Staying Positive With a Vestibular Disorder

[@MayoBaluyut]

Mine started late last year. It was a stressful time. Then it just hit me and it went really bad. All the stuff you said, I went through. The worst was last February 2019. April 2019 I wanted to give up. But I prayed to God and kept myself encouraged by actually going to places where I'm supposed to avoid. Now I can easily go to supermarkets, hang out in malls, drive long distances, ride a bike, watch movies in movie theaters. I am around 90-95% well. I believe it helped me to be stronger inside. Stress and anxiety can make you relapse. Man. This thing can hit you hard, but with faith in God and fixing my thoughts on happy and positive things really helped me to recover as soon as you expect. Life is unpredictable, but I'm just enjoying one day at a time. Thanks for sharing, man. Life is still good.

[@seanpangs7131]

Mayo Baluyut really good to hear this. Thank you for sharing. I hope people see this to see that people do get better :)

[@yourlocalmilkman6118]

Awesome story man. I still avoid public things, my anxiety just won’t allow it. I get so lightheaded in public which is almost certain to lead to a panic attack. I do pretty good at work, most days when I’m working hard I can at least somewhat ignore it, but it’s getting a little worse. I do notice that the exercises help, i did yoga a whole year before I was diagnosed and noticed when I laid off the yoga for a little while it would get worse, so I believe the yoga was helping. Now I’m about to start trying to mix the head exercises in with the yoga. Stay up and stay well brother thanks for sharing your story

[@laurenbaldwin6068]

What did you take for this? Did you have VN or VM or both and how long did it take for the depersonalization to go away and did it fully go away

[@bygrace24]

So good 🙏

[@felipesanchezserrano2463]

Bro How do u feel now ?

[@trevorhoch3553]

Thanks man. On the front end of this. Only 2 weeks in. Your video has helped me changed my attitude. Time to stop being a victim and do something. One day at a time.

[@katiealanna]

How are you doing now? I'm 3 weeks in 😞

[@ComandaKronikk]

After watching this i walked up a massive hill for the first time and it felt incredible. Thank you, i'm gonna do it every day.

[@ComandaKronikk]

First time since my PPPD that is

[@House2582]

How are you holding up?

[@RobertWoodcock-w1w]

Thank you so much for this. Your video has helped me so much. The fear can feel overwhelming. But your shared experience has shone some light on a very dark day 💛

[@JOEYEMANUEL888]

i believe you know more then any Medical professional or at least what vestibular rehab therapist know August 29 i think I saw your first video and it was the start of me getting up and taking action not feeling helpless and I started to watch movies and netflix again I thought things I would have to give up you are gonna get 100 percent.

[@nazirrosas2880]

Thx for sharing!

[@russellscott1909]

Awesome message!!! I have VM which flared up after 6 years. I constantly tell myself I recovered once and I will recover again. No doubt!!

[@seanpangs7131]

Russell Scott absolutely!! Keep fighting it gets better. You’ve done it before and you can do it again

[@laurenbaldwin6068]

Hey Russel i have this and it's caused depersonalization 24/7 im absolutely fed up, does the depersonalization always go away? And does it completely go away? Iv got it 24/7 just want to end my life have no support what so ever

[@naga_says]

@@laurenbaldwin6068 hey Lauren, please don't end your life. I believe the depersonalisation is a result of the anxiety/panic that disrupts the nervous system. You have to sleep a lot, walk a lot, and most importantly pray a lot..... If you ever wanna talk over Instagram you can add me @Yenn_gram take care ❤️

[@laurenbaldwin6068]

@@naga_says iv messaged you now on KZbin x

[@navsnipe]

Thank you for sharing this good info. I am 57 and 11 weeks into this journey of dizzy. I was originally diagnosed with BPPV by my primary doc but ENT retested me and found not to be the case, but also went much more in depth. I am scheduled for VNG/ENG next week. At least the ENT and vestibular audiologist seem to understand what is going on.

[@Mano0f]

How are you now any update? Hope you feel better

[@navsnipe]

@@Mano0f The ENT diagnosed me with Vestibular Neuritis based on the his exam and the VNG test results. I am doing VRT and I am getting better but the dizziness is still there. The more active I am seems to to keep me in the best mind set.

[@marcomoscoso7402]

Covid vaccine made me relapse, somehow it hit me in my anxiety and sensory input. But I'm facing it as strong as I can be. I find so much support from videos like you. All of my best energies for all of you there suffering this, vestibular therapy and positive life changes do actually work, slowly but effectively.

