My experience with radiation therapy

[@garbagefreak]

"For the last three weeks I've been tripping balls on Alzheimer's medicine." --SImone Giertz, 2019

[@nhreef]

Ya but that constipation is a real buzz kill.

[@thatlamp]

I legitimately cackled when she said that.

[@timothystoutland6961]

TBA&M dropped their first album last week. It hit the charts with a bullet...A bullet.

[@Sephyricon]

Put it on a T-shirt and I'll be the first one to buy it!

[@darkiee69]

@@nhreef Nah... Just wash them down with some prune juice. ;)

[@themenion]

Your transparency and authenticity is needed on a global scale. Thank you for sharing your heart with us.

[@victorromanydacosta4793]

Tendi foi nada

[@anonymous-de3mn]

Authenticity yes, transparency not really. You don't need to spread your life for everyone to see/hear.

[@johnb.7874]

Yes!

[@AK-jt7kh]

anonymous anonymous That’s not transparency. That’s oversharing. I’m a transparent person but I don’t run around telling everyone everything. It’s just - I have no secrets. In conversation, I’m fine with revealing sensitive information, and I will answer your questions. That sort of thing. I think she is more of an extrovert than I am though

[@BobBigWheels]

It's the super power that she had all along.

[@ben_1]

Just imagine the conversation this "conversation starter" will start: - "Hey that's a cool lamp, where did you get it?" - "I had a brain tumor" - "..."

[@copbabycombo1311]

that would be a "great" conversation.

[@leusername]

Oh that’s cool... *hol up*

[@chadredmon7364]

Don’t be a dick lol I also have had a brain tumor and needed brain surgery so it’s like it’s your choice meds or brain surgery, she probably feels more better now though since her surgery I would say “Give me the name of 1 surgeon of the many you have had working on you. Because my surgery I’m still recovering 25 months since I had it so anyways I’m trying to say that it’s tough to recover after you’ve had the kind of surgery that we’ve been through but worth it because in the end we will be not only recovered, but stronger from having the surgery

[@GALAXY-te1dg]

Ben Jeck kzbin.info/www/bejne/iKvOpKWvaZ6reaM

[@ownitervi241]

@@chadredmon7364 huh

[@Sok.mp4]

The story about your friends taking you to radiation therapy had me in tears.

[@rallie2429]

Damn onion cutting ninjas in here

[@Jamajalama]

INSTANTLY! Super crazy

[@AP-zx1ok]

Holy crap, same. I have only just discovered this channel and yeah... instantly teary.

[@brandia1498]

Got something in both eyes. Man... that message hit me right in the feels...

[@sj-jc4gb]

Same here

[@Lorenz599]

"i did not get any superpowers" Totally sounds like someone that got superpowers would say. Just saying. Also its awesome to see you back and making stuff! That lamp was amazing,

[@MatthewSmith-sz1yq]

I would argue being able to resume what you love to do 2 months after radiation treatment for a brain tumor, after having a sizable portion of your brain scooped out with the tumor, a superpower of its own!

[@cresenciavasquez6761]

@@MatthewSmith-sz1yq b

[@makecba]

Tripping balls on Alzheimer's medicine is a pretty good name for a funk band

[@jody024]

Punk *

[@lanatsif]

T.P.O.A.M for short, might be a rock band after all 🤔

[@ashutoshchaurasia911]

Burn my brain tissues- the first single

[@Bumpelklase]

@@lanatsif T."P".O.A.M. ? Tripping "palls" [...]?

[@patrik5123]

It's a pretty good name for any band, imho.

[@marsupialdungbucket]

I'm still not sure what I'm going to do with my radiotherapy mask. Next time I see my oncologist I'm going to try to get a copy of my brain scan so I can 3d print it in glow in the dark green and put it in the mask. And put it on the top of the tree come Xmas. If I live that long.

[@DeterminedBeast]

Best wishes for a long life ❤

[@annomaly751]

marsupialdungbucket sorry hear about your situation praying for you and maybe you should make KZbin channel and give updates.

[@kajsamelen]

I need to see this. 😆

[@marsupialdungbucket]

@@kajsamelen If/when it happens I'll post a link here :-)

[@marsupialdungbucket]

@@annomaly751 Thank you, but a KZbin channel is probably not a good idea. Since the cancer diagnosis my sense of humour has turned very dark. For instance the theme song for my chemo treatments was this: kzbin.info/www/bejne/mpfQmaJ3Zd1jqdU. I listened on headphones but it was hard not to sing along sometimes...

