SOT Treatment for Lyme Disease - Frequently Asked Questions!

In this video, I'm answering your most asked questions about Supportive Oligonucleotide Therapy, or SOT, and my experience with using it to treat chronic Lyme Disease. The questions are:
What was your SOT experience like? (0:27)
What does the process look like? (4:57)
Did I need more than one SOT? (6:49)
Did I take antibiotics with SOT? (8:54)
Is there anything I need to do to make sure SOT works? (11:21)
Do I think SOT worked for me? Did SOT cure my Lyme? (12:58)
Resources to learn more about SOT-
Blog posts I've written about my experience with Lyme and SOT-
maddyraecooper.com/lyme
The LymeLight Podcast-
Video on KZbin: / @thegenesiscenterradio...
Audio on iTunes:
podcasts.apple.com/us/podcast...
Follow me on Instagram for more info: / maddyraecoop
Join My New Lyme Support Group on Facebook!
Friends With Lyme: / 347463036419295
If you have other questions about SOT that I didn't answer, please leave a comment in this video and I will make a follow-up video! Thanks for watching!

[@mikaylarigsby]

Thank you so much for this informative video! I’m so glad that SOT worked for you. :)

[@pattyscheuerman-dq2cu]

Hi Maddie, So happy I saw this video. I have been battling symptoms for 15 yrs. No one I saw even thought about testing me for Lyme. I moved to Georgia a yr ago and found the center that treats Lyme with Sot. They were the ones that found it and I am starting the process of Sot. You have given me so much hope after listing to your video. Glad you are better and I hope I get the same results!

[@DS-tt2kl]

49 years old tested positive for Bartonella babesia and a bunch of co-infections. I've had it for many years but was in remission until seven years ago. This time it hit me hard I lost my ability to walk now have muscle atrophy and went through several spine surgeries which was not the answer. Recently found out misdiagnose and it is lyme Santa doctor to do sot should be in within the next two weeks. I'll keep you posted but this will be in modern miracle if this works for me. Always active extremely healthy so hopefully the ball is in my court

[@nft3]

Any updates?

[@zozzleful]

Thank You . Excellent video . Im so glad it helped .

[@cyntadenarvaez9014]

I think it really depends what's wrong with you. I had 5 types of Borrelia and Ricketsia. I had 2 shots in 4 months. Also. I was on tons of ozone. 6 months after I started they told me my Lyme tests were negative. It took a full month after the shot to come out of the flare. I flared with intense itching. It was intense. It was all worth it. Now I'm just dealing with getting over the chronic fatigue or heavy metals.

[@yoanferreira383]

Thank you so much for your energy !

[@starshine1244]

Thank you for your video! I'm going to take SOT in CA today, too. I just wonder which doctor you went to in CA.

[@christinetraettino5358]

Could you please share where you went for treatment and who was your doctor. Thanks so much.

[@Annalovestheocean]

I’ve done 8 SOT infusions over the course of 2 years for my Lyme & coinfections. Unfortunately it didn’t work for me & the babesia microti sot actually made me even worse off with a 3 month herx 😣. I decided to change my approach to regenerative medicine.. hbot & embryonic stem cells 🙏🏼 praying this is what gets me remission. I have been suffering so much .. I need my life back. I’m glad it worked for you though 😌

[@Jonathande_]

I just had one for raging chronic EBV a few months ago and symptoms have worsened intensely, the die-off still hasn’t dissipated. I hear that typically the 1st will induce a worsening of symptoms and the 2nd pulls you out. Sucks to hear that it didn’t work for you, I also have chronic Lyme, a combination of different abx that address all growth phases of Lyme over several months did some decent work. I hope SOT is better in the context of EBV

[@Annalovestheocean]

@@Jonathande_yeah I was doing pretty well up until the babesia sot. It hit me so hard & have still been crawling back to where I was since which was about a year ago. The odd thing is that my babesia wasn’t even technically positive in the testing. It was only borderline & I haven’t tested positive in any other of my tick panels for babesia. At this point I’ve done so much “killing” with sot therapy so I’m starting approach this with more regenerative ideology of modulating the immune system, supporting mitochondria, reducing inflammation & repairing. Hbot helped get me to a better place but after 110 sessions I discontinued as felt the effect plateau at session 80 or so. I did 200 million embryonic stem cells which gave me an uptick of improvement as well but still no remission. I just started eboo therapy yesterday & getting exosomes infusions along with it. See how that route goes. I had done exosomes in the past with weekly one pass ozone in the past & just so happened that was when my neuropathy & pain had dissipated the most so far out of all these treatments I’ve tried. ..🤞🏽 feeling hopeful but we will see. A very complex illness & the onset of all my symptoms came 5 years post my tick bite when I lived in aspergillus mold so even moreso complex in my case

