Spending too much time on the floor...? [CC]

POTS explained: • PoTS Explained & Chron...
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[@jessicaoutofthecloset]

POTS explained - kzbin.info/www/bejne/Z5bXqZp7h82eesk #LovelyPeopleMerch - bit.ly/LovelyPeopleMerch How to JOIN the Kellgren-Fozard Club and SPONSOR this channel - kzbin.infojoin

[@lsedge7280]

Do you find "the black curtain" is actually black for you or more like a static tv / more greyish?

[@lorenzojax6554]

Instablaster...

[@KaatjeMSK]

To possibly add to your POTs jokes: an alternative Dutch word for lesbian is actually a 'pot'!

[@clickers8049]

Interesting-my roommate has POTs, and one of her major symptoms is that her body can’t control its temperature, so she’s constantly getting really hot and then getting really cold again

[@abbyehrenstein2550]

When every doctor says “just drink more water and eat more salt” and you want to scream at them

[@littleheartinlove7387]

abby ehrenstein oh my god same !!!!! And also that I need to calm down. I had a treatment and it had been stopped. The product isn’t produced anymore. But because I am not diagnosed with a precise condition I cannot have any of the other medications because « it’s for people with a condition and you don’t have one » excuse me sir but that you just don’t know what’s happening to my body and I have nothing isn’t the same thing !!!!

[@ashleykalan3772]

It's the most frustrating thing

[@nicolebarrett777]

omg wait that's what mine said.. do I have POTS? I commented my symptoms but I have all the same as Jessica..

[@starkid981]

YES! Along with this my doctor told me to stop drinking coffee/espresso. The thing is I had not had a drop of caffeine in months when he said it. I explained it to him and he just said to keep not drinking it, ignoring the fact that this means that I was having symptoms without it.

[@nicolebarrett777]

@@starkid981 what an idiot lmao

[@LifeLostSoul]

People get really confused when they find out I'm on birth control, because I'm married to a female, but not having a menstrual cycle has been so amazingly helpfully for more than one of my conditions.

[@araikumi9]

omg yes.. i have a lot of kidney problems and since i got on birth control, my health has drastically gotten better.

[@TessaAvonlea]

Having my tilt table test and fainting half way through it was such a relief because it meant the doctors finally actually believed me.

[@thaiseathaydesantos]

Ehlers-danlos Syndrome here, developed POTS after a surgery, I need to send articles to my cardiologist, she tried to convince me it was anxiety, but I'm a psychologist, and explained her my methodology to confirm that it was not. Also, Fitbit helped a lot!

[@MxBeehave]

I live in the US, most of my symptoms are undiagnosed because... I'm not a millionaire.

[@kadeline1]

When I was waiting to get approved for disability, I went to Social Services to see what I could qualify for as I was living with my parents, and they weren't made of gold. All they could offer me was food stamps, but once my Social Security kicked in, I got Medicaid retroactively for a short time. Also, if you have low income, you might also qualify for Medicaid. Good Luck with getting help!

[@EEsmalls]

@@kadeline1 it doesn't take much to be above the line of qualifications. I feel like they're too too low here, even I didn't qualify I would have no hope of affording private healthcare. I hope so much you are able to get diagnosed soon, it must be maddening to feel like you have "something" but not knowing what.

[@kadeline1]

@@EEsmalls I'm sorry you can't get help. As for me, I AM diagnosed, and as time goes on, I've acquired quite a collection of diagnosis. Nevertheless, thanks to Social Security work incentives and a great doctor, I am working a little. Most communities have a clinic in association with their major private social services, and may have a free pharmacy connected with it. Sometimes the income guidelines are less stringent. If you need monthly food comodities, you might find them there too. I hope I've given you something to work with; take care.

[@AmyAberrant]

That’s such a messed up system I’m so sorry

[@JessicaPradoHanson]

I got diagnosed with multiple sclerosis yet I can't afford the $100,000 a year that it takes to afford caring for myself with that disease. I'm living with my parents now again and my dad makes too much for me to get assistance but not enough to actually afford that ridiculous amount of medical costs for one of the three people he supports. It's just insane how my country thinks my life is worth nothing now yet I mentally have so much more to give as I'm making videos on my KZbin channel if you want to check out videos about coping with life and the truth of the difficulties I faced. I'm so done with the fake stuff and I love people just being real and I'm part of that now. I hope you have a beautiful day and I hope that we can make some changes in the next decade or so or we really are going to risk going extinct. These billionaires are literally killing us because they think they're more entitled to all of the money in our currency then the rest of us and it's very sick. There needs to be above others is only a mental weakness as far as I can see. Putting greed above life is just stupid. Life should always be the most sacred things in life the way I see the world.

[@noahgray7694]

Can "You're doing great darling, don't worry" be the next merch quote? ❤

[@EM-ug8ud]

Charlotte Gray co-sign

[@Jeswingify]

Yes, please!!!

[@PhoenixInLove]

Oh, that would be so sweet and lovely.

[@Wizard_Frog_]

Charlotte Gray that’s a lovely idea!