[@Legominder]

Thanks for your openness about this topic! In medical physics internships I calibrated these electron accelerators. The purpose of all the moving around and the fixation mask is to concentrate as much of the radiation as possible on just the tumor by radiating from different angles onto the exact same spot (thus giving high radiation doses on the tumor and low on other tissue, especially vulnerable tissue). So the radiation beam is shaped differently from every angle and a computer calculates the dose from each angle in order to optimize this. This works better as fast-growing tumor cells die faster than slower-growing healthy tissue.

[@geocarey]

As a med. physicist in 1970 I had to plan treatments with gamma rays from Cobalt 60. The doctor would draw an outline of the head on paper, then draw where he thought the tumour was. I was limited to two fixed beams of variable width and had to plan what width for each and at what angles they had to be placed to maximise the tumour dose. All done with stencils, pencil and paper. The modern tech. is phenomenal in comparison.

[@cinnion]

Yea, having my strong physics background, I was talking to the folks giving me my treatment today, and they showed me the console display. I don't know how well it turned out, as I have not looked at the video yet... but later this week, I may get them to show me again if did not turn out well. The folks at UVA are so great about all this!!! (and far better than the folks I had when I was being treated for a different form of cancer when I was 11).

[@samspencer7765]

This is incredible! Medical technology never ceases to amaze me and thank you so much for whatever part you have to play in it!

[@johnmclarnon5890]

@@cinnion WOW !!!! You are a real fighter!! Cancer at 11 years of age must have been very scary for you and your family. I had stage 4 prostrate cancer, went through Radiation Therapy and so far all is good. I couldn't even imagine having cancer at 11 years of age. And now you are fighting it again, you Rock man!! Keep up the good fight.

[@elizabethahearn6038]

Thank you for explaining this. It, and Simone's videos are helping me be less afraid about what's coming ahead of me. ❤

[@michelst-laurent4791]

Thanks Simone for making cancer and radiation therapy less of a taboo thing. Best of luck to you. You look great!

[@cordrobertson6864]

@@Reelix people try to not talk about cancer and radiation therapy. It's seen as a topic that's too shocking to just discuss

[@christines3638]

@@Reelix - They are reminders of our mortality.

[@ArtFreak17]

@@christines3638 Yeah. That also reminds me of the death positivity movement and how it aims to help people have healthier and candid discussions about death. It can help make the grieving process more manageable and less isolating. Stuff like how it's a good idea to think of advance directives and end-of-life arrangements while you're still alive/well and discuss that with those close to you. Because without said discussion - their guesses on what you want is often only as good as a stranger's. They may not know that you /don't/ want to bankrupt them with fancy funeral packages or unnecessary medical expenses. As well as it being a good idea to be [compassionately] honest to children if someone they know and cares about dies.

[@WasabiKitCat]

It's a reminder that it's possible to just randomly get a life threatening illness and there's nothing you can do to prevent it. That thought terrifies me, that even perfectly healthy people can just get sick and die for no reason other than our body randomly fucking up and creating a cancerous cell that then spreads. I could get cancer, the people I love could get cancer, literally anyone can get cancer and no one can prevent it, and that's really scary to me. The best we can do is just get checked by the doctor often, especially if you have family history of cancer (In the future I'll have to get checked regularly for ovarian cancer because my aunt died of it), and just catch it early and kill it if you do get it. That said, it should be talked about way more. People always seem (understandably) grim when talking about cancer, but we really have to cope with these things better. Coincidentally, I heard that laughter actually helps the cancer fighting cells in our bodies, so maybe we should laugh more? I don't know if that's true, but it's not like it could hurt. Depression isn't good for your health on it's own, so it definitely wouldn't help to have cancer and be depressed.

[@noreensultan7557]

She has cancer?

[@cosmecurious]

"Dared to ask for help and dared to let people help me" I love that

[@iplaysdrums]

Andrea Boots I work in end of life care, and it’s truly incredible how many of my patients are unable to let go and be comfortable with asking for or accepting the help they need. The line I’ve used over and over to great effect is, “you’ve taken care of people your whole life, now it’s time to let us take care of you.” If it’s that hard for people in their 80s, 90s, even 100s, it’s so much harder for the young and vital. In short, it really is daring to flout the societal value of self reliance, even when self reliance isn’t a viable option. I mean, I agree with you. I love that quote, too

[@Liminal_Cat]

This is such a perfect balance of positivity, raw honesty, and the usual silliness we know and love

[@redxraccoon]

When I watched this the first time it seemed so far away from my life. 2 months later I had a diagnosis... And now, watching it again, in 3 days I finish the last of my radiation treatment. It just stuns me how different this video feels to me now. So grateful for people that help. So grateful for people sharing their stories. Thank you Simone!

[@amykathleen2]

How are you doing now? I hope you’re well.

[@catcatcatcatcatcatcatcatcatca]

All along the real superpower was the friendship and bonding on the way to hospital. People don't need genetic mutations to fight the evil of the world; they need friends to support and get support from.

