SRF Founders -- Ashley Evans & Mike Graglia - Introduction, March 2019

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SynGAP Research Fund - SRF - SYNGAP1 🧬 🧠

SynGAP Research Fund - SRF - SYNGAP1 🧬 🧠

Күн бұрын

Пікірлер: 10
@lindsayhalliburton8418
@lindsayhalliburton8418 5 жыл бұрын
Syngap Research Fund's motto is Collaboration. Transparency. Urgency. Mike and Ashley are 100% hyperfocused on staying true to that, and their mission of finding treatments toward Syngap1! My confidence is high that they'll be successful in achieving this goal for our children!
@mikegraglia
@mikegraglia 3 жыл бұрын
Wow, three years later. What a ride.
@TheLizardskin
@TheLizardskin Жыл бұрын
Hello, I'm a brazilian father and my son he's got the SYNGAP1 disorder, which was diagnosed last year. He's 10 years today and will be 11 in december. Untill I watch this video I had the sensation that I and my family were alone in this world, living a nightmare each day. While we love him from the heart we struggle to deal with his condition, and to us is like if everyday is harder and tougher than the previous day.
@Beata-.-
@Beata-.- 3 жыл бұрын
You guys rock!
@angiecely5568
@angiecely5568 Жыл бұрын
Buenas noche tengo mi hijo le acábaron de decretar está enfermedad como hago para unirme al grupo
@Sunfica
@Sunfica Жыл бұрын
Donde se encuentra usted en qué país hay grupos en fb
@dianaelizabethramireztasay3786
@dianaelizabethramireztasay3786 11 ай бұрын
soy de Perú y tengo a mi niña de 7 años con este sindrome de syngap1 recien diagnosticada.
@victoriavrana2853
@victoriavrana2853 4 жыл бұрын
Mike -- add a Donate button to this video!
@CureSYNGAP1
@CureSYNGAP1 4 жыл бұрын
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