Not feeling so good again | Multiple Sclerosis | Chronic Illness

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Neil Bradley MS

Neil Bradley MS

Күн бұрын

Пікірлер: 73
@AJHR77
@AJHR77 6 жыл бұрын
Those bad nights really give you time to journal your symptoms although we would rather be sleeping! Take very good care of yourselves you and Teresa! Hang in there Neil!!
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Thanks Avril, always love to hear from you .. I quite often lay in bed and think I just can't stand the pain any longer.. should I get up, go down stairs and grab my camera and download thoughts. It wouldn't be the first time ! :) But yes, I would much rather be sleeping :) Take care.
@sheri023
@sheri023 6 жыл бұрын
Hello Neil, I'm sorry you are feeling such pain and weakness now. And I hope Teresa gets to feeling better too. Others have mentioned conditions other than MS, and I just wanted to repeat one i mentioned on your previous post. Chiari malformation can cause burning in the extremities too. If your doctor is looking for other disorders you could ask about it. The best of luck to you, Neil. Also, with my chronic fatigue I try to look at my 'bio-rhythms' to gauge how I feel and when I can push myself to exercise. We have cycles of 11 days up and 11 days down of physical energy. On the up days I usually feel better and on the down days I rest more. You can look up 'bio-rhythms' and chart your days of the cycle or just become more familiar with it. Good luck, you two!
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Hi Sheri, thanks for this info on "Chiari malformation" .. I've just had a Google and looked through the symptoms. I feel confident its not this, but thank you anyway for sharing. Most of the symptoms I can't relate to (thankfully). I'm waiting on the results of my Lumber Puncture to which I'll share with everybody with a video. I think it should be another couple of weeks yet. Hmmm, I've heard of Bio-Rhthms.. very interesting. I am very up and down, but when I'm down honestly struggle to remember the days when I was good. I'll google. Thanks :)
@kingofkings6242
@kingofkings6242 6 жыл бұрын
Hi Neil, I've had MS for 16 years and for years I had to figure out what can help me deal with it , most effective way is to try minimize any activity that wont let your mind clear , and to have a great SPIRIT handling it, social life and friends would defiantly improve it , chins up bro and wish you all the best. Saeed.
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Thanks Saeed, appreciate your message. Sadly I find it quite difficult to socialise now simply because I'm always in so much pain. As a result it's just easier to stay home.
@kingofkings6242
@kingofkings6242 6 жыл бұрын
@@NeilBradleyMS Sad to hear that , try inviting friends , it will definitely improve your mood which would really help :)
@chriseisenbraun5541
@chriseisenbraun5541 6 жыл бұрын
I feel for you,I'm going through everything you are, it's so depressing and hard to stay positive I find myself crying and praying hoping something will change ,I wish the best for you
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
I'm really sorry to hear this Chris, it's really hard isn't it .. the ups and the downs, for me mainly downs to be honest. I have difficulty remembering the good days when they happen, but they do happen as I record them in a video. It's hard say positive, but I try.. I think its important that we do try. Best wishes to you also friend.
@carolemoore8505
@carolemoore8505 6 жыл бұрын
I thought on your last post you didn't look too good, so sorry you're not yourself. My love and best wishes to you and Teresa.
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Hi Carole and thank you.. you thought right! But I'm so up and down with my mobility and pain levels, I never know where I am from one minute to the next.
@MichelleMybelle61
@MichelleMybelle61 6 жыл бұрын
Sorry your both not feeling too great. take each day at a time...don't look to far ahead for now 💕
@dean200993
@dean200993 5 жыл бұрын
It's been a while now since I've had them, but nothing worse than those jerks. Tend to have them when i've overdone things. You look really sad Neil and fed up mate. At least you went to see your Mum and then your Dad, so you're having that routine of doing things, which is good.
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Thanks Dean.
