Vestibular Neuritis Full Recovery (2 year update)!

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Lindsey “Moonshine”

Lindsey “Moonshine”

Күн бұрын

2 year anniversary update on my life after Vestibular Neuritis. Spoil alert: I'm STILL fully recovered and doing really well.
What do I do to recover?
I made getting better my job. Heres an abbreviated list of all of the things I did the first 6 months that got me well enough to return to my job and active lifestyle:
Daily:
VRT- (every exercise on the web, I did)
EXERCISE-walks, gym, eventually running and biking
EXPOSURE- go to a store, a festival, busy places,
REST- get at least 8 to 9 hours of sleep each night. Nap when needed.
SUPPLEMENTS- magnesium, vitamins c and b, fish oil, zink.
MEDICATION- lexapro 10mg to help calm the panic, anxiety, and depression
Weekly:
TREATMENTS- acupuncture, chiropractor, talk therapy, physical balance therapy
EXPERIMENT- find things that made me feel off and incorporate them into my life in small doses until I felt normal doing them.
SOCIALIZE- find time to be normal and enjoy a meal with friends and family
PRACTICE KINDNESS TO MYSELF. Sometimes I needed to just cry and I let myself do that.
I lived with family and friends while I was sick. At the 5 month mark I returned to work with minor daily symptoms that were manageable. By 1 year I hardly noticed any symptoms at all. The final symptom to go was the visual disturbances.
Year 2- what a great year!

Пікірлер: 399
@nicplanet7764
@nicplanet7764 2 ай бұрын
Can we have another update please?! How are you doing now? Hope you are absolutely thriving. Thank you for giving so much hope x
@chaarmea1637
@chaarmea1637 2 жыл бұрын
I always come back on this video whenever I feel down. I watched you couple of times since last year of July after I was diagnosed with VN. Fighting on this illness for 1 yr and 3 months now. Im not 100% ok but a lot better compare for the last months. You serve as my inspiration ❤
@lindsey8081
@lindsey8081 Жыл бұрын
so glad to hear that. It can continue to get better and better, sometimes slowly, until one day you realize you haven't had to endure any of the shitty symptoms for months.
@nataliakowalska1988
@nataliakowalska1988 5 ай бұрын
Me too! ❤It always give me power to Keep going
@SheilaBR
@SheilaBR 5 ай бұрын
@chaarmea1637 How are you now?
@MikeyMichaelton
@MikeyMichaelton Ай бұрын
Thank you for posting this. Im having some dark days with this illness and you've given me hope. Hope you're still doing well.
@beestar504
@beestar504 7 ай бұрын
Update: Its been a little over 2 years for me after I first experienced VN, and I can actually say that I'm offically at 100%. No symptoms at all. It showed me personally that Lindsey is right; it really is possible to recover. I want to thank GOD, and thank you Lindsey for helping me conquer the most hellish period of my life.
@uzmanausheen5475
@uzmanausheen5475 6 ай бұрын
Hi.. i had 2 episodes of vn in the past 6 months and although i dont have acute symptoms i still m struggling with visual issues and rocking feeling.. when were u out of symptoms completely and what all did u do
@beestar504
@beestar504 6 ай бұрын
​@uzmanausheen5475 hi, im really sorry that youre dealing with those issues. Ive made a couple of previous posts that detailed what I did and the different stages i was in at different times. IIRC, it was around month 9 until I could personally say I was (mostly) fully recovered. In short, what I did included the following: -LOTS of sleep -LOTS of sunlight (Vitamin D/infrared) -fasting and intermittent fasting -Eating salmon/fish oil supplements -"Wahl's Protocol" diet (diet for MS patients [i dont have MS btw] involving eating LOTS of plants) -VRT (tried to do it throughout the day too) -HIIT/playing sports -Dancing/capoeira (movement challenges like yoga/tai chi/capoeira are basically the ultimate form of advanced vrt therapy from my experience) -lots of walks in the park -gradual (re-)exposure to tough activities, like highway driving -sauna (promotes healing properties) -GOD/prayer + loved-ones + church support (helped the worst of anxiety problems, which is a big factor in long-term VN persistence) -believing that I could get better/support from stories like Lindsey's Things that did NOT help in my personal long-term recovery from VN: -medicine (it [arguably] helped with short-/medium-term symptoms for me though) Btw, the youtube channel called "The Steady Coach" also had very good videos with helpful tips that aided me. I hope you continue to get better
@uzmanausheen5475
@uzmanausheen5475 6 ай бұрын
@@beestar504thank u fa sharing it means so much .. my story is a bit more complicated.. while i was recovering from vn i started taking antidepressants which then caused a whole bunch of new symptoms.. so i withdrew in 6 weeks.. but since after that i am dealing with withdrawal symptoms which are very much like vn symptoms and its so disheartening to b back to square one
@beestar504
@beestar504 6 ай бұрын
​@uzmanausheen5475 wow, that's terrible. I hate that you had to deal with those new symptoms. I dont know if this is helpful, but I had a point where I was advised by one of my doctors to take anti-anxiety meds for 6 weeks. At best it temporarily dampened the VN symptoms, and when my meds ran out, I had withdrawal via a significant spike in blood pressure (30+ points) for half an hour in the middle of the night. That scared me and had me worried about long-term damage or med dependency. After that I focused on natural methods and foods for my lifestyle and my body normalized and acclimated not having the meds. I hope you will be able to recover from your med side effects as well.
@genarosiles2951
@genarosiles2951 6 ай бұрын
hey what did you do to recover?
@tamchats21
@tamchats21 11 ай бұрын
This is very helpful, I went to a few specialists an ENT and a Neurologist the vestibular neuritis was honestly never addressed properly by either one. I'm two years in and thanks to great information on KZbin channels I found out exactly what was wrong. Thankfully, I've had a great improvement in the last 6 months. I feel almost normal at least 95% of the time. Understanding what happened to me and so many others has been everything towards getting better,😊
@lianagilbert61
@lianagilbert61 6 ай бұрын
Exactly what was wrong?
@SheilaBR
@SheilaBR 5 ай бұрын
Hi Tam, can I have your email address to briefly speak to you?
@annabelleedge2728
@annabelleedge2728 3 ай бұрын
As someone who is struggling daily with vestibular nerve damage. I really needed to hear this. Thank you.
@ismenezelaya1978
@ismenezelaya1978 14 күн бұрын
Hi, I'm from Costa Rica. I would like to thank you for sharing. Your video gave the strength I needed to know I'll recover. It's been 2 months now, but in the first month, I had all of the symptoms you mentioned. I started with short episodes of vertigo once or three times a month since november 2023 until July 2024. I visited an ENT doctor who couldn't find what was goimg on. Previous to the first vertigo, I had had a bad sinus and throat infection in september 2023. But after the last short vertigo, everything got worse. On July 25 2024, I started felling dizzy, and after a while, I started with vertigo again. I was taken to ER 4 times, and doctors couldn't find anything wrong in my ears. But they continued prescribing me Gravol to stop the dizziness and tried to keep me hydrated. I didn't improve for 2 weeks where I lost 20 pounds from puking due to the vertigo and dizziness. I decided to go to a neurologist and he came out with the diagnosis: VN. But the medication by itself didn't make me feel better. Then, I went to a clinic that specializes in vertigo and dizziness. This ENT doctor who did lots of tests including the VHIT provided me with vestibular therapy and Betaserc (Betahistina). Finally, after a month, I have improved and I have also gained 10 pounds. Eventhough, I just have the unbalance I can walk by myself. Now, I'm sure, I'm not the only one. And I hope I'll improve even more after I heard your videos.
@kasiapattek7142
@kasiapattek7142 4 жыл бұрын
Thanks Lindsay for your update! I’m three months in with my vestibular neuritis and very optimistic after watching your videos!
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@SheilaBR
@SheilaBR 5 ай бұрын
How are you now? Please let me know.