[@Annalovestheocean]

@@Jonathande_I did the ebv sot as well. For me it went fine. So did the sots I did for borrelia strains & Bartonella. I don’t think I’ll ever do another babesia sot it was way too harsh on my body. I’m not even testing positive for it & never technically did it was only borderline. I hope your reaction to the ebv dissipates but yes I heard to fully get ebv especially you need a few rounds. I did 2 rounds for Lyme & 1 round for Bart. No longer showing positive for bartonella but was showing a little Lyme left. But then again all these tick panels are based of antibodies so hard to tell if it’s still officially there. What are you treating for persistent forms?

[@Jonathande_]

@@Annalovestheocean did you go through any worsening of symptoms with EBV after 1st round? How many in total did you do, and when did relief set in? Much more fatigued, inflamed, weak, and foggy since 1st round... I know others have experienced die-off / worsening symptoms for EBV, but a bit more ambiguous and hard to find other anecdotes of the same type of experience. Also, I was on doxy, ceftin, and flagyl. Nystatin to control yeast overgrowth during. I was several bands positive prior, as well as ELIZA and Blot at certain points, following the 3 month course I am now only 41KD positive, which was the only band positive prior to reactivation, and most Lyme sufferers will have this indefinitely... blot negative now as well. May do igenex testing next. I also did a vibrant wellness test for Lyme and tick borne following abx, very expensive and sensitive test... also negative outside of mild igg for borrelia, igm low though, so did not warrant SOT.

[@Annalovestheocean]

⁠​⁠​⁠@@Jonathande_I only did one ebv sot. I didn’t have a reaction good or bad, maybe slight uptick of energy levels a week or two after. I’ve done two types of tick panels. Infectolab at first then switched to vibrant. My first infectolab showed positive Lyme, bartonella & ebv. My first year of treatment I did one sot for Lyme & one sot for Bartonella along with one pass ozone weekly. I retested 6 months post sot infusions & my Lyme levels significantly reduced to almost borderline levels & my Bartonella showed negative, but then I also showed borderline babesia & positive ebv. So the second round of sot I did was for babesia & ebv. Then after those infusions I realized infectolab doesn’t show all potential tick infections so I retested 3 months post 2nd round of sot thru vibrant. My vibrant showed only positive igm for ebv but no positive igg, negative for also Bart & babs. Only positive igms I had were multiple strains of borrelia so had another round of sots for those for different borrelia strains. I just retested my vibrant tick panel & results are pending. It’s been about 8 months since my last sot infusion.

[@djellony]

Just gave my down payment

[@guchavela4721]

How did you do?

[@nickp4793]

Did you do it? What was the outcome?

[@janetfedeles3964]

I had never heard of SOT prior to your video but will research it. You said your doctor was in Georgia. I am in Georgia. Can you tell me who your doctor was and where you had SOT done in Georgia? I am so glad you are feeling better. I would love to feel like myself again! I also thought all Lyme tests are negative with chronic Lyme since we no longer have antibodies. My Elisa test was negative but i was diagnosed based on my symptoms. The Igenex is different? Thank you.

[@harshatpant]

Thanks for sharing. Can you share any doctor who would be helpful? Bartonella infection..cannot tolerate antibiotics. Need telemedicine in california.

[@jarrodwilliamolson7278]

thank you, I appreciate you

[@dompabon1017]

Hi, how long did you have Lyme before you got the SOT?

[@sunspot7570]

I've been entirely sick with lyme for a year after a known bite. I was completely healthy and normal before this happened, but can now barely walk or stand on my feet more than a few minutes at a time. I also have CONSTANT dizziness with vertigo, and blinding light sensitivity due to soft-tissue loss around my eyes. Need help fast.

[@lenakamal7077]

What doctor did you do SOT in GA?

