Splenectomy: Jackie's story

[@joyceseiferth5183]

I have a very massive spleen (25cm). I am having it removed in January 2022. Your video is very calming for me. Thank you.

[@LymphomaAction]

Hello Joyce, thank you for sharing. We're sorry to hear you have an enlarged spleen, and needing to have surgery in January, we send our very best wishes to you at this time. If you are in the UK, please do remember we can offer information and support via our helpline services, if you feel you'd like to chat at any point. lymphoma-action.org.uk/support-you/helpline-services We're here for you.

[@curtisjones400]

@@LymphomaAction Is there any way a person could have get a spleen transplant of they had there spleen removed?

[@LymphomaAction]

@@curtisjones400 Hello Curtis - the information we have on Splenectomy is here lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/splenectomy. We are not medically trained so our suggestion would be to raise your specific question with your medical team.

[@curtisjones400]

@@LymphomaAction Thank You

[@lovelyday07]

Hye buddy, are you ok now ? Can you share your platelets count after spleenctomy

[@maryshaw2004]

I had my spleen removed in 1987. I don't have to take any med. for it, although I am sensitive to dirty environments and colds. I try to eat healthier. That is the most important thing.

[@K1tsu111]

Im about to get splenectomy done im pretty nervous but sorta excited because i can get an active lifestile once again!

[@LymphomaAction]

We send you our very best wishes for your forthcoming splenectomy and recovery. We hope that you found the resources helpful.

[@takethat1takethat1]

I've just completed 6 months of chemotherapy after having been diagnosed with SMZL. I have to wait for a PET scan and possible bone marrow biopsy before meeting with my consultant to let me know whether I'm in remission or not. Loved listening to your story and would love to be able to chat to you properly as feel so alone sometimes because ours is not one of the more common types of lymphoma :(

[@LymphomaAction]

Hi Dina. If you are in the UK and would like to talk to us, you would be really welcome to contact our helpline. You can find more details here: lymphoma-action.org.uk/support-you/contact-us-support Best wishes.

[@ARTWV]

I had mine removed at 27. I don’t take any antibiotics daily. My daughter had hers out at age 5 and she took penicillin daily til 18. I live a normal life and rarely get sick.

[@lovelyday07]

Hello ! I hope you both are well. How long it takes to decrease in your platelets count. What's your platelets count now. Plz reply

[@ARTWV]

@@lovelyday07 hi, it took several years for the Platelet level to go down. It never goes to the normal range. We are doing well. I don’t see a hematologist anymore.

[@thenorseofnassau8250]

Great courage

[@maribelmuniz2123]

So happy for you I hope I am ok

[@rachelcampbell9733]

My spleen was removed and I was good for about 10 years. That was the easiest surgery I have ever been through honestly.

[@ronaldkrikorian4712]

How are you doing now?

[@rachelcampbell9733]

@@ronaldkrikorian4712 good. No side effects from the spleen being removed 😉

[@ronaldkrikorian4712]

@@rachelcampbell9733 Do you have to get vaccinations & can you eat whatever you want? Greetings from Australia 🇦🇺

[@rachelcampbell9733]

@@ronaldkrikorian4712 Hi Ronald, I do not get vaccinations except the 3 every 10 years. (Decade flu, decade pneumonia and then tetanus) my doctor then said only those 3 and I have stuck to it. I eat whatever I want now. I am more aware of eating fiber but that is more.from my gallbladder being removed not my spleen.

[@ronaldkrikorian4712]

@@rachelcampbell9733 wow! I’m having surgery on August 8 to remove large masses by my pancreas & spleen! The surgeon said the spleen will have to come out! I have a mass the size of an orange and also a solid mass! They’re both growing!!!!!!!

[@amyramsey9100]

hello im 58 and sceduled to get my spleen removed currently bed riddon from size of it ,im scared i will get really sick without it

[@LymphomaAction]

Hello, we're sorry to hear you are currently bed ridden, and scheduled to have a splenectomy, we can appreciate this is likely a difficult and worrying time. We have some information here, about splnectomy, and precautions to take after having the spleen removed, which we wonder if you may find helpful to read lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/splenectomy We're sending our best wishes to you for your upcoming surgery, and your recovery.

[@amyramsey9100]

@@LymphomaAction thank you soo much i am so nervous about surgery and this helps me alot .

[@LymphomaAction]

@@amyramsey9100 We are pleased that you found Jackie's story so helpful and we send you our very best wishes for your forthcoming surgery.

[@chakravritgogoi3471]

Give some suggestions how to safe from Coronavirus?

[@urmi8170]

I m a patient with spleenectomy I m very nervous j need help

[@LymphomaAction]

Its understandable that you will be nervous, we have some information on splenectomy's here that may be helpful: lymphoma-action.org.uk/types-lymphoma/non-hodgkin-lymphoma

[@roxannestrickland704]

How are you doing now

[@divyachandrashekar3098]

Madam my friend had splenectomy surgery. But he has lots of variations in blood. But he is fine.. Can u suggest wat is good for him. Can they have long life span

[@LymphomaAction]

Hello, we're sorry to hear your friend has had a splenectomy, however pleased to hear he is fine. Generally, people recover well following a spenectomy, however their immune system will not work as well as it used to, and they may be more prone to infection. Your friends medical team will be able to offer more individual advice, however if you would like to read our information about splenectomy, you can find this here lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/splenectomy-having-your-spleen-removed We send our best wishes to you and your friend.

[@lovelyday07]

Hey , how is your friend doing now ? How long it takes to come blood report normal, plz reply