[@tachi98lep]

Simone-2 Brian-0 Good luck and may life be less stressful from now on.

[@ferrypanda]

Brian is the worst!

[@alla96xas]

@@atriyakoller136 r/whoooosh

[@theCodyReeder]

Haha love it! Glad the treatment is completed, hopefully it worked. Those side effects wow; I don’t think I could survive not being able to taste salt. Hey I just had an idea! (Hence the edited comment) what if I made a charred “Brian” and sent it to you? Could maybe go well with the sculpture?

[@kazsmaz]

Shame she never asked you to do it. You'd rig something up from all that uranium ore

[@theCodyReeder]

The Virtual Scotsman actually my x-ray gun probably has just as much power as the machine they used on her. Not sure if the beam would be right though.

[@TheNoerdy]

Cody'sLab Cody who are you kidding it will be your next video lol

[@DeanZylman]

not being able to taste salt would really suck

[@coryhobgood]

@@theCodyReeder I'm on the same reply thread as Cody'sLab!! :D Btw, Simone, I admire how honest you are about the treatment. You da bomb!

[@cynthiaroznowski731]

Chemo has gotten rid of my immune system. Hopefully it gets rid of the cancer next

[@kittenbraden9800]

Fingers crossed!! Gute Besserung

[@hsmacaraig]

Hey, you still here? Hope your better!

[@uptown3636]

@@hsmacaraig no response. uh oh.

[@londonm3161]

ah, chemo. a fever on steroids. losing patients to hoping the drugs kill the cancer before they kill you since the 1940s

[@Ralphonthetrack]

Hope your doing better

[@Heeby-Jeebies]

Today I learned: •how to make weird art •to dare to ask for help •Antarctica is further away than space

[@marchenwald4666]

So true. xD

[@harrygibus]

*eat fiber

[@ali.cg11]

Me too and how to say 40 in French 😊

[@storminmormin14]

The capitol of my state is further than space.

[@marchenwald4666]

@@ali.cg11Already knew it, because I'm FRENCH ! Mouahahahahah ! snails.

[@pfaffinaround]

I hope this means Brian has successfully been burned! All the best for you, Simone. You bring us so much joy. 💛

[@JesseHires]

"Elegant" really equates to "lots of editing"

[@manfredschmalbach9023]

😂

[@looppp]

I've been dealing with anxiety and depression the past few months. I haven't been so emotionally affected by a video until this video. I'm out of words. Your strength and bravery and smile and confidence in yourself and vulnerability is so powerful. Thank you for this video.

[@dragonmaid1360]

Hey try cbd oil. I have shakes that affect my whole body and it makes them go away - although I live in Australia with a dick at the head of our country so I have to smuggle it in. But if you can find it? Give it a go. Rock on little trooper!!

[@dragonmaid1360]

Actually you know what? Let's just rock our worlds like we don't care. Get out there little buddy and dance your way through your day. After all we all ending up in ground one day and we all idiots at heart. Celebrate your weirdness like a boss. I do. Cause I figure I have nothing to lose. Rock on little trooper.

[@thepixelpusher]

Simone is a poor role model for you!

[@thepixelpusher]

Faroskalin Simone is a horrible role model for you!

[@StonedtotheBones13]

Honestly I took a lot of comfort out of her talking about daring to ask for help. Maybe mental illness isn't seen as serious as a brain tumor but it's still your brain being messed up. And it takes great strength to know that you need help and ask for it. Anyway, hope you're doing a bit better 3 years on.

[@TooMuchDad]

Love you Simone! You're such an inspiration for so many people!

[@foogriffy]

Girl, you've made a grown man cry into his Lunchable. I'm so glad you're feeling better and that you've gotten through this challenge with such a strong support system. Okay, I'm gonna go tell my friends I appreciate them. Love you, Simone!

[@Tw3akst3r]

Unsure which to feel more strongly about, the crying or the eating of Lunchables by a "grown man". 😁

[@Rosibean]

@@Tw3akst3r the great thing about being a grown ass adult is that you can buy your own Lunchables, any time you want. It's great. :D

[@Tw3akst3r]

@@Rosibean You make a VERY good point!

[@cavv0667]

@@Tw3akst3r Lunchables... Hands down. I mean it takes no more than 5 minutes to just make a couple of sandwiches... and you get to put whatever you want on those. I'm a make a big pot on Sun for the week kinda guy... sandwiches and hotdogs mixed in throughout the week.

[@Tw3akst3r]

@@cavv0667 I just always felt there wasn't enough there, I'm 125lbs but I can put away a pretty large amount of food in a sitting and unless I'm eating about, (probably all) of it at once it just won't suffice.