[@marcusfoster8833]

Would you recommend SOT

[@LisaBevill-ProSinger1]

How are you doing in March 2022? Many LLMD's don't say remission.. you either have Lyme or not. A better term is the borrelia is in hiding, buried in scar tissue or in muscle. How does SOT actually KILL the borrelia? Does your blood sample have to contain the borrelia bacteria in your to create your SOT? And you can have multiple different strains of Borrelia in your body.. what if you don't catch every strain of that bacteria in the blood draw?? You can take 10 blood draws and never get part of the bacteria in it.. And if you've been on ABX, your likelihood of getting a positive lyme test is diminished. I sure would like to hear how you are doing today?

[@dennisnicholosn1034]

hi there can we talk about you knowledge of Lyme

[@Itsme-jv4cd]

Did your CD57 go up afterwards?

[@lauracofman7128]

Did you get yourbtreatment at The Genesis Center?

[@esmeraldacabezadevaca2453]

Hello !! What doctor in San Diego ?? Or miami ??

[@kellykilpatrick3000]

What is SOT?

[@nickp4793]

Thank you for sharing your experience. I live in GA and will likely be going to the same place soon.

[@guchavela4721]

Did you do it? 😁

[@nickp4793]

@@guchavela4721 I got the blood draw for it a week ago. I'll do the infusion in 5 or 6 weeks, whenever it comes.

[@guchavela4721]

@@nickp4793 oh then I’ll probably do it before you. Mine should be ready soon. Maybe end of the month. Wish me luck!

[@nickp4793]

@@guchavela4721 Good luck! Did you have it yet?

[@guchavela4721]

@@nickp4793 my appointment is on the 7th of sep

[@mrpurge9738]

Where in Georgia did you go im from PA I've been positive for bart and Lyme for 4 years. I've wanted to do this for a long time but can't find anyone.

[@yvonneseikel2525]

Maybe ask the Rgccc international who makes teh SOT. Theyworks with all the doctors and shoild be able to assist

[@AutumnMM]

Maddy, what's a good email to reach out in regards to having you on my podcast? I messaged you on IG too, but not sure if you'll the it. Thanks! Autumn

[@laurengreve5268]

Have had lyme sot and ebv sot. Hoping for bartonella and cocksackie test next. (Not cheap) as I am South Africa. I have definitely felt impromenrs after the two sots. But also some serious ill fatigued, dementia like symptoms lately.. Trying to work through that was hell. Does one need to be potentially have another sot with lyme? How long were you sick for? How long to recove? 🙈

[@MrElsley]

Diid the fatigue ever go away?

[@jfouts1979]

I only heard about SOT today! I have had very bad neuropathic pain for over TEN YEARS NOW.....how bad was your nerve pain? And what is your fatigue like now?

[@creativegirl9710]

Did you get any answers? Have you done SOT? I just did it yesterday. I've had horrid nerve pain in my left foot since 2015! I have tried everything! I did ozone for 1.5 years and it didn't relieve that nerve pain. Numerous injections, nerve blocks, you name it to try and ease this nerve pain. Went to yet another clinic a couple months ago and they told me about SOT. Nobody had recommend it before. So preying to God it gets this nerve pain.

[@okidoki3201]

do it with hyperthermia

[@MrElsley]

How are you doing now in 2022?

[@thegenesiscenterradio7936]

Check out the LymeLight Podcast for more info about SOT!

[@dennisnicholosn1034]

I could not find lymelight podcast

[@anson.meadows]

Hi Maddie, I’m working with Dr. Sloan now…I was super fit a year ago and now I can’t walk and am atrophying from spine out with severe CNS issues. Hoping to get SOT within a month.

[@janamitic5127]

hey, how are you doing now? I’m waiting for my sot from greece. Are there any improvements?

[@anson.meadows]

@@janamitic5127 I haven’t gotten my infusion yet. My infusion got lost but I got a new one from Greece. I had to have it shipped from GA to NYC. The AIM Center may be doing it for me mid July, now. I am much worse and having really bad circulation issues and nerve issues, with joint problems. Like Lupus and a few other things.

[@momofthree6634]

Did you have this done? If so, how was it?

[@danaking3568]

@@anson.meadows did you get the SOT?

[@anson.meadows]

@@danaking3568 I did. I got SOT for Lyme, Bartonella, and Babesia. Unfortunately still declining very much so. Going to Mexico for stem cells…hard to travel for how sick I am. All my tissue is stiffening and getting no good blood flow.