@1Kittywicked24
@1Kittywicked24 6 жыл бұрын
Mr. Bradley. I have been having the same exact experience. The jerking , stiffness and all. It seems with MS our bodies are more sensitive to environmental changes such as weather. Mine do this when we are about to either turn cold or it is about to rain. Of course heat is a big factor to and if I go visit anyone and they have their heat at 73 degrees Fahrenheit or higher it will trigger a relapse. We have to keep our house at 72 degrees or lower. I am now on my 3rd day of no sleep, yes another side effect courtesy of MS. Hopefully tonight I will be able to at least have a couple of hours sleep. I am so sorry you are also having to go through this. Also there is a MS doctor on KZbin that explains all aspects of MS in plain understandable language for everyone to understand. His videos are very informative and I think you will find him a good source of information. His name is Aaron Boster MD. Multiple sclerosis learn about MS Aaron Boster MD. I hope this gives you even more useful information to help you get through all this. Please tell your lovely wife hello. Sending lots of hugs and love to you both and I hope you get some much needed rest soon and the jerking and pain stops soon.
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Hi There, thank you for your message. When you get too warm and your core body temp increases ever so slightly, in someone with MS it's called "Uhthoff's Phenomenon". I know quite a lot about this because it was instrumental in my diagnosis of MS back in 2013. Google it and have a read, I think you'll find it an interesting one. I think this will be why when you visit anybody and they have their heating up too much, your symptoms flare up. 3rd night of no sleep is definitely not good, I do get sleep but its very broken.. I never get any quality sleep because the pain always wakes me. Sometimes I wonder how I function, I expect you perhaps think the same. Yes, I'm a subscriber to Aaron Boster, he's excellent isn't he .. his channel is all about explaining things in an easy to understand (not too medical) way. He's a top man. The leg Jerking DRIVE ME INSANE!! It's almost 100% guaranteed when ever I start to get tired or fatigued it will kick in. I have to lie on my left leg to try and stop it, but then my foot goes all weird on my. It repeats every 30 seconds in a cycle, how is somebody supposed to function with such interrupted sleep. Thank you again for your message, and look after yourself.
@1Kittywicked24
@1Kittywicked24 6 жыл бұрын
@@NeilBradleyMS I have gone through the MS society and got a cooling vest which is a great help in the summertime. It can get well over 100 here in Tennessee. I think they have the same program in the U.K. ,I will check and let you know if they do. It makes summertime a bit more tolerable.
@sapphiresky7946
@sapphiresky7946 6 жыл бұрын
Oh Neil , I’m sorry you’re having such a tough time at the moment, there’s nothing worse than being in constant pain 24/7 . Please try not to overthink things , I know it’s easier said than done , but the stress will only make the symptoms worse. My legs don’t bend easily either , I’m sick and tired of walking around like tin man from the wizard of oz , lol !!!! I’m sending lots of hugs your way , I really hope you and Teresa start feeling better real soon , and that you both get some relief , fingers crossed your doc prescribes the diazepam for you , or another alternative medication that might help you . Take care of yourselves , Grace x
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
The "Tin Man" from the Wizard of Oz - PERFECT description!! I like it .. horrible as it is, it's nice to know I'm not alone. Thanks Grace, yes hopefully my Dr will prescribe it for me. I don't even feel the need to take it every day, just when things aren't good like now to be honest with you. It's almost 10:30pm here in the UK, I'm dreading going to bed because I just know I'm going to be up and down all night with pain etc. Ho hum. xx
@shellyburnett63
@shellyburnett63 6 жыл бұрын
I feel the same way! Hope you can feel ok.
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Hi Michelle, I'm really sorry to hear you also feel like this .. because it's absolutely no fun is it. Right now, even as I type this message to you, I'm hurting.. my legs are tight and burning, my walking is rubbish. I'm very up and down, more down though recently to be honest. I've noticed when this happens, I find it really hard to remember the good days. You take care.