[@singinwithceline]

I need it on a T-shirt and/or a notebook

[@ChrisPage68]

I have never managed to make laying on the floor look as elegant as you do. 👍

[@Paulinemoke]

How can anyone look this good lying on the florr, sick? At that angle?! That will always be a mystery to me.

[@vaporwavedog]

especially the angle Jesus I look like a human blob fish at that angle

[@kathydust5443]

@@vaporwavedog I would have a triple chin at this angle lol

[@Joe-mt7km]

Because she is Jessica and can make anything and everything look gorgeous and stylish.

[@nancymandle5215]

I’ve always assumed I was just an able-bodied wimp who couldn’t stand for long periods of time, especially in warm weather. I just called the vision issues “spots in front of my eyes”. The racing heart and nausea I assumed was hypoglycemia, etc. Finally since discovering your channel many of these unusual symptoms and a lifetime of avoiding any activity involving sitting or standing in warm weather have a probable explanation. Thank you so much for offering some insights into my 65+ year life - you are a joy and a treasure! p.s. - will i get tested? Dear me, no - i already know they would bring on a very uncomfortable episode!

[@AnneloesF]

I can relate so much to the 'wimp who can't stand very long' idea... I thought that for the longest time, until my cousin said that she only wanted to speak to me when I was lying down, or else I would not be clear headed and would be huffing and puffing too much. Then it clicked. We're not wimps, we're POTS warriors!

[@FaithOriginalisme]

I definitely thought I had hypoglycemia at first, the shaky feeling, and nausea..

[@FatiguedButFabulous]

You know, POTs was one of the first symptoms of my EDS that I dealt with, but it actually never occured to me to lie on the floor! Thanks for talking about this and spreading awareness, Jessica!

[@Andresfin]

Same!!!! Mine started with chronic fatigue syndrome developed with POTS and finally all the other issues being a zebra causes. 🙃

[@claudiareese321]

same :) once i finally was diagnosed with pots after many years of blacking out and ending up on the floor it got the ball rolling and ive finally been diagnosed with eds and mcas

[@elenajohnston9713]

I'm able-bodied but my best friend has POTS. I love learning about it so I can best help her. Thanks for your videos!!

[@yumibunnii]

I have POTS but I don't faint. A lot of doctors inexperienced in POTS think you need to faint to have POTS. I also have Idiopathic Hypersomnia.

[@emilyb5557]

Ditto, I didn't faint until I was in med school. Then I was forced to stand for long periods and it started. I'd adapted and would normally just naturally sit or lean of I couldn't sit.

[@cinnabonbon]

@@emilyb5557 i rarely faint, but if i stand to long i feel like im about to go-

[@TheMaebunny]

A couple of weeks ago, I was talking to my brother, and i stood up, went dizzy, and immediately ended up on the floor (which does happen a fair bit, lmao) and he just stood there for a minute, until I said 'Don't worry, we're Gucci.' and he replies with 'No, you're Tesco Value' which is still the funniest thing anyone has ever said to me. (I feel like I should mention, I've not being diagnosed with anything, waiting on more blood tests lmao)

[@annaswanson5903]

Mae-Lea Simon-Horton I hope they’re able to help you what is going once you get the results of the blood tests. Good luck!

[@jazwhoaskedforthis]

So composed and elegant, even on the floor.

[@annaswanson5903]

Jaz Helton agreed

[@Swimdeep]

I have All PoTS symptoms but bc of diagnosed brain tumor (two actually). Surgery on number one on April 30, 2019. Send positive vibes. Bravo on how clear you are on topic and what a great advocate for your own and others health. 🌿

[@WateryStar]

Hope your surgeries go well.

[@rebeccawhite5601]

Hey, good luck in your surgery! Update us afterwards please so we know you're ok!

[@Swimdeep]

Watery Star 💫 Thank you 🙏

[@Swimdeep]

Twitchyboi ✨Thanks.

[@Swimdeep]

Rebecca White Yup. Will do. Thanks for your concern🌿

[@PhoebeFayRuthLouise]

Not gonna lie, I laughed out loud when you had the flower pot in your hand! Thank you for another fun and informative video! You’re the best!

[@annaswanson5903]

PhoebeFay RuthLouise that was def a good comedic moment

[@mocrafford7916]

I've been told for years that these are just symptoms of my Post Traumatic Stress Disorder... but thanks to this video (which I showed to my doctor, as well as bringing along the list of symptoms) I'm finally being tested for POTS and HOPEFULLY will be able to figure out a way to deal with these symptoms, as they've been wrecking havoc on my life for the last four years. Thankyou so much, Jessica, for finally making people listen when we say SOMETHING IS WRONG!

[@Crowcifixx]

Ha! I opened KZbin whilst lying on the floor.... To find something to pass some time... On the floor! Just chronic illness things 😂

[@Wizard_Frog_]

Fen Ratdad , same... sorta

[@malinw1910]

Same xD

[@AnneloesF]

On my bed for POTS reasons, so...semi same!

[@kimberly_erin]

On the bed today I’ve totally graduated! 🤣

[@clairegoldman6588]

This is great! Keeping a link to this handy so I can stop explaining POTS every 5 minutes. Also a fun symptom not mentioned: temperature dysregulation. I get intense hot flashes (often in the evening or when lying done) where my extremities feel like they’re on fire and painful tingling shivers when I’m cold (or tired or standing too long). This all goes with the circulatory / ANS mess.