[@cindyschroer9233]

Last year they told me I had cancer and I tought about you, the way you are dealing with it and it helped me so much. I went trough a lot of chemo therapie and they had to remove my knee (because of a aggressive bone tumor) so now I have a prosthetic knee. So.... I am now a shitty cyborg and you got a shitty lamp. (Btw I’m cured now but as you said I’m also still dealing with the side effects and my mental state)

[@BaguetteHD]

That sounds hella spooky. Hope you're doing alright 💚

[@merloo7594]

Hey Cindy, not sure if it helps at all, but know that there is a person whom you've never talked with before, but he wishes you a quick recovery and a cancer free, long and happy life! Hugs and more hugs. :)

[@cindyschroer9233]

Merloo that’s sweet, thank you ;)

[@alexamckenzie6826]

Cindy Schroer awe. i hope you’re feeling okay. 💗

[@merloo7594]

@@cindyschroer9233 Aww please do tell how are you feeling and are you entirely clean of it?

[@bnew5394]

My dad was recently diagnosed with cancer. And he’s been having such a rough time. His isn’t even terminal, and he just wants to give up all of the time. So yes, it’s very sad.

[@Corn22]

Brittney Newton many of us will get cancer in our lifetimes. it is just a part of aging...our cells are constantly exposed to damage, and sometimes a few cells slip through the checks and balances and run rampant. i hope your dad is doing okay.

[@RayMak]

I pray that you'll fully recover from every health issue and live a strong healthy life. Love ya

[@patientestant]

She has the holy spirit and God loves her.

[@unicorn7337]

Amen to that. Simone is amazing and the world needs people like her. :)

[@sagerocket3341]

"I've been tripping balls on Alzheimer's medicine" - Simone Giertz, 2019

[@chaschuky999]

Sage Rocket for 3 weeks

[@wobblysauce]

Once you go back you never come back, oh... what is this? Once you go back you never come back, oh... what is this...

[@Syrigaras]

Memantine is a hell of drug

[@theflava]

I fix those machines! You'll be happy to know that the TrueBeam you were treated on is state of the art and the absolute best option you could have been treated with.

[@Leroset]

Thank you for doing the work you do. Keeping these machines functional saves lives. Also, how did you get into that career? And do you get exposed to any radiation?

[@theflava]

@@Leroset I spent 5 years in the US Navy working on submarines. When I got out I put my resume online, and the company found me and trained me how to fix their machines. There is some minor radiation exposure, but nothing too extreme. The machine is a linear particle accelerator that creates a megavolt x-ray through coincident pulses of an electron gun and a RF amplifier. When the machine is turned off it isn't radioactive except for a couple of isolated components that cool off in about 18 hours and are easily avoided.

[@ec9053]

That is so cool! What’s a small world! Thank you for saving lives and for your service😁

[@lifetoanother]

@@theflava oh that's funny. I almost went into that job while in the Navy, but went into subs instead.

[@roykinn7]

"a linear particle accelerator that creates a megavolt x-ray through coincident pulses of an electron gun and a RF amplifier" Coincident pulses, (nodding head), I totally understood this sentence.

[@nozzika]

I will soon start my 30 days journey. Every time I feel I can't do it I watch this video again. Thank you.

[@ebony.b1976]

Thank you for your transparency in how shit it really is to have the condition you are currently dealing with. But also thank you for continuing to make bomb content. Respect👊🏻

[@kristian9955]

"didnt get any super-powers out of it" Implying you didnt already have super-powers Also, that lamp is terrifying

[@freerideshuttle]

It's a bit like freaky friday just with colors.

[@aharonhovsepyan6012]

I had the same kind of experience last december where i was hospitalized with a pretty huge tumor at the back between my 2 brain halfes. After a month in the hospital and 4 surgeries on taking 8 hours they removed the whole tumor. Afterwards i needed to go to 30 radiation sessions and i also still have the mask! I also openly talk about the situation and it really helps to see another individual be so open about this. Allot of strength to you!!!

[@sensiblewheels]

Hope you're doing well now 😊

[@aestheticsandinsights4640]

I have had a similar experience being a living organ donor, telling others the importants of donating organs when we die, and of being a living donor for, organs, blood platelets, blood, etc, as well makes me feel like I am having an impact on others.