@annedeul4980
@annedeul4980 Жыл бұрын
Thank you for this. I am two months in and this video makes me more hopeful and less lonely.
@cristhiandiaz1149
@cristhiandiaz1149 5 ай бұрын
Hi , how are you feel now .
@Bob31415
@Bob31415 28 күн бұрын
Thank you for the encouragement.
@pamsy8131
@pamsy8131 Жыл бұрын
Hi Lindsey. Thanks for the video. I’ve just been diagnosed with vestibular neuritis. And I’ve been dealing with this since early March. It’s the most awful feeling in the world! I’ve been doing my own rehab since it takes forever to see a doctor sometimes. I originally thought I had BPPV. Did a lot of Epley and half somersault maneuvers and still had vertigo. My head felt so heavy! I felt like it was as heavy as a watermelon. So I figured it’s probably cervicogenic in origin. I ended up going to a chiropractor and my gosh, the watermelon head feeling went away. I kept doing my vestibular exercises and was able to do aerobics without getting too dizzy. My symptoms were improving but I was hoping that it would all be gone. I finally saw my doctor and they did the ear test and diagnosed me with vestibular neuritis. So now I’m doing the VRO and the balance exercises and close to 90%. But then there were days when I was more dizzy. I was getting a little anxious that I would never be back to normal! Watching your video made me realize that I just had to be patient with myself and just take it one day at a time.
@SEthroughoureyes
@SEthroughoureyes 2 ай бұрын
This video was so encouraging! Thank you! I was just diagnosed with this and it’s really scary but your videos have brought me hope.
@marcomoscoso7402
@marcomoscoso7402 Жыл бұрын
I´m on my third year of recovery from the initial VN. Watching your videos makes me cry of a mix of happiness and nostalgia. For anyone else who reads this comment, it gets better no matter what. In my case it lasted an extra year because I had a weird reaction with the covid vaccine (I got covid later and it did nothing to my symptoms). *Just an additional but very important detail. Besides a lot of physical excercise, vestibular therapy, good nutrition, lot´s of support and faith: DO NOT take any amount alcohol as a way of dealing with this. I know it may sound stupidly obvious but after the depression and frustration I went through, made me find that alcohol did actually calm my worse anxiety and vestibular symptoms, but it´s actually one of the worst things you can do to you, specially with an active VN recovery, it WILL make things way worse in the long run. It won´t kill you, but will complicate the recovery process enormously.
@irismelo7712
@irismelo7712 Жыл бұрын
I also got this after getting the vaccine its been 18 still have symptoms daily some days better than other its been depressing
@dogdonut3
@dogdonut3 Жыл бұрын
This is really the nicest thing. Thank you for making these vudeos. You're so right, people who get better tend not to make videos, so yours are a ray of light. I'm a newbie, only a week in. But I have the "advantage" of having fibromyalgia for 20 years, so the rocky journey I get...also the taking it slower sometimes, being kind to yourself, etc. Just nice to hear someone's positive recovery story. Especially important considering most internet info says we'll get better in maybe a week, possibly a month! That makes people feel crazy if they have lingering symptoms! Man, for a "rare" thing, there sure are a lot of people that are out there dealing with this. Kudos to us as we make our way!
@nathandawson7558
@nathandawson7558 4 жыл бұрын
Thank you very much. I’m a cop and was diagnosed with VN. I am at 10 months in with little symptoms throughout the days like visual, lighting, etc. I hope one day it gets even better with hardly any lingering symptoms. But tonight had been rough and seeing this has helped.
@nituyadav4678
@nituyadav4678 3 жыл бұрын
Hii.... How are you feeling now
@beestar504
@beestar504 2 жыл бұрын
I've commented on here a few months ago, but I wanted to come back and thank you, Lindsey. I'm about 8 months in, and I can honestly say that I feel close enough to 100% to say that I'm probably fully recovered. I'd say I'm like 99.5% or something like that on most days, except on the days i have like 2 hours sleep, where then I feel 96%, still relatively light symptoms. On most normal days, if I do feel symptoms, they are for the most part so mild, that I can't even really tell if it's just normal stuff that I just happened to notice more now bc I've experienced what it was like having an overactive sympathetic system from dealing with VN. But I honestly go for days at this point without even thinking about VN at all. Felt like this for around a month or so. I can essentially do everything I did before I got sick (I'm pretty active with sports and martial arts) mostly without issue too. My personal quick bullet points of what helped me most was: 1."Chasing the symptoms" (VRT, balance exercises, and other things Lindsay mentioned), 2. Exercise (HIIT, dancing/capoeira class, and basketball helped me most), 3. Diet (I followed the "Wahl's Protocol Diet", which helped me alot. It's designed for MS, which I don't have, but it's principles on nutrition was extremely beneficial for my recovery, as it specializes in nerve and nerve myelin repair. Also fish oil too. Talk to your doctor about magnesium as well.) 4. Intermittent fasting and lots of good sleep (sleep and fasting are the only real times where your body can actually heal and repair itself), 5. Family, friends, and church (really helped me calm the worst of my anxiety, alongside Lindsey's story). Dunno if it's the same for everyone, but my experience with VN involved two intertwining stages: where most symptoms are caused by Vestibular nerve damage and subsequently, where most symptoms are caused by overactive sympathetic nervous system. From my personal research, a good nutritious diet and fasting are the current best ways to repair nerves, though doctors are still researching this (keep in mind that, according to what I've seen/read from doctors research atm, nerves heal slow and take months or even over a year to heal, and sometimes don't completely heal. Also, the studies I read did NOT focus on vestibular nerves). After a check-in with my Primary Care doctor around month 5 or so, at the end of it, she said at that she believed at that point my VN was 'gone' (which I guess meant my vestibular nerve healed), and that my dizziness symptoms at that point (similar to Lindsey's at her month 7 or so) were from anxiety (which we both agreed was likely from hyperactive sympathetic nervous system, aka your 'fight or flight' system). Taking steps to calm my sympathetic nervous system/anxiety (diet, exercise, and sleep) got me from that point to where I am now currently. I hate perscription medicine, but I did take an anti-anxiety medication (doctor recommendation) for two weeks at month 4. I can say that it did not help me very much at all to getting to long term recovery, though it did help me feel "normal-ish" for those two weeks by numbing alot of the symptoms temporarily. I did have withdrawl symptoms (spike in blood pressure for 30 min to an hour), but thankfully it seems nothing long-lasting. I should also mention that I subsequently visited another GP doctor, who was horrified that my doctor before even recommended anti-anxiety medication (i guess SSRIs are comparitively lighter? Even then, I still dont want to take any more medication, and rather use diet, exercise, and social activity to calm anxiety, which helped immensely, though it took longer).
@beestar504
@beestar504 2 жыл бұрын
I can't thank you enough, Lindsay. You are truly an angel. Your messages of hope and also watching Mark H's recovery (his journey into calisthenics inspired me, since I had similar goals) really helped me in my darkest times. Your messages were truly a blessing for myself, and I'm extremely thankful.
@moonshinehikes3107
@moonshinehikes3107 2 жыл бұрын
Thank you for sharing your story!!! Hopefully others in the super hard stage of it all will read your comment and be encouraged. glad you are where you are now. I really should post an update to let people know I'm STILL good 5 years later.
@beestar504
@beestar504 2 жыл бұрын
@@moonshinehikes3107 Couldn't hurt!!
@beestar504
@beestar504 2 жыл бұрын
@@moonshinehikes3107 BTW, I'm sorry, I forgot to congratulate you for 5 years of successful recovery! That is a massive accomplishment!!
@ytubeact123
@ytubeact123 2 жыл бұрын
@@beestar504 Was your dizziness sort of almost a 24/7 constant thing that kept getting milder over the months? I have had a persistent lightheadedness along with nausea (that comes and goes) for 4 months now. I never had any balance issues. My neurologist diagnosed me with VN. Even though my continuous lightheadedness improved a lot over the months but it is still there. Although mild, the fact that it is constant makes it very hard.