[@dianemcgowan2367]

Educating, informing AND looking great - all with great smarts and humor...Awesome!

[@annaswanson5903]

Diane Mc Gowan indeed!

[@phoebem2979]

As I'm currently in hospital for what my doctors think is POTS, this video was perfect timing for me!

[@corvuscrux]

Same!

[@corvuscrux]

@@fe5018 yes! Love her. It was a great video to show my mother while we sat here w/ her freaking out about it all.

[@jewel9615]

I hope you gonna be okay Take care

[@annaswanson5903]

Hope you find out and good timing for the video 😀

[@haydenbrice7317]

Was literally just talking to my wife about how I think I probably have POTS. Oh, the irony!

[@r0bw00d]

You don't know what "irony" means.

[@haydenbrice7317]

@@r0bw00d look I meant something along the lines of coincidence but was really drugged up on pain meds and that was the word that came to mind

[@danielleantony9971]

You’re phones listening too u no lie, happens to me!

[@natgl11]

I have all of the symptoms, yaaaayyyyy! I've actually been considering making videos to talk about my experience with POTS, the utter hell it was to get it diagnosed, realising that I had actually been struggling with this all my life and had been misdiagnosed (or rather, ignored and brushed off) since childhood, etc. But then I get annoyed with myself just even thinking about it because I already feel sick every day, I don't want to think and talk about it even more... and then I think about how much videos like Jessica's have helped me and that maybe I could help someone else... and then get annoyed with myself again and the endless cycle continues lol

[@annaswanson5903]

Nat GL I will totally watch your videos if you make them 😀

[@karak962]

One of the symptoms I don't often see people bring up is TERRIBLE depersonilzation and derealization!! If you suddenly feel like you're not a person or that you're not real, it could definitely be your POTS!!

[@reverendmothercheryl2276]

I receive my "Some Such Tosh" mug, very quickly, as a matter of fact. It's lovely and I'm thinking of taking it to the next meeting at work and showing it off (whenever appropriate to what someone has to say).

[@anthonypc1]

OMG this is what my former girlfriend was finally diagnosed with, after years of me worrying about her ! She had been dealing with such a strange variety of symptoms and it was such a mystery for years. We would travel and (trying to) work out together but I'd constantly have to stop and help her just keep from falling over. :( Never blamed her or anything impatient like that, of course. I believed her that it was more than just feeling tired or hungry... but it was so mysterious. I'm glad she finally went to an ACTUAL doctor to get diagnosed and she says she's taking care of it better these days. BTW, one strange symptom that she had (which I'm assuming was related to her POTS) was compulsive BURPING. Yes, she'd have painful burping spells, the way most people would have the hiccups. She'd pass it off as being funny when we started dating... lol but then it got a bit concerning........ and she'd be embarrassed in restaurants.

[@jasminecollins897]

The burping can be caused by acid reflux and other stomach issues. Sounds pretty frustrating. I'm glad she finally got a diagnosis.

[@servetica]

When I first started watching your videos I was very lost regarding my body, as I was very slowly coming to terms with my declining health. Thanks to your videos I managed to learn more and more about having a chronic illness as my chronic fatigue syndrome started to rear its ugly head. You have been such a help to me and still continue to be such a positive role model in all aspects, particularly accepting my disabled body! Not to mention how I feel comfortable laughing along with your jokes about pots and chronic illness lol! Never stop being amazing, lost of love 💕

[@annaswanson5903]

artificially basic same

[@BrennaFrederick]

Jessica it's like you KNEW I went in for my tilt table test yesterday.

[@annaswanson5903]

Bree Mae 💛

[@feefee221100]

I had a tilt table test which showed that I had an episode of low blood pressure. The neurologist that organised it sent me back to my GP to test for Addison’s disease, when that came back negative, he just said to try wearing compression stockings and tilting my bed...I asked him what it could be then if not addisons, and he said ‘sometimes girls your age just have low blood pressure, you’ll grow out of it’..honestly at this point if I don’t laugh I’ll cry! Thanks for making me feel less alone Jessica, it’s not easy being ill for 3 years with doctors not caring ❤️

[@mckayahpugh6554]

Just so you know, I’ve been through the EXACT SAME THING with so many doctors, and it sucks, but you’re not alone. Your problems are absolutely 100% real no matter how doctors treat you.

[@feefee221100]

Kathryn Barnhart I just turned 30 last week, so the whole blaming it on your age thing doesn’t change as you get older either! I’ve had the whole anxiety thing too, I swear they just don’t care ☹️

[@feefee221100]

McKaya Pugh Thank you so so much, honestly that means more to me than you know ❤️

[@ronnie4901]

Unrelated to my previous comment, after watching the whole video, I have already several doctor appointments coming up in relation to blood and digestive issues and basically 90% of the issues discussed here seem to apply to me so suddenly this might be a whole lot more useful to me personally. Joy!...

[@yanad6980]

Hazel Irons good luck !!! I feel some symptoms apply to me too...

