Special Episode Part One: ME/CFS, disability and health equity - Know M.E. Series

Know M.E. the podcast where guest speakers talk about pressing issues surrounding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID Conditions. Join researchers, clinicians, and patient advocates as we take a deep dive into the most recent, evidence-based information, so that you too can know M.E.
In today's bonus episode: ANZMES president Fiona Charlton speaks with Dr. Neera Jain and Kate Waterworth about ME/CFS, disability, health equity, and the ANZMES petition to reclassify ME/CFS as a disability.
A full transcript of today's episode can be found here: ⁠docs.google.co...
00:00 Series Introduction
00:24 Episode Introduction
00:42 Speaker Introduction
02:14 ANZMES petition
04:48 How is disability understood socially and historically?
07:14 What is the current Aotearoa context?
10:49 What are the significant inequities to access of healthcare for people with long term conditions and disability?
17:33 Is it important for funding, services, and policies to cater for people with ME and long COVID?
20:56 Whaikaha formation
21:33 What are the biggest barriers for health equity?
23:07 Ableism
25:49 UN Report
26:58 Historical context of ME/CFS
27:24 Legitimising ME/CFS
27:44 Societal stigma around work productivity
29:28 Vocational rehabilitation
31:28 Next steps
34:04 Conclusion
34:45 Outro
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You can listen to this as a podcast on Spotify, iTunes/Apple, iHeartRadio and Google here: podcasters.spo...
ANZMES is the national advisory for ME/CFS in Aotearoa/New Zealand. ANZMES offers representation, information, national level support, and research funding. ANZMES is a RNZCGP registered provider for continuing education.
ANZMES is a nonprofit relying on the generosity of donors to continue its vital services. All executive committee members are unpaid volunteers. Donate today through the link provided so that ANZMES can continue crucial education, research, and advocacy.
⁠⁠www.anzmes.org.nz⁠⁠ or ⁠⁠www.givealittle.co.nz/org/anzmes⁠
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