@salliemcgugan1097
@salliemcgugan1097 6 жыл бұрын
I can relate to you so well ... I’m often the same as yourself ..good one minute ..and not so good the next.. it’s does make you very low ... but chin up ... you are a lovely couple ... love your updates .... your videos help a lot of people out there keep up the good work .. hope things get easier soon for you ... take care 😊 .... Sallie
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Thank you so much Sallie, I really appreciate you writing a message .. yes never knowing from one day to the next how we're going to be is difficult to cope with isn't it. I hope things improve for you also. Take care.
@salliemcgugan1097
@salliemcgugan1097 6 жыл бұрын
Neil Bradley Thankyou 😊
@JeevesReturns
@JeevesReturns 5 жыл бұрын
MS... I look at it as the gift that keeps on giving. Randomly. Today I can stand from the sofa and tomorrow I might need help. It’s a neurological crap shoot from day to day. Press on though! We do the best we can.
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
👍 Each time I go to stand up from the settee, I’m not sure if I’ll be able to do it either. The stairs are very challenging currently, especially first thing in the morning.
@JeevesReturns
@JeevesReturns 5 жыл бұрын
Neil Bradley Ya, mornings kind of suck. I don’t know if it’s mean or emboldening, but I remember my grandmother saying “ there’s always someone worse off than yourself”. I think of that on dad days. This and cancer along with the occasional brain hemorrhage are pretty hard to beat though. But still I say that any day above ground is a good day.
@MyMSstory
@MyMSstory 6 жыл бұрын
Hey Neil, I quite regularly suffer with pain in my legs, I get a pain when I'm still and I have to move them to relieve them and then I also get a different pain when I move. So basically a constant form of pain which I can customise by moving. I don't know if it is similar to yours but I can sympathize if it is. Sometimes I find a beer can take the edge of but only sometimes. Keep yourself busy mate as that also helps for me and one day soon I'm sure you will realise it is actually a little better. You will be alright buddy.
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Hi Ian, that sound a lot like Restless Leg Syndrome to me. For me the leg will only start twitching and jerking when I become lethargic/tired or go to bed. If I get up and walk around, it will stop immediately. So annoying. I always try and keep myself busy doing something, its a good distraction isn't it. I hope all is well with you.
@Matthewgreen7779311
@Matthewgreen7779311 5 жыл бұрын
Hi. I just came across your channel. I have MS as well. I have primary progressive MS. If I could offer a bit of advice. Please keep exercising and staying fit. Listen to your body and take it easy when you need to do so. But keep going. I used to do yoga and work out fairly regularly. I stretched every morning and rode my recumbent bike almost everyday. But then I started to get weaker and felt some progression of my symptoms. I fell into a deep depression and stopped doing anything. I thought, what’s the point? That was the absolute wrong thing to do. MS is going to what it will do, but we must stay as active and healthy as we can for as long as we can. I’m still struggling to get on the right track although I walk with a cane or walking sticks and may need a wheel chair soon. But we must keep going. I hope you are well.
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Thank you Matt. I couldn’t agree more, to continue exercises and moving is absolutely paramount. I’ve think I’ve fell into a similar depression myself in the middle of last year. I WAS being pushed in a wheel chair by my wife to appointments as I literally couldn’t make it by foot. I NEVER want to go there again. But it’s not easy that is for sure. Thank you for writing Matt, and I hope you are also doing well at the moment.
@glenwestphal7510
@glenwestphal7510 6 жыл бұрын
Hey there buddy sorry to hear you're going through so much pain I tend to when it's cold are damp with my back issues I've been going a series of back injections sort of like cortisone shots every month that has really really helped but as you know I have had bad issues with those spinal taps I had but this new doctor seems to be great at what he does next week I'm having a laser surgery to sever the nerve causing me all my back issues I'm very nervous about it but he seems to know what he's doing so I'm going to put trust in the Lord for that what did you or how many Taps spinal taps do you have to go through before they give you an exact diagnosis. Well mister hope you get more energy and feel better soon keep us informed it's got to be frustrating not knowing now what exactly is happening to you yet you sound like you have exactly what they said in the first place and who knows what's going on cuz the body can do weird things so hang in there stay warm say hi to the mrs. Glenn from the United States
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Hi Glen, good to hear from you .. wow you're having laser surgery to remove a nerve which is causing you all the pain, that IS brave. Kudos to you my friend! I REALLY hope it goes well for you, and I am very interested to know how it goes, please let me know. Good luck with that! As for me, I'm sure I'll find out sooner or later what's going on when I get the results back from my LP. I've got a feeling they're going to be clear. Take it easy.