@wendyvlasman3000
@wendyvlasman3000 9 ай бұрын
Thank you so much. I am on a one year journey of very similar symptoms. Mine started with BPPV vertigo - violent attacks - crystals. I have learned to do the Epley maneuver and can clear the vertigo episodes within 15 minutes. Then new progressive glasses caused me major adjustments issues. Then my symptoms turned into light and glare and noise triggers. I experienced out of body vision experiences, walking wasn’t stable at times, I was very anxious in the beginning. I had major visual vertigo attack while driving and could not turn off the highway which was horrifying so I stopped driving long distances. A year later I am noticing mostly visual vertigo, brain fog, and pressure in my head. I have continued my workouts at the gym and I play lots of PICKLEBALL. Sometimes I have to fight through as my vision goes blurry and I loose my balance. But I have to say things do seem to be calming down lately mostly because I am not afraid and have tools to manage better plus I am doing VRT. My husband is my support, he massages my back and neck which is often quite tight. He is with me all the time when outside of the house, to provide me with security as we are both retired and enjoy being active. I have not had any testing yet, but have seen 3 doctors (family doctor, an ophthalmologists, an eye doctor, who specializes in concussion related therapy). All 3 have said it sounds like I have Vestibular Migraines (VM). I appreciate your positive attitude and will probably watch your video a lot as a boost of positive energy and hope. Best of luck to you. FYI: We have RV’d to Alaska went as far west as Homer and have RV’d coast to coast through Canada and down through the US to Florida several times as far south as Key West. Would love to know more about your job if you have time one day. Wendy Vlasman
@LostnFound1026
@LostnFound1026 10 ай бұрын
Was just diagnosed with this... Thanks for sharing and giving me hope things will get better. Hopefully i don't miss too much work. Thats all I'm worried about is paying bills. Thanks again
@memefree3101
@memefree3101 7 ай бұрын
This just motivated me to get up and do my daily exercise. Have to keep moving
@JoannaTremlett
@JoannaTremlett Ай бұрын
I'm on 6 months .ENT can't see me until Feb 2025. I also was diagnosed with a brain tumour and herniated cervical discs at the same time so it was hard for me to know what was coming from where but been told its definitely not from tumour and definitely not from neck so this has got to be this . I feel absolutely the same symptom as you and my god the anxiety. I go for very long walks, I do all the exercises and keep on pushing . Absolutely correct.. do not believe the bad stories ..I have slightly started to feel better in the last week especially since I've come off of diazepam. I hope my doctor will be able to push ENT for a quicker appointment. This video really really helped cheer me u0 today . ❤
@greenmeatslife1348
@greenmeatslife1348 4 жыл бұрын
Oh I am so thankful for your video and your story... I am on my 5th day being dizzy, nonstop. The only thing helps me is to be in bed. Searching for answers, only to find mixed messages, people wanting to get my money... then here are you giving me hope!
@lindsey8081
@lindsey8081 4 жыл бұрын
I hope you can get the answers you need to start the healing process!!!! it can be a scary road, but there is hope.
@pigjones2724
@pigjones2724 Жыл бұрын
Only thing helps me is laying down , do you feel better now
@rikilebied7159
@rikilebied7159 2 жыл бұрын
Thank you for sharing your story! I’m 3 months in and while I’m focusing on positive healing and full recovery, this illness gives you so many doubts. I appreciate you sharing this for all of us suffering and I hope to recover like you!!
@murugaanand618
@murugaanand618 2 жыл бұрын
Bro.. How exactly u feel right now..
@SharonHen
@SharonHen 4 жыл бұрын
Love this!!! Thank you so much for putting this out into the world!!!
@jakep389
@jakep389 3 жыл бұрын
Jake from Texas Thank you for sharing your wonderful message I was diagnosed with vestibular neuritis four months ago but I feel I am improving in the last month or so I’m going on six months but the symptoms seem to improve as time goes by I meditate exercise eat right and take it one day at a time I think that’s the key. But you’re right it sucks having the disease.
@richardcrane7169
@richardcrane7169 2 жыл бұрын
Jake how are you now?
@jakep389
@jakep389 2 жыл бұрын
@@richardcrane7169 hello. I’m doing well. I still have tinnitus in both my ears but lot calmer than before. Vertigo is gone. I feel great .
@justynalicentia5179
@justynalicentia5179 3 жыл бұрын
Lindsay - you are amazing and so inspiring! I’m 5 weeks in - intense VRT and exposing myself to the triggers. I was lucky to find out and start the therapy early. Recently I noticed there’s so much pressure on my eyes and I can’t see as clearly as before (and that’s a new symptom) and because of you I realised that this is my brain compensating I’m actually getting better.. THANK YOU.
@saintlywig5123
@saintlywig5123 3 жыл бұрын
give updayes as u improve pls
@justynalicentia5179
@justynalicentia5179 3 жыл бұрын
@@saintlywig5123 it’s a slow process but I’m improving. On week 6 I noticed not so much brain fog, energy levels are better too. The dizziness is getting better aswell.
@jillradovanovic3460
@jillradovanovic3460 Жыл бұрын
Hi Lindsay Thank you for your recovery story...lm going through it now. Your right the anxiety is so bad so makes recovery hard...l can relate to your story.
@harjboparai1340
@harjboparai1340 4 жыл бұрын
I have no words how I can say thank you so much for positive video feel good to hear about you love you
@ashlee7619
@ashlee7619 4 жыл бұрын
Thank you. I was diagnosed yesterday with vestibular neuritis. Praying I recover as well as you. I caught it quick though. Diagnosis was after two days of symptoms. Super scared but ready to conquer this.
@lindsey8081
@lindsey8081 4 жыл бұрын
so lucky to have such an early diagnosis! you can start healing right away!!
@Monicafligh
@Monicafligh 4 жыл бұрын
Did you recorved
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@MS-yt5lk
@MS-yt5lk Жыл бұрын
Thank you for sharing your story. I am going through this. It’s almost two months now. First month was really bad. All kind of negative thoughts. Finally I am in a positive mindset. Trying to stay active.I work from home and have to sit all day working on the computer. Whenever I get chance I stand up and walk around the house. I know one day it will get better. Your story give hope for the people like us. Thank you again
@nithyanithya9374
@nithyanithya9374 5 ай бұрын
Have u recovered
@MS-yt5lk
@MS-yt5lk 5 ай бұрын
Yes I was recovered in about 8 months.. Thank you
@almavlaminck
@almavlaminck 2 жыл бұрын
Thank you for explaining this so good, it makes me feel very accompanied, and it helps me make my partner understand how I feel. thank you very much
@rebeccagrimshaw9982
@rebeccagrimshaw9982 2 жыл бұрын
I know this was made 2 years ago, but thank you so much. I hope you are still doing well. ❤️ I am about 7 months in and just finding out that this is what I've been dealing with. I wouldn't wish it on my worst enemy. I can't even pick up my 10 month old baby girl. I was wondering if life was worth living. People who have never dealt with this cannot possibly understand.
@brittanyhakes7889
@brittanyhakes7889 Жыл бұрын
I feel the same way and am new to this 😞 I can’t even be a mom to my kids right now and have days I just don’t know what to even do it’s so overwhelming. Are you still experiencing this?
@susantrice8895
@susantrice8895 4 жыл бұрын
Cannot thank you enough. Wish I had seen this a year ago. Afraid to ride my bike but now I will try. I can swim, walk, jog,and dance. It has been just over a year. I still have off days but the VRT really worked. What a scary thing. I will check out your other videos and THANK YOU, I thought I would never get better. Now I have hope.