[@plesesportmesubscribemycha7524]

Same here after 3 year again niw readation thrypy nex week .can u tell me how u feeling how is expernce. Did side affict or not please

[@heliagrey]

Thank you for making this- and sharing! I still have my rads mask from 2005- I had cancer in my teens. I remember teasing my radiation nurses that they could have made a better living as S& M dominatrixes, bolting masked people to a table naked and giving them tattoos. ( I got 7 dot shaped tattoos as guide points.) I had to joke because it was such a rough process- I had upper and lower mantle radiation and it made me so ill for so long. So much more draining and difficult than chemotherapy. I also remember asking my doctor after a session “ what smells like microwaved chicken nuggets in here?” And he said... you. XD

[@jeremiasuantak789]

Life can be quite hard for people like us. I too was diagnosed with cancer (stage 2) i got the chemo version and whenever they injected the medicine the blood vessels hurts so bad that your whole body starts to feel . Anyways what i want to say is that it's hard to start a normal life again even after you're diagnosed/kinda healed .

[@andrewreisinger2008]

glad youre feeling better. i missed you. welcome back. you are amazing.

[@espero21]

Пусть поправляется и чтобы всё у неё было хорошо.

[@sneezocat8122]

What?!

[@rbxgamer1545]

Роман Рыжаков what?

[@Askjerry]

I am glad you have great friends to help you out. as you get older... you will realize this is more precious than gold or diamonds.

[@ehteshammukhtar8841]

It broke my heart seeing you cry 😢

[@BaronVonHardcharger]

.... even though crying is TOTALLY ok.

[@martha7157]

The story about your friends taking you to the hospital is so beautiful, I'm so happy that they were there for you during your treatment. Every few weeks I have to have an IV of medicine and I'm always so touched when my friends offer to come and sit with me during it :)

[@pheenix42]

The positive side is, it leaves you with a glowing complexion.

[@iepineapple]

Positively Radiant!

[@alepartidav.7664]

Alonzo Branson great comment 5/5 stars😂😂

[@mareli82]

5/7 great comment

[@MisterMooo]

Not too bad, not too great either

[@mukil6227]

@@MisterMooo I understood that reference

[@TheBenUniverse]

Maybe the best super power was friendship all along...

[@JimmySquiky]

My little pony was right !

[@johncyruspangan1460]

I see that you are subtlety nudging HBO for another sponsorship for the upcoming season of Westworld

[@640kareenough6]

The Westworld Amazon Echo tho...

[@daveoh13]

"i've just been tripping balls on alzheimer's medicine"... my nose is still stinging from spitting me tea through it... love you lots!

[@joannehart9624]

You made me cry... In a good way, but I cried. Blessings to you for a long and (now) healthy life!

[@PeepingUkulele]

Joanne Hart I teared up too.

[@joanapalha1115]

I admire you so much! The way you used the mask for you treatment to make something and the way you joke about the tumor and the way you dealt with everything. I hope you feel better soon. Love from Brazil 🇧🇷

[@MrZimpoppel]

You are a strong girl, Simone ! Must be that Viking blood, or something like that....

[@Namdrac]

I've never seen you before today. I appreciate your Honesty and transparency but on top of that, your over all personality and way you carry yourself. I look forward to looking back on your previous AND future content!

[@Str8Raiser]

Apparently, your comment was 9 months ago. I was literally thinking the exact same thing today. I finally stumbled across Simone's channel today (4/10/2020 Coronavirus stay at home like a good little sheep nonsense, but I digress). I've been watching her content on and off all day, and I keep coming back for more. Simone is a walking, talking ray of sunshine. Funny, smart, and your buddy's kid sister kind of hot. Can't get enough.

[@Namdrac]

@@Str8Raiser Oh dude, she's totally hot! Girl next door has always been my favorite look 😂

[@paulusthegrey]

Takes bravery to admit that you need help, and real friends to give it unconditionally. Stay safe and stay positive.

[@J8n3eyr3]

LED string light hair - please! You are rocking it with the positive attitude.

[@IceGlass0]

You were extremely adorable on this video. I'm so happy to see you again around here! 🤗🤗

[@puppyxfyr9757]

I approve!

[@StonedtotheBones13]

I know it's years later but I really appreciate you sharing this and about your I guess struggle to ask for help? It's so great seeing so many ppl in the comments saying you helped them when they were dealing with cancer as well. I'm the kind of person that also would not ask friends for help b/c I technically don't need it, and I feel like hearing you talk about it can speak to a lot of ppl- something you have a gift for. Also I definitely teared up hearing about Scott helping make a schedule of all your friends- I don't know how you weren't crying the whole episode.

[@vanillash7489]

MY ALEXA WAS ON VOLUME 9 and she it said Quarant loud as shit in the middle of the night XD

[@HtSxxKendia]

Lmao same shit just happened to me had me shook

[@DanStarktheReal]

My google home just sat there, all quiet. I think maybe, perhaps, it just doesn't know French?

[@alexanderlevi2257]

Same! my parents are asleep, and my alexa is like "THIS IS HOW YOU SAY 40 IN FRENCH"

[@AniketBhatP]

@@DanStarktheReal Or maybe it doesn't respond to "Alexa"? Stop stealing alzheimer's medicine lol...