@michorote106
@michorote106 5 жыл бұрын
Neil / Teresa both take care
@andreawheatley5528
@andreawheatley5528 6 жыл бұрын
Sorry, you're feeling stiff in the legs, but you have get that spirit to fight again. I would love to hear about your exercise routine. My Neurologist said, since I'm on Ocrevus, I need to start exercising. Can I ask what part of England you're in? Some of my online friends, said they had cold weather and even snow. I live in Michigan, which has been very cold here, and it affects my MS. I have suddenly got the tremors back in my legs and abdomen. It's quite painful, but I take the Baclofen and it doesn't help much for the legs. I will ask you on FB, about what exercises you do. Hang in there, and keep pushing through this. Much love, xx
@andreawheatley5528
@andreawheatley5528 6 жыл бұрын
My vision and cognitive skills are bad right now, I meant some of my online friends in England, were getting snow and very cold weather.
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Hi Andrea, I've been doing some of the exercises from the "MS Gym" channel .. I covered this a little bit in my recent video "My MS Exercises". I do find them helpful, but I've given myself a week off, and picking up again on them starting Monday. I feel very weak though at the moment and I'm worried I won't be able to manage them. Yes, I know you've been having some terrible weather, we've not really had anyhting here where I live apart from so cold temps down to -5. I live in Derbyshire UK. I'm used to getting the tremors in my legs, for you is this like a vibrating/humming/buzzing sensation? Well, recently I also got this in my abdomen which was very disconcerting. It was for a few days after I had my LP, I've not had it since thankfully.
@Lunabell80
@Lunabell80 6 жыл бұрын
Hello Neil, I’ve been watching your videos. Sorry you’re in a downturn right now but hopefully you will be feeling an upswing again soon. I haven’t been diagnosed with MS but having leg stiffness, back pain and stiffness, neck stiffness/pain for many years. Left thigh random numbness/tingling and Left great toe numb all the time.Just had xrays of back all were normal. MRI of brain they say is “normal in some people” whatever that means? Next is off to see a Neuro but with backlog of patients I can’t get in anytime soon. I tried Xanax for my stiffness of legs and it really helped quite enough that I could actually get comfortable to sleep. Hope Teresa feels better soon, Turmeic is a good Mother Nature anti inflammatory if she want to try it. Cheers
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Thank you Shelly, you've got quite a few symptoms there to be dealing with.. I really hope you get somewhere soon with your investigations, good luck. Thanks for the info on Tumeric, I was taking this myself not long ago.. I'll mention it to Teresa thanks.
@adrianbryant7342
@adrianbryant7342 6 жыл бұрын
Hi Neil Sorry to see you not doing so great. I take baclofen for my spasms but I take 20mg morning 20mg afternoon and 30mg at night! Could be why I'm just so tired but would rather not have the jumping legs at night. Thinking I may start to downsize the day ones and just have the night time ones possibly as I do know a lot of people say it makes them really tired. Anyway my friend you keep your chin up and hope you get somewhere with the diazepam but careful if you do as its very addictive. I'm sure personally I rattle from the amount of pills I take and would love to take less but can't see that happening now. Take care Adrian
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Hi Adrian, The jumping leg (left) at night is driving me to insane .. its whenever I start to relax and perhaps get a bit sleepy, its then the leg start jumping around, it's torture!. I went to bed last night at 11pm, it started fairly soon after and had me awake until about 1:30 - 2am. I was counting the seconds between each jump/jerk/twitch etc, and it was between 12 - 15 seconds.. that's four times a minute for over 2 hours when I'm trying to sleep. This is one symptom I'm really having difficulty coping with, I may well start taking Baclofen at night to see if it cures it. The problem is though I find these drugs which relax muscles have a detrimental effect on the little bit of strength and mobility I have left. Having said that, the 5mg of Diazepam did not.. yes I'm aware how addictive it is, but I'm thinking I would like some as backup when things are really bad, and not to take them daily sort of thing. I've actually recently cut right back on medication and supplements, because I never seem to know if the symptoms I'm having is medication of MS related.