[@nicolebarrett777]

me too! haven't been diagnosed because "you're just tall" "eat more salt" "stand up slower" "you can't have an MRI because theres no reason" though I have all the symptoms and get intense shooting pains in the center of my brain that leave me exhausted and crying.. doctors🙄

[@jennyt7048]

This was really helpful because I've had it suggested that my mystery fainting illness is POTS, thank you! Also that dress is absolutely beautiful! 😍

[@Palitato]

If it is, I highly recommend Vitassium Salt Sticks as a sodium/potassium supplement! You get them on Amazon, it's the one with the blue bottle cap. They help to raise your BP, which can help slow your heart rate down a little and give you a break. (Only take them though if you have no other issues with salt intake, and your doctor says it's alright!)

[@annaswanson5903]

Jenny T it’s a great video

[@izzyfrost647]

fellow potsie here, bless you for this video! I had pots symptoms since I was 10/11 and didn’t get diagnosed until I was 17/18, and my symptoms were constantly explained away by doctors as other things until I had about 10 different tests done. I SORELY needed a video like this back then! In terms of symptoms I get: Mild to extreme dizziness/light headedness as upon sitting up/standing up from sitting/lying down; EXTREME palpitations to the point that the sensation makes me nauseous/is painful; Migraines; Tiredness/Weakness (usually severely for periods of weeks at a time, then periods without, but also more minor daily effects); Shakiness; Shortness of breath; DIGESTIVE PROBLEMS (near constant nausea, stomach ache, etc); Tunnel vision/total vision loss; Poor temperature regulation; However I don’t get blackouts or brain fog! Before I was diagnosed, doctors told me my symptoms were IBS/Chronic Fatigue/Symptoms of my anxiety/depression (which I do actually have), so this made it very difficult to get diagnosed - I had every single one of the tests Jessica mentioned at least once before they finally confirmed it, especially as a lot of doctors who aren’t specialists seem to not know a lot about it. So if you think you may have pots, I would ask about if specifically with your doctors as my diagnosis really changed my life for the better as now I finally know how to manage my symptoms :)

[@auntiewhispers]

As someone with pots, my most noticeable symptoms are dizziness and blackouts, real bad brain fog (especially when taking an important test because of course), v bad heat intolerance/I can barely go outside in the summer, migraines, and anxiety. I also drink an ungodly amount of water. But I don't actually faint very often or have digestive issues. So it's true, pots is very different for everybody. Loved the video, Jessica!

[@SinginginD]

My honest to God first reaction. Signs you have pots, you open your cabinets, and there they are! LOL. Seriously though, life with chronic illness is poop when doctors are just like Yay drink water!

[@Spade_jade]

SinginginD or tell you to loose weight or gain it... not very helpful.

[@arisymphony]

Mine is affected by heat. Vasodilation coupled with standing up is a recipe for syncope.

[@sugaredoleander409]

Basically every symptom listed here, I have. I also have most of the symptoms for fybromyalgia. Struggle is, all these symptoms overlap with a fun condition of mine- oh yes, it's anorexia nervosa, everyone's favourite. For the umpteenth time, I'm starting recovery and none of the symptoms have gone away yet. I think I will wait a few months, try not to relapse, and if the symptoms persist, consult my doctor. Also, excellent title. Never related more. I'm on the floor a lot. Like a lot. I may or may not be on the floor right now. ... I am.

[@sugaredoleander409]

Though I know that my mother gets extreme palpitations. She asked her doctor about it and they basically just told her that oh, we don't really know but don't worry about it, I guess, might be normal!

[@yanad6980]

An Acquired Taste sending you hugs and good vibes x x

[@alethiaeden]

Anorexic POTSie here too. I’m recovered but when I was I’ll nobody believed I had POTS and even went as far as saying it would go away with weight gain. I faint just as much when I was 40 lbs lighter lol. But at least I bruise less when I hit the floor 😅

[@Stuartette]

An Acquired Taste I think you should go to the doctor and get blood work done. Even if you don’t have anything it could really help with getting healthy

[@sugaredoleander409]

@@Stuartette I did, I'm lowkey everything-deficient. Especially iron and B12, also my blood sugar is "alarmingly low." I'm on a whole pile of supplements.

[@clairespahn6639]

Notification squad 🙌🏻 My symptoms include lightheadedness, extremely fast and hard heartbeat, vertigo/dizziness, shortness of breath with a sometimes tight chest, near fainting, orthostatic headache (in addition to migraine), exhaustion, brain fog, shakiness, digestive problems, and my vision blacking out, all of these when I sit or stand up. I’m also sensitive to caffeine, dehydration, heat, and overexertion. Your videos contributed to my success in getting diagnosed with POTS. My possible triggers are genetics (my aunt has it, and we have a connective tissue issue, plus anxiety), but also my two rounds of mononucleosis, and a concussion. Thank you for your lovely video! PS: the Sims jokes, I can’t 😂 and the big pot hahah I love it

[@AnneloesF]

Oh! I attributed my caffeine sensitivity to my lyme, but it might be POTS related, instead. Interesting! Thanks for sharing. Instead of drinking coffee, I eat a bit of high quality pure chocolate, which has the same effect on me as a cup of coffee would have on others. I don't need to feel sorry for myself hahaha

[@clairespahn6639]

AnneloesF glad to help! Unfortunately, I have to drink one cup of coffee per day for migraines, sometimes more), but when I do I know to take it easy and be careful because my heart will go nuts and my POTS will flare a bit. Chocolate is great for a pick me up but it affects me the same too!