[@DanStarktheReal]

@@AniketBhatP When this thing responds to music and movies, maybe it has been stealing the Alzheimer's meds... Silly Google.

[@georgiamundy4839]

my radiation was WAY EASIER THEN THIS. good on you girl, this seemed hard. proud of you

[@LizTiddington]

I'm sure it wasn't easy though, good on you for getting through it x

[@loafyu5405]

It all must be hard, glad you all got through it💛💛💛

[@jeffpape6519]

Georgia Mundy glad you’re here. Hope you’re doing alright now!

[@droppedelbow]

There's a reason you have so many amazing friends. You're an amazing person. That you can go through this and still keep any humour about the situation is incredible. Keep going.

[@maggiewilliams5610]

In 2020, my dad had a cancerous brain tumor removed from his frontal lobe. Due to the type of tumor, there was never any chance of recovery and due to the location, he could never really find the words to explain the process of the (futile) radiation he went through to help prevent regrowth. But I remember one day when he showed me his radiation helmet they'd let him keep and I'd forgotten about it until stumbling across this video. He's been gone for over a year, but it's kind of nice in a way to hear more about what his experience was since he couldn't describe it himself. Thanks, Simone.

[@catfish023]

"Trippin' Balls on Alzheimer Meds" should be the name of your Rock Band!!!

[@timothystoutland6961]

TBA&M cut an album last week.

[@timothystoutland6961]

Where you been?

[@timothystoutland6961]

Went number one on the UK charts with a bullet.... A bullet.

[@cfreeman5631]

I am so happy to see you again. Hope things continue to improve,

[@Youtubedotcomma]

Thank you for sharing your experiences, not many could, especially in a informative, honest, personal way with a dash of humour. ♥️

[@WinterCharmVT]

> I did not go alone a single time I'm crying. Goddamn it, Simone.

[@jimmccree6824]

You ARE a Superpower. Your Parents should be Proud of You. I'm behind You all the way.

[@acmulhern]

Your french accent is on point, omg! Also, I’m glad you’re back and that your radiation is over. It sucks when bad things happen to good people. Sending you much love and positive energy.

[@sami711]

Mulan 121 I think English is her second language... I’m pretty sure.

[@JuliArvi]

@@sami711 She's from Sweden, so swedish is her first language :)

[@acmulhern]

Yes, french and English aren't her mother tongue, but her accents in both are flawless.

[@chuckmawson7273]

TIL: I’ve been to Afghanistan twice...and you’re still tougher than me. Keep kicking ass! Love your work.

[@CsabaTothMr]

@Simone, idea: 3D print some kind of a brain and you can position it inside the head. Then that will have a nice 3D brain shadow as the LEDs light up.

[@dio52]

It'd be super morbid, but you could probably model something from the CT scan.

[@Ratchet4647]

You'd have to cut open the epoxy base to insert the brain then redo it somehow, and figure out how to attach the brain.

[@CsabaTothMr]

@@Ratchet4647 I thought there's enough opening left at the neck portion. I can imagine 3D printing 2 parts, then inserting it through the neck opening and glueing it together while inside. Then the only question is how it'll hover. Is magnetic levitation applicable in case the brain has some magnetisable metal mesh?

[@jpiz224]

Heeyyyyy, I'm glad you're back and still have your amazing humor ❣️

[@calugaru4174]

jpiz224 i thought this said tumour and i freaked out

[@katarinazzz]

Oh god...I read "your amazing tumor"

[@angelaphsiao]

Maybe that humor can kill the tumor

[@Falcrist]

She has amazing tumor humor... which certainly isn't the worst coping mechanism.

[@Awelbeckk]

I read 'amazing tumor' too ... glad I wasn't the only one.

[@trufflies4110]

Simone i love your approach to life, and Brian, and all you've been through. Thank you for sharing all this with us. Thank you for sharing yourself with us.

[@jimsvideos7201]

So that lamp is going to be a Curie-o? ...But seriously I'm glad you're done; you matter a lot to all of us.

[@AgentWaltonSimons]

That was a terrible pun. I applaud you, good sir.

[@raetroll]

I'm staring down two major surgeries on top of each other and I really needed to watch this today. Thank you so much for sharing part of your experience.

[@xhdultrawalk]

Just found your channel thanks to Truckla...you're awesome...cant wait to see all your vids 🤩

[@VTV12]

XHD ULTRAWALK me too lol

[@arrowhead2558]

Dude, literally the exact same thing. LOL.

[@legitgabby69]

XHD ULTRAWALK same

[@bean_man8752]

XHD ULTRAWALK sameeeeeeeee

[@dncii3776]

Me too!