[@zenspens]

So does it help remission or did you retest for Lyme and it’s clear?

[@MaddyRaeCooper]

I am clear of Lyme! Pre-SOT I was in and out of remission several times over about 10 years but post-SOT I've been completely symptom-free without doing any other treatments for over two years now!!

[@zenspens]

@@MaddyRaeCooper did you have to go through other treatments in order to get to the point where they let you try this?

[@dennisnicholosn1034]

question what practitioner on earth knows how to care for someone who has had SOT, I am woking with a gentleman who has had three treatments, please for everything holy who would we reach out to that knows enough about sot and after care nutrition environments chemicals what lifestyle best fits, for instance we know that after the covid shot those individuals should Never take steroids EVER. what doctor what group what forum would know any of what you mentioned at 12:44 minute in

[@zenspens]

Did antibiotics help you at all? The only specialist who is available and within a few hours of me and takes insurance does an antibiotic approach and this is my first official start of treating Lyme after treating mold... or even helpful for coinfections?

[@MaddyRaeCooper]

I did take antibiotics when I initially was diagnosed in 2009, but I haven't taken any antibiotics since then. I honestly couldn't tell you if they helped or not... they definitely really messed up my gut and that has caused a lot of issues for me, but I could have also gotten even sicker if I hadn't take those antibiotics. I feel like doctors have a much better understanding of Lyme now than they did 10 years ago and there are so many more alternative treatments available, so you don't necessarily have to go on antibiotics, which I think is a blessing. The doctor that I see now who is wonderful does not recommend antibiotics unless you can start them immediately after you get the tick bite. He says that using antibiotics for chronic Lyme will only make them form more biofilms. I did take a short course of antibiotics after I did the SOT treatment for Lyme to treat mycoplasma and the antibiotics were very effective for that. I definitely think that antibiotics have their place, but I personally don't like the idea of using them long term to treat chronic conditions. I have a podcast with my doctor called LymeLight thats here on KZbin and also on Apple and Google Podcasts where my doctor talks more about his opinion on antibiotics so that information might be helpful for you!

[@Andrewnutrition]

Question for you Maddy. In your prior podcasts you mentioned you were able to get rid of Bartonella AFTER SOT with a short course of abx. Here you say you think you handled it PRIOR to SOT with abx but took care of mycoplasma AFTER SOT. I have a very heavy bart infection so I do not believe my immune system can take care of it magically on it's own. Hopefully I'm wrong. Can you please clarify your bart/abx situation? Thanks for sharing this info :)

[@MaddyRaeCooper]

Hey Andrew! To clarify, I did get rid of Bart many years prior to getting SOT and it was most likely due to the antibiotics I was taking during my initial infection from 2009-2011. The only coinfection I dealt with after SOT was mycoplasma pneumonia, and I took antibiotics for a month to get rid of that. It ended up being very easy to treat. You will probably still need to treat Bart after you get an SOT for Lyme; my point was that once you sequester Lyme, your immune system does begin to function properly again so you will have more options for how you treat Bart. You may be able to treat it with herbal therapies or you might need a course of antibiotics. You just won't necessarily need to get a second SOT for Bart as well, your body may be able to take care of it with the help of other medical modalities. I hope that cleared that up!

[@Andrewnutrition]

@@MaddyRaeCooper Thanks for clarifying! Excited for my immune system to finally 'wake up'! Thanks for sharing your info.

[@zuzasinde8748]

@@Andrewnutrition what is sot meen

[@zuzasinde8748]

@@Andrewnutrition i dont know how to do this i wish som bady help me to explan thank u

[@christyletourneau5886]

@@zuzasinde8748 look for SOT on youtube. You'll learn a lot that way

[@maritrnning5357]

SOT?

[@honeybunny4real]

They’re making me travel to get the blood drawn... almost 5 hours

[@johnM-Jr]

hope you dont get the vax... glad you are feeling better. i might do it. not the wax, i mean SOT.

[@sarah29880]

I’m interested in SOT too.

[@ericaanderheggen4975]

how sick could you be if you were able to work .

[@zozzleful]

ok You were really sick .

[@dennisnicholosn1034]

@@zozzleful hey do you know anything about the sot and after care

[@zozzleful]

@@dennisnicholosn1034 zero but be sure till join the Facebook group and ask questions