compelling film will speak out about the unsaid fears that MSers go through, offering a perspective on how they and their support network manage and respond to the challenges of disease progression. The purpose of this film is to empower MSers to communicate and manage the challenges of disease progression 💚💪
How do you cope with the prospect of your MS advancing? Do your family and friends understand your condition? Share your thoughts in the comment section below 👇 Please help us get our film out there by liking and sharing your experiences of MS using #MSsidecar in the comment section below 👇💚
Sidecar is written and directed by Rory Alexander Stewart and produced by Oliver Kassman. Cathy John, Sam Billington and George Pepper are executive producers.
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[@jackietopp]

A well-thought out and well-presented film that had a lot of messages about MS progression and the attitudes of others. I have lived with MS for 34 years and have had to reinvent myself so many times as my condition progressed. Although I need to use a powered chair and am catheterised, I will not give up on living life as well as I can. We need more of this type of film in the public arena

[@Shiftms]

Thank you Jackie, we love your attitude towards MS! It sucks but we can still get on with life and do great things. MS isn't the end.

[@saraginger7859]

....I watched the video, but was not 'seeing' the full content. It's Human Nature to draw conclusion on what we see, sadly our understanding is limited to our own personal experiences. I started to see other individuals with possible signs of MS... I felt that I had failed by focusing on the a main character and visual props! I had made an initial stereotypical assumption, blindly based on the most obvious signs/information. Food for though! 🤔

[@pedrodacostapinto]

That's my story !! Diagnosed in August 2000, back then my neurologist said you will be in a wheelchair in 10 year time, 20 years passed I have several comorbidities (walking, bladder, fatigue, heat sensitivity, cognition, spasticity and others). We can never give up !! ALLWAYS MOVING FORWARD ! even with progression we can adapt and continue with good quality of life ! Die is not an option, medicine will find ways to make it smoother 💪💪💪💪

[@Shiftms]

thanks Pedro! we're glad the film resonated with you!

[@shawnmcanthony5724]

Good point apart from medicine exercise everyday drinking lots of water and trying to stay away from added sugar helps me.

[@kristinaam8316]

I'm from México and my family does not speak about MS. Though I suffer it. Cant wait til film is exposed. I mention my symthoms still they ignore. Hope somthing will awakes them and show empathy to sufferers. Thank you and blessing to all

[@Shiftms]

Thank you for your comment Cristina - maybe showing them this film may help. Take care 🙂

[@mildlyperturbed2523]

This video is amazing. Glad to see that people with MS are getting the attention they need. But what about poor Karen? No one's talking about her having to wash that damn chair!

[@Shiftms]

No chairs were harmed in the making of this film. :-)

[@Love2heal]

Thank you for presenting a beautifully well-made film. My mother was diagnosed at age 57 in the fall of 2004. She independently gave herself Rebif and used a walker until the summer of 2015. After a heatwave she developed aphasia and the inability to write and worsening symptoms with bowel and bladder and needed a wheelchair She's now at the end stage of MS, a stroke with paralysis on her dominant side winter of 2017 left her bedbound with worsening aphasia and inability to transfer to and from her wheelchair.

[@LivedHealthMS]

Another brilliant film - we need to start having conversations about MS progression. Funny, emotional, brilliant. Well done team 🙂

[@rodneypierre29]

Brilliant, well acted and thought provoking. RRMS here and I appreciate the underlying message this film puts out. I liked the comment about it being psychological as I’ve had this said to me on various occasions. Please share this as much as possible, give people a glimpse of what we have to live with.

[@Shiftms]

Thanks Rodney, glad to hear that you could resonate with the film 🙂 we're trying to share this film far and wide but we need help from the MS community - please do share in your networks!

[@katherineezekiel5199]

I was diagnosed with MS July 2009, with Relapse remitting, I’ve had a few good years, but with my current relapse things have gotten worse, with nerve damage in my hand and arm. My dr advised I could be going into the progressive phase. So this film is exactly how my life is right now! Love it. Thank you!

[@CherryFlavoredAntacids]

Well done. I want to see a feature length film of this movie. The characters and setting and the topic of MS. It’s so intriguing and well written. Great job!

[@williamshearman2181]

I love this film. It is bang on the money on every level. I am the guy with MS sitting about waiting.

[@Shiftms]

Thanks William - we try and represent. We felt that there was content out there about RRMS but nothing that really delved into SPMS. We're here for you if you need us - big ups Shift.ms

[@williamshearman2181]

@@Shiftms i have relapsing remitting MS diagnosed 2009 after many years of odd crap that started to make sense the more I learnt about MS. What I really liked was the humour, spot on.

[@Shiftms]

@@williamshearman2181 Thank you!