[@seanpangs7131]

Sorry to hear that. Hopefully you renounced quick

[@ComandaKronikk]

Which vaccine did you get? I'm getting the Pfizer one in 2 days its meant to be pretty fine re side effects

[@annam5057]

Hi marco. How are you now?

[@annam5057]

@@ComandaKronikk hi. I had pfizer too a day ago. Only on my 1st dose. Did ur symptoms come back after 2nd dose?

[@annam5057]

@@jerryseinfeld5713 how are you now? Im quite worried for my 2nd dose. I had pfizer

[@JOEYEMANUEL888]

You are a beautiful.person

[@sarahp8937]

Hi Sean from Australia! Thank you for your content. I've had vestibular disorder for years now but it's only been diagnosed in the last year or so. I'm 32 and every year the symptoms are getting stronger and stronger. It'll be okay for awhile then somehow comes back, I'm not sure what the trigger is. But when I'm in a relapse (like now!) I come back to these videos for reminders to fight the negative thoughts associated with migraines and dizziness (why me???) Cheers!

[@life-mm5do]

VOR ( vestibular ocular reflex) eye stabilization exercises all 3 , don't let target move at all,go slow. Great examples on KZbin,these will correct your dizziness.

[@ItsAleqo]

Same as me, I’m from Australia, wake up randomly sometimes with an episode after being Okay for weeks. Constant dizziness and sensitive to light

[@joeyboy2013]

Thank you I just recently joined the team I'm from Los Angeles Ca, I'm extremely thankful that I find good support through your updates .I Got diagnosed about two months ago after eight months of agony and Anxiety due to the fact I didn't know what it was and honestly i thought I was alone now I don't feel alone I'm fighting alone with you guys..So thank you God bless you so Much for what your doing.

[@seanpangs7131]

No problem! Thanks for commenting. Best advice I can give is just to keep going, keep moving and staying active. I've regained my life again

[@ariannefew]

Hey Joey I am also from LA and I am a year in and still fighting for my life. Hope you’ve found good care

[@jfree100]

Hi Sean, thank you so much for these videos. I'm 3 months into this hell. Did you find when recoving that you would frequently relapse/reset? I seem to get a bit better, then go back to square one again. I keep having this cycle of a little recovery, then reset. Very difficult mentally to deal with. Wondering if this was the case for you and others to? Very difficult to know if you're doing too much, too little, or just random fluctuation which could not have been avoided.

[@notmein39]

I have the same. 3 steps forward 2 steps back atm but if you look back to the first month and now the progress is there. I think that is the best way to approach this because using yesterday and today as reference for progress will wear you down.

[@JOEYEMANUEL888]

I agree i live the positive stories

[@jackieanderson2712]

Thankyou i will try have positive thoughts xx

[@lindsey8081]

Proud of you for putting in all of the work it takes to recover and for sharing it with the public!

[@seanpangs7131]

Lindsey McKelvey thank you :)

[@charlenestone]

So wonderful to hear that you’re doing so well Sean!! You’re truly inspirational to all of us dealing with this terrible affliction. Thank you for sharing this update! ❤️

[@seanpangs7131]

Charlene Stone no problem and all the best to you!

[@leviackermann188]

@@seanpangs7131 thank you so much for everything eventuslly someoned who shares my desteny… whats your insta pls?

[@valerieg6800]

great video! happy you are getting better!! I couldn't agree more I will only read positive stories, in the beginning I would see the negative ones and it would just make me panic that in be like this forever, but I'm getting better too I'm 10.5 months in and recovering slowly but getting there!!

[@seanpangs7131]

Valerie G good to hear! Yeah the negative stories can be hard to hear! Glad you’re getting better

[@janiceince6221]

@@seanpangs7131 when are you going to do another video. You are so inspiring please get back to us...with another update.. Looks like it's been 5 months 😇❤️

[@laurenbaldwin6068]

@@janiceince6221 hey did u recover

[@joelmartins13]

Great video. Thank you.

[@seanpangs7131]

Thank you Joel. All the best to you!

[@laurenstone5697]

Sean, what a great message!!! You are a true gem to the vestibular disorder community. Hold our thoughts captive! Side note-I think you would really enjoy Dr. Caroline Leaf, her books were very helpful to me.

[@seanpangs7131]

Lauren Yaciuk thank you and sounds good I’ll check it out. How have you been?