[@AnneloesF]

@@clairespahn6639 Oh no, both those things are annoying! Sorry to hear...pff. My POTS comes and goes a little, and I was always wondering why chocolate sometimes helps to keep me awake at work, and sometimes not. I will now see if it is related to my POTS being a bit better sometimes. I may have to take a few sips of coffee on the days on which staying upright is not a chore. (If that makes any sense.) Thanks again for helping me understand myself better! Very helpful to read everyone's comments here. All the best with managing your symptoms as well as possible!

[@fairiesandtoadses]

Oh my god you literally just described every single one of my symptoms!

[@thecadaver]

I'm currently devoting parts of each session with my psychologist to us trying to decide if my symptoms are POTS or anxiety! She's got a lot of spoonie patients so she's super understanding, even if we haven't been able to figure things out, it's better than the frustration of seeing doctors as a mentally ill person who is also regular ill.

[@bibliophilecb]

So...I watched this video just because I love Jessica and watch all of her videos, but it made me realize I might have POTS. It’s hard to tell for sure because I also have anxiety issues, but I’ve always felt lightheaded after standing and have trouble standing for long periods of time. I’m going to have to research this now, thank you! This video was incredibly helpful.

[@yeosangcoded]

hey Jessica! I found your channel about 6 years ago during a time I was facing a whole grocery list of symptoms and no way to make sense of them. I'm so happy to report that all these years later, I've finally gotten an actual POTS diagnosis! I wanted to thank you so much for these videos and speaking about your experience. You were a major player in me finding out what I have and finally being able to get proper care.

[@abbey_rose_]

Casual been laying on the floor for hours and then see the title for this 😂

[@annaswanson5903]

🤣

[@ronnie4901]

Thank you for making videos like this, there are so few easy to digest non medical jargen information sources out there on rarer disabilities and I know this will surely help alot of people. Xx

[@annaswanson5903]

Hazel Irons same

[@quinneasom]

your earlier video is what helped me realize i have it!! mine developed suddenly and we think it might be related to my chronic pain (yay! no going away!) my current symptoms: -actually fainting when standing too long -feeling super lightheaded when i sit up for too long -migraines ! -ironically,, i have high blood pressure which my cardiologist thinks is a symptom because when i go off my hbp medication, my pots gets worse -BRAIN FOG ! -nausea oh my god -getting hot makes me lightheaded fun fact when getting tested for pots: my cardiologist had me do a standing test and after just 4 minutes and 19 seconds, my heart rate was almost 150! safe to say that he was pretty confident in my diagnosis. i now use a wheelchair for most activities just to show you how much it effects me personally.

[@nataliewongsears9799]

I swear you born to be a doctor. That was a better, more concise and holistic explanation of a medical illness than I have heard from Real professionals. I always marvel at how your experiences with the healthcare system have endowed you with such insight and compassion into health. Wonderful video as always

[@2cutemadhatter189]

Jessica, you just may have helped me solve a mystery for somebody I care about! Thank you!💖 You've just relieved quite a bit of worry!

[@annaswanson5903]

2CuteMadHatter ❤️

[@jordanbuono5730]

pots might explain me feeling like i’m having a panic attack for no reason, my horrible migraines and a variety of other things you mentioned and now i’m overly paranoid about it👀

[@drosana]

As a very redheaded vintage-favoring girl with random bouts of paralysis that end up with me just sort of...being laid down on the nearest non-walkway floor, that intro made me laugh til tears. (seriously, I've been chilling out on my living room floor way too much!!) I don't have pots, but god that still made me feel very seen

[@AdorableAcushla]

Can you please do a video about how you manage your chronic illness while on your period?

[@annaswanson5903]

Robin McKee that’s a good idea

[@citlalie9791]

@@annaswanson5903 good idea

[@scoutlaceharding]

How do you look like a princess even when lying on the floor? Is there anything you can't make look elegant and gorgeous??

[@TheEternalTaoist]

Hello all! I have dysautonomia but not specifically POTS. Mine is secondary to a genetic metabolic condition I have. I have both passed and failed a tilt table test in the same day bc my issues are primarily surrounding my blood sugar and hydration. When my blood sugar drops suddenly... the POTS-like symptoms return. So it’s imperative I eat at very specific times and drink plenty of water. Doing so will never cure me but has helped me live a better quality of life. Everyone with dysautonomia is different so I hope this may be helpful to someone out there :) Also.... side note.... my heat intolerance issues in which my heart rate would pass 200 beats per minute was just diagnosed as Mast Cell Activation Syndrome. A separate issue from my dysautonomia related just to heat intolerance. I’m so glad Jessica makes these videos, it’s great to see I’m not alone!

