SYNGAP1 Parent/SRF Director Intro: Kali & LJ, October 2020

[@hthealthgroup3675]

Thanks Kali and LJ for sharing your story about your beautiful daughter. It seems really similar to our story for our daughter Tashy who's now 18. I wish we'd known about our SYNGAP1 diagnosis earlier - we've only just found out. It would have been very helpful and so much less lonely a journey! Tashy loves the water too by the way - I've always called her a mermaid.

[@18matts]

Ufd brought me here. Keep on fighting guys! Your amazing parents!

[@bethanyworth8850]

Love LOVE TO ALL OF YOU💙💜💚

[@Beata-.-]

What a beautiful video... thank you

[@loriholmes2398]

Hello! Our 16 year old son was diagnosed with Syngap in 2020. I would love to connect with you!

[@thejasminetiara]

Awww she’s beautiful! I’d love to connect with this family. My son has Syngap1 and he’s 5.

[@CureSYNGAP1]

Hi Jasmine, We will gladly connect you with them. You can send us your email address at [e-mail] and we can forward it along to this dear family. Be well.