@adrianbryant7342
@adrianbryant7342 5 жыл бұрын
@@NeilBradleyMS I know all to well Neil about how awful the jumping legs are! Certainly the baclofen sorted that for me and maybe if you just took it at night as the time your hopefully asleep you won't notice the lack of energy etc. It's so hard to tell with meds what's doing you good and what's not. A diazepam will do a would of good now and again. Hope you get a box. Take care Adrian
@conniepereira9971
@conniepereira9971 6 жыл бұрын
Sorry to hear it’s not going for you. Have read up on umbilical stem cell treatments in Panama?
@rosemaryking1072
@rosemaryking1072 5 жыл бұрын
Neil I sure hope you are feeling better, I do hope when you go to doctor you will have that talk with him about the little 💊🙏🏽
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Hi Rosemary, thank you for asking. I’m feeling a bit better thank you. Mobility about the same but, better in the mind as I’m getting a touch better sleep this last night or two. It’s makes such a big difference to how we feel. How are you feeling Rosemary?
@rosemaryking1072
@rosemaryking1072 5 жыл бұрын
Neil Bradley well Neil, I walk like a drunk, if a cop pulled me over and saw my walk, I would probably go to jail😁. It seems ms wants to throw something new my way every once in awhile, but I move on and hope this too will pass. I am glad that you are feeling a little better, looking forward to your next video ❤️🙏🏽
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
I think I’d be right there in jail with you Rosemary lol. I’ve started years ago walking like I was drunk, I progressed to walking with a stick, but I actually prefer a crutch now as to me it feels more supportive.
@rosemaryking1072
@rosemaryking1072 5 жыл бұрын
Hi Neil, my physical therapist wants me to get a cane, she is so afraid I am going to take a fall, but I just can’t bring myself to get one yet. I have fallen a couple times doing something I know better not to do, hardwood floors and socks, not smart, but I had too pee fast, needless to say I didn’t make it 😜 yep, I have bladder and constipation problems. Anyway, you take care
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Hi Rosemary, I also went through the “I don’t want a walking stick” issue. Right up to the point whereby I was too unsteady to walk without one. The thing is, it’s not easy to overcome that self conscious feeling BUT I have lost count the number of times it’s saved me. Possibly from a broken limb! I actually don’t think I’d be able to cope with a leg in plaster, not with all my other pains. So a stick it was, well in fact I walk with a crutch now as I feel it more supportive and it doesn’t fall to the floor every time you let go. Your safety is paramount, give it some though my friend. Oh, and your not alone with the bladder issues, my bladder controls my life!! MS can effect the bowels also by making them very sluggish.
@pattyhadaway3777
@pattyhadaway3777 6 жыл бұрын
Hi Neil, so sorry you and Theresa aren’t feeling well but what is weird is I have me and my partner has rheumatoid arthritis so we know how y’all feel. I am on steroids right now. 2 days so far. 3 more to go. I’ve gained 5 pounds already. Makes it hard to breathe. I usually gain 15-20 pounds while on them. It’s horrible but my foot is better so it’s like a win lose situation. My back was sore for about a week or so after my lumbar puncture. I’m hoping it will feel better soon. I’m having problems with my work because I have been out for a week. I wish I didn’t have to go back but financially I am stuck. Sorry I made this about me. I hope you both feel better quickly!