[@AmyAberrant]

Jessica: Poisoning you can get from some metals Me: * Pauses midway through picking my tooth with a metal bobby pin *

[@OceanicMarauder]

I'm watching this on the floor because POTs lol. I love this video

[@HippieNikkiTheTopeteTribe]

OceanicMarauder what were your symptoms? I think I might have it too

[@clairespahn6639]

OceanicMarauder same!

[@OceanicMarauder]

@@HippieNikkiTheTopeteTribe For me the most notable symptom was dizziness upon standing. I have a couple other chronic conditions that have a lot of similar symptoms. It was getting to the point where I would almost pass out almost every time I stood up. I went to my Primary doc, and we ruled out any sort of imbalances and medication interactions. Once that was all fine and good, I went to a cardiologist. We did a scan of my heart to check for abnormalities, then a tilt table test (TTT). We also did a 2 week test with a heart monitor. Between the two I was diagnosed. I know this is a lot to read, but if you have any concerns about your health, track them and bring it into your primary. I'm really lucky that medication helps me to the point where I'm symptomatic maybe 20% of the time, instead of 80-90% like I was before diagnosis.

[@lannasmith284]

I'm also on the floor haha! It's astonishing how many of us like the floor

[@EmilyCricket]

I was vlogging through getting diagnosed with POTS, but haven’t been well enough to make videos recently. Hoping to get back to it soon! 🤞

[@annaswanson5903]

Emily Cricket I hope you feel better soon!

[@abigailkrauss437]

I have most of the symptoms you mentioned. The fainting is not as bad since I've gone off to college, but now the gastrointestinal issues are horrific. It's a relief to know that I may have a name for my struggles.

[@jeanbb3283]

The description of the shakiness as an analogy to hangover throwing up was incredibly descriptive 😳 made me chuckle with a knowing smile - dearly me bless all those who have POTS

[@miininja_]

You are so stunning and I think it’s admirable that you do videos from the floor when you’re not able to get up. I also love how informative your videos are and I think us able-bodied people benefit from watching these as well. I’m currently down with a bad cold and watching your videos always lifts my mood up, lots of love from my floor 💕

[@libertyhemming9360]

what’s that emoji next to your username?

[@miininja_]

Bitesize Berty i’m part of the kellgren-fozard club 😌 one of the perks is these cute emojis next to your name, it also changes the longer you’ve been a member

[@libertyhemming9360]

Minja M that’s cute! how do you join? x

[@geekette6279]

A really close friend of mine has it. This helped a lot so I can identify her symptoms when she’s not feeling good. Many teachers write her off and ignore her.

[@salientia]

Guess who got diagnosed two days ago!!! This gal. Boy was it annoying, but it was also quite helpful and took less time than expected!

[@SpoonieScully]

I really needed this. I don’t have POTS but I’m having an insanely bad flare up right now and watching these videos always makes me feel less alone. I’m currently going through the motions of getting a second opinion on my fibromyalgia after about three years of diagnosis and wow is it tiring. But I’m great full that I am able to see the medics professionals necessary to do this

[@Lava_Girl6869]

I have POTS. I relate to the symptoms you talked about in your video. I feel like no one in my school really knows about it so it feels nice to hear someone has similar struggles and experiences.

[@TeaTime97]

When I got diagnosed with POTS I thought only people who fainted had it, and I've never fainted before. I was explaining his to the nurse during the lay down, stand, and stand for five minutes test. She patiently listened then, after the test was over, she told me I had the hospital record for highest BPM and lowest blood pressure recorded during the test. A few weeks later when they did the tilt table test, the nurse (who didn't know who had ordered the test) asked me if I was sent from a cardiologist because my heart was being so weird.

[@lior.vibefeeler9500]

Thank you. Your video made me remember recently my teenage cousin was diagnosed with pots, and that i had the same symptoms. since the age of 14 after a brain injury and very quickly contracting viral meningitis, I’ve had these problems and I’ve looked on nhs website and decided to ask my mum to print out the page so I can take it with me to the walk-in clinic. 😊

[@singinwithceline]

I sent this to my Dad because I think he has it. He’s been told he’s anxious too. Thank you.

[@annagosciejew4208]

I totally have POTS, I have all of the symptoms, just now piecing it all together 💙 thank you!

[@DragonPrincessAoife]

While I know for a fact I don't have this, the number of symptoms we share is kinda astonishing. I find it kinda hilarious and also very comforting.

[@xck]

7:34 I know exactly what you mean! I caught a bad stomach bug for the first time a few months back and I felt the same exact way!!

[@katie-vq4op]

I love when anytime people are lying or sitting on the floor your pets take it as an invitation to hangout and play with you, it's so cute !

[@amandawittenstein1873]

When Ehlers Danlos gets mentioned and I get stupid excited because someone (anyone!) knows what it is.

[@nahoo7748]

Your voice, delivery, and demeanor. You could be straight up lying to me and I'd be fascinated and attentive.

[@hannahw]

this video has inspired me to go to the doctor for my constant joint pain. i’m 15 and it feels like i have the joints of a grandma which is prooobably not normal lol. thank you!