[@RobD2000]

I AM SO Happy you posted this. 😁😁😁 I kept checking in on you, & checking in on you, & checking in on you!

[@TARGETPRACT1CE]

Aww, the real superpowers were the friends she made along the way. Also the power to trip on Alzheimer's medicine.

[@AshleyGrenstone]

EffinStephen 🤣 ❤️ Thank you

[@itISafakechannel]

I only just found your channel through the truckla video and just wanted to say, I love your videos, your personality really shows well through what you make, and it's great how open you are in videos like this, it could really help a lot of people. Thank you.

[@DamageZ1979]

I recently finished treatment for cancer on the base of my tongue in late December last year. You're the first person to say all the same things I've been feeling for months. I even have my mask still as well. I feel your pain and want you to know that taste does come back! I also feel cheated regarding my lack of super powers. Thanks for sharing your journey so publicly.

[@JCHK.]

Adam Turco congrats on finishing treatment. How did they find the cancer at the base of your tongue?

[@DamageZ1979]

@@JCHK. Thanks mate! My left lymph nodes in my neck got really sore and the Doc thought it was an infection. Two days later it looked like there was a golf ball in my neck. I went straight to the ER and spent four days in hospital doing test after test, trying to figure out what it was. Turns out it was a secondary cancer and that lead the docs to go searching for the primary. Which was halfway down my throat, where your tongue starts.

[@Tyr0nn3]

Keep hanging in there mate love your work! 👍

[@lautblejman]

You should write a book called "Dealing with the side effects"

[@Emmaengelchen]

I got goosebumbs when you said how your friends have been able to be at your side, that is so so great!!

[@tylma001]

Best. Ad. Ever. Hey. Im in a tree.

[@rgz_geno1938]

I. Know. Right. 😍😍😍.

[@crooker2]

Simone could be the next "Old Spice Guy". :)

[@ZachisntReal]

“Michael Myers?” “...Austin POWERS?”

[@rommix0]

OH BEHAVE!

[@fredrich1210]

Baby Driver!!!!!!!

[@PetraArkanian59]

That is exactly what I thought when someone first said that to me!! XD

[@IRex-wm9pd]

Someone is old enough to remember The Spy Who Shagged me but not old enough to remember Halloween.

[@ThetaReactor]

@@IRex-wm9pd I dunno, it's been almost twenty years since the last Austin Powers film and they made a Halloween sequel last year.

[@scottfw7169]

Hey there! We're glad you are still here, even with lingering side effects. And give your friends a big Thank You from all of us! Good friends are a blessing, that is for certain.

[@illbeyourstumbleine]

I feel you so much on the asking for help. I had bacterial meningitis that really messed me up 10 years ago. I was 29. So for 10 years I have been kinda shutoff to the world and all my friends and family. I don't know how to get out of it even when people offer. Two months ago we bought a bus to turn into a skoolie. I want to get out of this bed and see the country! However my husband works a ton and again I get weak easily. We have made slow progress. I started watching your channel to get me motivated watching an amazing woman build amazing things. Now you have given me new motivation to accept help and or don't be afraid to ask for it. Hopefully that will help us get this build going. Thanks for the inspiration ❤ peace, love and well wishes for good health being sent your way xo

[@Maxid1]

Yep, asking for help,. Same for me. Funny how the hospital always seems to be the vehicle for getting people that can't ask for help, to be forced to ask for help. It couldn't be a coincidence could it?

[@illbeyourstumbleine]

@@Maxid1 sorry for such a long post. Just really wanted to try to let you know I hear you and can empathize.

[@Maxid1]

@@illbeyourstumbleine One of the things I learned in addition to the importance of asking for help was the opposite of what I needed: When the IV drip is on the other foot: If there's someone in need, don't offer help, give it. Most people are like us, we don't want to impose (dig into that feeling deep enough and you'll find it's veiled pride). If someone is serious about offering help, pick a thing to do and do it. If there's something after that, do that too..Keep doing what they need until they don't need it anymore. Or don't offer in the first place if you're just saying it to be nice. They don't need nice, they need help. From watching people help others I've found that most people only want to do one thing (or nothing at all), not stick till the end. I know who my real friends are, and can help the ones that weren't in a way I wouldn't have been able to do before.

[@illbeyourstumbleine]

@@Maxid1 everything you said is so true and on point. The pride, the not asking and just doing. Amazing and insightful. You are a beautiful soul.

[@arachnophilegrrl]

Be strong lady! I survived cancer, you can to! ❤❤❤❤👍👍👍🙏🙏

[@Goldenretriever-k8m]

wait- I thought it was a benign tumor??

[@APiccolo]

@@Goldenretriever-k8m But it was. If I recall correctly it was just spreading really slowly, so the radiation therapy was meant to ensure everything was safe.