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@sonagermchy
@sonagermchy 4 жыл бұрын
Im gonna listen to u literally everyday to get through this
@lindsey8081
@lindsey8081 4 жыл бұрын
so glad I can help! I have a few other videos up, too, so you don't have to listen to the same one over and over. haha. Good luck! chin up!
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@Leavingthisworld
@Leavingthisworld 2 ай бұрын
So glad I found your channel! Thanks for your complete explanation and provide a hope.❤
@Bee-mi8ml
@Bee-mi8ml 9 ай бұрын
Thanks for being so real! I wish I saw this three years ago. Thank you.
@juliemoore6957
@juliemoore6957 10 ай бұрын
You give me hope. I've been experiencing your symptoms for a week. Plan to call my migraine doctor on Monday. So glad you had a good outcome.
@ineslakhani820
@ineslakhani820 4 жыл бұрын
Thank you so much for sharing.I am on my 3rd months and sometimes i loose hope that i will get better.Feeling better after i found your channel and watched your videos.
@lindsey8081
@lindsey8081 4 жыл бұрын
It's easy to get down. Chin up, hun.
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@hammadnazir9155
@hammadnazir9155 5 ай бұрын
Thank you SO SO SO SO Much for positive hope. ❤️...i am suffering from the symptoms
@piminjack
@piminjack Жыл бұрын
Omg!!! I’m dealing with vn right now , you hit home when you mention the driving on the right shoulder , cause that’s exactly what I do , I just feel so uneasy in the middle lane , like I might get real dizzy and crash !!!
@rebiaahmed154
@rebiaahmed154 3 жыл бұрын
Thank you so much! I'm suffering from vertigo its been over than a year now, yesterday I went to a dizziness clinic and saw a vestibular therapist for the first time ,she diagnosed me from vestibular neutritis , she gived me some exercices to do im starting today, I hope I complete get rid of my vertigo one day! It's really difficult I have a 3 and 7 years old .thank you so much your video gives me hope!
@UniqueSoundsEnt_
@UniqueSoundsEnt_ 8 ай бұрын
Thank you for sharing! Needed to hear this today! Been like 3 months, doing better, but still wobbly. 🙂
@uzmanausheen5475
@uzmanausheen5475 6 ай бұрын
How r u now
@blazehucane3225
@blazehucane3225 3 жыл бұрын
Lindsey please post more videos about your well-being. You bring so much hope, solace and somehow just listening to you alleviates my anxiety, helplessness and discomfort. Please post more videos about how you are doing. I see myself and my symptoms almost exactly like yourself but you are so positive about everything, it brings so much hope and promise.
@lindsey8081
@lindsey8081 2 жыл бұрын
How are you doing now, Blaze? Hopefully almost back to feeling normal? So sorry for the delay in response- I was out busy living life! I am doing so well. I hiked the Continental Divide Trail last summer! 2500 miles of hiking from Mexico to Canada! Needless to say, I wasn't very connected to my youtube page.
@Mano0f
@Mano0f Жыл бұрын
Thank you so much for the video, what about the head pressure feeling, that floaty stuffy feeling, did you ever have that and around which month did it start to fade away? Please help and thanks
@beestar504
@beestar504 7 ай бұрын
The floaty feeling, at least from my own experience and research, is called 'depersonalization'. It is a product of extremely high anxiety. If yours was like mine, if you lower your overall anxiety (sleep, plant-heavy+organic meat diet, intermittent fasting, spiritual support/family support/therapy, VRT, lots of exercise, progressively adding life activities back), it will likely improve drastically or maybe even progressively be gone in months time.
@JenniferPrescott
@JenniferPrescott 4 жыл бұрын
PS I could not be more grateful for having found this. Your experience sounds so much like mine. I’ve been searching for an answer for 7 weeks. Almost 8 weeks now. I’m not so scared now.
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@JenniferPrescott
@JenniferPrescott 3 жыл бұрын
@@saintlywig5123 Struggling. The doctors told me it wasn't VN (after running a bunch of tests). One doctor thinks it's post-COVID long haul syndrome. It got better for a while but I have some very bad days where I'm super dizzy and disoriented!
@shannonkiehn954
@shannonkiehn954 3 жыл бұрын
Thank you for this!! I am almost 6 months into it and definitely getting better over time. I have about 3 good days and then one bad day. Mostly it's the feeling like I'm moving or on a boat when I'm not, or walking on sponges. But I have also changed my diet which I think had helped tremendously. I have cut out dairy, sugar and gluten. Also, realize that anxiety makes it so much worse so I try to calm myself down when feeling anxious. I appreciate this video very much, thank you!!
@shonariesholin2480
@shonariesholin2480 2 жыл бұрын
How are you doing now?
@lindsey8081
@lindsey8081 2 жыл бұрын
Hopefully you are feeling next to 100% by now! Happy to have been a help in the dark days.
@pigjones2724
@pigjones2724 Жыл бұрын
How long did the boat feeling last it’s been almost 5 months for me
@larissamclean804
@larissamclean804 4 жыл бұрын
I cannot tell you how happy I am to have found your videos. I have been dealing with vestibular neuritis for over 5 months now. There are so many symptoms and all so very scary! Today I diagnosed myself with MS. The neck pain, blurred vision and the worse are the internal vibrations. But after watching your videos it made me realize this is all part of the process. I’ll keep plugging along, doing the therapy and trying to get more active. Thank you so much for keeping us updated. I’m feeling more optimistic now. You are an inspiration!!
@lindsey8081
@lindsey8081 4 жыл бұрын
o good! reminds me of me! haha. I remember being at the gym about 3 months into VN. I was on a stationary bike to get some exercise that didn't make me feel dizzy to help with the anxiety- but while I was biking I was reading all about MS, was sure I had that, too, and that my MRI had missed it and the ENT didn't know what he was talking about and I was going to die. The healing process has a lot of ups and downs. Keep on keeping on!
@ashleypratten2524
@ashleypratten2524 3 жыл бұрын
Larissa - how long did it take for your internal vibrations to go away? Dealing with them on month three and they are horrible.
@solutionxero
@solutionxero Жыл бұрын
lets gooooo. wish me luck. thank u for the motivation
@darknesslight3593
@darknesslight3593 2 ай бұрын
Hi,Linsay, I'm glad you recover this well. Besides your rehab exercises practices you take, may I ask if you have been taking any supplements daily to help with it?
@LeFFFFFUUUU
@LeFFFFFUUUU 10 ай бұрын
Yes you get your life back!
@courtneyb5402
@courtneyb5402 4 жыл бұрын
Hey Lindsay - I'm on month 14 of recovery...total of 10 months in PT (took awhile to get diagnosed of course:). I watch your video's a lot as a reminder that I can get better. Do you remember when you started to not think about your symptoms? I have had such a great recovery but of course still have some ups and downs...like... maybe my eyes wont focus as well for a week or I feel a little light headed. Going from completely unable to take care of myself and my toddler son to the symptoms I have now is amazing. Its hard to be my own cheerleader and constantly stay positive, but I just keep trying:) Things do get better. I am still hoping for a full recovery as my PT reminds me "the brain is plastic" and "it just takes time". Thanks for your video's they really help.
@lindsey8081
@lindsey8081 4 жыл бұрын
Your PT sounds like a good one! So glad for your progress. The thing is, sometimes we are allowed to be annoyed and feel frustrated, I don't think we always have to be positive every step of the way. But, you have to even in your down moments be able to tell yourself the truth- and the truth is that you have already improved in ways you would not have felt possible and you WILL continue to improve in ways that you don't feel are possible right now! I think I stopped thinking about my symptoms on a regular basis somewhere around a year and a half? Then there would be a day or so every few weeks where there would be this slight awareness to feeling a little odd, but it was like background noise- easy to ignore. I don't know when it happened, it was so gradual. It'll be 3 years come December and I can say now that I feel completely like myself and how I felt before VN.
