Essential Sjogren's Disease Tests to Ask Your Doctor About NOW

[@simhifree]

I've had the Schwimmer test about 5 yrs ago by my Optometrist. He got me to use Restasis eye drops. This year I've had cataract removed. It was extremely helpful. No pain . It was actually a pleasant experience. Presently, I have blurring again. Last week the optometrist told me that he could see that and gave me some time to continue Restasis to get moisture, while the eye can heal. Also he saw that I have floaters. My ANA was supposedly done when I was hospitalized @ # 8:52 Firsthealth MOORE COUNTY REGIONAL HOSPITAL . I asked the Hospitalist Dr Watt to test me for Lupus. He asked me which test did I want? An ANA please, though I wasn't told the results untìl I asked him. Dr Watt did not tell me test numbers, only said that I don't have Lupus. As you know, after taking a med it gave me a horrific reactions... felt as if I was going to die, the butterfly lesion on my cheeks with a swollen face, mild hallucinations, hearing voices inaccurately talking about me (became paranoid) and got nauseous.

[@rheumatologistoncall]

Thank you!

[@mbd6054]

Invaluable information as ever, Dr. Girnita. Thank you so much.

[@rheumatologistoncall]

Thank you for your support!!!!

[@christineshields1714]

Another great video!

[@rheumatologistoncall]

Thank you for your support!!!!

[@mariasipos526]

Thank you very much for another very good information about our health ❤.

[@sandikhader1801]

Great information and understandable! I love the research information. Thank you for the honesty

[@rheumatologistoncall]

Glad it was helpful!

[@janetsplace778]

Very interesting! I have Sjogrens. I have both SSA and SSB.

[@rheumatologistoncall]

Thank you for sharing this

[@arlenebayron2448]

I tested positive for SSA last week. Everything else was negative. In 2022 I tested positive for sjrogren then tested negative two weeks later. This occurred after Covid vaccine.

[@rheumatologistoncall]

get a consultation and see it is related to the vaccine vs a disease

[@Karangahan0310]

Thank you so much for all your information. I have negative tests, including a lip biopsy but showing manifesting severe eye and nose dryness and moderate dry mouth. I also have GI, peripheral neuropathy, PVC’s and lung issue (lung issue has been established that is caused by something else). But my rheumatologist has not considered me to have SD due to my normal tests results. In all my tests, only Schirmer’s test shows abnormality. I know you might not have the time to answer my questions, but I will truly appreciate if you can make a video focused on seronegative patients. How do we get proper treatment or even just a diagnosis in situation like mine. Again, thank you for all the knowledge you are sharing online. It means a lot to your viewers, particularly me.

[@rheumatologistoncall]

Thank you for sharing your experience! It sounds really challenging, and I appreciate your suggestion for a video focused on seronegative patients. Your health journey is important, and I’ll definitely consider it!

[@mayoralcandidateangelaande6713]

I’ve lived Sjogren since 2010. It’s hell…….. no tears, no saliva, so many other health issues comes with secondary Sjogren.

[@rheumatologistoncall]

Thank you for following

[@M.BrajeshworiDevi]

Ma'am I have negative ana,dsdna,ro/la but I have impaired parotid glands with joint pain fever I also have enlarge lymph nodes multiple

[@rheumatologistoncall]

I'm sorry to hear you're experiencing these symptoms. It's important to discuss your concerns with your doctor and ensure they understand your complete situation. Stay strong!

[@FaizanKhan-rk6px]

Hi madam What is ur expert opinion about drug free holidays in patient with rheumatoid arthritis

[@rheumatologistoncall]

It can be possible for a period of time

[@FaizanKhan-rk6px]

@@rheumatologistoncall won't the disease is increased by doing this

[@dianeavenell96]

What if spinal tap is negative and blood test but brain MRI is abnormal? ( ms is already ruled out)

[@rheumatologistoncall]

Thank you for watching my videos!

[@youthexchange7505]

Can you have positive SSB SSA and high rheumatoid factor and not have dry eyes or mouth?