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Hey Patty, it’s a double edged sword isn’t it. MS makes our lives so difficult in several different ways because it restricts us so much. When I have steroids I find I gain about 6 - 7 pounds and I’m quite slim at 160 pounds (I’m 6ft 2). But what I found was interesting is it was fluid retention. A couple of days after finishing the steroids I couldn’t stop peeing 😂 and I lost all the weight again in about 24 hours. I recall mentioning it in one of my videos. Have you recently had a Lumber Puncture then Patty?
@pattyhadaway3777
@pattyhadaway3777 6 жыл бұрын
Neil, when I’m finished I will lose the weight also but it’s horrible. It was last December that I had my lumbar puncture. I just had slightly high protein. My job is giving me a hard time because I have been out for a week. They are being so rude to me. Just wish I didn’t have to go back.
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Hi Patty .. so you're LP came back clear then (apart from the high Protein). Do you have lesions showing on your MRI scans then? The people at your place of work don't sound very friendly .. perhaps they need educating with regard to what people with MS have to deal with on a daily basis. Maybe if they had to deal with a Chronic illness, they would be more understanding. They should walk a day in our shoes, eh Patty? I hope things improve for you, if not then you may well have to re-think the whole situation. I know this can be difficult with regard to income etc.
@pattyhadaway3777
@pattyhadaway3777 5 жыл бұрын
Neil Bradley I do have brain lesions. And a lot of clinical symptoms. My neurologist said I can’t go back to work yet. Not sure when
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Easier said than done though isn’t it especially when you have bills to pay.
@OffgridFarley
@OffgridFarley 6 жыл бұрын
Thank you for your sharing.It is helpful to me to because I'm trying to figure out my own health problems. Have you or your doctor considered NMO ? I'm sorry if you have already been through this. It's very much like MS, but typically shows a normal mri of brain, unless it is progressed. Just thinking. Hang in there. Thank you.
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Thank you for your message Farley, I had to Google that one .. "Neuromyelitis optica (NMO)" ? Hopefully this is what you mean .. I've looked at the symptoms and they are very similar aren't they to MS but I'm not sure how they differ from MS. I don't get the Optic Neuritis but I do get the mobility problems with my walking/legs etc. Also before MS I was diagnosed with Transverse Myelitis. I will know more once I get my results back form my Spinal Tap. Cheers - Neil.
@OffgridFarley
@OffgridFarley 5 жыл бұрын
@@NeilBradleyMS Thank you for your reply. Yes, I think you would have Optic Neuritis with Neuromyelitis Optica. I hope you get some clarity and good health. I enjoy the honesty of your sharing. I'm being tested for NMO because Im having some MS like symptoms but my brain MRI was normal. They used to think NMO was MS. I guess a lot of folks have been missed diagnosed. Now they understand it is completely different disease and treated differently. Thank you again for your videos and I wish you the best with this scary stuff.
@shadow03clb
@shadow03clb 6 жыл бұрын
Hi Neil. Just got done watching your video. I know everyone attributes things to stress, but do you think that your symptoms could possibly be due to all of the anxiety and stress that led up to your lumbar puncture and now your body is just trying to settle back down? I feel that those of us with MS, when stress occurs, it really affects our bodies much stronger than those with healthy immune systems. I know, for instance, when the holidays are here and my family has come, it takes me about a couple of weeks to get to feeling myself again after they have left. Also, a couple of years ago I had to leave Florida on a plane for the first time since I was diagnosed because we were getting out of the way of a hurricane coming and I couldn't walk and I could hardly function, and they had to get me on a plane, and I had to stay in a hotel, that the accommodations were not what I was used to, and the situation was just really difficult. We spent a week in Atlanta in that hotel while the hurricane went through Florida and took out the power, and I was so stressed out, that by the time we finally got home, it took me a while to get my bearings back. I know we can't blame everything on stress, but I do feel that it has a large impact on our bodies and it takes some time for us to recoup mentally and physically. I also often have to remind myself that Ms is a constant progressing disease. It's never going to stop in my body. Unlike other spinal cord injuries or diseases, we will always have inflammation and that disease is always hard at work. So I have good days and bad days and good weeks and bad weeks. Hang in there. I know it can be very frustrating and scary at the same time. I am also going through a scary moment with Ms because I'm finding things are getting a lot harder for me, as both of my legs are no longer usable. I try not to think into the future because no one is promised another day, so I try to live each day with as positive of an attitude as I can, even if it's a horrible day. Hope you and Teresa feel better soon. Looking forward to hearing your results. Did they mention how long it would be that you would have to wait?