[@suki-yuki]

Yeah! Another POTSie in Brighton! I'm in a big Dysautonomia POTS flare and homebound the last 13 months and I'm an ambulatory wheelchair user. Possibly my POTS caused by my hypermobility. Thank you for this video! 💙 Blue for Dysautonomia awareness 💙

[@miospetlover]

Several years before I was diagnosed with POTS (DX'd at 18) I was told that it was: "just anxiety, and even I have more palpations than you" by a family doctor and "oh it's sometimes normal to black out/pass out from time to time for teenagers your age" by a neurologist. This is why POTS is under diagnosed.

[@incandessa]

Holy shit... You just answered some unexplained things that happen to me. I looked up the symptoms, and I've known to have unexplained tachycardia (they can't find the cause) since I was a teen. This explains so much.

[@damienarachnid0917]

Hi! I was diagnosed with POTs Syndrome after a tonic clonic seizure when I was 13 or 14 (I'm 19 now) and had hit my head on a tile countertop. My symptoms include tiredness/weakness, brain fog, dizziness/lightheadedness, migraines (though I suffered from chronic migraines long long before the diagnosis, they're just worse now), nausea, passing out, palpitations, shakiness (shaking as I type this!), shortness of breath, digestive issues, blurred vision and little colored lights in my vision. I was told I would grow out of it by the time I turned 16. Never did!

[@carolineappleton3177]

Watching this from the floor! Symptoms I have-dizziness, headaches, fatigue, sensory overload, chronic pain, brain fog, short of breath, digestive problems Symptoms I don't have-fainting, migraines I took a list of symptoms from the POTS website to my GP with all the ones I had highlighted, and she admitted she had no idea and referred me straight to the hospital

[@lannasmith284]

I'm on the floor too haha! It's interesting that most of us with POTS are more comfortable on the floor. Unfortunately though, I didn't exactly think this through... I'm going to need help up and my husband is at work. Guess it's nap time! Haha

[@chloepresley2000]

I was diagnosed with POTS when I was 14 and my mum went round telling everyone it wasn't a "proper illness" and not to listen to me when I said I was suffering with it because I would "grow out of it"

[@quinn1222]

Hi I've been diagnosed by two different cardiologists with pots! I get dizziness when changing positions, standing for long periods, sitting for long periods, eating (especially hearty/heavy meals), when its super hot out, after doing physical activity, when dehydrated. Other symptoms I have are brain fog, the shakiness (great description, I always just said feeling flu-like), occasional convulsions from the chest, gnarly leg color changes in the shower (red/purple splotchy), temperature intolerance (cold really hurts, even things from the fridge), blacking out when sneezing (doc said sneezing can cut off blood flow to brain?!?), and I have digestion issues but got diagnosed and treated for the infection H pylori which helped. I also have lots of joint pain, undiagnosed and don't know if its related. Treatment wise, gatorade and water are my life as well as salt salt salt. Then my current cardiologist has me on two medicines, one for fluid retention and one for managing my heart rate (atenolol and fludrocortisone, can't remember which is which haha but figured someone may be curious). Things have gotten waaay better on the meds and my docs and my current plan is to build up my leg strength and general strength over the next several months so I can hopefully get off the meds. Also I am transmasculine and going to transition using testosterone soon, my cardiologist said that T helps with fluid retention, raising blood pressure, and building muscle so we are hopeful that T may actually become a replacement for my medicines! Thanks for the video Jessica, this is a very confusing health condition and kinda embarrassing to end up on the floor randomly or to not be able to talk/think. Anyways theres my long ramble about symptoms and treatment, I hope someone finds it useful or can relate!

[@marisagabriela4782]

thank you for the best explanation of POTS I have ever heard, I was diagnosed with POTS and Ehlers-Danlos Syndrome (hypermobility joint syndrome) last fall and my tachycardia was so bad I had a cardiac ablation which is basically one of the lowest risk and least invasive of heart surgeries. my doctor originally said it would only take about an hour and it ended up taking 5 hours because there were 70+ arrhythmias in every four chambers of my heart and each one had to be individually cauterized. Explaining my condition to able body people is one of the hardest things about it besides ya know randomly passing out or dislocating my knees. It took 18 years to get a diagnosis because it's just not well known and since EDS and POTS cause so many different problems we were treating each one as its own thing. Thank you for spreading awareness and creating a sense of community for people with POTS it's way more common than most people think and the more education about it the better!

[@thehollyannrose]

I accidentally clicked this video, and I am grateful cuz it really helped me out. I've been wondering for years what is wrong with me, I do have HASHIMOTO'S, which makes me tired but this makes so much more sense with the tiredness I feel. Like I feel like my blood is suffocating. I'm going to talk to my doc about it tomorrow. Thank you.

[@kaylaellis9197]

Don't feel ashamed for your "terrible" joke. I couldn't resist laughing at it because i love that kind of humor. Which is good because I have some friends who love puns. I don't have POTS but I do have IBS so I feel you on digestive issues. I've had IBS since I was in middle school but only got diagnosed last winter.