[@laurenstone5697]

Really good! Back to work, just working with physio and keeping a positive mindset!

[@seanpangs7131]

Lauren Yaciuk great to hear that!! good on ya

[@laurenbaldwin6068]

@@laurenstone5697 hi did u recover, wud u b to help me pls

[@mandyrose5822]

How did you manage anxiety its overwhelming cant sleep and have panic attack at night.

[@berthaemerson9060]

Thank you !!!

[@janiceince1965]

Sean how have you been doing. Haven't seen you on here in a while.. Hope all is well

[@8benzin]

He’s on instagram but I think he’s doing great!

[@TheTmny876able]

My eyes went rolling and i puked all day was told it was migraine by the first Dr but his mistake, the next Dr knew and told i would be next better the next day taking stemetel tablets, so 7 months later ok ! and in 26 years on i have been clear thank god i do have tinnitus though.

[@VernonRhem]

I had a major brainstem stroke 0:28 that's my excuse wish they had a medical cure

[@leenpierrott6222]

Hello Thank you again for your videos what other VRT exercises did you do.

[@seanpangs7131]

Leen Pierrott hey sorry what do you struggle with? My vrt has Switches over the two years

[@lauraburley1683]

Love the videos. How long did it take you to recover from VN?

[@seanpangs7131]

Hard to say.. mine was more longer than most (I think). Took me over half a year to actually start getting better.. but then around 2-3 years to fully get better

[@janiceince6221]

Sean haven't seen you on here for a while are you back to 100 percent? I wish you'd do another video on your recovery. I need it so bad.. Something positive.. Please

[@seanpangs7131]

Hey sorry.. I’ve just been doing normals stuff... I can’t say I’m completely 100% but pretty close to it. I do intend to make another video , I think I was at a phase for a bit where I didn’t want to think of it and wanted to put it behind me. With that said, I know a lot of ppl need help and encouragement, so I will make another one for sure. I’ll leave it with this until then- I pretty much have recovered in very aspect, balance, headaches, my eye problems, with time and exercises, so it is possible to get back to normal life

[@calaratliff5573]

Sean how are you doing today? It has been 8 months for me and I would like to know how you are feeling today!

[@janiceince6221]

Sean when are you going to do another video...

[@seanpangs7131]

You’re right.. I should make another one soon. I’ve been doing even better since last video. Hopefully in the next couple weeks I can make one :)

[@laurenbaldwin6068]

@@seanpangs7131 hi Sean just watched your video i have VM as well, what should i do for this im fed up iv got really bad depersonalization with it constantly, if medication doesn't work will the depersonalization definitely go away? Iv felt like ending my life im sooo fed up don't feel pressent or anything it would be great to hear back from you

[@VernonRhem]

I am convincec thatblong covidvid is the fault for a lot of the vestibular problem 5:08

[@Deisye0]

Agreed.

[@pct2025]

I’ve had ear issues from the jab and from Covid. Some are more susceptible it seems. I was fine beforehand, but I have always had tinnitus.

[@MikeyMichaelton]

I've seen a specialist for balance problems recently. He says there are a lot of people who are having balance problems after being sick with COVID. Myself is included with that

[@huprune1889]

Hello, thanks for your video, I have it for more than 2 months now :( did you find something for muscle twitch?, I have around one eye and one of my knee. I lost a bit of sight and hearing all the same side. Nothing on MRI. Also working with patients like you, and sorry for my poor English. Thanks in advance

[@seanpangs7131]

Hi sorry! I did not have nerve muscle twitch

[@huprune1889]

Thanks for your reply. Is getting better. And thanks for the exercices!

[@harjboparai1340]

Make vrt video please

[@seanpangs7131]

harj boparai please check out my other video but I will make an updated one

[@susanthuwaini3139]

How long did it take for your rocking and swaying to go away? Mine was gone for like five months and then it came back did you have those ups and downs with the rocking and swaying? Tia

[@seanpangs7131]

Susan Thuwaini hey I think it took maybe 9 or 10 months but when it went away it never came back. I just practiced a lot of balancing on a balance pad but with my eyes closed

[@Filipinas2021]

Hi. Based on your experience do you think we are still fit to undergo military training even having vestibular neuritis?