@courtneyb5402
@courtneyb5402 4 жыл бұрын
​@@lindsey8081 Thank you so much for the reply. It is perfect. If you know nothing else in this life, please know how important these video's have been to me. Sarah.
@kelliburnett403
@kelliburnett403 3 жыл бұрын
I am exactly in the same boat as you! I’ve been doing VRT for about 10 months now and have had the issue for a total of 19 months. It took a long time to diagnose me and I have damage to my nerve. I’m so much better too! It was so bad I couldn’t move off the couch and would cry and have panic attacks. Now, I can do anything! I still have off days but some days I barely notice it! I still do my exercises once a day and stay as active as I can. I avoid being lazy or sleeping too little/too much. Some days I worry I’ll never be 100% but then I remember how far I’ve come! I believe I will get there! My lingering symptoms are sometimes I still get a feeling of lightheadedness, my eyes feel tired, my vision gets blurry and unsteady, my heart rate and Bp are still higher than before this happened (even though I started an antidepressant- but my anxiety is much better overall). I don’t really have the constant swaying/dizziness I had before, but sometimes do feel off and a bit wobbly. I’m glad I’m not alone in this! It sounds like we are about in the same place. Keep your head up! :)
@kelliburnett403
@kelliburnett403 3 жыл бұрын
Oh I forgot I am also really sensitive to fluorescent and bright lights. It makes me feel off when I stare at my computer too long for work in the office with the fluorescent lights. Blue light glasses help some though! I hope that goes away too.
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@maritzamarroquin4131
@maritzamarroquin4131 Жыл бұрын
Lindsay, this makes me feel so much better. Thank you for making these positive videos ❤
@cynthiac4756
@cynthiac4756 4 жыл бұрын
Thank you so much for being part of the light at the end of the tunnel. Great to hear you are back to normal,.
@destinytravis7242
@destinytravis7242 Жыл бұрын
I have not been diagnosed but i have been watching for months and your symptoms are just like mine. You give me hope ❤
@lyndseymilligan1612
@lyndseymilligan1612 4 жыл бұрын
Love this!! Thank you- so glad you have recovered from this horrendous illness
@sudo_rideurbike2792
@sudo_rideurbike2792 Жыл бұрын
Thank you for doing these videos, You are 100% right that the internet amplifies the minority of people who are struggling and it makes it really scary. In the middle of month 3 of dealing with very similar symptoms and started VRT a couple of weeks ago. Your story makes me feel more comfortable trusting the process. Just thought I would let you know that years later you are still helping people.
@sudo_rideurbike2792
@sudo_rideurbike2792 Жыл бұрын
Weirdest positive news story for me yesterday where after waiting for an appointment at the regions leading balance center and having all of the tests done yesterday it was confirmed that I have damage to the signal from my lower semi-circular canal in my left ear and my doctor did say I will eventually get back to 100% but it will take time. I am feeling better than I was when I posted the original comment 2 months ago, but having confirmation that this is what is wrong and that its slowly getting better is great and takes a huge weight off my thoughts.
@SheilaBR
@SheilaBR 5 ай бұрын
How are you now?
@savant416
@savant416 2 жыл бұрын
Wow.. i really needed this.. I have unilateral vestibular weakness.. and have some of the symptoms you’ve explained!! Ive been dealing with this issue since December 2020.. thank you for giving me some hope!
@MySweston
@MySweston 10 ай бұрын
I realise it's an old video but I'm so glad I found this, I'm not as bad as you sound but very very sick and balance rubbish. So scared because I live alone, just had my second hospital stay. Your video has brought hope to my troubled head! Gonna contact my doctor about therepy, was it like a physio you saw? I have a fantastic guy the helps me with sciatica. Hearing your symptoms I realise I've had this longer than I thought but you have given me hope. Thank you. 😘😘
@richardcrane7169
@richardcrane7169 2 жыл бұрын
Hi Lindsey your videos have been a big help for me and I definitely think unless you have had this, people will never understand how day to day life can be torture. I feel I am similar to yourself as I'm a very active and busy person I'm 2 months in and have had good and bad days my dizzy spells are getting less and less and my headaches which were terrible at the beginning are now happening for 10-20 minutes periods instead of all day what I mainly struggle with is the feeling of 'not being present' and my eyes feel exhausted all the time apart from the first few days (of which I was bed ridden) I have tried to live my life as normal as possible, I have been working and running and playing football (even though its very hard to do so) what I have found is I have my worse days when I'm tired and stressed and haven't been looking after myself i.e. drinking and not getting proper sleep I have a stag do in June and I and hoping to be near 100% by then - I just cant wait for that first day that I feel 'normal' i do think that the worry and anxiety makes it so much worse - positive thoughts are a must with this! I going to live as healthy as I can for the next 2-3 months like you did and I'm hoping this will make a difference thank you for your video's they have really given me hope when I thought my life was over I don't know what I would have done without them
@jonijohnson6563
@jonijohnson6563 4 жыл бұрын
Lindsey: You are my hero. Your explanation of this virus helped me more than you will ever know. I have an acoustic neuroma, so when I got vestibular neuritis, I thought it was my tumor. Gratefully, I have recovered and I thank you for sharing your knowledge.
@lindsey8081
@lindsey8081 4 жыл бұрын
That is a really nice thing to say, I'm honored. Very glad to have helped!
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how long did recovery tak?
@jonijohnson6563
@jonijohnson6563 3 жыл бұрын
@@saintlywig5123 It was months. I’m thinking five to six.
@laurahill6321
@laurahill6321 4 жыл бұрын
Lindsay , thank you so much for posting this Iam emotional today as its one year ago today I got vestibular neuritis ( well took three months to be diagnosed), I was so off balance I had to relearn to walk , I haven't been at work for a year , but guess what? I start working again Monday ! , I haven't fully recovered still have shitty issues but go weeks without symptoms and then maybe feel " off" like today , but can do everything I did before I got sick , my heart goes out to anyone who has this vestibular disorder, but your right Lindsay trust your body and brain and believe in yourself ! , Iam so happy you are better , I watched your videos when I first got ill to help me . , thank you and all the best ! .
@lindsey8081
@lindsey8081 4 жыл бұрын
look how far you've come!!! Congrats! so glad to have been a source of encouragement for you as you recovered.
@jayn157
@jayn157 3 жыл бұрын
thank you so much for this video, I have symptoms since last week and it's been very dreadful and scary.
@life-mm5do
@life-mm5do 3 жыл бұрын
kzbin.info/www/bejne/rZ_Vf5Z5jLx0rdU. This is a link to a vestibular physical therapist specialist. She has 6 videos with demonstrations of exercises to help you recover .
@MW-hz4mt
@MW-hz4mt 4 жыл бұрын
Thanks your video gives so much clarity and insight. My friend was recently went to the hospital with some strange symptoms, since they are diabetic we assumed it was the problem. No it was explained my friend was suffering from vertigo. Now after listening to your video we both see why the diagnosis was made and more importantly how to move forward! Wishing you well on your way to recovery! And thanks again!👍🙏😉✊💯
@lindsey8081
@lindsey8081 4 жыл бұрын
So glad the videos were helpful!
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are they now?
@MW-hz4mt
@MW-hz4mt 3 жыл бұрын
@@lindsey8081 ...much better. Thanks again👍🙏😊
@denanechama5563
@denanechama5563 Жыл бұрын
I did not compensate fully. I was dizzy almost always but life can be great even so. I danced, jumped around the house, walked, ran, traveled, and could drove hours. At 3.5 years I decided to do VRT again and it made a difference. Got hit again 5 weeks ago and its ROUGH. But I plan to get better...and even more better.
@stacybrenda6205
@stacybrenda6205 5 ай бұрын
Hello ,how are you doing now ?? Had VN for one year and four months ,for me it's actually being a rollercoaster I am okay now but I have moments plus the trauma that VN leaves you with is absolute horror ,but overall I am better ,how are you??