[@kellahanna-wayne4191]

I love the Tilly cameos! I have EDS and a mild version of POTS, which is mostly treated by drinking 90 oz of water a day and putting massive amounts of salt on my food. I tend to feel the most light headed after *lying down* and generally can look forward to 10-15 minutes of my heart pounding after doing so.This also means that if I stand up and feel light-headed, sitting back down again to try to stabilize actually makes me *more* light-headed. I also get heart pounding when I've been in the heat for a long time or when I'm getting a fever. I've never fainted but I came close a few times in highschool. I also have Mast Cell Activation Disorder and I'm not clear how many of my symptoms are caused by that and how much is Mast Cell making my POTS worse?? too many overlapping things!

[@erindebo3008]

This came out the day I had my testing. Thank you for raising awareness about POTS, I can’t tell you how many doctors told me to just get up slower or drink more water and told me seeing black or passing out was normal. It wasn’t until I watched one of your videos that I thought oh maybe that’s what I have. So I asked my doctors about it, was tested, and boom. I was right. Now just to find a specialist which is a bit difficult in the Midwest...

[@karak962]

Woah!!! It's so exciting to see somebody else with POTS!! I have pots and brain damage so my brain is just *constant window boot up*

[@kokopuppy57342]

Mine is related to mast cell disease which was always labeled as bad allergies and eczema. I don’t have any hypermobility and rarely faint. Before diagnosis I was always telling my doctors my symptoms felt exactly like what I experienced as a child when we took a trip high in the mountains. I still feel that experience almost perfectly correlates (difficultly thinking, moving breathing, everything is so much more difficult. Etc.) that helped us determine that it was an issue with oxygen getting to the brain. It happens to be related to blood rather than low oxygen in the air. Also anything over 70 degrees is miserable but I can do activities in the water perfectly easily. I also don’t sweat because those nerves don’t work so I overheat easily

[@alexandrae4566]

such an informative and useful topic you've covered. thank you!! though I would listen to you speak about anything your voice is SO lovely and calming

[@alysmaslen4944]

This popped up in the pots subreddit just as I had to lay daown really quickly because I felt every part of my body give out. Tiredness. Shortness of breath. Chest pain. All because I bent down to move my son then stood up.

[@kitty_rae21]

Thank you 😭😭😭 Jessica you've given me so much hope and motivation to seek diagnosis and treatment. I'm so thankful for you! ❤❤❤

[@andiesola]

Oh Em Gee, I am so happy that I found this video and your channel! I can’t believe I finally found a little community of people with the same issues I have and who enjoy/feel better spending as much time on the floor, LOL. You all get me ❤️🤗

[@alice0601]

Oh my dear, I hope you feel better soon! Thank you for always sharing your experiences, and showing us these glimpses of your life. Sometimes it's hard to see your disabilities, and for those of us who are fully-abled, it helps us understand to see these moments of your life.

[@arikaGME]

Thank you for the video. I have a coworker that may have this and has been sick lately and they suspect pots. I’ll try to check in with her if she needs me to go up ladders for her so that she doesn’t fall. I want her to be safe. I feel bad because she is so young and people don’t understand that she has been sick and they mislabeled her as lazy. A few coworkers were causing drama so I told her to check in with HR and let them know her situation so she doesn’t get penalized if she is having a rough day. It’s hard because I don’t want to destroy her trust by letting coworkers know her private health details. I just tell people that she is going through a situation to be patient with her.

[@annapurcell3824]

Also thank you so much Jessica! Watching your original video on POTS helped me figure out something was wrong and eventually receive treatment/ diagnosis by being my own physical health advocate.

[@zoe5317]

Omg I got diagnosed with pots about a month ago... it’s so crazy and makes me feel so much less crazy to see other people who have it

[@musicandmoods9322]

Thank you for another awesome (and very informative) video!! :) You make my day ^^

[@iwillsinganewsong]

This is brilliant! I was misdiagnosed and/or looked at like I was crazy by more doctors than I can count over almost 20 years before proper diagnosis. I was always asked which symptom was worse when I would tell them that the symptoms all happened together. An episode would always start by having a vague feeling of apathy and fatigue and feeling like my heart was rapidly beating in my stomach, then migraine-like pain from my eyes/head down my entire body, terrible nausea that would lead to endless vomiting, tunnel vision and hearing, labored breathing etc… I found out about POTS and disautonomia by watching a Discovery Heath show ‘Mystery Diognosis’. I was lying prone at the time, so very unwell, but inthralled that someone was finally describing all of my symptoms together and there was a reason for this. Hopefully your video will help someone in the same way. My cardiologist has said my POTS in chronic since it started in my 20s but manageable, thought to be brought on from the Epstein Barr virus damaging my heart. With an enormous amount of fluid and salt, as well as not getting over heated or avoiding environmental fragrances and pollutants (from perfume to cigarette smote to car exhaust) and staying active enough, I can manage to not feel like I’m going to “lose my legs” and spiral into all other symptoms.

[@summer_the_rae]

I don't have any physical disabilities (unless you count eczema?) but these videos are super interesting! They've let me look at things from a different point of view and helped me see that not all physical disabilities can be seen.

[@zacheryturner8694]

I really enjoy your positive content. I've been going through some things and your channels have really helped. Finding your channel is a great way for me to learn and to keep smiling. Keep up the great work.

[@AdhdandmeEmma]

Just love your videos, you are just amazing xxx you have given me the strength to blog about my invisible illnesses and my life, thank you!! Xx