[@Awolraven2]

There are no words accurate enough to describe how happy you make me.

[@RedmarKerkhof]

"Hey.... I'm in a tree." Well I'm sold. Haha, great so see you up on your feet, Simone. You are a wonderful person and I'm glad you exist.

[@OwlsInATeacup]

I had 6 months of chemotherapy at 23 for stage 4 Hodgkins so I can completely sympathise with what you had to go through with radiation, I never had radiation but from what I’ve heard they’re equally as shitty as each other! So glad you’re doing well and I love your channel, just subscribed 👌🏻

[@Armyrope115Official]

Had 6 months chemo and radiation for hodgkins too! I mean not that it's a good thing for either of us but it's always interesting to hear someone who went through the same thing. Hope your health is better now.

[@jakirch]

I've been meaning to make my mask light for years now! Guess I better get on it now that I've seen your awesome light!! Congratulations on finishing radiation and being so far out from your surgery. I had a brain piñata and a Dr. Piñata at my 5 year cancerversary party. ❤❤

[@Shellyz2u]

I love you and i'm sending you all my spare good vibes.

[@rafasamurai]

I love your vídeos, you are an incredibly inspiring person and this video brought some tears in my eyes.

[@davidlewis1787]

I have just discovered your videos, had a binge then this popped up. I sincerely hope your recovery is complete and permanent. You are hilarious , bright and unique. Xx

[@rockthestar100]

"You're doing great i can see the head" 5:52

[@danodden9783]

"NGGGGGH" *"OH..."*

[@lilimo1384]

This was so under appreciated 😂😂

[@EggPlantsBelieve]

You are such a brave, strong, kickass creator! Keep doin' your thing!

[@kcaspian531]

thank you for being such a gentle person, it’s valuable and it’s appreciated

[@nolabel7705]

Thank you Simone for being so open about what you're going through. (And you bringing your own sense of comedy) My father passed in 92 from Stage 4 Cancer. From the day we all found out, he was gone in less then a month. In 2009 my mom passed from Lewy Body Disease after her 1.5yr battle of slowly wasting away. I'm sharing today to remind everyone...life is precious. Take today for today. Focus on what really is important.

[@lollopaterna405]

You are a very strong girl and I hope you'll beat the Tumor Im with you❤

[@mwiz100]

You are a wonderful person for sharing this journey with us and also showing the human side which we don't always see from many creators. Mad props to you! Also, that's awesome art ya made. I really dig it, It is awesome!

[@STICKYArt]

Simone Goes through radiation and comes out a super artist! My vote goes to you: Most influential artist of the year! Very cool piece!

[@agrillingbeerguy]

I have colon cancer, have had two major abdominal surgeries to remove a baseball-sized tumor in 2016 and finally the remainder of my large intestine (colon) in 2017, and have been through two 6-month stints of chemotherapy. Although I didn't go through radiation therapy and I don't have a brain tumor, I completely understand the weird side effects, as I still feel some of the effects from the first chemo go-around! I LOVE your sense of humor (we joke a lot about my cancer), your sentiment, and especially your perseverance in getting through this and understanding that sometimes you need help, even when you are such an independent person. I honestly could not have gotten through all I went through by myself; my family has been there for me all the way, especially my wife and two young boys who have been nothing short of amazing! Keep on keepin' on!!

[@jessicam.3925]

I really ADORE the lamp, it's beautiful. And you're so strong

[@Dougiewoof]

Why am I getting Ikea vibes

[@Shaun.Stephens]

I love your sense of tumor Simone. Not many people could make light of it like you do.

[@jgarber]

Like...she LITERALLY made an actual light out of it

[@Shaun.Stephens]

@@jgarber Heh! I'm glad I didn't have to explain the joke. ;)

[@trabantdelux]

We need you more than you need us! So keep up the great mood and don't forget to give yourself time to relax :)

[@lorelig]

i can definitely tell you this isnt 'shitty art". a lot of art grows out of adversity and making something beautiful about bad situations and exploring your feelings on a topic in a way that is aesthetically pleasing. This is exactly that! it explores your feelings on your radiation treatment in a way that is both functional and beautiful! I adore your work and your personality, don't be so hard on yourself!

[@agentham]

Omg I love you so much! I hope only the best for you, great to see you handling such a shit situation with amazing grace.

[@sloanNYC]

Your friends are amazing. Glad you are fighting through it all and learning you don't have to be alone.

[@jimcacchione9360]

Simone,I am glad you uploaded this video. YOU ARE AN INSPIRATION...Thank you

[@RobGreenLDN]

Thanks for being so open and sharing your story - currently recovering from surgery to remove a cancer in the roof of my mouth and it feels so important to hear other people's stories right now and not feel alone