Sjogren's: how I was diagnosed, my labs, tests, & lip biopsy

[@remynonan1506]

I was diagnosed with SJOGRENS thank you for sharing🙏

[@livingwithsjogrensdisease1550]

Thank you. Sjogren's is so complex & so many crossover symptoms. Hope you are feeling well today. 💜💙🩵🩷

[@Hanna-s5j]

Tnank you for you advise, regarding to diagnostic assessment and specially '''' what to say to primary health provider if they refuse referral '' .Hag a struggle for two years to get referral to rheumatologist.

[@livingwithsjogrensdisease1550]

Your welcome. I've learned from others. I hope all is going well for you. Gaslighting hurts. Hope you're feeling well. 💜💙🩵🩷

[@cin337]

Thank you for your videos. There's hardly any and the ones except two which one no longer does video are not detailed enough. Have you heard of sound therapy.

[@livingwithsjogrensdisease1550]

I haven't. What is sound therapy? Is it something we can do at home? Thank you so much for sharing this. Also if you've not seen channel, My Djogren's Journey, her name is Raha, has Sjogren's, very sweet personality. She has a video of interview with an naturopathic doctor, Jeremy, who specializes in Sjogren's, dietary & functional health. He does video appts. I plan to seek him out. Hope your day is awesome 💜💙🩵🩷

[@nottoday.c]

Ì had hphylori that gave me inflammation ..then I had sogrens..once treated for hphylori my dry mouth went away but now I have gut issues I think SIBIO

[@livingwithsjogrensdisease1550]

Thank you for sharing. Hphylori can be so severe. I'm glad was found & treated. Awesome that post treatment the dry mouth went away. Reminds me about important role our gut health plays in our immune system & overall health. Hope your day is awesome! 💜💙🩵🩷

[@nottoday.c]

Just wish this insomnia will go away

[@livingwithsjogrensdisease1550]

Yes, & wish I knew what causes it, am on trazodone 50mg at bedtime & take 6 to 9mg Melatonin each night, does help. But I also find that if I eat anything at all past 5:30 or 6pm I'm awake till 2 or 3am. Oh wait, I recall reading in a study that found a fair amt Sjogren's patients have a melatonin production & or release issue. I need to look up that. Hope your able to sleep well tonight. 💜💙🩵🩷

[@mlaniado98]

hi what about constipation i have a problem with it which medicine do you take now thank you very much for your help and support

[@livingwithsjogrensdisease1550]

Yes I too struggle with constipation & diarrhea. There never seems to be a consistent balance. I have a sensitive gut so I'm avoiding gluten, dairy, lowered my sugar intake a lot, no soda or carbonated beverages, trying to reduce caffien. Trying to eat more protien, limiting corn. I also have a potato grain issue

[@livingwithsjogrensdisease1550]

I lost my reply, 🤦‍♀️. I struggle with back & forth constipation & lose stool to diarrhea. A naturopath doctor advised me to cut out dairy ( my worst offender), glutten, sugar, corn & to not eat grains and potatos within 8 hours of eachother per a blood test showed sensitivity to the combination. I cut out carbonation & reduced my caffien to 1.5 cups coffee per day. He said take prebiotics to boost my gut healing as well as a probiotic. Lots of water all day. I notice that when I cheat on my self imposed diet restrictions my constipation & gassiness increases. I've also added more protine to my diet too & reduced animal fats as those irritated inside walls of my intestinal tract which causes diarrhea very quickly leaving no time for the nutrients to absorb. Moving a lot helps too but that's a problem for many people with fatigue & body pains, Winter makes that worse. I hope i didnt so too much over share. I've heard real licorice tea helps too especially for digestion. Hope your feeling good. Thank you again. 💜💙🩵🩷

[@mlaniado98]

@@livingwithsjogrensdisease1550 thank you very much for quick replay so what medication do toy take now?

[@lakshmi.g423]

Mam oregano oil capsule gd for health..pls tell me

[@livingwithsjogrensdisease1550]

Hi. Thank you for your question. I don't know but will find out. I'm going to see a naturopath doctor who specializes in Sjogren's autoimmune disease & diet & suppliments for autoimmune disease. I would be very careful about high potency suppliments too. This will be good to cover in a video once I'm educated more. Thank you again. I hope you are feeling well. 💜💙🩵🩷