[@ehbehceh]

My MS is confusing in terms of type - but it is visible , and gets questions. It was nice to see a film that portrayed MS as a normal part of life, not something tragic or demonised. Impairments are just part of how it goes for some people, and normalisation of that is important. This film achieved that normalisation, there should be more of that.

[@stuartschlossman7406]

Wow - an amazing movie, I have never seen anything better than this, concerning MS

[@almack2922]

So good. So thought provoking. Was diagnosed with RR MS in 1998. Made me smile, made me sad, made me cringe.....xx

[@Shiftms]

Thanks Al!

[@TimothyDowd]

I don’t have MS but I live with it every day, great film... my wife Christine always says “I can be ill and miserable or ill and funny”

[@Shiftms]

So true! Thank you 🙂

[@willoubooby]

I have multiple sclerosis was diagnosed at 24 i am 28 now and it sucks loved this made me feel bit upset but also made me laugh 😆 and its completely right how u feel when ppl ask questions and new symptoms ect. Also makes u appreciate when there is actually ppl out there that care but hurts when ppl don't. Great video god bless

[@cubbi2789]

Watching this made me feel the same way because MS is different for everyone. Saying is true though unless you get MS, people don’t understand it.

[@willoubooby]

@@cubbi2789 yes exactly ots an awful illness i know so many things to go through so many symptoms I after use a crutch but my crutch is my best friend lol

[@Shiftms]

Thank you Miss Willoughby for your kind words and sharing some of your story.

[@willoubooby]

@@Shiftms and thankyou =)

[@rogercookcouk]

Amazing film! DX RRMS 2001 at 23, I soooo miss riding bikes!

[@Shiftms]

Thanks Roger - glad you liked it

[@123nlusky]

Roger Cook out of interest would you feel safe riding a trike like a Harley trike for example? I’m entertaining the idea but not sure I can trust my arms not to get fatigued? I know we are all different but like I said just been thinking about it recently?

[@saraginger7859]

Oml... Watched and wept! Still can't face selling the bike, haven't ridden for over a year... selling it, is giving in and giving up! Unplanned dismounts, due to the opps moment at junctions, had just become a new way to meet people! My headspace therapy is the wish for a track (practice) day, before facing its time to retire to a different kind of lifestyle?! 😔🏍

[@123nlusky]

Sara Ginger a new way to meet people🤔 I like it🙂, a shoulder socket held together with Titanium plates and screws plus 2 years rehab made my decision for me, good as new now but still have my license so anything’s possible🤔(trike maybe)

[@saraginger7859]

@@123nlusky Hello! Ahh, so now you have offered all of that information, it has opened a conversation... Ta Da! Depends what folk want to share, watching the video triggered some of the deep set emotions and frustrations in explaining 'why you can't participate'. Also appreciated they addressed the mental aspect and the visual judgements! Why have all the people you know, turned into life coaches, constantly repeating the script to inspire you "of course you can, its just how you're feeling /state of mind!" The overwhelming ignorant Positivity is playing havoc with my constipation... Rarr...is used to replace the colourful expletives, backed up inside my head!! Can I be allowed to make light of your horrific accident, with the usual dark humour (that causes tongue in cheek offence?) and determine the likelihood of your injuries were due to a testosterone related issue/incident whilst riding... rather than the symptoms of MS?! Either way, you are part of a 'solid' group of members in the 'Titanium' club! Cheers, thoroughly enjoyed both the (saved) video and the option to rant... That's the Therapy sorted for today! 👍

[@keironsparrowhawk4369]

Amazing insight into what MS really is.

[@Shiftms]

Thanks Keiron!

[@PhillEvansIllustrate]

Nailed it. Thank you :)

[@cheegum6296]

That last line, hilarious AF! :-D

[@amystow4059]

Honestly, this sent me on an emotional roller coaster. I was laughing one minute, serious the next. Like that this has some humour.

[@cheegum6296]

Love this! Bravo! Dx 2009

[@Shiftms]

Thank you Cheegum - we love you!

[@drawingtom]

loved this

[@ElisiasEvolution]

Great short film, will you do a another story, I've got MS with kids and its not easy but try and focus on the positives, I'm trying to do calisthenics, just small movements I'm on week 2 of my 112:12 challenge.

[@Shiftms]

Hey Elisia! keep going you got this!

[@LivingLifeSlower]

Ive never met people like this in my life.

[@dpb106]

Does the actor really have MS in real life??

[@destinylovesasmr]

Irish Sea Moss!!! I've been taking it for about 3 or 4 months now and and have felt a big difference!! My mother has MS as well and is bed bound, she basically immobile. I've been giving it to her and she's been able to make small movements with her hand and foot! There's more than 💊 💉