@haroldtiller3162
@haroldtiller3162 11 ай бұрын
So happy for you.
@SandraMunoz-cr2ei
@SandraMunoz-cr2ei 5 ай бұрын
Thank-you Lindsey! Your story has given me HOPE 🫶🏻
@lizzhubert4280
@lizzhubert4280 3 жыл бұрын
Hey Lindsey, I'm moving into my 6th month with VN. Wobbly days, slight eye blurriness still, ear pressure...but my biggest issue daily is a constant "headiness" like always a bit disassociated, never fully present. It's like the last part...trying to break through the invisible glass and back to "me". Wondering if you experienced the same for a length of time? Thanks for your time, and for your positive, wonderful, hope filled videos! I hope you're well!
@lindsey8081
@lindsey8081 2 жыл бұрын
hopefully you are feeling better! This is a late reply, I've not been checking my comments, sorry! I did feel a lot of what you are describing the first 6 months pretty consistently and then once and a while up to the first year mark. I am well! Life is good and I am healthy :)
@SEA-BASS1
@SEA-BASS1 11 ай бұрын
Wondering how you are feeling now? This seems to be the last bit for me 4 months in! Just a slight dissociated,detached, dreamlike state. Thanks
@jeffcuellar974
@jeffcuellar974 11 ай бұрын
⁠@@SEA-BASS1I been struggling with VN since 1/2/22 going on 2 years now.. I had the dreamlike felling for quite some time.. Maybe the first 8 months were the worst.. Then some days i would wake up feeling like it wasn’t me.. And the worst part was the tugging sensation on the top of my head.. Im almost on my 2 year mark.. And still occasionally have the tugging sensation.. But overall 90% healed.. From all The Dizzy and disoriented feeling.. Stay hopeful and very active.. We got this 🙏🏻
@renougasandira4634
@renougasandira4634 4 жыл бұрын
Thank you for putting your videos together, with all the updates. Helpful and encouraging! Wish you the very best in your fully recovered active and happy life.
@bethgrokulskycummins6067
@bethgrokulskycummins6067 4 жыл бұрын
Thank you so much :) four months in and hoping to get to where you are! Thank you for the hope and encouragement ❤️
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@bethgrokulskycummins6067
@bethgrokulskycummins6067 3 жыл бұрын
@@saintlywig5123 Truthfully, I didn't get over the lack of focus until about the 7.5 month mark. After that everything was really great! I still have flare ups though that - literally as of today as I went to see a Neuro-Opthamologist this morning! - my neuro definitely thinks are due to migraines (I'm also 15 months postpartum with my third baby, and all that comes with that has contributed). I still do VRT, and although I wish I never had any symptoms, I definitely think I am over the worst of it!
@MrRavsta88
@MrRavsta88 4 жыл бұрын
Hi there. I have recently been suffering from vestibular balance issues due to a vestibular migraine. That’s causing me PPPD. I am currently going through the worst 3 weeks of my life. Utterly depressing and full of anxiety. I’m trying to stay hopeful at the moment my entire life is on hold and career. I am thankful for videos like yours they’re giving me a glimmer of hope. Thank you very much. I would love to one day upload videos like this my self.
@MajesticWorks
@MajesticWorks 2 жыл бұрын
How are you now
@MrRavsta88
@MrRavsta88 2 жыл бұрын
@@MajesticWorks Hi. So I still have symptoms however i have learned to adjust and still live a full happy life. I can still do 90% of the things i used to do its been a process however i have accepted it. Continued to work and progress in my career. Be active and achieve new fitness goals. Its a process both mentally and physically I am still positive it will go away. habitualization is key
@jelimagna
@jelimagna 4 жыл бұрын
You’re awesome for that. 🙊🙏🏾
@youzeri
@youzeri Күн бұрын
You helped me Thanks from Algeria
@ChristyAnnMartinePoet
@ChristyAnnMartinePoet 4 жыл бұрын
Thank you for this update Lindsey, it's wonderful that you're doing so well!
@anotherblonde
@anotherblonde 4 жыл бұрын
Thank you so much for giving me hope. I am 21 days with it !!! Still profoundly spinning.
@lindsey8081
@lindsey8081 4 жыл бұрын
it won't always be as horrible as it is for you right now. promise. things get better. try to move as much as you are able. the sooner the better.
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@anotherblonde
@anotherblonde 3 жыл бұрын
@@saintlywig5123 Hi, yes a year on, I still have issues. I can now walk, in a straight line ! I can speak, but not hold a lengthly conversation. No driving. I write backwards, draw clocks backwards, , have a number blindness, and have had no therapy or treatment due to lockdown in the UK. What a lovely surprize for you to check on me. Typing uses my left hand as well as right, so I can compensate. My taste and smell are back but I have terrible tinnitus.
@reesejiang4872
@reesejiang4872 3 жыл бұрын
Thank you very much. You really gave me hope in my darkest time.
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@reesejiang4872
@reesejiang4872 3 жыл бұрын
@@saintlywig5123 Hi there! I am getting so much better, feeling closer to full recovery each day.
@charlotteo89
@charlotteo89 4 ай бұрын
Thanks for this! I’m 1year 2 months in xx
@jakelee7081
@jakelee7081 4 жыл бұрын
Thanks for sharing. You have given me confidence. It's really wonderful to hear you talk about your recovery & your way/approach to achieve that. I'm doing exactly what you have done & I'm feeling much better now. Tinnitus is still with me but I can accept that. No problem at all. I'll keep to my routine of 8/9 hrs sleep, rest when tired, exercise everyday, going to the malls, eating right, drink water & be happy. Thanks again. God bless you.
@lindsey8081
@lindsey8081 4 жыл бұрын
chin up! good work!
@shawneehellman3621
@shawneehellman3621 2 жыл бұрын
I’m so happy to hear this!!! Working though my journey with this and so happy to see such a positive outcome!!! ♥️ it’s a tough road! But pushing though!!! Thank you so much!
@kathleenalquist7594
@kathleenalquist7594 Жыл бұрын
Super helpful! What vitamins did you take? Any foods you found triggered it? Acupuncture really helped me. Also going to visit my chiropractor. Thanks!
@laceys7050
@laceys7050 4 жыл бұрын
Thank you for the update! So good to hear from you💖
@almatorres3081
@almatorres3081 2 жыл бұрын
Thanks for sharing. I’m currently on Vestibular neuritis recovery.
@pigjones2724
@pigjones2724 Жыл бұрын
Hru now I’ve had boat feeling for almost 5 months
@sarahp8937
@sarahp8937 4 жыл бұрын
So exciting to watch this and gives hope. Can you please share what exercises you did? Web links etc would be amazing. Love from Australia 💜
@carnivoreyogini1576
@carnivoreyogini1576 3 жыл бұрын
Thank you for posting this! xoxox
@josephyoung5381
@josephyoung5381 4 жыл бұрын
Been dealing with something for 6 months. Vestibular neuritis has been mentioned but no one has said it definitively. Based on my MRI and CT and all my other tests being normal it seems like VN is the best guess. I was watching a few VN videos online and 100% props to you for making these and keeping them going. It's very reassuring to hear that if this is VN I can be normal one day. I did have a few questions. 1. Did the sensation of fullness in your ear ever go away? 2. When you say your ear is 40% loss, is that hearing, balance or both? 3. Did you feel pressure in your head? (kind of like sinus pressure) I feel it less in the mornings and it makes me think the pressure is just the eye strain of me compensating for the dizziness.
@lindsey8081
@lindsey8081 4 жыл бұрын
Great questions! 1. Yes, the fullness in my ears went away. 2. I have 49% loss of function on the right. No hearing loss, just some tinnitus now. 3. I had so much head pressure. It would change through out the day depending on what I did that day. That's gone, too. My MRI looked normal besides chronis inflammation of my sinuses. What confirmed vn was getting a VNG. Mainly, the caloric test was my big indicator. I'd ask to get that test asap.