[@rheumatologistoncall]

thanks for watching my videos!

[@jerialice]

I had both tests, negative, but I have the symptoms! Any ideas?

[@rheumatologistoncall]

A new video about this situation will come soon

[@jerialice]

Thank you…. Eyes are easier to deal with, mouth is horrible!

[@mayoralcandidateangelaande6713]

@@jerialiceI concer!

[@denise3808]

I hope you don’t mind me asking but why is my nose especially dry yet i have lots of clear phlegm esp on a morning From what feels mainly from my throat top of chest is this a Sjogren thing? Ty

[@peggygriffiths2091]

I have the same issues so I recently bought a cool mist humidifier for my bedroom and I have gotten relief from my dry nose and congestion. I also bought and essential oil combo called Breathe that I put in the water. Or you can use peppermint and eucalyptus oils. Paid less than $30 for both products on Amazon.

[@denise3808]

@@peggygriffiths2091 ty for that I have a vicks humidifier but it’s not the cool one. Think I might get one the cool mist one and will look at the breath too ty it’s awful feel like can’t breathe properly x

[@peggygriffiths2091]

@@denise3808 You're very welcome! I hope you get some relief, I know how uncomfortable this can be.

[@rheumatologistoncall]

It's always good to ask questions about your health! It could be related to allergies or sinus issues, but it's best to consult a healthcare professional for a proper diagnosis.

[@rheumatologistoncall]

Thank you for your kind words, I hope the tips help you!

[@michaelphillips2933]

So I have a question. So i am currently on medicine, i was dignosed with sjogrens for roughly a year. When my first test was done, it showed positive for both ssa and ssd plus elevated c4. Now that i moved, they retested me again but now its showing ssa and ssb negative with elevated c4. Is it possible to have tested postive but later on be tested negative and still have the disease?

[@rheumatologistoncall]

It's definitely possible for test results to change over time due to various factors. It's best to consult with your healthcare provider for a more detailed explanation.

[@dianewristen]

THANK YOU

[@coursepro1]

Hi doctor , i have pain which is moving all over the body. My hands, arms, legs, calf muscle, knees all ache suddenly. Pain comes and goes. And while walking knee pain and calf pain occurs with burning sensation. I am 32 years old. Hyperactive person, suddenly i have started to develop all this. Can you please help me as what it could be doctor?

[@rheumatologistoncall]

You need a proper consultation

[@riyadsaadouni5627]

Dr i have sogren syndrome can i help me this is treatement to this mabthera can help me or we live like that theres treatement or not

[@rheumatologistoncall]

It's important to consult with a healthcare professional for the best treatment options for Sjogren's syndrome.

[@marysellers2806]

I have been diagnosed with SS for about 9 years. 6 years ago I started losing my voice when I am tired. Is this something you see often in SS? My rheumatologist has referred me to a ENT specialist in New Orleans for dysphonia.

[@rheumatologistoncall]

It's great that your rheumatologist is taking proactive steps to address your symptoms. Seeking help from an ENT specialist for dysphonia sounds like a positive move.

[@Vanilla-wp8zq]

@@marysellers2806 I have this as well. Mine is from Myasthenia Gravis.

[@lisah.375]

Yes, I have that!

[@samairashaikh6217]

I've only tested positive for Ro 52. rest are negative what does this mean ? Please reply doctor .

[@rheumatologistoncall]

It's important to consult with your healthcare provider for a detailed explanation and guidance based on your test results.

[@CARR0T1]

Positive anti-centromere should be included in the diagnostic criteria..

[@rheumatologistoncall]

thanks

[@dianeavenell96]

Has anybody ever had a false positive lip biopsy? Can any other autoimmune or medication do this?

[@rheumatologistoncall]

yes, you can

[@drbharat76]

Can anyone get all test positive and still not be Sjogrens?

[@rheumatologistoncall]

yes

[@denise3808]

Amazing Dr ty

[@rheumatologistoncall]

Most welcome