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Hi There, I admit I was feeling pretty anxious about the looming LP since before Christmas, and I was not looking forward to it at all, but I didn't really feel stressed. It's more like I was on a bit of a high since the procedure was over, perhaps adrenaline and then I've come down from the high. To be honest I've given up trying to figure this damn condition out. I agree with you though, stress can trigger our symptoms terribly especially something like that terrible ordeal you describe when you had to leave you home. That must have been a real ordeal. I was really saddened to read that you have now lost the use of both of your legs. This is just terrible, have you got absolutely no strength in them what-so-ever? How are you coping? I think about the future all of the time, because as you say this is a progressive condition. I've been such a fit man for over 40 years of my life, then all of a sudden I can barely walk. I really feel I've been dealt a bad hand, as I'm sure you do.
@shellyburnett63
@shellyburnett63 6 жыл бұрын
Yes it is awful when burning and numbness doesn’t stop..what is point taking medication when it doesn’t help,
@michorote106
@michorote106 5 жыл бұрын
God bless
@rosemaryking1072
@rosemaryking1072 6 жыл бұрын
Oh darn, well you take your snooze, really talk to your doctor about the diazepam, it did seem to help. I know folks may frown on my comment, but you did get some relief. Neil have you ever tried juicing especially your wife for the joint pain? You hang in there, you are in my prayers ❤️
@NeilBradleyMS
@NeilBradleyMS 6 жыл бұрын
Thanks Rosemary, yes I'm going to speak to my Dr on the 15th and I'll let you and everybody know (via video) what he says. I'm not getting my hopes up, but he's a very good Dr and he listens. I never expected the Diazepam to have the effect it did, I probably wouldn't use it every day, just when I'm bad like at this moment in time actually. Thanks for the tip on Juicing, I'l mention it to Teresa and she may well experiment.. take care - Neil.
@paololungaro5004
@paololungaro5004 6 жыл бұрын
Neil have you stopped your exercises?
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Hi Paul, Yes I'd stopped my exercises temporarily the week after my Lumber Puncture. I wanted to give my back a really good chance of healing and not risk any kind of possible injury at the puncture site. I'm not sure if this is possible after such a procedure, but I thought I'm not going to take the risk. Today (Monday) I've actually re-started my exercises, and I've added more in too.. plus I went for my usual short walk with Teresa. The walk is kind of a gauge for me to see how good/bad my mobility is.. we score it out of ten. Today was good, Teresa gave me a seven !! :)
@BigMikesAMan
@BigMikesAMan 5 жыл бұрын
What is your diet like ?
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Hi - on the whole my diet is very healthy with lots of veg, not a big fan of fruit, fish and mainly chicken.
@BigMikesAMan
@BigMikesAMan 5 жыл бұрын
@@NeilBradleyMS You might want to see if you're deficient in B12 & D3.
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Thanks, I’ve been taking b12 and d3 for months in the hope it would improve things but it doesn’t seem to. I’ve recently stopped it.
@BigMikesAMan
@BigMikesAMan 5 жыл бұрын
If you are deficient, it will take a long time to recover. I have been fighting MS for 14 years.
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