@josephyoung5381
@josephyoung5381 4 жыл бұрын
@@lindsey8081 Glad to hear the ear fullness goes away. Its felt that way for a month and at first it just felt like I needed to pop my ear and I couldn't, like just stuffy. Now it feels like waking up with a dead piece of my own head. The first thing I do every morning is rub my fingers together and test the hearing in that ear and of course breath a sigh of relief that is sounds mostly like the other ear. Because I'm only just now experiencing the ear fullness, the current ENT I'm seeing (ENT number 4) wanted me to take a course of anti virals just in case I'm still fighting the original bug 6 months later. He also signed me up for Vestibular rehab. Based on your videos and others it seems that activity and guided rehab are the best medicine. I was trying to express to everyone the panic attacks and feeling like the nerves in my whole body are just fried from dealing with this dizziness and slight vertigo every waking moment. Some nights it hard to sleep because the bed and room start to float away and I feel like I'm going to fall and then I open my eyes and the room comes back but then I have to try to fall asleep all over again. I'm not sure the names of all the balance test I have done. I did the cold water warm water in the ears test, the spinny chair in the dark test and the one were they hook electrodes to my head. And of course basic hearing tests. The findings were basically that I had a slight problem with sway detection and that my eyes and my ears were slightly out of sync. So no one has said VN definitely but I think its the working theory moving forward. Thanks again for the info, sharing your story and keeping updated. Maybe when this is all over I should do the same.
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@josephyoung5381
@josephyoung5381 3 жыл бұрын
@@saintlywig5123 Still dealing with it. After 6 months it got worse. It's been 18 months since the start. The current theory now is that is it not Vestibular Neuritis but instead a Vestibular Migrain. This seems to be supported by the fact that when I started on propranolol (a blood pressure med) and Paxel (depression med) I did experience some of the first relief I've had since it started. Even though migrain is not what those drugs are marketed for they have certain properties that can help migrain. The drugs help but they by no means make me normal. I'm still doing my vestibular exercises and trying any other treatments I can come up with. When I take my propranolol and paxel, drink lots of water and eat some turmeric gummies regularly I feel almost normal.
@susanthuwaini3139
@susanthuwaini3139 4 жыл бұрын
I love your videos! Thank you for the update almost 6 months into this horrible illness! When Did the balance swaying and rocking sensation go away?? Mine is still there 😩 I just had a set back! Please help I’m hopeless sometimes and cry my self to sleep! All I have is faith in god that is helping me get through the roughest days of my life
@lindsey8081
@lindsey8081 4 жыл бұрын
I think it's different for everyone, dear. By 6 months I wasnt really dealing with feeling off balance anymore. Most of the daily symptoms left for me to deal with were visual (bouncy vision, blurred, hard to focus, trouble making sense of what I was looking at when I was running or biking) and I'd feel motion sick occasionally. I definitely cried myself to sleep on kore than one occasion. I'm sorry you're struggling. It's hard, I know.
@susanthuwaini3139
@susanthuwaini3139 4 жыл бұрын
Lindsey McKelvey thank you for replying , congrats on your recovery
@marianelamiraglio27
@marianelamiraglio27 4 жыл бұрын
@@lindsey8081 hello I have been doing vrt for more than a year, I feel that the exercises no longer make me dizzy, the last symptom I have is about vision, will the exercises help to correct that? thanks
@tasneemakhtar166
@tasneemakhtar166 4 жыл бұрын
Hi lovely, I have watched your recovery many times. Thanks for the encouraging video. I’m in month 8. The anxiety is the worst! Being a positive person all my life. This was debilitating. Didn’t take anything for anxiety. Just started to run long distances. As I’m a runner. Thanks sending love from UK.
@lindsey8081
@lindsey8081 4 жыл бұрын
I agree, the anxiety is awful. I really think running was one of the best things to help with all aspects of this illness. There would be times I'd be running and my vision would be bouncing all over the place but I'd be so happy to be running that I wouldnt care that I couldn't see straight. It was so freeing.
@tasneemakhtar166
@tasneemakhtar166 4 жыл бұрын
Lindsey McKelvey Yes I’m glad that you have been consistent about tour recovery journey. Giving updates, unlike others who do not post anything once they have recovered. Xx
@edzukation
@edzukation 4 жыл бұрын
Ask the doc about propranolol
@jennysantander5238
@jennysantander5238 4 жыл бұрын
Thanks Lindsey for this update. It's help a Lot. I start the symptons agains . Last year for the first time start. But they never goes.
@lindsey8081
@lindsey8081 4 жыл бұрын
so sorry. sending hugs and good days your way
@saintlywig5123
@saintlywig5123 3 жыл бұрын
how are u now?
@Its_ur_girl12
@Its_ur_girl12 2 жыл бұрын
Thank you for the update ❤️❤️❤️
@beestar504
@beestar504 2 жыл бұрын
Thank you for such an inspirational story!!! Its so good see a successful FULL recovery story!!! I feel very blessed and I thank you for your thoughtfulness in making this video for sufferers My question I have is did you or do you have any sleep issues from VN, and what did you do get more/better sleep?
@moonshinehikes3107
@moonshinehikes3107 2 жыл бұрын
Once I was asleep I was fine and would sleep forever- like 10 hours. The falling asleep was hard because I was anxious, felt dizzy sometimes, and my ears were ringing. So I used a sound machine and took supplements that were supposed to help with anxiety. Ultimately, once I was taking lexapro, the anxiety issues relaxed and I could fall asleep easily
@beestar504
@beestar504 2 жыл бұрын
@@moonshinehikes3107 WOW, youre so amazing, thank you for your fast reply!! My issue is i have to sleep in an inclined position on my back, to keep me from having "falling" vertigo sensations interrupt my sleep (i am out of the acute stage, btw). Also, if i sleep on my side, espescially my right side, I'll wake up after an hour or two with bad dizziness (either side), and burning sensations in my ear canal (right side only). Its to the point where I kinda have to use pillows or a wall to "restrain" my head from moving at all, lol. I have to keep my head straight and not move at all. Its to the point where im about to google for some type of sleeping head straps or something, lol. Usually i'll get 5 to 6 hours of sleep (not enough for me, but enough to get through the day) but only like 1-2 hours on bad days. Its less a huge issue and more of me trying to intervene with a plan before it does become a huge issue for me. I am on my second month into my recovery btw. It seems like you did not have to deal with this issue, which I am VERY GLAD that you have been able to avoid!
@moonshinehikes3107
@moonshinehikes3107 2 жыл бұрын
@@beestar504 God that sounds terrible. I didn't have it that bad but I did have to stop sleeping on my right side for the first 6 months and in the early stages it felt better to be propped up more than usual (typically I like a very flat pillow but I was doubling them up). It would sometimes take me hours to finally fall asleep I had so many weird sensations in my body and could not relax. But luckily once I was asleep I could stay asleep. Good luck. Getting sleep is so important in recovery!
@beestar504
@beestar504 2 жыл бұрын
@@moonshinehikes3107 tbh, for me, its still pretty bad I guess, but I've been more pre-occupied with sorting out the traumatic feelings, which I feel waaay better about recently (to which your video helped out even more, I am SO THANKFUL!), so the sleep thing felt more annoying at this point than anything, and I currently view it more as a preventitive measure for me. Now that the vertigo stage is gone, I feel like I want to attempt a step forward to try and sleep more like you did on your left side and with one extra pillow (instead of, like, 3, lol). I tried it once before, and though I still felt dizzy waking up, i felt it was successful. Small steps like these for me I feel is what will help me get back to normal, so your viewpoint is very encouraging. I was always a side-sleeper anyways, so if I can make this, this potential victory will make me feel amazing haha Also, I think getting back out and exercising to the level I did before this all happened will probably help with that issue for me alot too. Again, I feel your story helps me with that too (THANK YOU ONCE AGAIN!)