[@seanpangs7131]

Hard to say, honestly I can’t answer that for you.. depends where you are in the journey and how bad conditions are. 1st year foe me, probably not. 2nd year probably.. probably be good to be active

[@briangonzalez5360]

Does anyone have issues like this that get worse when laying down and trying to sleep? I starting waking up feeling vertigo but it’s not BPPV. It just makes it get worse laying down

[@seanpangs7131]

Brian Gonzalez sorry man I never experienced that. Maybe the first week but I don’t recall it much

[@briangonzalez5360]

Sean Pangs thanks man. It’s more of a head pressure feeling in the back of my head. Everything else is getting better but this has brought me back some. Thanks for the new update bro I am super happy you’re going good.

[@seanpangs7131]

Brian Gonzalez yeah every now and then I get a head pressure too. Haha I can’t explain a reasoning and I’ve tried to explain it to my doctor but no luck. Hope you continue to get better too

[@havenneva5045]

Definitely. I've been having that sensation for the last 10 months ever since this started. When I lay down and close my eyes to sleep, I feel like I'm floating off or losing my centre of gravity or rotating. But now it seems to be happening less and less (the sensation). I sleep with two pillows and it seems to help. However, I must add that I've gotten much better. I can walk comfortably, exercise without feeling bouncy, sit down without feeling that swaying sensation. Daily VRT, diet changes, meditation, SSRI, neuroplasticity, journal on things that make me happy (daily), has helped me so much on this journey. (If you are wondering where I was at physically before I started doing all of these, I couldn't even climb the stairs without holding on to something).

[@laurenbaldwin6068]

@@havenneva5045 hey did u recover could u help me please

[@laurenbaldwin6068]

I have VN and VM what should i do for this please Sean? I have depersonalization and deralization constant 24/7 and have for the last 3months it's that bad that i do feel like taking my own life, I have no clue what to do for any of this condition me doctor is no help at all and does the depersonalization and deralization always go away or is the no gaurentee for it? Did yours fully go away also how did you get it to go away if it did

[@seanpangs7131]

Hi Lauren, please seek help and talk to someone in your local area if you’re feeling suicidal. The purpose of my video is to show ppl it’s possible to get better. It may not happen overnight, but it’s possible. Don’t let this defeat you. My derealization went away, but it took a few months. Time, patience, being healthy, breathing exercises. Maybe seek advice from medical professionals to help with the anxiety matter first

[@laurenbaldwin6068]

@@seanpangs7131 did your depersonalization and deralization fully go away

[@laurenbaldwin6068]

Hi just come across this iv got VM and iv got depersonalization with it im so disconnected from myself and the world around me how do you combat this? And if no medication works for the vestibular migraine does the depersonalization always go away? And will it just dissappear?

[@seanpangs7131]

Hi there.. I did experience that too. Mine went away over time, no meds for that. They say depersonalizations is related to anxiety/panic attacks. Perhaps try remedying that aspect if it’d there?

[@laurenbaldwin6068]

@@seanpangs7131 oh right i see so for vestibular disorders when it causes the depersonalization does it always go away? Just im absolutely giving up because all i want is the depersonalization to go away so i can feel connected to my body and reality again, just want my life back does it go away completely im glad you've replied 😊

[@laurenbaldwin6068]

@@seanpangs7131 so we're you giving anything for the vestibular migraine problem or not? And does the depersonalization always go away regardless of the migraine problem going away just im soo worried for this not going away it's unbelievable 😢 how long did it take for the depersonalization to go away for you? Was it like all of a sudden one day it went or did it gradually go where you gradually started to feel normal again like you did before depersonalization and do you go feeling fully back to normal

[@laurenbaldwin6068]

@@seanpangs7131 Sean is there a gaurentee that the depersonalization is going to go away it's really affecting me daily

[@seanpangs7131]

@@laurenbaldwin6068 I can’t guarantee anything, Im just letting you know that mine went away and that it’s possible. Calm the anxiety, eat and be healthy and keep up exercises if you’re already doing them

[@noveltyproducts129]

thats the thing i just feel so doubtful that these exercises are doing anything and that the doctors really have no idea WTF they are talking about

[@seanpangs7131]

The exercises helped me... but it’s not going to get fixed in a month. It takes time, but stick to it

[@beautyboutiquexox]

Did you ever take meclizine or any medications to help with recovery?

[@streetdaily958]

Meclizine does not work for me in my opinion I had try then I stop

[@starrywisdom]

I've been using meclizine for years now and I have found it effective against vertigo. Dramamine 2 is meclizine, which is nice to know since it is available in most stores.

[@laurenbaldwin6068]

@@streetdaily958 hey did u recover

[@laurenbaldwin6068]

@@starrywisdom hey did u recover