@beestar504
@beestar504 2 жыл бұрын
Just a quick update: I laid down on my left side looking at my phone as a test run, and then ended up sleeping 4 and a half hours (nap) with NO dizziness....Operation success!
@shawneehellman3621
@shawneehellman3621 2 жыл бұрын
Hello! I am so glad to hear your doing good! I have been going through this for 6 months now. I had gallbladder surgery with this also so I have a real issue with eating. I couldn’t eat in the beginning but now I am eating more but I still have such issues with my head and feeling so weird with eating and drinking water. Hate this crap so much! Did you have issues with eating? Would love to know what is vastibular vs what is gallbladder or gut issues. Thanks for your time. I love this, gives me such hope!
@lindsey8081
@lindsey8081 2 жыл бұрын
I had a hard time eating in the beginning because the dizziness made me nervous and nauseous. Had zero appetite until I got on lexapro for the anxiety.
@sheldonmodon4134
@sheldonmodon4134 8 ай бұрын
Awesome video
@BB-or8gi
@BB-or8gi 2 жыл бұрын
PLEASE DO ANOTHER VIDEO PLEASE!!!! Please give us another update. Triggers, Relapses/“bad days”, anxiety etc. please give us an update.
@lindsey8081
@lindsey8081 2 жыл бұрын
Hi! I'm alive and well and living a full and vibrant life!! No relapses to note. 4 years post initial illness and I'm doing great! I still have ringing in my right ear. It's minor and does not cause me any issues in my life. I'm more sensitive to car sickness and am a little unsteady on my feet in total darkness. honestly, I don't notice these things and live a very active life. I just finished a 5 month hike and drove across country twice last month.
@jameskendall3591
@jameskendall3591 4 жыл бұрын
Hi from UK Lindsey, thank you so much for these updates. It's really helped to understand your progress especially the fact you have a physical job. I am also very physical and really hope to get back to my hobbies of wakeboarding and snowboarding soon (once we're all out of lockdown!). My exercise rehabilitation is going well and I can do most things but it seems that all of my balance is still with my eyes and with my touch. As soon as I close my eyes my balance completely disappears. Was this something you had and did this correct itself over time? Was there anything you did to help with this? Thanks once again and stay safe in these difficult times! James 😊👍
@lindsey8081
@lindsey8081 4 жыл бұрын
Yes! Once I got to a place in my PT where I could stand on one foot with my eyes open and not fall I would then start practicing doing it with my eyes closed. I still sway some when I close my eyes. Our brains rely on our vestibular system for balance along with vision and touch (think feet on the ground). So when we close our eyes we are taking away the visual, and you brain is probably heavily relying on that right now because your vestibular system isnt functioning at 100%. When I closed my eyes I focused on planting my feet squarely on the ground and focused in on how that felt. My balance got better that way. I did a lot of exercises aimed at letting my brain use other information for balance besides just vision. So, balancing on one foot or feet in a line while watching a really busy video- having something in my visual field that didnt match what i was doing my my body- so my brain could learn to tone out the visual input and rely more on the physical input. make sense?
@jameskendall3591
@jameskendall3591 4 жыл бұрын
@@lindsey8081 yes that's very useful! Thank you! I think there's no substitute for hard work is there? I think putting your brain into new movement scenarios with eyes closed and trying to concentrate on understanding where your body is can really help. I'll try to do that more! It's not a fast and easy recovery is it? Thanks once again and stay safe! 😁👍 x
@lindsey8081
@lindsey8081 4 жыл бұрын
@@jameskendall3591 Sadly, no, not a fast and easy recovery if you are dealing with a chronic case. Some lucky ducks stay in that acute phase and go back to normal fast without really doing anything...lucky bastards! But once you are past a few weeks, you usually have anywhere from 3 months to a year of hard work ahead of you. (doesn't mean your life has to stop that whole time, but yeah, lots of work!)
@richardcrane7169
@richardcrane7169 2 жыл бұрын
@@jameskendall3591 hi james I have read your comments and just wondered if you are now better and how long did it take? I'm 2 months in having a very bad day and need some desperate inspiration hope you are well
@MToraldo
@MToraldo 3 жыл бұрын
Thank you for this!!!
@lunaviolet-f4t
@lunaviolet-f4t 7 ай бұрын
thank you so much!
@erinleyden6632
@erinleyden6632 Жыл бұрын
thank you for this.. Day 7 im terrified.
@tomektalk4671
@tomektalk4671 3 ай бұрын
Thanks for this.
@SEA-BASS1
@SEA-BASS1 9 ай бұрын
Did you ever come off your SSRI? The lexapro took all of my symptoms away, but I recently tapered off due to side effects and they came back. At this point around 6 months in. I’m trying now to heal naturally. I feel the lexapro was masking the illness although it did help greatly.
@erikakonrad7036
@erikakonrad7036 9 ай бұрын
Hi, I want to ask the same! I am in VN in 7. th month and I am thinking of ask my foctor to give me SSRI. This illness makes me totally hopeless, But I heard that it could be better to heal naturally I dont know Please Lindsey help us with an advice Thanks in advance!
@arturoortiz1251
@arturoortiz1251 2 жыл бұрын
Hi!! Thanks for share your story, it really gives me hope. Do you think the symptom of feeling off of balance can be caused by anxiety too? Im not dizzy anymore is just that feeling, that is triggered in close spaces
@life-mm5do
@life-mm5do 2 жыл бұрын
kzbin.info/www/bejne/rZ_Vf5Z5jLx0rdU. A vestibular physical therapist
@milleb7825
@milleb7825 4 жыл бұрын
Thank you so Much for this video... i am 11 months in, and Some days are okay, and other days it is just horrible 🙁🙁 did you get anxious after you started on medicine? And What vitamins did you Take? And did you avoid sugar, coffee.....? Greetings from Denmark 😊😊
@lindsey8081
@lindsey8081 4 жыл бұрын
being on meds took my anxiety away (i was taking lexapro) and made things a lot better for me to manage. I took vitamin b, D, and c daily. magnesium as well. I never quit drinking coffee, just had a little less when I was feeling anxious. I did stop drinking booze for a bit.
@milleb7825
@milleb7825 3 жыл бұрын
@@lindsey8081 thank you for taking the time to anwser me, it means alot 😊 i watch your videoes when it all feels hopeless.. they make me feel Better, so thank you for making them. 😊
@blancacasillas8226
@blancacasillas8226 Жыл бұрын
Lindsay, I was also left with tinnitus (static & fluttering sounds) I am trying to cope but I cry everyday depressed. Contemplating antidepressants but scared of taking them 😭😩
@mandyrose5822
@mandyrose5822 4 жыл бұрын
I've watched some of your other videos and like to know how your ectushian(sp) tubes are after two years. And, also sound sensitivity? Thank you for making these videos. God bless you xx
@lindsey8081
@lindsey8081 4 жыл бұрын
I'm back to normal for sound sensitivity. My eustacian tubes are almost completely normal. They don't pop and stick anymore when i move my head, but they are sometimes still a little sticky sounding. Hard to describe. They don't bother me one bit though.
@mandyrose5822
@mandyrose5822 4 жыл бұрын
That's wonderful to hear. Would your eustachian tubes pop/ crackle when chewing or yawning, or only when you moved your head? I was dignosesed with ETD but I have all the other symptoms dizziness, brain fog, stiff neck and full feeling in my head, so I don't think its just my eustachian tubes. Looking forward to your reply. Thanks for making these video
@lindsey8081
@lindsey8081 4 жыл бұрын
@@mandyrose5822 For a few months, they would pop, crackle, stick, sound gunky whenever I moved my head side to side, yawned, opened my mouth wide, etc. It was SO ANNOYING. not a problem like it was. I'd look further into your diagnosis, you could possibly have something going on in your inner ear, such as vn.
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